I have it too. Got it about 14 i'm 36 now. My old hospital used to fight it by giving regular iv's every 3 months Piperacillin and Tobramycin for two weeks. It didn't seem to do much and they gave the same treatment every three months.
Since i've been under my new hospital it seems better controlled. I'm on Tobi, Azithromycin and only have IV's when i need them which they see what i'm growing before deciding on the iv's, much better!!!