As difficult as this situation is for you.....YOU HAVE MADE THE RIGHT DECISION. A few years back my sister's husband had a son with Cystic Fibrosis. When he was younger he only needed to take enzymes and never had any lung problems. Years of never going to the doctor, never having the enzymes available for him he did end up developing lung issues and very quickly became extremely sick. I had told my sister at that point. "Either she takes him to the doctor or I will report her myself". She was an alcoholic and drug user, smoked heavily in the home. She did end up taking him to the doctors and they admitted him immediately. He had Cepacia. When he turned 18 he finally was able to get out of the house and move to another relatives. She was able to help him get the proper medical treatment. He was very sick by that point.
Very smart move.......You are very wonderful sister for caring for your sibling this much