cf is merciful

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Emily65Roses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>
The odds of being struck by a bus or being killed in a bus-related accident are 1 in 500 million.

The odds of a person with CF dying before reaching age 37 are 1 in 2.
</end quote></div>

This is a fantastic piece of information and I'm throwing it at the next person that gives me that BS comparison. Thanks for putting it that way, it's perfect. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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Emily65Roses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>
The odds of being struck by a bus or being killed in a bus-related accident are 1 in 500 million.

The odds of a person with CF dying before reaching age 37 are 1 in 2.
</end quote></div>

This is a fantastic piece of information and I'm throwing it at the next person that gives me that BS comparison. Thanks for putting it that way, it's perfect. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
E

Emily65Roses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>
The odds of being struck by a bus or being killed in a bus-related accident are 1 in 500 million.

The odds of a person with CF dying before reaching age 37 are 1 in 2.
</end quote></div>

This is a fantastic piece of information and I'm throwing it at the next person that gives me that BS comparison. Thanks for putting it that way, it's perfect. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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christyisnutz

Guest
I have to agree. I hate that analogy too. It really doesn't make a bit of sense!!!! ANYONE could get hit by a bus.. BUT not just anyone could die from CF, or have all of the problems that are associated with CF. For a healthy person to use that analogy to try and explain how fragile life is, or how THEY could die any minute just like we could, is just plain insensitive. Just my opinion of course!
 
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christyisnutz

Guest
I have to agree. I hate that analogy too. It really doesn't make a bit of sense!!!! ANYONE could get hit by a bus.. BUT not just anyone could die from CF, or have all of the problems that are associated with CF. For a healthy person to use that analogy to try and explain how fragile life is, or how THEY could die any minute just like we could, is just plain insensitive. Just my opinion of course!
 
C

christyisnutz

Guest
I have to agree. I hate that analogy too. It really doesn't make a bit of sense!!!! ANYONE could get hit by a bus.. BUT not just anyone could die from CF, or have all of the problems that are associated with CF. For a healthy person to use that analogy to try and explain how fragile life is, or how THEY could die any minute just like we could, is just plain insensitive. Just my opinion of course!
 
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littledebbie

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>

The odds of being struck by a bus or being killed in a bus-related accident are 1 in 500 million.

The odds of a person with CF dying before reaching age 37 are 1 in 2.

I'm so sick of people using the bus accident analogy. It's utterly ludicrous for many reasons, not the least of which is that <u>it paints bus drivers in a bad light</u>.
</end quote></div>

haaa....I think I peed my pants laughing...poor maligned bus drivers around the world!
 
L

littledebbie

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>

The odds of being struck by a bus or being killed in a bus-related accident are 1 in 500 million.

The odds of a person with CF dying before reaching age 37 are 1 in 2.

I'm so sick of people using the bus accident analogy. It's utterly ludicrous for many reasons, not the least of which is that <u>it paints bus drivers in a bad light</u>.
</end quote></div>

haaa....I think I peed my pants laughing...poor maligned bus drivers around the world!
 
L

littledebbie

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>

The odds of being struck by a bus or being killed in a bus-related accident are 1 in 500 million.

The odds of a person with CF dying before reaching age 37 are 1 in 2.

I'm so sick of people using the bus accident analogy. It's utterly ludicrous for many reasons, not the least of which is that <u>it paints bus drivers in a bad light</u>.
</end quote></div>

haaa....I think I peed my pants laughing...poor maligned bus drivers around the world!
 
S

shamrock

New member
I should probably add a bit to my post when I said I would much rather have cf then be blind or deaf:

I have a friend who is deaf and she leads a great life and the deaf community are always great, and great fun to be with. Her life isn't limited in any way; she has known no different having never been able to hear before. I guess its like asking someone what its like to have two arms instead of three; You don't miss what you haven't had. People who are deaf or blind (or both), perhaps are able to do things in life that pwcf can't due to physical limitations or simply a lack of time.

BUT having lived my life so far, there is nothing I would change. I guess from a 'hearing and seeing' perspective I would hate to know that that is what I am missing. I guess having had the life I have, I would choose cf over other disabilties or limitations any day. I think of all the people I have met and all the experiences I have been through...I guess I am not someone who lives with regret....

Life is what you make it so make it good.
 
S

shamrock

New member
I should probably add a bit to my post when I said I would much rather have cf then be blind or deaf:

I have a friend who is deaf and she leads a great life and the deaf community are always great, and great fun to be with. Her life isn't limited in any way; she has known no different having never been able to hear before. I guess its like asking someone what its like to have two arms instead of three; You don't miss what you haven't had. People who are deaf or blind (or both), perhaps are able to do things in life that pwcf can't due to physical limitations or simply a lack of time.

BUT having lived my life so far, there is nothing I would change. I guess from a 'hearing and seeing' perspective I would hate to know that that is what I am missing. I guess having had the life I have, I would choose cf over other disabilties or limitations any day. I think of all the people I have met and all the experiences I have been through...I guess I am not someone who lives with regret....

Life is what you make it so make it good.
 
S

shamrock

New member
I should probably add a bit to my post when I said I would much rather have cf then be blind or deaf:

I have a friend who is deaf and she leads a great life and the deaf community are always great, and great fun to be with. Her life isn't limited in any way; she has known no different having never been able to hear before. I guess its like asking someone what its like to have two arms instead of three; You don't miss what you haven't had. People who are deaf or blind (or both), perhaps are able to do things in life that pwcf can't due to physical limitations or simply a lack of time.

BUT having lived my life so far, there is nothing I would change. I guess from a 'hearing and seeing' perspective I would hate to know that that is what I am missing. I guess having had the life I have, I would choose cf over other disabilties or limitations any day. I think of all the people I have met and all the experiences I have been through...I guess I am not someone who lives with regret....

Life is what you make it so make it good.
 
C

coryma

New member
I am a non CFer, and am new to posting here, but have lurked for quite a while. I do have a disability for which I use crutches. The disability is spina bifida, and occurs when the spine does not form properly as a fetus. I use crutches, and always will, and always have. This is the life I have. I am currently unemployed, but this is due to a layoff, and I will be reentering the force soon, I think. I am not homebound, and have no problem with being seen in public. I follow pro soccer and college gymnastics, both of which I travel out of market several times a year for. I also enjoy photography. I am hit and miss with my own, but I like doing it, and I like witnessing others. I have to move a bit more slowly than others, but so it is.

With CF, you have other issues. Tons of meds, oxygen at times, treatments, enduring soreness after tx, making sure to wear a mask in public where warranted. But you can lead a rewarding life with all that, just as I can with all my limitations. While I take no offense at this thread or its posts, I'll just simply say it does no good to compare sob stories. Yes, we all have down days, and yes we need to acknowledge that. But we are people above all else. I was able to meet in person a CFer that I had communicated with online recently. She was the guest of honor of a benefit concert in Erie to help with tx expenses.

She in her mask, me in my crutches. Both of us kind of having to watch ourselves, but both having a lovely time living life at the concert. Going back to the very first post, I guess the point is, we don't need to compare ourselves in a way that looks down on the other person in order to elevate yourself. I understand that we all do, but it's not a good habit. We all have personas. We all have things that make life worth living for us. Could be a hobby, could be a loved person. Life shouldn't be a contest. Enjoy life alongside CF in the way that's most satisfying to you. For me, I'll continue to do the same, but with SB instead of CF, for better or worse.

Peace to you all, and thank you for an interesting conversation.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.sbaa.org/site/c.gpILKXOEJqG/b.2028877/k.E453/Overview.htm">http://www.sbaa.org/site/c.gpI...77/k.E453/Overview.htm</a> a bit about spina bifida

<a target=_blank class=ftalternatingbarlinklarge href="http://www.fightingtobreathe.com/aboutme.html">http://www.fightingtobreathe.com/aboutme.html</a> a CF patient I met that helped increase my interest in the condition
 
C

coryma

New member
I am a non CFer, and am new to posting here, but have lurked for quite a while. I do have a disability for which I use crutches. The disability is spina bifida, and occurs when the spine does not form properly as a fetus. I use crutches, and always will, and always have. This is the life I have. I am currently unemployed, but this is due to a layoff, and I will be reentering the force soon, I think. I am not homebound, and have no problem with being seen in public. I follow pro soccer and college gymnastics, both of which I travel out of market several times a year for. I also enjoy photography. I am hit and miss with my own, but I like doing it, and I like witnessing others. I have to move a bit more slowly than others, but so it is.

With CF, you have other issues. Tons of meds, oxygen at times, treatments, enduring soreness after tx, making sure to wear a mask in public where warranted. But you can lead a rewarding life with all that, just as I can with all my limitations. While I take no offense at this thread or its posts, I'll just simply say it does no good to compare sob stories. Yes, we all have down days, and yes we need to acknowledge that. But we are people above all else. I was able to meet in person a CFer that I had communicated with online recently. She was the guest of honor of a benefit concert in Erie to help with tx expenses.

She in her mask, me in my crutches. Both of us kind of having to watch ourselves, but both having a lovely time living life at the concert. Going back to the very first post, I guess the point is, we don't need to compare ourselves in a way that looks down on the other person in order to elevate yourself. I understand that we all do, but it's not a good habit. We all have personas. We all have things that make life worth living for us. Could be a hobby, could be a loved person. Life shouldn't be a contest. Enjoy life alongside CF in the way that's most satisfying to you. For me, I'll continue to do the same, but with SB instead of CF, for better or worse.

Peace to you all, and thank you for an interesting conversation.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.sbaa.org/site/c.gpILKXOEJqG/b.2028877/k.E453/Overview.htm">http://www.sbaa.org/site/c.gpI...77/k.E453/Overview.htm</a> a bit about spina bifida

<a target=_blank class=ftalternatingbarlinklarge href="http://www.fightingtobreathe.com/aboutme.html">http://www.fightingtobreathe.com/aboutme.html</a> a CF patient I met that helped increase my interest in the condition
 
C

coryma

New member
I am a non CFer, and am new to posting here, but have lurked for quite a while. I do have a disability for which I use crutches. The disability is spina bifida, and occurs when the spine does not form properly as a fetus. I use crutches, and always will, and always have. This is the life I have. I am currently unemployed, but this is due to a layoff, and I will be reentering the force soon, I think. I am not homebound, and have no problem with being seen in public. I follow pro soccer and college gymnastics, both of which I travel out of market several times a year for. I also enjoy photography. I am hit and miss with my own, but I like doing it, and I like witnessing others. I have to move a bit more slowly than others, but so it is.

With CF, you have other issues. Tons of meds, oxygen at times, treatments, enduring soreness after tx, making sure to wear a mask in public where warranted. But you can lead a rewarding life with all that, just as I can with all my limitations. While I take no offense at this thread or its posts, I'll just simply say it does no good to compare sob stories. Yes, we all have down days, and yes we need to acknowledge that. But we are people above all else. I was able to meet in person a CFer that I had communicated with online recently. She was the guest of honor of a benefit concert in Erie to help with tx expenses.

She in her mask, me in my crutches. Both of us kind of having to watch ourselves, but both having a lovely time living life at the concert. Going back to the very first post, I guess the point is, we don't need to compare ourselves in a way that looks down on the other person in order to elevate yourself. I understand that we all do, but it's not a good habit. We all have personas. We all have things that make life worth living for us. Could be a hobby, could be a loved person. Life shouldn't be a contest. Enjoy life alongside CF in the way that's most satisfying to you. For me, I'll continue to do the same, but with SB instead of CF, for better or worse.

Peace to you all, and thank you for an interesting conversation.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.sbaa.org/site/c.gpILKXOEJqG/b.2028877/k.E453/Overview.htm">http://www.sbaa.org/site/c.gpI...77/k.E453/Overview.htm</a> a bit about spina bifida

<a target=_blank class=ftalternatingbarlinklarge href="http://www.fightingtobreathe.com/aboutme.html">http://www.fightingtobreathe.com/aboutme.html</a> a CF patient I met that helped increase my interest in the condition
 
J

JustDucky

New member
Cory, thank you for sharing a bit of your life. I certainly know what you mean. As I have posted earlier, I have muscular dystrophy (a rare kind that presents in life in the 3rd, 4th or 5th decade, usually not too life altering unless it is the kind that affects the diaphragm, which did happen to me) and CF....If people like odds, that is about a 1 in a million shot to have both (my doc says that, I am having trouble finding odds on the type of dystrophy alone, literally about 4 papers published on the disease!!! It doesn't even have a real name, just a diiscription of distal myopathy with early respiratory failure). You sound like a very strong person who has been through alot in life as well and have a good attitude. Just keep plugging along, it is good to see you here. I like what you have to say regarding comparing disabilities, I also happen to agree that everyone who has them has their own set of problems to deal with (all in my previous posts). It's like trying to compare end stage heart disease to a brain tumor, both very serious diseases but very different to the people who live with them. Different treatments, different tests, different meds, and perhaps different life expectancies. The thing that might unite them is a fighting spirit or just the opposite might be the case. It sounds like your friend and you are meant for each other, both fighters.
Hope I am not sounding sappy here, just what my heart is telling me to write!
Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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JustDucky

New member
Cory, thank you for sharing a bit of your life. I certainly know what you mean. As I have posted earlier, I have muscular dystrophy (a rare kind that presents in life in the 3rd, 4th or 5th decade, usually not too life altering unless it is the kind that affects the diaphragm, which did happen to me) and CF....If people like odds, that is about a 1 in a million shot to have both (my doc says that, I am having trouble finding odds on the type of dystrophy alone, literally about 4 papers published on the disease!!! It doesn't even have a real name, just a diiscription of distal myopathy with early respiratory failure). You sound like a very strong person who has been through alot in life as well and have a good attitude. Just keep plugging along, it is good to see you here. I like what you have to say regarding comparing disabilities, I also happen to agree that everyone who has them has their own set of problems to deal with (all in my previous posts). It's like trying to compare end stage heart disease to a brain tumor, both very serious diseases but very different to the people who live with them. Different treatments, different tests, different meds, and perhaps different life expectancies. The thing that might unite them is a fighting spirit or just the opposite might be the case. It sounds like your friend and you are meant for each other, both fighters.
Hope I am not sounding sappy here, just what my heart is telling me to write!
Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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