compliance

[moosemom]

I am a sad case... I was diagnosed about 5 years ago (I just turned 40)... I live on the "river denial", unless of course I am in or was recently been hospitalized. My problem -- I feel no better and no worse when I am compliant or noncomplaint. It seems to be black or white and i am a very light shade of gray. If I saw a difference: felt better (although i feel pretty good these days), had better pft's (I am back up to low 70's from low 50's befoe I was thrown in the clinker last month), if i got stuff up at more opertune times instead of whenever (I get it up all on my own, so go figure)... I'd like to think I'd be more compliant. On a positive note I am compliant with the meds whether they be oral or IV it is all of the other CF and MAC crap that I HATE... I have a vest and I rarley use it make me nautious (sp) and I still don't get any thing up.

I am so grateful for this site and the insight of the experts. Perhaps someone has some words of wisdom or simply a 2 x 4 to hit me up side the head with. I fear that someday I will regret my noncompliance. But that fear and my family (2 children ages 11 & 9) to date has not enough to scare me straight.

 

[moosemom]

I am a sad case... I was diagnosed about 5 years ago (I just turned 40)... I live on the "river denial", unless of course I am in or was recently been hospitalized. My problem -- I feel no better and no worse when I am compliant or noncomplaint. It seems to be black or white and i am a very light shade of gray. If I saw a difference: felt better (although i feel pretty good these days), had better pft's (I am back up to low 70's from low 50's befoe I was thrown in the clinker last month), if i got stuff up at more opertune times instead of whenever (I get it up all on my own, so go figure)... I'd like to think I'd be more compliant. On a positive note I am compliant with the meds whether they be oral or IV it is all of the other CF and MAC crap that I HATE... I have a vest and I rarley use it make me nautious (sp) and I still don't get any thing up.

I am so grateful for this site and the insight of the experts. Perhaps someone has some words of wisdom or simply a 2 x 4 to hit me up side the head with. I fear that someday I will regret my noncompliance. But that fear and my family (2 children ages 11 & 9) to date has not enough to scare me straight.

 

[moosemom]

I am a sad case... I was diagnosed about 5 years ago (I just turned 40)... I live on the "river denial", unless of course I am in or was recently been hospitalized. My problem -- I feel no better and no worse when I am compliant or noncomplaint. It seems to be black or white and i am a very light shade of gray. If I saw a difference: felt better (although i feel pretty good these days), had better pft's (I am back up to low 70's from low 50's befoe I was thrown in the clinker last month), if i got stuff up at more opertune times instead of whenever (I get it up all on my own, so go figure)... I'd like to think I'd be more compliant. On a positive note I am compliant with the meds whether they be oral or IV it is all of the other CF and MAC crap that I HATE... I have a vest and I rarley use it make me nautious (sp) and I still don't get any thing up.

I am so grateful for this site and the insight of the experts. Perhaps someone has some words of wisdom or simply a 2 x 4 to hit me up side the head with. I fear that someday I will regret my noncompliance. But that fear and my family (2 children ages 11 & 9) to date has not enough to scare me straight.

 

[moosemom]

I am a sad case... I was diagnosed about 5 years ago (I just turned 40)... I live on the "river denial", unless of course I am in or was recently been hospitalized. My problem -- I feel no better and no worse when I am compliant or noncomplaint. It seems to be black or white and i am a very light shade of gray. If I saw a difference: felt better (although i feel pretty good these days), had better pft's (I am back up to low 70's from low 50's befoe I was thrown in the clinker last month), if i got stuff up at more opertune times instead of whenever (I get it up all on my own, so go figure)... I'd like to think I'd be more compliant. On a positive note I am compliant with the meds whether they be oral or IV it is all of the other CF and MAC crap that I HATE... I have a vest and I rarley use it make me nautious (sp) and I still don't get any thing up.

I am so grateful for this site and the insight of the experts. Perhaps someone has some words of wisdom or simply a 2 x 4 to hit me up side the head with. I fear that someday I will regret my noncompliance. But that fear and my family (2 children ages 11 & 9) to date has not enough to scare me straight.

 

[moosemom]

I am a sad case... I was diagnosed about 5 years ago (I just turned 40)... I live on the "river denial", unless of course I am in or was recently been hospitalized. My problem -- I feel no better and no worse when I am compliant or noncomplaint. It seems to be black or white and i am a very light shade of gray. If I saw a difference: felt better (although i feel pretty good these days), had better pft's (I am back up to low 70's from low 50's befoe I was thrown in the clinker last month), if i got stuff up at more opertune times instead of whenever (I get it up all on my own, so go figure)... I'd like to think I'd be more compliant. On a positive note I am compliant with the meds whether they be oral or IV it is all of the other CF and MAC crap that I HATE... I have a vest and I rarley use it make me nautious (sp) and I still don't get any thing up.
<br />
<br />I am so grateful for this site and the insight of the experts. Perhaps someone has some words of wisdom or simply a 2 x 4 to hit me up side the head with. I fear that someday I will regret my noncompliance. But that fear and my family (2 children ages 11 & 9) to date has not enough to scare me straight.

 

[jaimers]

growing up i was a 9 until i got to my senior year then i was maybe a 7. then my first couple years of college i was probably a 3 or 4. now i'm an 8/9 because i feel like such crap if i don't do my vest, nebs, etc. i'm sure my lung function could be higher if i hadn't f'd myself over my fresh/sophomore years of college when i did maybe one treatment a week. i was super healthy and i threw it away. im' an idiot. hindsight is alwasy 20/20 right?

side note:
i think it would be a little harder to be compliant if you were diagnosed later in life maybe? because its suddenly all this extra stuff you have to do and keep up with...maybe not, but it would make sense to me....

 

[jaimers]

growing up i was a 9 until i got to my senior year then i was maybe a 7. then my first couple years of college i was probably a 3 or 4. now i'm an 8/9 because i feel like such crap if i don't do my vest, nebs, etc. i'm sure my lung function could be higher if i hadn't f'd myself over my fresh/sophomore years of college when i did maybe one treatment a week. i was super healthy and i threw it away. im' an idiot. hindsight is alwasy 20/20 right?

side note:
i think it would be a little harder to be compliant if you were diagnosed later in life maybe? because its suddenly all this extra stuff you have to do and keep up with...maybe not, but it would make sense to me....

 

[jaimers]

growing up i was a 9 until i got to my senior year then i was maybe a 7. then my first couple years of college i was probably a 3 or 4. now i'm an 8/9 because i feel like such crap if i don't do my vest, nebs, etc. i'm sure my lung function could be higher if i hadn't f'd myself over my fresh/sophomore years of college when i did maybe one treatment a week. i was super healthy and i threw it away. im' an idiot. hindsight is alwasy 20/20 right?

side note:
i think it would be a little harder to be compliant if you were diagnosed later in life maybe? because its suddenly all this extra stuff you have to do and keep up with...maybe not, but it would make sense to me....

 

[jaimers]

growing up i was a 9 until i got to my senior year then i was maybe a 7. then my first couple years of college i was probably a 3 or 4. now i'm an 8/9 because i feel like such crap if i don't do my vest, nebs, etc. i'm sure my lung function could be higher if i hadn't f'd myself over my fresh/sophomore years of college when i did maybe one treatment a week. i was super healthy and i threw it away. im' an idiot. hindsight is alwasy 20/20 right?

side note:
i think it would be a little harder to be compliant if you were diagnosed later in life maybe? because its suddenly all this extra stuff you have to do and keep up with...maybe not, but it would make sense to me....

 

[jaimers]

growing up i was a 9 until i got to my senior year then i was maybe a 7. then my first couple years of college i was probably a 3 or 4. now i'm an 8/9 because i feel like such crap if i don't do my vest, nebs, etc. i'm sure my lung function could be higher if i hadn't f'd myself over my fresh/sophomore years of college when i did maybe one treatment a week. i was super healthy and i threw it away. im' an idiot. hindsight is alwasy 20/20 right?
<br />
<br />side note:
<br />i think it would be a little harder to be compliant if you were diagnosed later in life maybe? because its suddenly all this extra stuff you have to do and keep up with...maybe not, but it would make sense to me....

 

[Sevenstars]

20%??? That seems high. <img src="i/expressions/face-icon-small-tongue.gif" border="0">

Seriously though, to quote Dr. House (man I love that show) everyone lies. You'll never get a TRUE true reading of what people do at home, because there aren't too many patients that will tell their doctor "yeah I don't do a damn thing" even if that's the case.

I don't want to say my % here... it really varies quite a lot, mainly depending on my state of depression. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I do have to say THANK YOU to you guys though, when I first started coming here, I got quite a boost, I would say my compliance was about 98% for 4 months straight. Truly a lifetime record for me. <img src="i/expressions/face-icon-small-tongue.gif" border="0">

 

[Sevenstars]

20%??? That seems high. <img src="i/expressions/face-icon-small-tongue.gif" border="0">

Seriously though, to quote Dr. House (man I love that show) everyone lies. You'll never get a TRUE true reading of what people do at home, because there aren't too many patients that will tell their doctor "yeah I don't do a damn thing" even if that's the case.

I don't want to say my % here... it really varies quite a lot, mainly depending on my state of depression. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I do have to say THANK YOU to you guys though, when I first started coming here, I got quite a boost, I would say my compliance was about 98% for 4 months straight. Truly a lifetime record for me. <img src="i/expressions/face-icon-small-tongue.gif" border="0">

 

[Sevenstars]

20%??? That seems high. <img src="i/expressions/face-icon-small-tongue.gif" border="0">

Seriously though, to quote Dr. House (man I love that show) everyone lies. You'll never get a TRUE true reading of what people do at home, because there aren't too many patients that will tell their doctor "yeah I don't do a damn thing" even if that's the case.

I don't want to say my % here... it really varies quite a lot, mainly depending on my state of depression. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I do have to say THANK YOU to you guys though, when I first started coming here, I got quite a boost, I would say my compliance was about 98% for 4 months straight. Truly a lifetime record for me. <img src="i/expressions/face-icon-small-tongue.gif" border="0">

 

[Sevenstars]

20%??? That seems high. <img src="i/expressions/face-icon-small-tongue.gif" border="0">

Seriously though, to quote Dr. House (man I love that show) everyone lies. You'll never get a TRUE true reading of what people do at home, because there aren't too many patients that will tell their doctor "yeah I don't do a damn thing" even if that's the case.

I don't want to say my % here... it really varies quite a lot, mainly depending on my state of depression. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I do have to say THANK YOU to you guys though, when I first started coming here, I got quite a boost, I would say my compliance was about 98% for 4 months straight. Truly a lifetime record for me. <img src="i/expressions/face-icon-small-tongue.gif" border="0">

 

[Sevenstars]

20%??? That seems high. <img src="i/expressions/face-icon-small-tongue.gif" border="0">
<br />
<br />Seriously though, to quote Dr. House (man I love that show) everyone lies. You'll never get a TRUE true reading of what people do at home, because there aren't too many patients that will tell their doctor "yeah I don't do a damn thing" even if that's the case.
<br />
<br />I don't want to say my % here... it really varies quite a lot, mainly depending on my state of depression. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I do have to say THANK YOU to you guys though, when I first started coming here, I got quite a boost, I would say my compliance was about 98% for 4 months straight. Truly a lifetime record for me. <img src="i/expressions/face-icon-small-tongue.gif" border="0">

 

[sheanna]

I'd say I'm about 8ish, but in a weird way <img src="i/expressions/face-icon-small-smile.gif" border="0">

I do my treatments every day, but I don't exercise nearly as much as I should. I also am just getting a vest again as I had one when I was very young, it just never did anything so my doctor took me off of it since it didn't do anything. I'm still very healthy though...

My CFRD on the other hand, I'm not quite so hot on. My A1C is currently at 7.3% right now, and I am pretty good for the most parts, but some days I just don't do what I should. I know it's horrible to do, but I'm still getting the hang of it since I was just diagnosed in May of last year. I'm still learning to juggle <img src="i/expressions/face-icon-small-smile.gif" border="0">

Ultimately, I just feel SO much better after my treatments that I think it is totally worth it. After I got on saline I couldn't believe how much better I felt, and how much more energy I had. Ultimately, I think if I get better with my blood sugar and exercise a couple more days a week, I will be in pretty good shape.

 

[sheanna]

I'd say I'm about 8ish, but in a weird way <img src="i/expressions/face-icon-small-smile.gif" border="0">

I do my treatments every day, but I don't exercise nearly as much as I should. I also am just getting a vest again as I had one when I was very young, it just never did anything so my doctor took me off of it since it didn't do anything. I'm still very healthy though...

My CFRD on the other hand, I'm not quite so hot on. My A1C is currently at 7.3% right now, and I am pretty good for the most parts, but some days I just don't do what I should. I know it's horrible to do, but I'm still getting the hang of it since I was just diagnosed in May of last year. I'm still learning to juggle <img src="i/expressions/face-icon-small-smile.gif" border="0">

Ultimately, I just feel SO much better after my treatments that I think it is totally worth it. After I got on saline I couldn't believe how much better I felt, and how much more energy I had. Ultimately, I think if I get better with my blood sugar and exercise a couple more days a week, I will be in pretty good shape.

 

[sheanna]

I'd say I'm about 8ish, but in a weird way <img src="i/expressions/face-icon-small-smile.gif" border="0">

I do my treatments every day, but I don't exercise nearly as much as I should. I also am just getting a vest again as I had one when I was very young, it just never did anything so my doctor took me off of it since it didn't do anything. I'm still very healthy though...

My CFRD on the other hand, I'm not quite so hot on. My A1C is currently at 7.3% right now, and I am pretty good for the most parts, but some days I just don't do what I should. I know it's horrible to do, but I'm still getting the hang of it since I was just diagnosed in May of last year. I'm still learning to juggle <img src="i/expressions/face-icon-small-smile.gif" border="0">

Ultimately, I just feel SO much better after my treatments that I think it is totally worth it. After I got on saline I couldn't believe how much better I felt, and how much more energy I had. Ultimately, I think if I get better with my blood sugar and exercise a couple more days a week, I will be in pretty good shape.

 

[sheanna]

I'd say I'm about 8ish, but in a weird way <img src="i/expressions/face-icon-small-smile.gif" border="0">

I do my treatments every day, but I don't exercise nearly as much as I should. I also am just getting a vest again as I had one when I was very young, it just never did anything so my doctor took me off of it since it didn't do anything. I'm still very healthy though...

My CFRD on the other hand, I'm not quite so hot on. My A1C is currently at 7.3% right now, and I am pretty good for the most parts, but some days I just don't do what I should. I know it's horrible to do, but I'm still getting the hang of it since I was just diagnosed in May of last year. I'm still learning to juggle <img src="i/expressions/face-icon-small-smile.gif" border="0">

Ultimately, I just feel SO much better after my treatments that I think it is totally worth it. After I got on saline I couldn't believe how much better I felt, and how much more energy I had. Ultimately, I think if I get better with my blood sugar and exercise a couple more days a week, I will be in pretty good shape.

 

[sheanna]

I'd say I'm about 8ish, but in a weird way <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />I do my treatments every day, but I don't exercise nearly as much as I should. I also am just getting a vest again as I had one when I was very young, it just never did anything so my doctor took me off of it since it didn't do anything. I'm still very healthy though...
<br />
<br />My CFRD on the other hand, I'm not quite so hot on. My A1C is currently at 7.3% right now, and I am pretty good for the most parts, but some days I just don't do what I should. I know it's horrible to do, but I'm still getting the hang of it since I was just diagnosed in May of last year. I'm still learning to juggle <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />Ultimately, I just feel SO much better after my treatments that I think it is totally worth it. After I got on saline I couldn't believe how much better I felt, and how much more energy I had. Ultimately, I think if I get better with my blood sugar and exercise a couple more days a week, I will be in pretty good shape.