Homeschooling

S

Sakem

New member
Leah:

You need to talk to the person on this board that has a NURSE assigned to their PRESCHOOL child for the WHOLE day at their public school. From what I can remember her child has mild CF and does not have any big issues w/ their CF. I'm not sure how they were able to get this arrangment, unless they are in a school district that just has lots of extra money or something. Prehaps she could give you some advice about getting something from the public school district. Sorry, I don't remeber who this was, but prehaps she will see this or someone else knows who I am talking about and can let you know.
 
S

Sakem

New member
Leah:

You need to talk to the person on this board that has a NURSE assigned to their PRESCHOOL child for the WHOLE day at their public school. From what I can remember her child has mild CF and does not have any big issues w/ their CF. I'm not sure how they were able to get this arrangment, unless they are in a school district that just has lots of extra money or something. Prehaps she could give you some advice about getting something from the public school district. Sorry, I don't remeber who this was, but prehaps she will see this or someone else knows who I am talking about and can let you know.
 
S

Sakem

New member
Leah:

You need to talk to the person on this board that has a NURSE assigned to their PRESCHOOL child for the WHOLE day at their public school. From what I can remember her child has mild CF and does not have any big issues w/ their CF. I'm not sure how they were able to get this arrangment, unless they are in a school district that just has lots of extra money or something. Prehaps she could give you some advice about getting something from the public school district. Sorry, I don't remeber who this was, but prehaps she will see this or someone else knows who I am talking about and can let you know.
 
S

Sakem

New member
Leah:

You need to talk to the person on this board that has a NURSE assigned to their PRESCHOOL child for the WHOLE day at their public school. From what I can remember her child has mild CF and does not have any big issues w/ their CF. I'm not sure how they were able to get this arrangment, unless they are in a school district that just has lots of extra money or something. Prehaps she could give you some advice about getting something from the public school district. Sorry, I don't remeber who this was, but prehaps she will see this or someone else knows who I am talking about and can let you know.
 
S

Sakem

New member
Leah:

You need to talk to the person on this board that has a NURSE assigned to their PRESCHOOL child for the WHOLE day at their public school. From what I can remember her child has mild CF and does not have any big issues w/ their CF. I'm not sure how they were able to get this arrangment, unless they are in a school district that just has lots of extra money or something. Prehaps she could give you some advice about getting something from the public school district. Sorry, I don't remeber who this was, but prehaps she will see this or someone else knows who I am talking about and can let you know.
 
E

Emily65Roses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Sakem</b></i>
Leah:
You need to talk to the person on this board that has a NURSE assigned to their PRESCHOOL child for the WHOLE day at their public school. From what I can remember her child has mild CF and does not have any big issues w/ their CF. I'm not sure how they were able to get this arrangment, unless they are in a school district that just has lots of extra money or something. Prehaps she could give you some advice about getting something from the public school district. Sorry, I don't remeber who this was, but prehaps she will see this or someone else knows who I am talking about and can let you know.</end quote></div>

To each his own, and I don't even remember who this was, but I wanted to comment on it. I think it's BEYOND ridiculous. There is NO NEED WHATSOEVER for this type of over-protecting germaphobe behavior. CF kids, like anybody else, need to acquire an immune system. You know how this happens? Exposure to germs. It isn't that hard to figure out. I never disinfected anything as a kid. None of this hyper "oh my god we have to put bleach on everything" rubbish. You know that's why antibiotics are working less? Because everyone disinfects everything. It's totally unnecessary.

Your kid can go to public school like anyone else. It won't kill him, it won't hurt him, it'll be good for him.

I went to public school my entire life (and I'm in college now). I never had a nurse follow me anywhere in school. I only went to the nurse's office before lunch for my enzymes. End of story. I didn't disinfect anything and everything in front of me. I'm doing very well. 70% of my lung function at 23. And no, I don't have "mild" CF. I have a Class I and a Class II mutation. So essentially, in theory, I should be dead. And I'm fine. I attribute this, partially, to having lived a normal life. My mom did not freak out and go overboard, and I'm so glad.

Having CF means doing meds and taking care of your kids. It doesn't mean losing your mind and going way way overboard. For chrissake, they already have a lot of stuff making them stand out, let everything else be as NORMAL as possible. I feel bad for the kid who has a nurse follow him all the live long day. He's going to stand out and be the freak and it's SO UNNECESSARY. (Besides which, when he goes to college or gets a job -- assuming he doesn't stay home until he dies -- his body won't be able to handle it because everything in front of him was disinfected his whole life).

CF kids can be exposed to germs. They can even get colds! *gasp* It's not going to kill them. It would have to be a very specialized and unusual CF case to warrant anything insane like this.

Let the kid go to school. He'll thank you for it.
 
E

Emily65Roses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Sakem</b></i>
Leah:
You need to talk to the person on this board that has a NURSE assigned to their PRESCHOOL child for the WHOLE day at their public school. From what I can remember her child has mild CF and does not have any big issues w/ their CF. I'm not sure how they were able to get this arrangment, unless they are in a school district that just has lots of extra money or something. Prehaps she could give you some advice about getting something from the public school district. Sorry, I don't remeber who this was, but prehaps she will see this or someone else knows who I am talking about and can let you know.</end quote></div>

To each his own, and I don't even remember who this was, but I wanted to comment on it. I think it's BEYOND ridiculous. There is NO NEED WHATSOEVER for this type of over-protecting germaphobe behavior. CF kids, like anybody else, need to acquire an immune system. You know how this happens? Exposure to germs. It isn't that hard to figure out. I never disinfected anything as a kid. None of this hyper "oh my god we have to put bleach on everything" rubbish. You know that's why antibiotics are working less? Because everyone disinfects everything. It's totally unnecessary.

Your kid can go to public school like anyone else. It won't kill him, it won't hurt him, it'll be good for him.

I went to public school my entire life (and I'm in college now). I never had a nurse follow me anywhere in school. I only went to the nurse's office before lunch for my enzymes. End of story. I didn't disinfect anything and everything in front of me. I'm doing very well. 70% of my lung function at 23. And no, I don't have "mild" CF. I have a Class I and a Class II mutation. So essentially, in theory, I should be dead. And I'm fine. I attribute this, partially, to having lived a normal life. My mom did not freak out and go overboard, and I'm so glad.

Having CF means doing meds and taking care of your kids. It doesn't mean losing your mind and going way way overboard. For chrissake, they already have a lot of stuff making them stand out, let everything else be as NORMAL as possible. I feel bad for the kid who has a nurse follow him all the live long day. He's going to stand out and be the freak and it's SO UNNECESSARY. (Besides which, when he goes to college or gets a job -- assuming he doesn't stay home until he dies -- his body won't be able to handle it because everything in front of him was disinfected his whole life).

CF kids can be exposed to germs. They can even get colds! *gasp* It's not going to kill them. It would have to be a very specialized and unusual CF case to warrant anything insane like this.

Let the kid go to school. He'll thank you for it.
 
E

Emily65Roses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Sakem</b></i>
Leah:
You need to talk to the person on this board that has a NURSE assigned to their PRESCHOOL child for the WHOLE day at their public school. From what I can remember her child has mild CF and does not have any big issues w/ their CF. I'm not sure how they were able to get this arrangment, unless they are in a school district that just has lots of extra money or something. Prehaps she could give you some advice about getting something from the public school district. Sorry, I don't remeber who this was, but prehaps she will see this or someone else knows who I am talking about and can let you know.</end quote></div>

To each his own, and I don't even remember who this was, but I wanted to comment on it. I think it's BEYOND ridiculous. There is NO NEED WHATSOEVER for this type of over-protecting germaphobe behavior. CF kids, like anybody else, need to acquire an immune system. You know how this happens? Exposure to germs. It isn't that hard to figure out. I never disinfected anything as a kid. None of this hyper "oh my god we have to put bleach on everything" rubbish. You know that's why antibiotics are working less? Because everyone disinfects everything. It's totally unnecessary.

Your kid can go to public school like anyone else. It won't kill him, it won't hurt him, it'll be good for him.

I went to public school my entire life (and I'm in college now). I never had a nurse follow me anywhere in school. I only went to the nurse's office before lunch for my enzymes. End of story. I didn't disinfect anything and everything in front of me. I'm doing very well. 70% of my lung function at 23. And no, I don't have "mild" CF. I have a Class I and a Class II mutation. So essentially, in theory, I should be dead. And I'm fine. I attribute this, partially, to having lived a normal life. My mom did not freak out and go overboard, and I'm so glad.

Having CF means doing meds and taking care of your kids. It doesn't mean losing your mind and going way way overboard. For chrissake, they already have a lot of stuff making them stand out, let everything else be as NORMAL as possible. I feel bad for the kid who has a nurse follow him all the live long day. He's going to stand out and be the freak and it's SO UNNECESSARY. (Besides which, when he goes to college or gets a job -- assuming he doesn't stay home until he dies -- his body won't be able to handle it because everything in front of him was disinfected his whole life).

CF kids can be exposed to germs. They can even get colds! *gasp* It's not going to kill them. It would have to be a very specialized and unusual CF case to warrant anything insane like this.

Let the kid go to school. He'll thank you for it.
 
E

Emily65Roses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Sakem</b></i>
Leah:
You need to talk to the person on this board that has a NURSE assigned to their PRESCHOOL child for the WHOLE day at their public school. From what I can remember her child has mild CF and does not have any big issues w/ their CF. I'm not sure how they were able to get this arrangment, unless they are in a school district that just has lots of extra money or something. Prehaps she could give you some advice about getting something from the public school district. Sorry, I don't remeber who this was, but prehaps she will see this or someone else knows who I am talking about and can let you know.</end quote>

To each his own, and I don't even remember who this was, but I wanted to comment on it. I think it's BEYOND ridiculous. There is NO NEED WHATSOEVER for this type of over-protecting germaphobe behavior. CF kids, like anybody else, need to acquire an immune system. You know how this happens? Exposure to germs. It isn't that hard to figure out. I never disinfected anything as a kid. None of this hyper "oh my god we have to put bleach on everything" rubbish. You know that's why antibiotics are working less? Because everyone disinfects everything. It's totally unnecessary.

Your kid can go to public school like anyone else. It won't kill him, it won't hurt him, it'll be good for him.

I went to public school my entire life (and I'm in college now). I never had a nurse follow me anywhere in school. I only went to the nurse's office before lunch for my enzymes. End of story. I didn't disinfect anything and everything in front of me. I'm doing very well. 70% of my lung function at 23. And no, I don't have "mild" CF. I have a Class I and a Class II mutation. So essentially, in theory, I should be dead. And I'm fine. I attribute this, partially, to having lived a normal life. My mom did not freak out and go overboard, and I'm so glad.

Having CF means doing meds and taking care of your kids. It doesn't mean losing your mind and going way way overboard. For chrissake, they already have a lot of stuff making them stand out, let everything else be as NORMAL as possible. I feel bad for the kid who has a nurse follow him all the live long day. He's going to stand out and be the freak and it's SO UNNECESSARY. (Besides which, when he goes to college or gets a job -- assuming he doesn't stay home until he dies -- his body won't be able to handle it because everything in front of him was disinfected his whole life).

CF kids can be exposed to germs. They can even get colds! *gasp* It's not going to kill them. It would have to be a very specialized and unusual CF case to warrant anything insane like this.

Let the kid go to school. He'll thank you for it.
 
E

Emily65Roses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Sakem</b></i>
Leah:
You need to talk to the person on this board that has a NURSE assigned to their PRESCHOOL child for the WHOLE day at their public school. From what I can remember her child has mild CF and does not have any big issues w/ their CF. I'm not sure how they were able to get this arrangment, unless they are in a school district that just has lots of extra money or something. Prehaps she could give you some advice about getting something from the public school district. Sorry, I don't remeber who this was, but prehaps she will see this or someone else knows who I am talking about and can let you know.</end quote>

To each his own, and I don't even remember who this was, but I wanted to comment on it. I think it's BEYOND ridiculous. There is NO NEED WHATSOEVER for this type of over-protecting germaphobe behavior. CF kids, like anybody else, need to acquire an immune system. You know how this happens? Exposure to germs. It isn't that hard to figure out. I never disinfected anything as a kid. None of this hyper "oh my god we have to put bleach on everything" rubbish. You know that's why antibiotics are working less? Because everyone disinfects everything. It's totally unnecessary.

Your kid can go to public school like anyone else. It won't kill him, it won't hurt him, it'll be good for him.

I went to public school my entire life (and I'm in college now). I never had a nurse follow me anywhere in school. I only went to the nurse's office before lunch for my enzymes. End of story. I didn't disinfect anything and everything in front of me. I'm doing very well. 70% of my lung function at 23. And no, I don't have "mild" CF. I have a Class I and a Class II mutation. So essentially, in theory, I should be dead. And I'm fine. I attribute this, partially, to having lived a normal life. My mom did not freak out and go overboard, and I'm so glad.

Having CF means doing meds and taking care of your kids. It doesn't mean losing your mind and going way way overboard. For chrissake, they already have a lot of stuff making them stand out, let everything else be as NORMAL as possible. I feel bad for the kid who has a nurse follow him all the live long day. He's going to stand out and be the freak and it's SO UNNECESSARY. (Besides which, when he goes to college or gets a job -- assuming he doesn't stay home until he dies -- his body won't be able to handle it because everything in front of him was disinfected his whole life).

CF kids can be exposed to germs. They can even get colds! *gasp* It's not going to kill them. It would have to be a very specialized and unusual CF case to warrant anything insane like this.

Let the kid go to school. He'll thank you for it.
 
R

Ratatosk

Administrator
Staff member
I'd expressed some concerns on this site and another about the enzyme issue. DS starts kindergarten next year and K-6 (Elementary) anyone who takes medications have to go to the main office and get them and I'm worried he'll get some cranky office person who gives him grief, or he'll think waiting in line is a pain, and just decide not to take his enzymes, etc. They don't have a nurse full time at the schools -- they come in a few times a week. I know, I know -- I'm a worrier...

Anyway, a mom on another site suggested asking for a para to follow my son around and carry his meds. She has a teenager and he's always had a para who would carry his enzymes, inhaler and snacks 'cuz apparently needed snacks and gatorade thru out the day. And all I could think of was YIKES! What a way to get the kid beat up! We're trying to make life as normal as possible for DS, just want to make sure things are as simple/streamlined as possible regarding the enzyme issue. Could you imagine the teasing a kid would get, trying to fit in with his classmates and having someone follow him from class to class and babysit him. Sigh...
 
R

Ratatosk

Administrator
Staff member
I'd expressed some concerns on this site and another about the enzyme issue. DS starts kindergarten next year and K-6 (Elementary) anyone who takes medications have to go to the main office and get them and I'm worried he'll get some cranky office person who gives him grief, or he'll think waiting in line is a pain, and just decide not to take his enzymes, etc. They don't have a nurse full time at the schools -- they come in a few times a week. I know, I know -- I'm a worrier...

Anyway, a mom on another site suggested asking for a para to follow my son around and carry his meds. She has a teenager and he's always had a para who would carry his enzymes, inhaler and snacks 'cuz apparently needed snacks and gatorade thru out the day. And all I could think of was YIKES! What a way to get the kid beat up! We're trying to make life as normal as possible for DS, just want to make sure things are as simple/streamlined as possible regarding the enzyme issue. Could you imagine the teasing a kid would get, trying to fit in with his classmates and having someone follow him from class to class and babysit him. Sigh...
 
R

Ratatosk

Administrator
Staff member
I'd expressed some concerns on this site and another about the enzyme issue. DS starts kindergarten next year and K-6 (Elementary) anyone who takes medications have to go to the main office and get them and I'm worried he'll get some cranky office person who gives him grief, or he'll think waiting in line is a pain, and just decide not to take his enzymes, etc. They don't have a nurse full time at the schools -- they come in a few times a week. I know, I know -- I'm a worrier...

Anyway, a mom on another site suggested asking for a para to follow my son around and carry his meds. She has a teenager and he's always had a para who would carry his enzymes, inhaler and snacks 'cuz apparently needed snacks and gatorade thru out the day. And all I could think of was YIKES! What a way to get the kid beat up! We're trying to make life as normal as possible for DS, just want to make sure things are as simple/streamlined as possible regarding the enzyme issue. Could you imagine the teasing a kid would get, trying to fit in with his classmates and having someone follow him from class to class and babysit him. Sigh...
 
R

Ratatosk

Administrator
Staff member
I'd expressed some concerns on this site and another about the enzyme issue. DS starts kindergarten next year and K-6 (Elementary) anyone who takes medications have to go to the main office and get them and I'm worried he'll get some cranky office person who gives him grief, or he'll think waiting in line is a pain, and just decide not to take his enzymes, etc. They don't have a nurse full time at the schools -- they come in a few times a week. I know, I know -- I'm a worrier...

Anyway, a mom on another site suggested asking for a para to follow my son around and carry his meds. She has a teenager and he's always had a para who would carry his enzymes, inhaler and snacks 'cuz apparently needed snacks and gatorade thru out the day. And all I could think of was YIKES! What a way to get the kid beat up! We're trying to make life as normal as possible for DS, just want to make sure things are as simple/streamlined as possible regarding the enzyme issue. Could you imagine the teasing a kid would get, trying to fit in with his classmates and having someone follow him from class to class and babysit him. Sigh...
 
R

Ratatosk

Administrator
Staff member
I'd expressed some concerns on this site and another about the enzyme issue. DS starts kindergarten next year and K-6 (Elementary) anyone who takes medications have to go to the main office and get them and I'm worried he'll get some cranky office person who gives him grief, or he'll think waiting in line is a pain, and just decide not to take his enzymes, etc. They don't have a nurse full time at the schools -- they come in a few times a week. I know, I know -- I'm a worrier...

Anyway, a mom on another site suggested asking for a para to follow my son around and carry his meds. She has a teenager and he's always had a para who would carry his enzymes, inhaler and snacks 'cuz apparently needed snacks and gatorade thru out the day. And all I could think of was YIKES! What a way to get the kid beat up! We're trying to make life as normal as possible for DS, just want to make sure things are as simple/streamlined as possible regarding the enzyme issue. Could you imagine the teasing a kid would get, trying to fit in with his classmates and having someone follow him from class to class and babysit him. Sigh...
 
P

pnhuffman

New member
I agree that a child should live as normal as possible. They already go through a lot and then having to stand out because of parents having a germ phobia. And like Emily said they need to build up their immunity to germs. If you keep them away from all germs they are going to be very suceptible to getting sick.

At times I think I am not protective enough and other times I feel maybe I am too protective. Do people realize how many germs they have themselves. Like when you go shopping or out to eat somewhere. You are also bringing those germs home to your family.

Austin is a full-time little boy who loves to play in the dirt, mud puddles, sand box, roll down hills, play with animals and all the other things little boys love to do. If I took that all away from him he would go down hill in a hurry. He needs the stimulation and interaction.

And I am not saying that Reece should go to school I think that is something that you and your doctor need to decide because we don't know his whole life history or anything else. You need to do what is best for you guys. Just like I feel what I am doing with Austin is the right thing for us.
 
P

pnhuffman

New member
I agree that a child should live as normal as possible. They already go through a lot and then having to stand out because of parents having a germ phobia. And like Emily said they need to build up their immunity to germs. If you keep them away from all germs they are going to be very suceptible to getting sick.

At times I think I am not protective enough and other times I feel maybe I am too protective. Do people realize how many germs they have themselves. Like when you go shopping or out to eat somewhere. You are also bringing those germs home to your family.

Austin is a full-time little boy who loves to play in the dirt, mud puddles, sand box, roll down hills, play with animals and all the other things little boys love to do. If I took that all away from him he would go down hill in a hurry. He needs the stimulation and interaction.

And I am not saying that Reece should go to school I think that is something that you and your doctor need to decide because we don't know his whole life history or anything else. You need to do what is best for you guys. Just like I feel what I am doing with Austin is the right thing for us.
 
P

pnhuffman

New member
I agree that a child should live as normal as possible. They already go through a lot and then having to stand out because of parents having a germ phobia. And like Emily said they need to build up their immunity to germs. If you keep them away from all germs they are going to be very suceptible to getting sick.

At times I think I am not protective enough and other times I feel maybe I am too protective. Do people realize how many germs they have themselves. Like when you go shopping or out to eat somewhere. You are also bringing those germs home to your family.

Austin is a full-time little boy who loves to play in the dirt, mud puddles, sand box, roll down hills, play with animals and all the other things little boys love to do. If I took that all away from him he would go down hill in a hurry. He needs the stimulation and interaction.

And I am not saying that Reece should go to school I think that is something that you and your doctor need to decide because we don't know his whole life history or anything else. You need to do what is best for you guys. Just like I feel what I am doing with Austin is the right thing for us.
 
P

pnhuffman

New member
I agree that a child should live as normal as possible. They already go through a lot and then having to stand out because of parents having a germ phobia. And like Emily said they need to build up their immunity to germs. If you keep them away from all germs they are going to be very suceptible to getting sick.

At times I think I am not protective enough and other times I feel maybe I am too protective. Do people realize how many germs they have themselves. Like when you go shopping or out to eat somewhere. You are also bringing those germs home to your family.

Austin is a full-time little boy who loves to play in the dirt, mud puddles, sand box, roll down hills, play with animals and all the other things little boys love to do. If I took that all away from him he would go down hill in a hurry. He needs the stimulation and interaction.

And I am not saying that Reece should go to school I think that is something that you and your doctor need to decide because we don't know his whole life history or anything else. You need to do what is best for you guys. Just like I feel what I am doing with Austin is the right thing for us.
 
P

pnhuffman

New member
I agree that a child should live as normal as possible. They already go through a lot and then having to stand out because of parents having a germ phobia. And like Emily said they need to build up their immunity to germs. If you keep them away from all germs they are going to be very suceptible to getting sick.

At times I think I am not protective enough and other times I feel maybe I am too protective. Do people realize how many germs they have themselves. Like when you go shopping or out to eat somewhere. You are also bringing those germs home to your family.

Austin is a full-time little boy who loves to play in the dirt, mud puddles, sand box, roll down hills, play with animals and all the other things little boys love to do. If I took that all away from him he would go down hill in a hurry. He needs the stimulation and interaction.

And I am not saying that Reece should go to school I think that is something that you and your doctor need to decide because we don't know his whole life history or anything else. You need to do what is best for you guys. Just like I feel what I am doing with Austin is the right thing for us.
 
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