Feeding tubes

[jennastroitzel]

Hey guys, I posted a question about this on the other CF adult board by mistake. I think this one is busier? Anyway, would you mind having a quick look if you get chance please? I'm struggling a bit with what to do. Thanks all. Jx

 

[jennastroitzel]

Hey guys, I posted a question about this on the other CF adult board by mistake. I think this one is busier? Anyway, would you mind having a quick look if you get chance please? I'm struggling a bit with what to do. Thanks all. Jx

 

[jennastroitzel]

Hey guys, I posted a question about this on the other CF adult board by mistake. I think this one is busier? Anyway, would you mind having a quick look if you get chance please? I'm struggling a bit with what to do. Thanks all. Jx

 

[jennastroitzel]

Hey guys, I posted a question about this on the other CF adult board by mistake. I think this one is busier? Anyway, would you mind having a quick look if you get chance please? I'm struggling a bit with what to do. Thanks all. Jx

 

[jennastroitzel]

Hey guys, I posted a question about this on the other CF adult board by mistake. I think this one is busier? Anyway, would you mind having a quick look if you get chance please? I'm struggling a bit with what to do. Thanks all. Jx

 

[AnD]

I don't know anything about feeding tubes (sorry!) but you can just copy and paste it here, and it would be easier for folks to help <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

 

[AnD]

I don't know anything about feeding tubes (sorry!) but you can just copy and paste it here, and it would be easier for folks to help <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

 

[AnD]

I don't know anything about feeding tubes (sorry!) but you can just copy and paste it here, and it would be easier for folks to help <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

 

[AnD]

I don't know anything about feeding tubes (sorry!) but you can just copy and paste it here, and it would be easier for folks to help <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

 

[AnD]

I don't know anything about feeding tubes (sorry!) but you can just copy and paste it here, and it would be easier for folks to help <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

 

[jennastroitzel]

I have been having problems keeping my weight healthy for a while now - and to cap it all I have lost 14 pounds in the last month because of my recent chest infection and general grottiness. I know my doctor is not happy and has mentioned being more "active" with respect to sorting out my weight. I do try to eat, and I use calorie powders, but I just can't keep up any more. I am in 2 minds whether to just ask for a NG tube for a while just to bulk me up a bit, but I'm not really too sure if I want to go down this road or not. My BMI is now 20.3 and I have a feeling its coming anyway. For those of you who have NG feeds (or even g-tubes), how did you know it was time you started them and who suggested it? I am seeing my doctor on Wednesday and I am kind of expecting him to suggest it but was wondering about making the first move because I just feel so exhausted all the time.

Any thoughts would be welcomed. Thanks.

 

[fr3ak]

It's really a personal choice for when you start feeds, unless of course your weight is declining out of control...

I've done both, NG and had a feeding tube...

My feeding tube was my worst decision mostly for the fact that it didn't work the way I had hoped it would. I had my feeding tube placed when I was 35kg and waiting for tx, and the drs said it was really not an option...

After 6 months of excruciating pain, leaking, raw skin from stomach acid burn, and losing even more weight from the pain and unable to eat, I decided to get it removed...

So for me my feeding tube was not only a waste of a surgery and scar, but it didn't provide the support I intended...

I know many other people have good stories about them, and they have worked but for me it didnt...

Exhaust all your other avenues before getting a permanent fixture, definitely do NG feeds, overnight as well as bolus feeds during the day...

If all else fails and your life is on the line then you may have to bite the bullet and try the feeding tube, but don't jump straight into it.

They are hideous, smell, leak stomach acid everywhere, painful and when removed you have a second belly button!!

Good luck!

 

[jennastroitzel]

I have been having problems keeping my weight healthy for a while now - and to cap it all I have lost 14 pounds in the last month because of my recent chest infection and general grottiness. I know my doctor is not happy and has mentioned being more "active" with respect to sorting out my weight. I do try to eat, and I use calorie powders, but I just can't keep up any more. I am in 2 minds whether to just ask for a NG tube for a while just to bulk me up a bit, but I'm not really too sure if I want to go down this road or not. My BMI is now 20.3 and I have a feeling its coming anyway. For those of you who have NG feeds (or even g-tubes), how did you know it was time you started them and who suggested it? I am seeing my doctor on Wednesday and I am kind of expecting him to suggest it but was wondering about making the first move because I just feel so exhausted all the time.

Any thoughts would be welcomed. Thanks.

 

[fr3ak]

It's really a personal choice for when you start feeds, unless of course your weight is declining out of control...

I've done both, NG and had a feeding tube...

My feeding tube was my worst decision mostly for the fact that it didn't work the way I had hoped it would. I had my feeding tube placed when I was 35kg and waiting for tx, and the drs said it was really not an option...

After 6 months of excruciating pain, leaking, raw skin from stomach acid burn, and losing even more weight from the pain and unable to eat, I decided to get it removed...

So for me my feeding tube was not only a waste of a surgery and scar, but it didn't provide the support I intended...

I know many other people have good stories about them, and they have worked but for me it didnt...

Exhaust all your other avenues before getting a permanent fixture, definitely do NG feeds, overnight as well as bolus feeds during the day...

If all else fails and your life is on the line then you may have to bite the bullet and try the feeding tube, but don't jump straight into it.

They are hideous, smell, leak stomach acid everywhere, painful and when removed you have a second belly button!!

Good luck!

 

[jennastroitzel]

I have been having problems keeping my weight healthy for a while now - and to cap it all I have lost 14 pounds in the last month because of my recent chest infection and general grottiness. I know my doctor is not happy and has mentioned being more "active" with respect to sorting out my weight. I do try to eat, and I use calorie powders, but I just can't keep up any more. I am in 2 minds whether to just ask for a NG tube for a while just to bulk me up a bit, but I'm not really too sure if I want to go down this road or not. My BMI is now 20.3 and I have a feeling its coming anyway. For those of you who have NG feeds (or even g-tubes), how did you know it was time you started them and who suggested it? I am seeing my doctor on Wednesday and I am kind of expecting him to suggest it but was wondering about making the first move because I just feel so exhausted all the time.

Any thoughts would be welcomed. Thanks.

 

[fr3ak]

It's really a personal choice for when you start feeds, unless of course your weight is declining out of control...

I've done both, NG and had a feeding tube...

My feeding tube was my worst decision mostly for the fact that it didn't work the way I had hoped it would. I had my feeding tube placed when I was 35kg and waiting for tx, and the drs said it was really not an option...

After 6 months of excruciating pain, leaking, raw skin from stomach acid burn, and losing even more weight from the pain and unable to eat, I decided to get it removed...

So for me my feeding tube was not only a waste of a surgery and scar, but it didn't provide the support I intended...

I know many other people have good stories about them, and they have worked but for me it didnt...

Exhaust all your other avenues before getting a permanent fixture, definitely do NG feeds, overnight as well as bolus feeds during the day...

If all else fails and your life is on the line then you may have to bite the bullet and try the feeding tube, but don't jump straight into it.

They are hideous, smell, leak stomach acid everywhere, painful and when removed you have a second belly button!!

Good luck!

 

[jennastroitzel]

I have been having problems keeping my weight healthy for a while now - and to cap it all I have lost 14 pounds in the last month because of my recent chest infection and general grottiness. I know my doctor is not happy and has mentioned being more "active" with respect to sorting out my weight. I do try to eat, and I use calorie powders, but I just can't keep up any more. I am in 2 minds whether to just ask for a NG tube for a while just to bulk me up a bit, but I'm not really too sure if I want to go down this road or not. My BMI is now 20.3 and I have a feeling its coming anyway. For those of you who have NG feeds (or even g-tubes), how did you know it was time you started them and who suggested it? I am seeing my doctor on Wednesday and I am kind of expecting him to suggest it but was wondering about making the first move because I just feel so exhausted all the time.

Any thoughts would be welcomed. Thanks.

 

[fr3ak]

It's really a personal choice for when you start feeds, unless of course your weight is declining out of control...

I've done both, NG and had a feeding tube...

My feeding tube was my worst decision mostly for the fact that it didn't work the way I had hoped it would. I had my feeding tube placed when I was 35kg and waiting for tx, and the drs said it was really not an option...

After 6 months of excruciating pain, leaking, raw skin from stomach acid burn, and losing even more weight from the pain and unable to eat, I decided to get it removed...

So for me my feeding tube was not only a waste of a surgery and scar, but it didn't provide the support I intended...

I know many other people have good stories about them, and they have worked but for me it didnt...

Exhaust all your other avenues before getting a permanent fixture, definitely do NG feeds, overnight as well as bolus feeds during the day...

If all else fails and your life is on the line then you may have to bite the bullet and try the feeding tube, but don't jump straight into it.

They are hideous, smell, leak stomach acid everywhere, painful and when removed you have a second belly button!!

Good luck!

 

[jennastroitzel]

I have been having problems keeping my weight healthy for a while now - and to cap it all I have lost 14 pounds in the last month because of my recent chest infection and general grottiness. I know my doctor is not happy and has mentioned being more "active" with respect to sorting out my weight. I do try to eat, and I use calorie powders, but I just can't keep up any more. I am in 2 minds whether to just ask for a NG tube for a while just to bulk me up a bit, but I'm not really too sure if I want to go down this road or not. My BMI is now 20.3 and I have a feeling its coming anyway. For those of you who have NG feeds (or even g-tubes), how did you know it was time you started them and who suggested it? I am seeing my doctor on Wednesday and I am kind of expecting him to suggest it but was wondering about making the first move because I just feel so exhausted all the time.

Any thoughts would be welcomed. Thanks.

 

[fr3ak]

It's really a personal choice for when you start feeds, unless of course your weight is declining out of control...

I've done both, NG and had a feeding tube...

My feeding tube was my worst decision mostly for the fact that it didn't work the way I had hoped it would. I had my feeding tube placed when I was 35kg and waiting for tx, and the drs said it was really not an option...

After 6 months of excruciating pain, leaking, raw skin from stomach acid burn, and losing even more weight from the pain and unable to eat, I decided to get it removed...

So for me my feeding tube was not only a waste of a surgery and scar, but it didn't provide the support I intended...

I know many other people have good stories about them, and they have worked but for me it didnt...

Exhaust all your other avenues before getting a permanent fixture, definitely do NG feeds, overnight as well as bolus feeds during the day...

If all else fails and your life is on the line then you may have to bite the bullet and try the feeding tube, but don't jump straight into it.

They are hideous, smell, leak stomach acid everywhere, painful and when removed you have a second belly button!!

Good luck!