This seems to be a common occurance for most of the female transplant patients I know, I have no idea why or what causes it, and the drs will all tell you that you are the only one... *insert explicit language*
Pre tx I never had a problem with my cycle it was always like clockwork, but that all changed once I had my tx... I pretty much started bleeding straight after the surgery and kept bleeding from then on.
I would be lucky to get 5 days off out of 90 days and progressively as the months passed by they got stronger and heavier... I was constantly anemic from the blood loss.
My gyno tried a courret (sp) first to see if that would bring things back to normal, but it had no effect at all. I tried various birth control pills which can sometimes being things back to normal. After almost 2 years of constant bleeding and I do mean constant(I kept a diary so I could take to the gyno to show exactly how many days I was on and how few I had off) I also had a growth on my ovary which was a concern pre tx (a whole other story)
Finally after going to 4 different Gynos all of which told me it was nothing except a SMALL inconvenience I finally found one that listened to how much it was ruining my life....
I was suppose to have my hysterectomy done via vag/laparoscope but due to complications in surgery and bleeding out I ended up getting cut and my uterus along with the right ovary were removed...
Me being the freak I am, still bled even after having a hysterectomy, I swear I am the only person that could do this... They went back in and did like a cone biopsy type thing which did the trick, and my life has been so much better!!
One difference between having a vag surgery to a cut surgery is that by being cut I was left with my cervix which my gyno said was better as it would give me the added support with me still having my CF cough...
I do feel bad that my opportunity to ever have kids is gone...But we can't have everything I suppose...