Has anyone gone to

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anonymous

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>

. The reason is i'm sure is because pharmacutical companies are making bukoo money on drugs. But whoever thinks it should not be free, needs to get a life....who cares, whatever u can get free take it, we have good insurance and pay, but if you don't more power to u, that's like comparing the eflow to the nebulizer and telling u that u ahve to still use the old long nebs to saying if u need lungs, too bad, wait 10 years and instead of 2 years. Get a life, sometimes I think CF people can be their own worst enemys. you'll do better in life if u WOrrry about yourself in the future and quit always wondering if life is fair. It's not, and i'm sure in your life u have take what u could for free or will do it sometime in the future...UGHHH</end quote></div>

1. pharmaceutical companies make moeny on drugs. what does that have to do with Source CF providing eFlows? Source CF doesn't make the profits on the drugs.... pharmaceutical companies do, as you state. and the eFlow isn't made by a pharmaceutical company. it's made by PARI. please explain your logic...

2. i don't take things for free when i know people who are less fortunate than me can benefit. my doc offers me free meds and nebs all the time and i don't take them because i know others who are worse off than me could really use the free-bees. many people like myself think outside themselves.

3. when people donate to the CF Foundation, they are donating with the impression that the money goes to fund research for treatments for the disease. not for a free, new nebulizer invention. yes, the eFlow is a great concept. but i disagree with the concept that it should be provided for free at the expense of research for CF meds.
 
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anonymous

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>

. The reason is i'm sure is because pharmacutical companies are making bukoo money on drugs. But whoever thinks it should not be free, needs to get a life....who cares, whatever u can get free take it, we have good insurance and pay, but if you don't more power to u, that's like comparing the eflow to the nebulizer and telling u that u ahve to still use the old long nebs to saying if u need lungs, too bad, wait 10 years and instead of 2 years. Get a life, sometimes I think CF people can be their own worst enemys. you'll do better in life if u WOrrry about yourself in the future and quit always wondering if life is fair. It's not, and i'm sure in your life u have take what u could for free or will do it sometime in the future...UGHHH</end quote></div>

1. pharmaceutical companies make moeny on drugs. what does that have to do with Source CF providing eFlows? Source CF doesn't make the profits on the drugs.... pharmaceutical companies do, as you state. and the eFlow isn't made by a pharmaceutical company. it's made by PARI. please explain your logic...

2. i don't take things for free when i know people who are less fortunate than me can benefit. my doc offers me free meds and nebs all the time and i don't take them because i know others who are worse off than me could really use the free-bees. many people like myself think outside themselves.

3. when people donate to the CF Foundation, they are donating with the impression that the money goes to fund research for treatments for the disease. not for a free, new nebulizer invention. yes, the eFlow is a great concept. but i disagree with the concept that it should be provided for free at the expense of research for CF meds.
 
A

anonymous

New member
your CF money is NOT going to give FREE EFLOWS, SourceCF is NOT getting money from them and Pharm companies are not the only one making money, do u think Walgreens and CVS are just staying open as a public service to sell and make tons of money for the drug compainies, NOT. The issue here is, if there is a company that wants to provide a machine to their customers, then more power to them, just like the programs offered by some of the enzyme drug companies that have programs like reimbursing your copay or giving ADEK or shakes....that'a called business in the US, if it's that bad or unfair, go oversees and be on national health care and see where that gets u, on a waiting list for a hospital bed or without the most recent drugs.
 
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anonymous

New member
your CF money is NOT going to give FREE EFLOWS, SourceCF is NOT getting money from them and Pharm companies are not the only one making money, do u think Walgreens and CVS are just staying open as a public service to sell and make tons of money for the drug compainies, NOT. The issue here is, if there is a company that wants to provide a machine to their customers, then more power to them, just like the programs offered by some of the enzyme drug companies that have programs like reimbursing your copay or giving ADEK or shakes....that'a called business in the US, if it's that bad or unfair, go oversees and be on national health care and see where that gets u, on a waiting list for a hospital bed or without the most recent drugs.
 
A

anonymous

New member
your CF money is NOT going to give FREE EFLOWS, SourceCF is NOT getting money from them and Pharm companies are not the only one making money, do u think Walgreens and CVS are just staying open as a public service to sell and make tons of money for the drug compainies, NOT. The issue here is, if there is a company that wants to provide a machine to their customers, then more power to them, just like the programs offered by some of the enzyme drug companies that have programs like reimbursing your copay or giving ADEK or shakes....that'a called business in the US, if it's that bad or unfair, go oversees and be on national health care and see where that gets u, on a waiting list for a hospital bed or without the most recent drugs.
 
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eli

New member
Ditto, Kylie.

I was just thinking the same thing. People want to speak their mind, but won't put there behind it.

What's the big deal, we are all adults aren't we. Surley we can have a civilised discussion, and should be able to state what we feel without others being rude about it.

I'm not directing this towards anyone in particular, its just in general.
 
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eli

New member
Ditto, Kylie.

I was just thinking the same thing. People want to speak their mind, but won't put there behind it.

What's the big deal, we are all adults aren't we. Surley we can have a civilised discussion, and should be able to state what we feel without others being rude about it.

I'm not directing this towards anyone in particular, its just in general.
 
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eli

New member
Ditto, Kylie.

I was just thinking the same thing. People want to speak their mind, but won't put there behind it.

What's the big deal, we are all adults aren't we. Surley we can have a civilised discussion, and should be able to state what we feel without others being rude about it.

I'm not directing this towards anyone in particular, its just in general.
 
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gsplover

New member
My Doctor and I must both be out of our minds. I saw him on Tuesday and he told me in a about a month I would be able to get the eflow for free as long I get my medications throw that same pharmacy.

This would be the pharmacy guarenteeing business. When you use the eflow the amount of medication is decreased so the pharmacy needs to supply a different amount.

This is no different than scandipharm offering free ADEKs for those who use ultrase. This has nothing to do with money given to the cff.

I think that anonymous poster needs to chiil out. I am just sharing what I was told at CF clinic.
 
G

gsplover

New member
My Doctor and I must both be out of our minds. I saw him on Tuesday and he told me in a about a month I would be able to get the eflow for free as long I get my medications throw that same pharmacy.

This would be the pharmacy guarenteeing business. When you use the eflow the amount of medication is decreased so the pharmacy needs to supply a different amount.

This is no different than scandipharm offering free ADEKs for those who use ultrase. This has nothing to do with money given to the cff.

I think that anonymous poster needs to chiil out. I am just sharing what I was told at CF clinic.
 
G

gsplover

New member
My Doctor and I must both be out of our minds. I saw him on Tuesday and he told me in a about a month I would be able to get the eflow for free as long I get my medications throw that same pharmacy.

This would be the pharmacy guarenteeing business. When you use the eflow the amount of medication is decreased so the pharmacy needs to supply a different amount.

This is no different than scandipharm offering free ADEKs for those who use ultrase. This has nothing to do with money given to the cff.

I think that anonymous poster needs to chiil out. I am just sharing what I was told at CF clinic.
 
L

Landy

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>

2. i don't take things for free when i know people who are less fortunate than me can benefit. my doc offers me free meds and nebs all the time and i don't take them because i know others who are worse off than me could really use the free-bees. many people like myself think outside themselves.</end quote></div>

I'm with you here. I have good coverage too & the only time I take free stuff is if I'm really in a tight financial bind & it would be saving me a big co-pay.
 
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Landy

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>

2. i don't take things for free when i know people who are less fortunate than me can benefit. my doc offers me free meds and nebs all the time and i don't take them because i know others who are worse off than me could really use the free-bees. many people like myself think outside themselves.</end quote></div>

I'm with you here. I have good coverage too & the only time I take free stuff is if I'm really in a tight financial bind & it would be saving me a big co-pay.
 
L

Landy

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>

2. i don't take things for free when i know people who are less fortunate than me can benefit. my doc offers me free meds and nebs all the time and i don't take them because i know others who are worse off than me could really use the free-bees. many people like myself think outside themselves.</end quote></div>

I'm with you here. I have good coverage too & the only time I take free stuff is if I'm really in a tight financial bind & it would be saving me a big co-pay.
 
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gsplover

New member
I don't take freebies or handouts either unless I'm in need. I also have great insurance coverage and will actually try to get my insurance company to pay for the eflow but I thought for those who need the assistance that this was some positive information...
 
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gsplover

New member
I don't take freebies or handouts either unless I'm in need. I also have great insurance coverage and will actually try to get my insurance company to pay for the eflow but I thought for those who need the assistance that this was some positive information...
 
G

gsplover

New member
I don't take freebies or handouts either unless I'm in need. I also have great insurance coverage and will actually try to get my insurance company to pay for the eflow but I thought for those who need the assistance that this was some positive information...
 
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