Homeschooling

[MOME2RT]

I agree on the exposing Cf kids to germs etc. BUT......Reece has a very severe case. His doctors are very concerned & are looking out for his well being! His CT scans, PFTs, charts & X Rays are being sent to UNC for them to look over to see what can be done next. Every CFer is DIFFERENT. Reece lungs well, his one lung that is halfway functioning needs to stay as healthy as possible! So if that means keeping him home to be homeschooled thats what we are gonna do!

Yes, I want him to have a "normal" childhood, but I also want him around to be able to enjoy his childhood. Reece is my world, I am gonna do what I think is right for him. Ive seen it one here before, it is sooooo different when you are a parent to a CFer! You see things in a different light.

Emily, how is going to school "good for him" if hes in the hospital every 1-2 months? Thats NOT normal. And you cant compare to what you did & didnt do to todays Cfers. Germs are different, the kids are different etc. So what worked 15 years ago isnt gonna always work today.

PS~ For the record I am NOT saying any of these things in an ugly tone, just standing up for what I believe. Just like Emily & the others think is their opinion.

 

[MOME2RT]

I agree on the exposing Cf kids to germs etc. BUT......Reece has a very severe case. His doctors are very concerned & are looking out for his well being! His CT scans, PFTs, charts & X Rays are being sent to UNC for them to look over to see what can be done next. Every CFer is DIFFERENT. Reece lungs well, his one lung that is halfway functioning needs to stay as healthy as possible! So if that means keeping him home to be homeschooled thats what we are gonna do!

Yes, I want him to have a "normal" childhood, but I also want him around to be able to enjoy his childhood. Reece is my world, I am gonna do what I think is right for him. Ive seen it one here before, it is sooooo different when you are a parent to a CFer! You see things in a different light.

Emily, how is going to school "good for him" if hes in the hospital every 1-2 months? Thats NOT normal. And you cant compare to what you did & didnt do to todays Cfers. Germs are different, the kids are different etc. So what worked 15 years ago isnt gonna always work today.

PS~ For the record I am NOT saying any of these things in an ugly tone, just standing up for what I believe. Just like Emily & the others think is their opinion.

 

[MOME2RT]

I agree on the exposing Cf kids to germs etc. BUT......Reece has a very severe case. His doctors are very concerned & are looking out for his well being! His CT scans, PFTs, charts & X Rays are being sent to UNC for them to look over to see what can be done next. Every CFer is DIFFERENT. Reece lungs well, his one lung that is halfway functioning needs to stay as healthy as possible! So if that means keeping him home to be homeschooled thats what we are gonna do!

Yes, I want him to have a "normal" childhood, but I also want him around to be able to enjoy his childhood. Reece is my world, I am gonna do what I think is right for him. Ive seen it one here before, it is sooooo different when you are a parent to a CFer! You see things in a different light.

Emily, how is going to school "good for him" if hes in the hospital every 1-2 months? Thats NOT normal. And you cant compare to what you did & didnt do to todays Cfers. Germs are different, the kids are different etc. So what worked 15 years ago isnt gonna always work today.

PS~ For the record I am NOT saying any of these things in an ugly tone, just standing up for what I believe. Just like Emily & the others think is their opinion.

 

[MOME2RT]

I agree on the exposing Cf kids to germs etc. BUT......Reece has a very severe case. His doctors are very concerned & are looking out for his well being! His CT scans, PFTs, charts & X Rays are being sent to UNC for them to look over to see what can be done next. Every CFer is DIFFERENT. Reece lungs well, his one lung that is halfway functioning needs to stay as healthy as possible! So if that means keeping him home to be homeschooled thats what we are gonna do!

Yes, I want him to have a "normal" childhood, but I also want him around to be able to enjoy his childhood. Reece is my world, I am gonna do what I think is right for him. Ive seen it one here before, it is sooooo different when you are a parent to a CFer! You see things in a different light.

Emily, how is going to school "good for him" if hes in the hospital every 1-2 months? Thats NOT normal. And you cant compare to what you did & didnt do to todays Cfers. Germs are different, the kids are different etc. So what worked 15 years ago isnt gonna always work today.

PS~ For the record I am NOT saying any of these things in an ugly tone, just standing up for what I believe. Just like Emily & the others think is their opinion.

 

[MOME2RT]

I agree on the exposing Cf kids to germs etc. BUT......Reece has a very severe case. His doctors are very concerned & are looking out for his well being! His CT scans, PFTs, charts & X Rays are being sent to UNC for them to look over to see what can be done next. Every CFer is DIFFERENT. Reece lungs well, his one lung that is halfway functioning needs to stay as healthy as possible! So if that means keeping him home to be homeschooled thats what we are gonna do!

Yes, I want him to have a "normal" childhood, but I also want him around to be able to enjoy his childhood. Reece is my world, I am gonna do what I think is right for him. Ive seen it one here before, it is sooooo different when you are a parent to a CFer! You see things in a different light.

Emily, how is going to school "good for him" if hes in the hospital every 1-2 months? Thats NOT normal. And you cant compare to what you did & didnt do to todays Cfers. Germs are different, the kids are different etc. So what worked 15 years ago isnt gonna always work today.

PS~ For the record I am NOT saying any of these things in an ugly tone, just standing up for what I believe. Just like Emily & the others think is their opinion.

 

[Emily65Roses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>
It would have to be a very specialized and unusual CF case to warrant anything insane like this. </end quote></div>

If it's a specialized case, so be it. I'm generalizing here. Most CF kids, new germs, new therapies, new whatevers or not, do not need to be kept in a bubble to survive.

Oh and I might ask if Reece's health was that way from day one... or if you disinfected everything and now his health is crappy. In short, did you disinfect everything around him since the day you brought him home? Not that I'd expect you to answer truthfully if that was the case, because that would validate what I'm saying. Really, I don't expect an answer at all. It's more a rhetorical question for your own thinking.<i>(Rereading this, it seems it might have an accusatory tone, and that is not intended. It's just my thinking outloud, wondering if perhaps that's why. Over-disinfecting things truly does have a negative effect unless it's necessary [and by necessary I mean like... post-tx]. If Reece was just always crappy, then he was. I was merely thinking aloud.)</i>

Furthermore, new bugs are worse, yes. But get this. When I was a kid, pseudomonas was a death sentence. So yes, the bugs are worse, but the therapies are also better. It kind of balances out.

Finally, OF COURSE CFers and parents of CFers see things differently. But I think, as parents of CFers, you parents might value what we have to say. WE live with it, not you. YOUR KIDS live with it, not you. <i>(Mind you I'm not saying you don't live with its effects, I'm being literal here.)</i> We know what worked for us, so we share it. If I were you, I'd value what any adult CFer had to say. I'd listen to them all, and find my opinion somewhere in the middle of the extremes. But I'd value what they had to share.

 

[Emily65Roses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>
It would have to be a very specialized and unusual CF case to warrant anything insane like this. </end quote></div>

If it's a specialized case, so be it. I'm generalizing here. Most CF kids, new germs, new therapies, new whatevers or not, do not need to be kept in a bubble to survive.

Oh and I might ask if Reece's health was that way from day one... or if you disinfected everything and now his health is crappy. In short, did you disinfect everything around him since the day you brought him home? Not that I'd expect you to answer truthfully if that was the case, because that would validate what I'm saying. Really, I don't expect an answer at all. It's more a rhetorical question for your own thinking.<i>(Rereading this, it seems it might have an accusatory tone, and that is not intended. It's just my thinking outloud, wondering if perhaps that's why. Over-disinfecting things truly does have a negative effect unless it's necessary [and by necessary I mean like... post-tx]. If Reece was just always crappy, then he was. I was merely thinking aloud.)</i>

Furthermore, new bugs are worse, yes. But get this. When I was a kid, pseudomonas was a death sentence. So yes, the bugs are worse, but the therapies are also better. It kind of balances out.

Finally, OF COURSE CFers and parents of CFers see things differently. But I think, as parents of CFers, you parents might value what we have to say. WE live with it, not you. YOUR KIDS live with it, not you. <i>(Mind you I'm not saying you don't live with its effects, I'm being literal here.)</i> We know what worked for us, so we share it. If I were you, I'd value what any adult CFer had to say. I'd listen to them all, and find my opinion somewhere in the middle of the extremes. But I'd value what they had to share.

 

[Emily65Roses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>
It would have to be a very specialized and unusual CF case to warrant anything insane like this. </end quote></div>

If it's a specialized case, so be it. I'm generalizing here. Most CF kids, new germs, new therapies, new whatevers or not, do not need to be kept in a bubble to survive.

Oh and I might ask if Reece's health was that way from day one... or if you disinfected everything and now his health is crappy. In short, did you disinfect everything around him since the day you brought him home? Not that I'd expect you to answer truthfully if that was the case, because that would validate what I'm saying. Really, I don't expect an answer at all. It's more a rhetorical question for your own thinking.<i>(Rereading this, it seems it might have an accusatory tone, and that is not intended. It's just my thinking outloud, wondering if perhaps that's why. Over-disinfecting things truly does have a negative effect unless it's necessary [and by necessary I mean like... post-tx]. If Reece was just always crappy, then he was. I was merely thinking aloud.)</i>

Furthermore, new bugs are worse, yes. But get this. When I was a kid, pseudomonas was a death sentence. So yes, the bugs are worse, but the therapies are also better. It kind of balances out.

Finally, OF COURSE CFers and parents of CFers see things differently. But I think, as parents of CFers, you parents might value what we have to say. WE live with it, not you. YOUR KIDS live with it, not you. <i>(Mind you I'm not saying you don't live with its effects, I'm being literal here.)</i> We know what worked for us, so we share it. If I were you, I'd value what any adult CFer had to say. I'd listen to them all, and find my opinion somewhere in the middle of the extremes. But I'd value what they had to share.

 

[Emily65Roses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>
It would have to be a very specialized and unusual CF case to warrant anything insane like this. </end quote>

If it's a specialized case, so be it. I'm generalizing here. Most CF kids, new germs, new therapies, new whatevers or not, do not need to be kept in a bubble to survive.

Oh and I might ask if Reece's health was that way from day one... or if you disinfected everything and now his health is crappy. In short, did you disinfect everything around him since the day you brought him home? Not that I'd expect you to answer truthfully if that was the case, because that would validate what I'm saying. Really, I don't expect an answer at all. It's more a rhetorical question for your own thinking.<i>(Rereading this, it seems it might have an accusatory tone, and that is not intended. It's just my thinking outloud, wondering if perhaps that's why. Over-disinfecting things truly does have a negative effect unless it's necessary [and by necessary I mean like... post-tx]. If Reece was just always crappy, then he was. I was merely thinking aloud.)</i>

Furthermore, new bugs are worse, yes. But get this. When I was a kid, pseudomonas was a death sentence. So yes, the bugs are worse, but the therapies are also better. It kind of balances out.

Finally, OF COURSE CFers and parents of CFers see things differently. But I think, as parents of CFers, you parents might value what we have to say. WE live with it, not you. YOUR KIDS live with it, not you. <i>(Mind you I'm not saying you don't live with its effects, I'm being literal here.)</i> We know what worked for us, so we share it. If I were you, I'd value what any adult CFer had to say. I'd listen to them all, and find my opinion somewhere in the middle of the extremes. But I'd value what they had to share.

 

[Emily65Roses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>
It would have to be a very specialized and unusual CF case to warrant anything insane like this. </end quote>

If it's a specialized case, so be it. I'm generalizing here. Most CF kids, new germs, new therapies, new whatevers or not, do not need to be kept in a bubble to survive.

Oh and I might ask if Reece's health was that way from day one... or if you disinfected everything and now his health is crappy. In short, did you disinfect everything around him since the day you brought him home? Not that I'd expect you to answer truthfully if that was the case, because that would validate what I'm saying. Really, I don't expect an answer at all. It's more a rhetorical question for your own thinking.<i>(Rereading this, it seems it might have an accusatory tone, and that is not intended. It's just my thinking outloud, wondering if perhaps that's why. Over-disinfecting things truly does have a negative effect unless it's necessary [and by necessary I mean like... post-tx]. If Reece was just always crappy, then he was. I was merely thinking aloud.)</i>

Furthermore, new bugs are worse, yes. But get this. When I was a kid, pseudomonas was a death sentence. So yes, the bugs are worse, but the therapies are also better. It kind of balances out.

Finally, OF COURSE CFers and parents of CFers see things differently. But I think, as parents of CFers, you parents might value what we have to say. WE live with it, not you. YOUR KIDS live with it, not you. <i>(Mind you I'm not saying you don't live with its effects, I'm being literal here.)</i> We know what worked for us, so we share it. If I were you, I'd value what any adult CFer had to say. I'd listen to them all, and find my opinion somewhere in the middle of the extremes. But I'd value what they had to share.

 

[AnD]

Homeschooling isn't exactly way outside the norm or living in a bubble, either <img src="i/expressions/face-icon-small-wink.gif" border="0"> . From what I gather, it's really not looked at as any different than going to private school in most places these days. It's just another educational option.

Around here, the public schools (even the "good" ones) aren't getting the job done a lot of the time. Some parents (and grandparents!) have decided to homeschool because they were doing it anyways, when their kids got home from school! So they decided to homeschool and just do it once, and have time for a life along with a decent education.

And Reece <i>is</i> a special case- I don't think his doctor would have recommended it if he didn't need it.
I don't think anybody is discounting our view of things as adult cfers here (I also had a "normal" childhood, played in the dirt, caught the flu every year, etc. <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), it's just that this instance is particular to Reece and what he needs to help him get better; and what someone else may have open to them should it come about that they have a "special case" (long term or short term), where it should become necessary to consider something similiar.

 

[AnD]

Homeschooling isn't exactly way outside the norm or living in a bubble, either <img src="i/expressions/face-icon-small-wink.gif" border="0"> . From what I gather, it's really not looked at as any different than going to private school in most places these days. It's just another educational option.

Around here, the public schools (even the "good" ones) aren't getting the job done a lot of the time. Some parents (and grandparents!) have decided to homeschool because they were doing it anyways, when their kids got home from school! So they decided to homeschool and just do it once, and have time for a life along with a decent education.

And Reece <i>is</i> a special case- I don't think his doctor would have recommended it if he didn't need it.
I don't think anybody is discounting our view of things as adult cfers here (I also had a "normal" childhood, played in the dirt, caught the flu every year, etc. <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), it's just that this instance is particular to Reece and what he needs to help him get better; and what someone else may have open to them should it come about that they have a "special case" (long term or short term), where it should become necessary to consider something similiar.

 

[AnD]

Homeschooling isn't exactly way outside the norm or living in a bubble, either <img src="i/expressions/face-icon-small-wink.gif" border="0"> . From what I gather, it's really not looked at as any different than going to private school in most places these days. It's just another educational option.

Around here, the public schools (even the "good" ones) aren't getting the job done a lot of the time. Some parents (and grandparents!) have decided to homeschool because they were doing it anyways, when their kids got home from school! So they decided to homeschool and just do it once, and have time for a life along with a decent education.

And Reece <i>is</i> a special case- I don't think his doctor would have recommended it if he didn't need it.
I don't think anybody is discounting our view of things as adult cfers here (I also had a "normal" childhood, played in the dirt, caught the flu every year, etc. <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), it's just that this instance is particular to Reece and what he needs to help him get better; and what someone else may have open to them should it come about that they have a "special case" (long term or short term), where it should become necessary to consider something similiar.

 

[AnD]

Homeschooling isn't exactly way outside the norm or living in a bubble, either <img src="i/expressions/face-icon-small-wink.gif" border="0"> . From what I gather, it's really not looked at as any different than going to private school in most places these days. It's just another educational option.

Around here, the public schools (even the "good" ones) aren't getting the job done a lot of the time. Some parents (and grandparents!) have decided to homeschool because they were doing it anyways, when their kids got home from school! So they decided to homeschool and just do it once, and have time for a life along with a decent education.

And Reece <i>is</i> a special case- I don't think his doctor would have recommended it if he didn't need it.
I don't think anybody is discounting our view of things as adult cfers here (I also had a "normal" childhood, played in the dirt, caught the flu every year, etc. <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), it's just that this instance is particular to Reece and what he needs to help him get better; and what someone else may have open to them should it come about that they have a "special case" (long term or short term), where it should become necessary to consider something similiar.

 

[AnD]

Homeschooling isn't exactly way outside the norm or living in a bubble, either <img src="i/expressions/face-icon-small-wink.gif" border="0"> . From what I gather, it's really not looked at as any different than going to private school in most places these days. It's just another educational option.

Around here, the public schools (even the "good" ones) aren't getting the job done a lot of the time. Some parents (and grandparents!) have decided to homeschool because they were doing it anyways, when their kids got home from school! So they decided to homeschool and just do it once, and have time for a life along with a decent education.

And Reece <i>is</i> a special case- I don't think his doctor would have recommended it if he didn't need it.
I don't think anybody is discounting our view of things as adult cfers here (I also had a "normal" childhood, played in the dirt, caught the flu every year, etc. <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), it's just that this instance is particular to Reece and what he needs to help him get better; and what someone else may have open to them should it come about that they have a "special case" (long term or short term), where it should become necessary to consider something similiar.

 

[MOME2RT]

Emily, I DO value what you & other Cfers have to say in experiences etc. Thats why I came to this site in the first place. To get educated & share experiences. And I thank you & everyone else for those suggestions/thoughts/experiences etc.

From day one Reece was sent home from the hospital (8 days old) on Cf meds. (love pats, enzymes, reglan, albeutrol,) We were new parents & yes we wanted him to live in a "clean" enviroment, but I wouldnt say we disenfected obsessively. I would say we purelled more then anything. Reeces first hospital visit was when he was 15 months old for a CF excerbation/pnuemonia. So yeah, Reece has been in & out of the hospital mostly all his life. Its just HIM, & how CF affects HIM.

Why wouldnt I be truthful. Im here to help. So if telling the truth is gonna help someone, thats what im gonna do regardless.

 

[MOME2RT]

Emily, I DO value what you & other Cfers have to say in experiences etc. Thats why I came to this site in the first place. To get educated & share experiences. And I thank you & everyone else for those suggestions/thoughts/experiences etc.

From day one Reece was sent home from the hospital (8 days old) on Cf meds. (love pats, enzymes, reglan, albeutrol,) We were new parents & yes we wanted him to live in a "clean" enviroment, but I wouldnt say we disenfected obsessively. I would say we purelled more then anything. Reeces first hospital visit was when he was 15 months old for a CF excerbation/pnuemonia. So yeah, Reece has been in & out of the hospital mostly all his life. Its just HIM, & how CF affects HIM.

Why wouldnt I be truthful. Im here to help. So if telling the truth is gonna help someone, thats what im gonna do regardless.

 

[MOME2RT]

Emily, I DO value what you & other Cfers have to say in experiences etc. Thats why I came to this site in the first place. To get educated & share experiences. And I thank you & everyone else for those suggestions/thoughts/experiences etc.

From day one Reece was sent home from the hospital (8 days old) on Cf meds. (love pats, enzymes, reglan, albeutrol,) We were new parents & yes we wanted him to live in a "clean" enviroment, but I wouldnt say we disenfected obsessively. I would say we purelled more then anything. Reeces first hospital visit was when he was 15 months old for a CF excerbation/pnuemonia. So yeah, Reece has been in & out of the hospital mostly all his life. Its just HIM, & how CF affects HIM.

Why wouldnt I be truthful. Im here to help. So if telling the truth is gonna help someone, thats what im gonna do regardless.

 

[MOME2RT]

Emily, I DO value what you & other Cfers have to say in experiences etc. Thats why I came to this site in the first place. To get educated & share experiences. And I thank you & everyone else for those suggestions/thoughts/experiences etc.

From day one Reece was sent home from the hospital (8 days old) on Cf meds. (love pats, enzymes, reglan, albeutrol,) We were new parents & yes we wanted him to live in a "clean" enviroment, but I wouldnt say we disenfected obsessively. I would say we purelled more then anything. Reeces first hospital visit was when he was 15 months old for a CF excerbation/pnuemonia. So yeah, Reece has been in & out of the hospital mostly all his life. Its just HIM, & how CF affects HIM.

Why wouldnt I be truthful. Im here to help. So if telling the truth is gonna help someone, thats what im gonna do regardless.

 

[MOME2RT]

Emily, I DO value what you & other Cfers have to say in experiences etc. Thats why I came to this site in the first place. To get educated & share experiences. And I thank you & everyone else for those suggestions/thoughts/experiences etc.

From day one Reece was sent home from the hospital (8 days old) on Cf meds. (love pats, enzymes, reglan, albeutrol,) We were new parents & yes we wanted him to live in a "clean" enviroment, but I wouldnt say we disenfected obsessively. I would say we purelled more then anything. Reeces first hospital visit was when he was 15 months old for a CF excerbation/pnuemonia. So yeah, Reece has been in & out of the hospital mostly all his life. Its just HIM, & how CF affects HIM.

Why wouldnt I be truthful. Im here to help. So if telling the truth is gonna help someone, thats what im gonna do regardless.