Grow boy!!!

sdelorenzo · Feb 25, 2008

I am not sure how many weeks that Parker has had the feeding tube. I know my daughter did not gain right away. It was at least a month or six weeks before she gained any. Then it came on quickly.
Sharon, mom of Sophia, 6 and Jack, 4 both with cf

sdelorenzo · Feb 25, 2008

I am not sure how many weeks that Parker has had the feeding tube. I know my daughter did not gain right away. It was at least a month or six weeks before she gained any. Then it came on quickly.
Sharon, mom of Sophia, 6 and Jack, 4 both with cf

sdelorenzo · Feb 25, 2008

I am not sure how many weeks that Parker has had the feeding tube. I know my daughter did not gain right away. It was at least a month or six weeks before she gained any. Then it came on quickly.
Sharon, mom of Sophia, 6 and Jack, 4 both with cf

sdelorenzo · Feb 25, 2008

I am not sure how many weeks that Parker has had the feeding tube. I know my daughter did not gain right away. It was at least a month or six weeks before she gained any. Then it came on quickly.
Sharon, mom of Sophia, 6 and Jack, 4 both with cf

sdelorenzo · Feb 25, 2008

I am not sure how many weeks that Parker has had the feeding tube. I know my daughter did not gain right away. It was at least a month or six weeks before she gained any. Then it came on quickly.
 Sharon, mom of Sophia, 6 and Jack, 4 both with cf

jimiv · Feb 26, 2008

After several e-mails to his nutritionist and one pending to his doctor. It was suggested that Parker have a fasting Glucose test and a Metabolic Cart test to see what his resting metabolism is as well as screening for Diabeties. My wife and I are both trying to lose weight to Parker's failure to gain is evidence of God loving irony. We are kicking up his feedings to add more calories wherever possible. He had some problems with oily stools but we added some additional enzymes to his feeding session and that cleared up somewhat. Now is the time to press forward with this and gain. More to come....

jimiv · Feb 26, 2008

After several e-mails to his nutritionist and one pending to his doctor. It was suggested that Parker have a fasting Glucose test and a Metabolic Cart test to see what his resting metabolism is as well as screening for Diabeties. My wife and I are both trying to lose weight to Parker's failure to gain is evidence of God loving irony. We are kicking up his feedings to add more calories wherever possible. He had some problems with oily stools but we added some additional enzymes to his feeding session and that cleared up somewhat. Now is the time to press forward with this and gain. More to come....

jimiv · Feb 26, 2008

After several e-mails to his nutritionist and one pending to his doctor. It was suggested that Parker have a fasting Glucose test and a Metabolic Cart test to see what his resting metabolism is as well as screening for Diabeties. My wife and I are both trying to lose weight to Parker's failure to gain is evidence of God loving irony. We are kicking up his feedings to add more calories wherever possible. He had some problems with oily stools but we added some additional enzymes to his feeding session and that cleared up somewhat. Now is the time to press forward with this and gain. More to come....

jimiv · Feb 26, 2008

After several e-mails to his nutritionist and one pending to his doctor. It was suggested that Parker have a fasting Glucose test and a Metabolic Cart test to see what his resting metabolism is as well as screening for Diabeties. My wife and I are both trying to lose weight to Parker's failure to gain is evidence of God loving irony. We are kicking up his feedings to add more calories wherever possible. He had some problems with oily stools but we added some additional enzymes to his feeding session and that cleared up somewhat. Now is the time to press forward with this and gain. More to come....

jimiv · Feb 26, 2008

After several e-mails to his nutritionist and one pending to his doctor. It was suggested that Parker have a fasting Glucose test and a Metabolic Cart test to see what his resting metabolism is as well as screening for Diabeties. My wife and I are both trying to lose weight to Parker's failure to gain is evidence of God loving irony. We are kicking up his feedings to add more calories wherever possible. He had some problems with oily stools but we added some additional enzymes to his feeding session and that cleared up somewhat. Now is the time to press forward with this and gain. More to come....

pjspiegle · Feb 26, 2008

I can't tell you how frustrating it is for me to loose weight and making sure Nathan gets what he needs. That is a hard thing to balance.

Nathan was diagnosed with CFRD at around your sons age. Just a piece of advice from our experience, you cannot count on the glucose test to be accurate enough to rule out the beginnings of CFRD. It was a long fight but I finally got them to give me a meter so that I could do random checks at home and that is how we got the diagnosis. Getting the diagnosis did help with weight gain quite a bit. If you go that route, anything above 110 first thing in the morning before he eats is to high and then anything above 150 any other time of the day is to high. I hope that this is not the issue, but may explain his weight issue. Also, the other symptoms are going pee all the time and always being thirsty.

I hope that CFRD is not the problem but if it is, catching as early as possible is helpful. Look forward to hearing what results you get,
Patty

pjspiegle · Feb 26, 2008

I can't tell you how frustrating it is for me to loose weight and making sure Nathan gets what he needs. That is a hard thing to balance.

Nathan was diagnosed with CFRD at around your sons age. Just a piece of advice from our experience, you cannot count on the glucose test to be accurate enough to rule out the beginnings of CFRD. It was a long fight but I finally got them to give me a meter so that I could do random checks at home and that is how we got the diagnosis. Getting the diagnosis did help with weight gain quite a bit. If you go that route, anything above 110 first thing in the morning before he eats is to high and then anything above 150 any other time of the day is to high. I hope that this is not the issue, but may explain his weight issue. Also, the other symptoms are going pee all the time and always being thirsty.

I hope that CFRD is not the problem but if it is, catching as early as possible is helpful. Look forward to hearing what results you get,
Patty

pjspiegle · Feb 26, 2008

I can't tell you how frustrating it is for me to loose weight and making sure Nathan gets what he needs. That is a hard thing to balance.

Nathan was diagnosed with CFRD at around your sons age. Just a piece of advice from our experience, you cannot count on the glucose test to be accurate enough to rule out the beginnings of CFRD. It was a long fight but I finally got them to give me a meter so that I could do random checks at home and that is how we got the diagnosis. Getting the diagnosis did help with weight gain quite a bit. If you go that route, anything above 110 first thing in the morning before he eats is to high and then anything above 150 any other time of the day is to high. I hope that this is not the issue, but may explain his weight issue. Also, the other symptoms are going pee all the time and always being thirsty.

I hope that CFRD is not the problem but if it is, catching as early as possible is helpful. Look forward to hearing what results you get,
Patty

pjspiegle · Feb 26, 2008

I can't tell you how frustrating it is for me to loose weight and making sure Nathan gets what he needs. That is a hard thing to balance.

Nathan was diagnosed with CFRD at around your sons age. Just a piece of advice from our experience, you cannot count on the glucose test to be accurate enough to rule out the beginnings of CFRD. It was a long fight but I finally got them to give me a meter so that I could do random checks at home and that is how we got the diagnosis. Getting the diagnosis did help with weight gain quite a bit. If you go that route, anything above 110 first thing in the morning before he eats is to high and then anything above 150 any other time of the day is to high. I hope that this is not the issue, but may explain his weight issue. Also, the other symptoms are going pee all the time and always being thirsty.

I hope that CFRD is not the problem but if it is, catching as early as possible is helpful. Look forward to hearing what results you get,
Patty

pjspiegle · Feb 26, 2008

I can't tell you how frustrating it is for me to loose weight and making sure Nathan gets what he needs. That is a hard thing to balance.
 
 Nathan was diagnosed with CFRD at around your sons age. Just a piece of advice from our experience, you cannot count on the glucose test to be accurate enough to rule out the beginnings of CFRD. It was a long fight but I finally got them to give me a meter so that I could do random checks at home and that is how we got the diagnosis. Getting the diagnosis did help with weight gain quite a bit. If you go that route, anything above 110 first thing in the morning before he eats is to high and then anything above 150 any other time of the day is to high. I hope that this is not the issue, but may explain his weight issue. Also, the other symptoms are going pee all the time and always being thirsty.
 
 I hope that CFRD is not the problem but if it is, catching as early as possible is helpful. Look forward to hearing what results you get,
 Patty

jimiv · Mar 3, 2008