Diagnosed age.

Transplantmommy · Aug 28, 2009

It can take a while to be diagnosed if the gene is not known to be in the family. I was tested when I was 3 months old and the test was negative and I continued to have symptoms, so they tested me again at 6 months old and that's when I was diagnosed.

There is a cousin of my Mom's (about 12 years older than me) who had a lot of trouble when he was younger and considering that they didn't know anyone in the family had the gene, they never tested him for CF. He was in and out of doctor offices and sick a lot I guess. As soon as I was diagnosed with CF, they tested him for it and he was positive.

I think that they are making CF testing part of the newborn screening now in some states. I don't know if it's in my state (NY) or not but considering the fact that I have CF, they tested Brady when he was born and he does not have it.

I guess that it can all depend on what symptoms the person has and if it has been diagnosed in the family previously.

Transplantmommy · Aug 28, 2009

It can take a while to be diagnosed if the gene is not known to be in the family. I was tested when I was 3 months old and the test was negative and I continued to have symptoms, so they tested me again at 6 months old and that's when I was diagnosed.

There is a cousin of my Mom's (about 12 years older than me) who had a lot of trouble when he was younger and considering that they didn't know anyone in the family had the gene, they never tested him for CF. He was in and out of doctor offices and sick a lot I guess. As soon as I was diagnosed with CF, they tested him for it and he was positive.

I think that they are making CF testing part of the newborn screening now in some states. I don't know if it's in my state (NY) or not but considering the fact that I have CF, they tested Brady when he was born and he does not have it.

I guess that it can all depend on what symptoms the person has and if it has been diagnosed in the family previously.

Transplantmommy · Aug 28, 2009

It can take a while to be diagnosed if the gene is not known to be in the family. I was tested when I was 3 months old and the test was negative and I continued to have symptoms, so they tested me again at 6 months old and that's when I was diagnosed.

There is a cousin of my Mom's (about 12 years older than me) who had a lot of trouble when he was younger and considering that they didn't know anyone in the family had the gene, they never tested him for CF. He was in and out of doctor offices and sick a lot I guess. As soon as I was diagnosed with CF, they tested him for it and he was positive.

I think that they are making CF testing part of the newborn screening now in some states. I don't know if it's in my state (NY) or not but considering the fact that I have CF, they tested Brady when he was born and he does not have it.

I guess that it can all depend on what symptoms the person has and if it has been diagnosed in the family previously.

Transplantmommy · Aug 28, 2009

It can take a while to be diagnosed if the gene is not known to be in the family. I was tested when I was 3 months old and the test was negative and I continued to have symptoms, so they tested me again at 6 months old and that's when I was diagnosed.

There is a cousin of my Mom's (about 12 years older than me) who had a lot of trouble when he was younger and considering that they didn't know anyone in the family had the gene, they never tested him for CF. He was in and out of doctor offices and sick a lot I guess. As soon as I was diagnosed with CF, they tested him for it and he was positive.

I think that they are making CF testing part of the newborn screening now in some states. I don't know if it's in my state (NY) or not but considering the fact that I have CF, they tested Brady when he was born and he does not have it.

I guess that it can all depend on what symptoms the person has and if it has been diagnosed in the family previously.

Transplantmommy · Aug 28, 2009

It can take a while to be diagnosed if the gene is not known to be in the family. I was tested when I was 3 months old and the test was negative and I continued to have symptoms, so they tested me again at 6 months old and that's when I was diagnosed.
 
 There is a cousin of my Mom's (about 12 years older than me) who had a lot of trouble when he was younger and considering that they didn't know anyone in the family had the gene, they never tested him for CF. He was in and out of doctor offices and sick a lot I guess. As soon as I was diagnosed with CF, they tested him for it and he was positive.
 
 I think that they are making CF testing part of the newborn screening now in some states. I don't know if it's in my state (NY) or not but considering the fact that I have CF, they tested Brady when he was born and he does not have it.
 
 I guess that it can all depend on what symptoms the person has and if it has been diagnosed in the family previously.

Jeana · Aug 28, 2009

CF newborn screening is happening in almost all states (yes in NY). Here is a link from the CFF showing the states that have CF newborn screening.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/GetInvolved/Advocate/NewbornScreening/#What_states_do_newborn_screening_for_CF?">http://www.cff.org/GetInvolved...born_screening_for_CF?</a>

Jeana · Aug 28, 2009

CF newborn screening is happening in almost all states (yes in NY). Here is a link from the CFF showing the states that have CF newborn screening.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/GetInvolved/Advocate/NewbornScreening/#What_states_do_newborn_screening_for_CF?">http://www.cff.org/GetInvolved...born_screening_for_CF?</a>

Jeana · Aug 28, 2009

CF newborn screening is happening in almost all states (yes in NY). Here is a link from the CFF showing the states that have CF newborn screening.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/GetInvolved/Advocate/NewbornScreening/#What_states_do_newborn_screening_for_CF?">http://www.cff.org/GetInvolved...born_screening_for_CF?</a>

Jeana · Aug 28, 2009

CF newborn screening is happening in almost all states (yes in NY). Here is a link from the CFF showing the states that have CF newborn screening.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/GetInvolved/Advocate/NewbornScreening/#What_states_do_newborn_screening_for_CF?">http://www.cff.org/GetInvolved...born_screening_for_CF?</a>

Jeana · Aug 28, 2009

CF newborn screening is happening in almost all states (yes in NY). Here is a link from the CFF showing the states that have CF newborn screening.
 
 <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/GetInvolved/Advocate/NewbornScreening/#What_states_do_newborn_screening_for_CF?">http://www.cff.org/GetInvolved...born_screening_for_CF?</a>

peanutsowers8996 · Aug 28, 2009