G-tube help/advice/support

J

jfarel

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>annieop86</b></i>

my fev right now is about 20%, I have been told I can't have a tx because my parents are smokers and the transplant team doesn't want to give someone lungs if their support system will damage them. I am going to be going at the end of may (when school is over) back into the hospital do due another course of IV's, I've been told if I get the tube it won't be put in by surgery but by some thing you put down your throught. And I have been doing NG feedings for a couple years and none of the weight sticks. I don't know what to do.</end quote></div>

They do put something down your throat. If I remember right it has a light on it so they know where to make the incision. It is not technically surgery but they do make an incision in your stomach which may or may not be quite painful for 3-5 days. I'm really sorry to hear they won't transplant you. I think that is really tough but I understand about the smoking. Maybe they will quit smoking and you can be re-evaluated. No question about it, you need a strong support system to go through the transplant process, but I think it will be worth your while if you can qualify.
 
J

jfarel

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>annieop86</b></i>

my fev right now is about 20%, I have been told I can't have a tx because my parents are smokers and the transplant team doesn't want to give someone lungs if their support system will damage them. I am going to be going at the end of may (when school is over) back into the hospital do due another course of IV's, I've been told if I get the tube it won't be put in by surgery but by some thing you put down your throught. And I have been doing NG feedings for a couple years and none of the weight sticks. I don't know what to do.</end quote></div>

They do put something down your throat. If I remember right it has a light on it so they know where to make the incision. It is not technically surgery but they do make an incision in your stomach which may or may not be quite painful for 3-5 days. I'm really sorry to hear they won't transplant you. I think that is really tough but I understand about the smoking. Maybe they will quit smoking and you can be re-evaluated. No question about it, you need a strong support system to go through the transplant process, but I think it will be worth your while if you can qualify.
 
J

jfarel

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>annieop86</b></i>

my fev right now is about 20%, I have been told I can't have a tx because my parents are smokers and the transplant team doesn't want to give someone lungs if their support system will damage them. I am going to be going at the end of may (when school is over) back into the hospital do due another course of IV's, I've been told if I get the tube it won't be put in by surgery but by some thing you put down your throught. And I have been doing NG feedings for a couple years and none of the weight sticks. I don't know what to do.</end quote></div>

They do put something down your throat. If I remember right it has a light on it so they know where to make the incision. It is not technically surgery but they do make an incision in your stomach which may or may not be quite painful for 3-5 days. I'm really sorry to hear they won't transplant you. I think that is really tough but I understand about the smoking. Maybe they will quit smoking and you can be re-evaluated. No question about it, you need a strong support system to go through the transplant process, but I think it will be worth your while if you can qualify.
 
J

jfarel

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>annieop86</b></i>

my fev right now is about 20%, I have been told I can't have a tx because my parents are smokers and the transplant team doesn't want to give someone lungs if their support system will damage them. I am going to be going at the end of may (when school is over) back into the hospital do due another course of IV's, I've been told if I get the tube it won't be put in by surgery but by some thing you put down your throught. And I have been doing NG feedings for a couple years and none of the weight sticks. I don't know what to do.</end quote>

They do put something down your throat. If I remember right it has a light on it so they know where to make the incision. It is not technically surgery but they do make an incision in your stomach which may or may not be quite painful for 3-5 days. I'm really sorry to hear they won't transplant you. I think that is really tough but I understand about the smoking. Maybe they will quit smoking and you can be re-evaluated. No question about it, you need a strong support system to go through the transplant process, but I think it will be worth your while if you can qualify.
 
J

jfarel

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>annieop86</b></i>
<br />
<br />my fev right now is about 20%, I have been told I can't have a tx because my parents are smokers and the transplant team doesn't want to give someone lungs if their support system will damage them. I am going to be going at the end of may (when school is over) back into the hospital do due another course of IV's, I've been told if I get the tube it won't be put in by surgery but by some thing you put down your throught. And I have been doing NG feedings for a couple years and none of the weight sticks. I don't know what to do.</end quote>
<br />
<br />They do put something down your throat. If I remember right it has a light on it so they know where to make the incision. It is not technically surgery but they do make an incision in your stomach which may or may not be quite painful for 3-5 days. I'm really sorry to hear they won't transplant you. I think that is really tough but I understand about the smoking. Maybe they will quit smoking and you can be re-evaluated. No question about it, you need a strong support system to go through the transplant process, but I think it will be worth your while if you can qualify.
<br />
<br />
 
F

fr3ak

Guest
<img src="http://i40.photobucket.com/albums/e222/fr3ak_on_a_leash/peg.jpg">

I will try and find the pictures once it got made into the button.. It stayed this long tube for 3 or 4 months...
 
F

fr3ak

Guest
<img src="http://i40.photobucket.com/albums/e222/fr3ak_on_a_leash/peg.jpg">

I will try and find the pictures once it got made into the button.. It stayed this long tube for 3 or 4 months...
 
F

fr3ak

Guest
<img src="http://i40.photobucket.com/albums/e222/fr3ak_on_a_leash/peg.jpg">

I will try and find the pictures once it got made into the button.. It stayed this long tube for 3 or 4 months...
 
F

fr3ak

Guest
<img src="http://i40.photobucket.com/albums/e222/fr3ak_on_a_leash/peg.jpg">

I will try and find the pictures once it got made into the button.. It stayed this long tube for 3 or 4 months...
 
F

fr3ak

Guest
<img src="http://i40.photobucket.com/albums/e222/fr3ak_on_a_leash/peg.jpg">
<br />
<br />I will try and find the pictures once it got made into the button.. It stayed this long tube for 3 or 4 months...
 
J

juliepie

New member
i had one put in three weeks ago today. My pft's were in the low 30-s when it was done and so far I've been doing really well. It doesn't look as bad as I thought it would, and I'm sure once I get the long tube swapped for the button it will be even better. I feel so much more energetic during the day, and waking up in the morning isn't as hard as it was before.

However, that being said, I DID try to do NG feeds last year, and I gained quite a bit of weight but couldn't keep forcing myself to put a tube down my nose every night. With school and everything, a g-tube is much much easier.

Good luck!
 
J

juliepie

New member
i had one put in three weeks ago today. My pft's were in the low 30-s when it was done and so far I've been doing really well. It doesn't look as bad as I thought it would, and I'm sure once I get the long tube swapped for the button it will be even better. I feel so much more energetic during the day, and waking up in the morning isn't as hard as it was before.

However, that being said, I DID try to do NG feeds last year, and I gained quite a bit of weight but couldn't keep forcing myself to put a tube down my nose every night. With school and everything, a g-tube is much much easier.

Good luck!
 
J

juliepie

New member
i had one put in three weeks ago today. My pft's were in the low 30-s when it was done and so far I've been doing really well. It doesn't look as bad as I thought it would, and I'm sure once I get the long tube swapped for the button it will be even better. I feel so much more energetic during the day, and waking up in the morning isn't as hard as it was before.

However, that being said, I DID try to do NG feeds last year, and I gained quite a bit of weight but couldn't keep forcing myself to put a tube down my nose every night. With school and everything, a g-tube is much much easier.

Good luck!
 
J

juliepie

New member
i had one put in three weeks ago today. My pft's were in the low 30-s when it was done and so far I've been doing really well. It doesn't look as bad as I thought it would, and I'm sure once I get the long tube swapped for the button it will be even better. I feel so much more energetic during the day, and waking up in the morning isn't as hard as it was before.

However, that being said, I DID try to do NG feeds last year, and I gained quite a bit of weight but couldn't keep forcing myself to put a tube down my nose every night. With school and everything, a g-tube is much much easier.

Good luck!
 
J

juliepie

New member
i had one put in three weeks ago today. My pft's were in the low 30-s when it was done and so far I've been doing really well. It doesn't look as bad as I thought it would, and I'm sure once I get the long tube swapped for the button it will be even better. I feel so much more energetic during the day, and waking up in the morning isn't as hard as it was before.
<br />
<br />However, that being said, I DID try to do NG feeds last year, and I gained quite a bit of weight but couldn't keep forcing myself to put a tube down my nose every night. With school and everything, a g-tube is much much easier.
<br />
<br />Good luck!
 
J

JazzysMom

New member
Thank you Fr3ak for posting your pic.....

A ?? I have which is a thought I had with a PORT placement as well.

What about sex? I cant imagine having the tube there until the buttons is put in & even then I am not sure how sexy I would feel.

My hubby LOVES my belly & although I am sure he would still love me, I cant help but feel less desirable just with the thought of it.

Who dealt with issues in the sex area & how did you feel & handle it?
 
J

JazzysMom

New member
Thank you Fr3ak for posting your pic.....

A ?? I have which is a thought I had with a PORT placement as well.

What about sex? I cant imagine having the tube there until the buttons is put in & even then I am not sure how sexy I would feel.

My hubby LOVES my belly & although I am sure he would still love me, I cant help but feel less desirable just with the thought of it.

Who dealt with issues in the sex area & how did you feel & handle it?
 
J

JazzysMom

New member
Thank you Fr3ak for posting your pic.....

A ?? I have which is a thought I had with a PORT placement as well.

What about sex? I cant imagine having the tube there until the buttons is put in & even then I am not sure how sexy I would feel.

My hubby LOVES my belly & although I am sure he would still love me, I cant help but feel less desirable just with the thought of it.

Who dealt with issues in the sex area & how did you feel & handle it?
 
J

JazzysMom

New member
Thank you Fr3ak for posting your pic.....

A ?? I have which is a thought I had with a PORT placement as well.

What about sex? I cant imagine having the tube there until the buttons is put in & even then I am not sure how sexy I would feel.

My hubby LOVES my belly & although I am sure he would still love me, I cant help but feel less desirable just with the thought of it.

Who dealt with issues in the sex area & how did you feel & handle it?
 
J

JazzysMom

New member
Thank you Fr3ak for posting your pic.....
<br />
<br />A ?? I have which is a thought I had with a PORT placement as well.
<br />
<br />What about sex? I cant imagine having the tube there until the buttons is put in & even then I am not sure how sexy I would feel.
<br />
<br />My hubby LOVES my belly & although I am sure he would still love me, I cant help but feel less desirable just with the thought of it.
<br />
<br />Who dealt with issues in the sex area & how did you feel & handle it?
 
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