We have a friend who is the principal of the high school where we live and there are programs like 504 and also part-time enrollment options. Books, tutors and other materials are included in these types of programs. I'm sure if you call your school district you can find out about these options just of a plan B (which of course may never come ;-)
We chose home ed before CF entered the picture and love it. We have family support and access to a lot of programs in our area. My CFer is only 3 but my 7 year old has been home schooled (unschooled) since kindergarten. I never in a million years thought I'd be doing it, but it has actually opened a whole new world of opportunities up. I think it may depend on where you live, but we have a huge extended home ed community with lots of group activities, diversity and mom-2-mom support. Everyone knows to stay home or give us a heads up if they've been through a respiratory illness, so it has probably cut back on his illnesses. However, we don't stay away from community and group stuff to avoid illness...they just know about his CF and are extra careful. I'm not particularly paranoid about germs and stuff...we just practice frequently hand washing in the winter months and boost immune system naturally.
I don't think there is a perfect way to show your children the world and help them gain the skills to do well...just what works for your family and your children. If my CFer ends up really wanting to go to school we will more than likely honor that decision and help him make it work like we would if our daughter chooses to go that route. I have a few friends who have one kid in school and one who likes the freedom of home ed...so it is amazingly varied. Honestly, you aren't sitting at home for 6 hours doing lessons like at school. We have a group class on Mondays and then get our own work done in 3 days with just mornings lessons. This leaves afternoons and Fridays free.
I know you didn't really ask about home ed but I thought it might reassure you to know a "normal" (I use that lightly lol) mom who never imagined doing it has and has been amazed at the transformation that has occured because of it If it goes that way some day or you choose to for health reasons, there are lots of ways to go about it and lots of support out there.
We chose home ed before CF entered the picture and love it. We have family support and access to a lot of programs in our area. My CFer is only 3 but my 7 year old has been home schooled (unschooled) since kindergarten. I never in a million years thought I'd be doing it, but it has actually opened a whole new world of opportunities up. I think it may depend on where you live, but we have a huge extended home ed community with lots of group activities, diversity and mom-2-mom support. Everyone knows to stay home or give us a heads up if they've been through a respiratory illness, so it has probably cut back on his illnesses. However, we don't stay away from community and group stuff to avoid illness...they just know about his CF and are extra careful. I'm not particularly paranoid about germs and stuff...we just practice frequently hand washing in the winter months and boost immune system naturally.
I don't think there is a perfect way to show your children the world and help them gain the skills to do well...just what works for your family and your children. If my CFer ends up really wanting to go to school we will more than likely honor that decision and help him make it work like we would if our daughter chooses to go that route. I have a few friends who have one kid in school and one who likes the freedom of home ed...so it is amazingly varied. Honestly, you aren't sitting at home for 6 hours doing lessons like at school. We have a group class on Mondays and then get our own work done in 3 days with just mornings lessons. This leaves afternoons and Fridays free.
I know you didn't really ask about home ed but I thought it might reassure you to know a "normal" (I use that lightly lol) mom who never imagined doing it has and has been amazed at the transformation that has occured because of it If it goes that way some day or you choose to for health reasons, there are lots of ways to go about it and lots of support out there.