diabeties and cystic fibrosis

dasjsmum · Oct 13, 2009

Hi Murgie

It's great to hear from you! My Sam received a grat for the pump, we have a mini med. It's fantastic, highly recommended! Sam loves his pump!

The pump basically takes all the guess work out of controlling BSL, and people are able to achieve a more consistent reading....not so many highs and those scary lows.

Once Sam received his pump and we got it going it almost normalised the diabetes, you still have to measure your bgl a few times a day etc., but the pump works like (they say) a pancreas.

We apply the pump infuser with a small implement that makes it easier. Most of the time Sam says it does not hurt...he was shaking when he got it the first time, but then said it didnt hurt <img src="i/expressions/face-icon-small-smile.gif" border="0"> It is very easy to use etc., once you have the knack of it. It can be taken off for swimming etc., for two hours.

Wow, I wonder how many of our kids there are in the world, cant be too many. It was such a blow to us when we found out about the diabtetes, I'm still recovering, even though he is doing well.

The clinics operate at the same centre and we are able to access the diabetes team on the cf clinic days, so that makes it easier. Fortunately for us the hospital is only a few minutes drive.

So glad to hear from you <img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">

dasjsmum · Oct 13, 2009

Hi Murgie

It's great to hear from you! My Sam received a grat for the pump, we have a mini med. It's fantastic, highly recommended! Sam loves his pump!

The pump basically takes all the guess work out of controlling BSL, and people are able to achieve a more consistent reading....not so many highs and those scary lows.

Once Sam received his pump and we got it going it almost normalised the diabetes, you still have to measure your bgl a few times a day etc., but the pump works like (they say) a pancreas.

We apply the pump infuser with a small implement that makes it easier. Most of the time Sam says it does not hurt...he was shaking when he got it the first time, but then said it didnt hurt <img src="i/expressions/face-icon-small-smile.gif" border="0"> It is very easy to use etc., once you have the knack of it. It can be taken off for swimming etc., for two hours.

Wow, I wonder how many of our kids there are in the world, cant be too many. It was such a blow to us when we found out about the diabtetes, I'm still recovering, even though he is doing well.

The clinics operate at the same centre and we are able to access the diabetes team on the cf clinic days, so that makes it easier. Fortunately for us the hospital is only a few minutes drive.

So glad to hear from you <img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">

dasjsmum · Oct 13, 2009

Hi Murgie

It's great to hear from you! My Sam received a grat for the pump, we have a mini med. It's fantastic, highly recommended! Sam loves his pump!

The pump basically takes all the guess work out of controlling BSL, and people are able to achieve a more consistent reading....not so many highs and those scary lows.

Once Sam received his pump and we got it going it almost normalised the diabetes, you still have to measure your bgl a few times a day etc., but the pump works like (they say) a pancreas.

We apply the pump infuser with a small implement that makes it easier. Most of the time Sam says it does not hurt...he was shaking when he got it the first time, but then said it didnt hurt <img src="i/expressions/face-icon-small-smile.gif" border="0"> It is very easy to use etc., once you have the knack of it. It can be taken off for swimming etc., for two hours.

Wow, I wonder how many of our kids there are in the world, cant be too many. It was such a blow to us when we found out about the diabtetes, I'm still recovering, even though he is doing well.

The clinics operate at the same centre and we are able to access the diabetes team on the cf clinic days, so that makes it easier. Fortunately for us the hospital is only a few minutes drive.

So glad to hear from you <img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">

dasjsmum · Oct 13, 2009

Hi Murgie

It's great to hear from you! My Sam received a grat for the pump, we have a mini med. It's fantastic, highly recommended! Sam loves his pump!

The pump basically takes all the guess work out of controlling BSL, and people are able to achieve a more consistent reading....not so many highs and those scary lows.

Once Sam received his pump and we got it going it almost normalised the diabetes, you still have to measure your bgl a few times a day etc., but the pump works like (they say) a pancreas.

We apply the pump infuser with a small implement that makes it easier. Most of the time Sam says it does not hurt...he was shaking when he got it the first time, but then said it didnt hurt <img src="i/expressions/face-icon-small-smile.gif" border="0"> It is very easy to use etc., once you have the knack of it. It can be taken off for swimming etc., for two hours.

Wow, I wonder how many of our kids there are in the world, cant be too many. It was such a blow to us when we found out about the diabtetes, I'm still recovering, even though he is doing well.

The clinics operate at the same centre and we are able to access the diabetes team on the cf clinic days, so that makes it easier. Fortunately for us the hospital is only a few minutes drive.

So glad to hear from you <img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">

dasjsmum · Oct 13, 2009

Hi Murgie
 
 It's great to hear from you! My Sam received a grat for the pump, we have a mini med. It's fantastic, highly recommended! Sam loves his pump!
 
 The pump basically takes all the guess work out of controlling BSL, and people are able to achieve a more consistent reading....not so many highs and those scary lows.
 
 Once Sam received his pump and we got it going it almost normalised the diabetes, you still have to measure your bgl a few times a day etc., but the pump works like (they say) a pancreas.
 
 We apply the pump infuser with a small implement that makes it easier. Most of the time Sam says it does not hurt...he was shaking when he got it the first time, but then said it didnt hurt <img src="i/expressions/face-icon-small-smile.gif" border="0"> It is very easy to use etc., once you have the knack of it. It can be taken off for swimming etc., for two hours.
 
 Wow, I wonder how many of our kids there are in the world, cant be too many. It was such a blow to us when we found out about the diabtetes, I'm still recovering, even though he is doing well.
 
 The clinics operate at the same centre and we are able to access the diabetes team on the cf clinic days, so that makes it easier. Fortunately for us the hospital is only a few minutes drive.
 
 So glad to hear from you <img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">

Murgie · Oct 14, 2009

I am so relieved to find someone else with a personal testimony I could cry!
Indeed the diabetes diagnosis set our whole family back, but in the 3 years Sam has never been able to regulate his blood sugars so the emotional roller coaster has been challenging. I will seek out the mini pump. does it read his blood sugars?
Glad your sam is doing well

Murgie · Oct 14, 2009

I am so relieved to find someone else with a personal testimony I could cry!
Indeed the diabetes diagnosis set our whole family back, but in the 3 years Sam has never been able to regulate his blood sugars so the emotional roller coaster has been challenging. I will seek out the mini pump. does it read his blood sugars?
Glad your sam is doing well

Murgie · Oct 14, 2009

I am so relieved to find someone else with a personal testimony I could cry!
Indeed the diabetes diagnosis set our whole family back, but in the 3 years Sam has never been able to regulate his blood sugars so the emotional roller coaster has been challenging. I will seek out the mini pump. does it read his blood sugars?
Glad your sam is doing well

Murgie · Oct 14, 2009

I am so relieved to find someone else with a personal testimony I could cry!
Indeed the diabetes diagnosis set our whole family back, but in the 3 years Sam has never been able to regulate his blood sugars so the emotional roller coaster has been challenging. I will seek out the mini pump. does it read his blood sugars?
Glad your sam is doing well

Murgie · Oct 14, 2009

I am so relieved to find someone else with a personal testimony I could cry!
 Indeed the diabetes diagnosis set our whole family back, but in the 3 years Sam has never been able to regulate his blood sugars so the emotional roller coaster has been challenging. I will seek out the mini pump. does it read his blood sugars?
 Glad your sam is doing well

dasjsmum · Oct 15, 2009

Hi Murgie

I'll reply here also, just in case others are interested. The pump is really great and Sam olves it. It depends on how the inidividual likes it though, because some people dont like being connected to something extra.

Sam's BGL have stabilised heaps, they say it works like a normal pancreas...it delivers a small amount of fast acting every so often (the amount is individualised) over 24hrs, and bolus doses are given for meals and snacks.

You can eat what you like when you like (a real bonus with cf!). If Sam feels like a snack with four biscuits and a glass of milk when he gets home he can have it. Just has to bolus the exchanges or carbs (not sure what you work off, we have exchanges, every 15gm carbs is one exchange).

No need to give injections and get everything out, just pick up your small hand held pump and pop in the amount necessary. The minimed (medtronics, yes) is a very complex little machine, we had a days training for it, but Sam picked it up really quick and he sorts it all.

It is very easy to apply with the inserter for the infustion set we chose to use. Sam said didnt hurt, but occassionally does. The biggest problem he has had is getting itchy with the tape that holds the infusor in place.

Sam very rarely has hypos now. The is a device you can purchase separately from the pump which does read your BGL continuously, we dont have it, it's about $1500 here, but you might be able to get it along with the pump on your insurance. Apparently you still have to monitor your bgl though. The device is fairly small but has to be inserted undet the skin, so your Sam may not want two things stuck in him <img src="i/expressions/face-icon-small-smile.gif" border="0">

I think you and Sam will love the pump once you get it. It's about the sixe of a mobile phone, and looks a bit like one. Theres a small tube that connects it to the stuck on inserter thing that delivers the insulin. Once they have the pump they can only have it off for two hours at a time.

Ofcourse, you can always go back to injections if you dont like it <img src="i/expressions/face-icon-small-smile.gif" border="0">

dasjsmum · Oct 15, 2009

Hi Murgie

I'll reply here also, just in case others are interested. The pump is really great and Sam olves it. It depends on how the inidividual likes it though, because some people dont like being connected to something extra.

Sam's BGL have stabilised heaps, they say it works like a normal pancreas...it delivers a small amount of fast acting every so often (the amount is individualised) over 24hrs, and bolus doses are given for meals and snacks.

You can eat what you like when you like (a real bonus with cf!). If Sam feels like a snack with four biscuits and a glass of milk when he gets home he can have it. Just has to bolus the exchanges or carbs (not sure what you work off, we have exchanges, every 15gm carbs is one exchange).

No need to give injections and get everything out, just pick up your small hand held pump and pop in the amount necessary. The minimed (medtronics, yes) is a very complex little machine, we had a days training for it, but Sam picked it up really quick and he sorts it all.

It is very easy to apply with the inserter for the infustion set we chose to use. Sam said didnt hurt, but occassionally does. The biggest problem he has had is getting itchy with the tape that holds the infusor in place.

Sam very rarely has hypos now. The is a device you can purchase separately from the pump which does read your BGL continuously, we dont have it, it's about $1500 here, but you might be able to get it along with the pump on your insurance. Apparently you still have to monitor your bgl though. The device is fairly small but has to be inserted undet the skin, so your Sam may not want two things stuck in him <img src="i/expressions/face-icon-small-smile.gif" border="0">

I think you and Sam will love the pump once you get it. It's about the sixe of a mobile phone, and looks a bit like one. Theres a small tube that connects it to the stuck on inserter thing that delivers the insulin. Once they have the pump they can only have it off for two hours at a time.

Ofcourse, you can always go back to injections if you dont like it <img src="i/expressions/face-icon-small-smile.gif" border="0">

dasjsmum · Oct 15, 2009

Hi Murgie

I'll reply here also, just in case others are interested. The pump is really great and Sam olves it. It depends on how the inidividual likes it though, because some people dont like being connected to something extra.

Sam's BGL have stabilised heaps, they say it works like a normal pancreas...it delivers a small amount of fast acting every so often (the amount is individualised) over 24hrs, and bolus doses are given for meals and snacks.

You can eat what you like when you like (a real bonus with cf!). If Sam feels like a snack with four biscuits and a glass of milk when he gets home he can have it. Just has to bolus the exchanges or carbs (not sure what you work off, we have exchanges, every 15gm carbs is one exchange).

No need to give injections and get everything out, just pick up your small hand held pump and pop in the amount necessary. The minimed (medtronics, yes) is a very complex little machine, we had a days training for it, but Sam picked it up really quick and he sorts it all.

It is very easy to apply with the inserter for the infustion set we chose to use. Sam said didnt hurt, but occassionally does. The biggest problem he has had is getting itchy with the tape that holds the infusor in place.

Sam very rarely has hypos now. The is a device you can purchase separately from the pump which does read your BGL continuously, we dont have it, it's about $1500 here, but you might be able to get it along with the pump on your insurance. Apparently you still have to monitor your bgl though. The device is fairly small but has to be inserted undet the skin, so your Sam may not want two things stuck in him <img src="i/expressions/face-icon-small-smile.gif" border="0">

I think you and Sam will love the pump once you get it. It's about the sixe of a mobile phone, and looks a bit like one. Theres a small tube that connects it to the stuck on inserter thing that delivers the insulin. Once they have the pump they can only have it off for two hours at a time.

Ofcourse, you can always go back to injections if you dont like it <img src="i/expressions/face-icon-small-smile.gif" border="0">

dasjsmum · Oct 15, 2009

Hi Murgie

I'll reply here also, just in case others are interested. The pump is really great and Sam olves it. It depends on how the inidividual likes it though, because some people dont like being connected to something extra.

Sam's BGL have stabilised heaps, they say it works like a normal pancreas...it delivers a small amount of fast acting every so often (the amount is individualised) over 24hrs, and bolus doses are given for meals and snacks.

You can eat what you like when you like (a real bonus with cf!). If Sam feels like a snack with four biscuits and a glass of milk when he gets home he can have it. Just has to bolus the exchanges or carbs (not sure what you work off, we have exchanges, every 15gm carbs is one exchange).

No need to give injections and get everything out, just pick up your small hand held pump and pop in the amount necessary. The minimed (medtronics, yes) is a very complex little machine, we had a days training for it, but Sam picked it up really quick and he sorts it all.

It is very easy to apply with the inserter for the infustion set we chose to use. Sam said didnt hurt, but occassionally does. The biggest problem he has had is getting itchy with the tape that holds the infusor in place.

Sam very rarely has hypos now. The is a device you can purchase separately from the pump which does read your BGL continuously, we dont have it, it's about $1500 here, but you might be able to get it along with the pump on your insurance. Apparently you still have to monitor your bgl though. The device is fairly small but has to be inserted undet the skin, so your Sam may not want two things stuck in him <img src="i/expressions/face-icon-small-smile.gif" border="0">

I think you and Sam will love the pump once you get it. It's about the sixe of a mobile phone, and looks a bit like one. Theres a small tube that connects it to the stuck on inserter thing that delivers the insulin. Once they have the pump they can only have it off for two hours at a time.

Ofcourse, you can always go back to injections if you dont like it <img src="i/expressions/face-icon-small-smile.gif" border="0">

dasjsmum · Oct 15, 2009

Hi Murgie
 
 I'll reply here also, just in case others are interested. The pump is really great and Sam olves it. It depends on how the inidividual likes it though, because some people dont like being connected to something extra.
 
 Sam's BGL have stabilised heaps, they say it works like a normal pancreas...it delivers a small amount of fast acting every so often (the amount is individualised) over 24hrs, and bolus doses are given for meals and snacks.
 
 You can eat what you like when you like (a real bonus with cf!). If Sam feels like a snack with four biscuits and a glass of milk when he gets home he can have it. Just has to bolus the exchanges or carbs (not sure what you work off, we have exchanges, every 15gm carbs is one exchange).
 
 No need to give injections and get everything out, just pick up your small hand held pump and pop in the amount necessary. The minimed (medtronics, yes) is a very complex little machine, we had a days training for it, but Sam picked it up really quick and he sorts it all.
 
 It is very easy to apply with the inserter for the infustion set we chose to use. Sam said didnt hurt, but occassionally does. The biggest problem he has had is getting itchy with the tape that holds the infusor in place.
 
 Sam very rarely has hypos now. The is a device you can purchase separately from the pump which does read your BGL continuously, we dont have it, it's about $1500 here, but you might be able to get it along with the pump on your insurance. Apparently you still have to monitor your bgl though. The device is fairly small but has to be inserted undet the skin, so your Sam may not want two things stuck in him <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
 I think you and Sam will love the pump once you get it. It's about the sixe of a mobile phone, and looks a bit like one. Theres a small tube that connects it to the stuck on inserter thing that delivers the insulin. Once they have the pump they can only have it off for two hours at a time.
 
 Ofcourse, you can always go back to injections if you dont like it <img src="i/expressions/face-icon-small-smile.gif" border="0">

melx · Oct 15, 2009

it is a continuous glucose monitor. minimed medtronic makes one .... it is called the guardian. it is very effective in catching the lows before they happen. yes it is about $1300 - 1400. insurance covered mine.
you still have to test blood glucose at least twice a day to calibrate the machine. it is a bit frightening inserting the sensor itself... because of the needle.

melx · Oct 15, 2009

it is a continuous glucose monitor. minimed medtronic makes one .... it is called the guardian. it is very effective in catching the lows before they happen. yes it is about $1300 - 1400. insurance covered mine.
you still have to test blood glucose at least twice a day to calibrate the machine. it is a bit frightening inserting the sensor itself... because of the needle.

melx · Oct 15, 2009

it is a continuous glucose monitor. minimed medtronic makes one .... it is called the guardian. it is very effective in catching the lows before they happen. yes it is about $1300 - 1400. insurance covered mine.
you still have to test blood glucose at least twice a day to calibrate the machine. it is a bit frightening inserting the sensor itself... because of the needle.

melx · Oct 15, 2009

it is a continuous glucose monitor. minimed medtronic makes one .... it is called the guardian. it is very effective in catching the lows before they happen. yes it is about $1300 - 1400. insurance covered mine.
you still have to test blood glucose at least twice a day to calibrate the machine. it is a bit frightening inserting the sensor itself... because of the needle.

melx · Oct 15, 2009

it is a continuous glucose monitor. minimed medtronic makes one .... it is called the guardian. it is very effective in catching the lows before they happen. yes it is about $1300 - 1400. insurance covered mine.
 you still have to test blood glucose at least twice a day to calibrate the machine. it is a bit frightening inserting the sensor itself... because of the needle.

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