Sometimes I think this is one of the harder aspects of dealing with CF. I Am still learning how to deal with the what-ifs. Time helps, watching my daughter 's personality develop into an out-going happy,well-adjusted child has helped me cope alot. My husband says Maggie has the right attitude. She does her"puff-puffs" and VEST, takes her enzymes and medicine and then every minute in between is filled with little kids stuff. I felt I am learning to deal with the what-ifs through Maggie's example. It is not easy though. We are older, have a better understanding of what can go wrong. I guess the thing to know is we can not control everything. I find having some time to burn off my anxiety, helps. Running is my medicine. Now that Maggie is older; we can have a babysitter. IT's ok to go out with friends for dinner. In fact, I KNOW my daughter would want me to go out and have fun. She'ld be angry with me if her CF kept our family from doing the "normal" things. Don't know if I'm ranting off topic but I've found this what-if thing to be a challenge for me personaly. HTH
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How do you handle the worry... the what ifs?
- Thread starter MargaritaChic
- Start date
Sometimes I think this is one of the harder aspects of dealing with CF. I Am still learning how to deal with the what-ifs. Time helps, watching my daughter 's personality develop into an out-going happy,well-adjusted child has helped me cope alot. My husband says Maggie has the right attitude. She does her"puff-puffs" and VEST, takes her enzymes and medicine and then every minute in between is filled with little kids stuff. I felt I am learning to deal with the what-ifs through Maggie's example. It is not easy though. We are older, have a better understanding of what can go wrong. I guess the thing to know is we can not control everything. I find having some time to burn off my anxiety, helps. Running is my medicine. Now that Maggie is older; we can have a babysitter. IT's ok to go out with friends for dinner. In fact, I KNOW my daughter would want me to go out and have fun. She'ld be angry with me if her CF kept our family from doing the "normal" things. Don't know if I'm ranting off topic but I've found this what-if thing to be a challenge for me personaly. HTH
Sometimes I think this is one of the harder aspects of dealing with CF. I Am still learning how to deal with the what-ifs. Time helps, watching my daughter 's personality develop into an out-going happy,well-adjusted child has helped me cope alot. My husband says Maggie has the right attitude. She does her"puff-puffs" and VEST, takes her enzymes and medicine and then every minute in between is filled with little kids stuff. I felt I am learning to deal with the what-ifs through Maggie's example. It is not easy though. We are older, have a better understanding of what can go wrong. I guess the thing to know is we can not control everything. I find having some time to burn off my anxiety, helps. Running is my medicine. Now that Maggie is older; we can have a babysitter. IT's ok to go out with friends for dinner. In fact, I KNOW my daughter would want me to go out and have fun. She'ld be angry with me if her CF kept our family from doing the "normal" things. Don't know if I'm ranting off topic but I've found this what-if thing to be a challenge for me personaly. HTH
Sometimes I think this is one of the harder aspects of dealing with CF. I Am still learning how to deal with the what-ifs. Time helps, watching my daughter 's personality develop into an out-going happy,well-adjusted child has helped me cope alot. My husband says Maggie has the right attitude. She does her"puff-puffs" and VEST, takes her enzymes and medicine and then every minute in between is filled with little kids stuff. I felt I am learning to deal with the what-ifs through Maggie's example. It is not easy though. We are older, have a better understanding of what can go wrong. I guess the thing to know is we can not control everything. I find having some time to burn off my anxiety, helps. Running is my medicine. Now that Maggie is older; we can have a babysitter. IT's ok to go out with friends for dinner. In fact, I KNOW my daughter would want me to go out and have fun. She'ld be angry with me if her CF kept our family from doing the "normal" things. Don't know if I'm ranting off topic but I've found this what-if thing to be a challenge for me personaly. HTH
Sometimes I think this is one of the harder aspects of dealing with CF. I Am still learning how to deal with the what-ifs. Time helps, watching my daughter 's personality develop into an out-going happy,well-adjusted child has helped me cope alot. My husband says Maggie has the right attitude. She does her"puff-puffs" and VEST, takes her enzymes and medicine and then every minute in between is filled with little kids stuff. I felt I am learning to deal with the what-ifs through Maggie's example. It is not easy though. We are older, have a better understanding of what can go wrong. I guess the thing to know is we can not control everything. I find having some time to burn off my anxiety, helps. Running is my medicine. Now that Maggie is older; we can have a babysitter. IT's ok to go out with friends for dinner. In fact, I KNOW my daughter would want me to go out and have fun. She'ld be angry with me if her CF kept our family from doing the "normal" things. Don't know if I'm ranting off topic but I've found this what-if thing to be a challenge for me personaly. HTH
I had been pondering this question myself and had considered starting a thread.
Our son is almost 6 months old & it does seem to be getting "easier". I don't cry anymore, but thus far, he hasn't had any symptoms - so I imagine once we cross that bridge it'll feel like starting all over again.
I think that my biggest challenge will be not shielding him too much. I'm already so protective that his sisters don't get to handle him as much as they would like to.
I guess that we are now part of a larger "family" now & we can look to the veterans on this forum to help us get through this & hopefully our children will live well beyond our years.
Our son is almost 6 months old & it does seem to be getting "easier". I don't cry anymore, but thus far, he hasn't had any symptoms - so I imagine once we cross that bridge it'll feel like starting all over again.
I think that my biggest challenge will be not shielding him too much. I'm already so protective that his sisters don't get to handle him as much as they would like to.
I guess that we are now part of a larger "family" now & we can look to the veterans on this forum to help us get through this & hopefully our children will live well beyond our years.
I had been pondering this question myself and had considered starting a thread.
Our son is almost 6 months old & it does seem to be getting "easier". I don't cry anymore, but thus far, he hasn't had any symptoms - so I imagine once we cross that bridge it'll feel like starting all over again.
I think that my biggest challenge will be not shielding him too much. I'm already so protective that his sisters don't get to handle him as much as they would like to.
I guess that we are now part of a larger "family" now & we can look to the veterans on this forum to help us get through this & hopefully our children will live well beyond our years.
Our son is almost 6 months old & it does seem to be getting "easier". I don't cry anymore, but thus far, he hasn't had any symptoms - so I imagine once we cross that bridge it'll feel like starting all over again.
I think that my biggest challenge will be not shielding him too much. I'm already so protective that his sisters don't get to handle him as much as they would like to.
I guess that we are now part of a larger "family" now & we can look to the veterans on this forum to help us get through this & hopefully our children will live well beyond our years.
I had been pondering this question myself and had considered starting a thread.
Our son is almost 6 months old & it does seem to be getting "easier". I don't cry anymore, but thus far, he hasn't had any symptoms - so I imagine once we cross that bridge it'll feel like starting all over again.
I think that my biggest challenge will be not shielding him too much. I'm already so protective that his sisters don't get to handle him as much as they would like to.
I guess that we are now part of a larger "family" now & we can look to the veterans on this forum to help us get through this & hopefully our children will live well beyond our years.
Our son is almost 6 months old & it does seem to be getting "easier". I don't cry anymore, but thus far, he hasn't had any symptoms - so I imagine once we cross that bridge it'll feel like starting all over again.
I think that my biggest challenge will be not shielding him too much. I'm already so protective that his sisters don't get to handle him as much as they would like to.
I guess that we are now part of a larger "family" now & we can look to the veterans on this forum to help us get through this & hopefully our children will live well beyond our years.
I had been pondering this question myself and had considered starting a thread.
Our son is almost 6 months old & it does seem to be getting "easier". I don't cry anymore, but thus far, he hasn't had any symptoms - so I imagine once we cross that bridge it'll feel like starting all over again.
I think that my biggest challenge will be not shielding him too much. I'm already so protective that his sisters don't get to handle him as much as they would like to.
I guess that we are now part of a larger "family" now & we can look to the veterans on this forum to help us get through this & hopefully our children will live well beyond our years.
Our son is almost 6 months old & it does seem to be getting "easier". I don't cry anymore, but thus far, he hasn't had any symptoms - so I imagine once we cross that bridge it'll feel like starting all over again.
I think that my biggest challenge will be not shielding him too much. I'm already so protective that his sisters don't get to handle him as much as they would like to.
I guess that we are now part of a larger "family" now & we can look to the veterans on this forum to help us get through this & hopefully our children will live well beyond our years.
I had been pondering this question myself and had considered starting a thread.
<br />
<br />Our son is almost 6 months old & it does seem to be getting "easier". I don't cry anymore, but thus far, he hasn't had any symptoms - so I imagine once we cross that bridge it'll feel like starting all over again.
<br />
<br />I think that my biggest challenge will be not shielding him too much. I'm already so protective that his sisters don't get to handle him as much as they would like to.
<br />
<br />I guess that we are now part of a larger "family" now & we can look to the veterans on this forum to help us get through this & hopefully our children will live well beyond our years.
<br />
<br />Our son is almost 6 months old & it does seem to be getting "easier". I don't cry anymore, but thus far, he hasn't had any symptoms - so I imagine once we cross that bridge it'll feel like starting all over again.
<br />
<br />I think that my biggest challenge will be not shielding him too much. I'm already so protective that his sisters don't get to handle him as much as they would like to.
<br />
<br />I guess that we are now part of a larger "family" now & we can look to the veterans on this forum to help us get through this & hopefully our children will live well beyond our years.
I have to agree with Heather that now my little one is a toddler and not an infant/baby any longer it is easier to deal and cope. I can ask her questions and get answers (maybe not the right answer, but an answer none the less). When she was smaller she was so much more dependent on me just knowing what was wrong.
Take time to go through the motions Marla and wrap your head around it all. I found just holding my daughter and letting it all out helped. Because I allowed myself to grieve early, I'm able to focus on having fun with her and enjoying her growing up.
All of the meds, doctor's visits, treatments, and sad times (grieving) will just become part of the routine.
I hope we are helping! Your day will get better!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
Em
Take time to go through the motions Marla and wrap your head around it all. I found just holding my daughter and letting it all out helped. Because I allowed myself to grieve early, I'm able to focus on having fun with her and enjoying her growing up.
All of the meds, doctor's visits, treatments, and sad times (grieving) will just become part of the routine.
I hope we are helping! Your day will get better!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
Em
I have to agree with Heather that now my little one is a toddler and not an infant/baby any longer it is easier to deal and cope. I can ask her questions and get answers (maybe not the right answer, but an answer none the less). When she was smaller she was so much more dependent on me just knowing what was wrong.
Take time to go through the motions Marla and wrap your head around it all. I found just holding my daughter and letting it all out helped. Because I allowed myself to grieve early, I'm able to focus on having fun with her and enjoying her growing up.
All of the meds, doctor's visits, treatments, and sad times (grieving) will just become part of the routine.
I hope we are helping! Your day will get better!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
Em
Take time to go through the motions Marla and wrap your head around it all. I found just holding my daughter and letting it all out helped. Because I allowed myself to grieve early, I'm able to focus on having fun with her and enjoying her growing up.
All of the meds, doctor's visits, treatments, and sad times (grieving) will just become part of the routine.
I hope we are helping! Your day will get better!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
Em
I have to agree with Heather that now my little one is a toddler and not an infant/baby any longer it is easier to deal and cope. I can ask her questions and get answers (maybe not the right answer, but an answer none the less). When she was smaller she was so much more dependent on me just knowing what was wrong.
Take time to go through the motions Marla and wrap your head around it all. I found just holding my daughter and letting it all out helped. Because I allowed myself to grieve early, I'm able to focus on having fun with her and enjoying her growing up.
All of the meds, doctor's visits, treatments, and sad times (grieving) will just become part of the routine.
I hope we are helping! Your day will get better!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
Em
Take time to go through the motions Marla and wrap your head around it all. I found just holding my daughter and letting it all out helped. Because I allowed myself to grieve early, I'm able to focus on having fun with her and enjoying her growing up.
All of the meds, doctor's visits, treatments, and sad times (grieving) will just become part of the routine.
I hope we are helping! Your day will get better!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
Em
I have to agree with Heather that now my little one is a toddler and not an infant/baby any longer it is easier to deal and cope. I can ask her questions and get answers (maybe not the right answer, but an answer none the less). When she was smaller she was so much more dependent on me just knowing what was wrong.
Take time to go through the motions Marla and wrap your head around it all. I found just holding my daughter and letting it all out helped. Because I allowed myself to grieve early, I'm able to focus on having fun with her and enjoying her growing up.
All of the meds, doctor's visits, treatments, and sad times (grieving) will just become part of the routine.
I hope we are helping! Your day will get better!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
Em
Take time to go through the motions Marla and wrap your head around it all. I found just holding my daughter and letting it all out helped. Because I allowed myself to grieve early, I'm able to focus on having fun with her and enjoying her growing up.
All of the meds, doctor's visits, treatments, and sad times (grieving) will just become part of the routine.
I hope we are helping! Your day will get better!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
Em
I have to agree with Heather that now my little one is a toddler and not an infant/baby any longer it is easier to deal and cope. I can ask her questions and get answers (maybe not the right answer, but an answer none the less). When she was smaller she was so much more dependent on me just knowing what was wrong.
<br />
<br />Take time to go through the motions Marla and wrap your head around it all. I found just holding my daughter and letting it all out helped. Because I allowed myself to grieve early, I'm able to focus on having fun with her and enjoying her growing up.
<br />
<br />All of the meds, doctor's visits, treatments, and sad times (grieving) will just become part of the routine.
<br />
<br />I hope we are helping! Your day will get better!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />Em
<br />
<br />Take time to go through the motions Marla and wrap your head around it all. I found just holding my daughter and letting it all out helped. Because I allowed myself to grieve early, I'm able to focus on having fun with her and enjoying her growing up.
<br />
<br />All of the meds, doctor's visits, treatments, and sad times (grieving) will just become part of the routine.
<br />
<br />I hope we are helping! Your day will get better!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />Em
I am so glad that you posted, because I go through the same thing. Our son was diagnosed 6 months ago. He is now 9 months old and I still struggle not to live in fear of the "what if". My faith has given me a lot of strength--knowing that no matter what, Luke is a gift from God and that every second with him is precious. And that the worste possible "what ifs" could never compare to the joy he has brought to us.
I think it is important to try to live as normally as possible. I know that as Luke gets older that will be important to him too. It also helps me to hear, almost consistently from every CF parent, that it does get easier as babies get older--are able to really help with airway clearance and have more productive coughs.
And don't be too hard on yourself. Everyone has to cope in their own way. Don't think you are being morbid or pessimistic because you worry. Every parent worries for their child. Our worries are just different, I guess.
I think it is important to try to live as normally as possible. I know that as Luke gets older that will be important to him too. It also helps me to hear, almost consistently from every CF parent, that it does get easier as babies get older--are able to really help with airway clearance and have more productive coughs.
And don't be too hard on yourself. Everyone has to cope in their own way. Don't think you are being morbid or pessimistic because you worry. Every parent worries for their child. Our worries are just different, I guess.
I am so glad that you posted, because I go through the same thing. Our son was diagnosed 6 months ago. He is now 9 months old and I still struggle not to live in fear of the "what if". My faith has given me a lot of strength--knowing that no matter what, Luke is a gift from God and that every second with him is precious. And that the worste possible "what ifs" could never compare to the joy he has brought to us.
I think it is important to try to live as normally as possible. I know that as Luke gets older that will be important to him too. It also helps me to hear, almost consistently from every CF parent, that it does get easier as babies get older--are able to really help with airway clearance and have more productive coughs.
And don't be too hard on yourself. Everyone has to cope in their own way. Don't think you are being morbid or pessimistic because you worry. Every parent worries for their child. Our worries are just different, I guess.
I think it is important to try to live as normally as possible. I know that as Luke gets older that will be important to him too. It also helps me to hear, almost consistently from every CF parent, that it does get easier as babies get older--are able to really help with airway clearance and have more productive coughs.
And don't be too hard on yourself. Everyone has to cope in their own way. Don't think you are being morbid or pessimistic because you worry. Every parent worries for their child. Our worries are just different, I guess.
I am so glad that you posted, because I go through the same thing. Our son was diagnosed 6 months ago. He is now 9 months old and I still struggle not to live in fear of the "what if". My faith has given me a lot of strength--knowing that no matter what, Luke is a gift from God and that every second with him is precious. And that the worste possible "what ifs" could never compare to the joy he has brought to us.
I think it is important to try to live as normally as possible. I know that as Luke gets older that will be important to him too. It also helps me to hear, almost consistently from every CF parent, that it does get easier as babies get older--are able to really help with airway clearance and have more productive coughs.
And don't be too hard on yourself. Everyone has to cope in their own way. Don't think you are being morbid or pessimistic because you worry. Every parent worries for their child. Our worries are just different, I guess.
I think it is important to try to live as normally as possible. I know that as Luke gets older that will be important to him too. It also helps me to hear, almost consistently from every CF parent, that it does get easier as babies get older--are able to really help with airway clearance and have more productive coughs.
And don't be too hard on yourself. Everyone has to cope in their own way. Don't think you are being morbid or pessimistic because you worry. Every parent worries for their child. Our worries are just different, I guess.
I am so glad that you posted, because I go through the same thing. Our son was diagnosed 6 months ago. He is now 9 months old and I still struggle not to live in fear of the "what if". My faith has given me a lot of strength--knowing that no matter what, Luke is a gift from God and that every second with him is precious. And that the worste possible "what ifs" could never compare to the joy he has brought to us.
I think it is important to try to live as normally as possible. I know that as Luke gets older that will be important to him too. It also helps me to hear, almost consistently from every CF parent, that it does get easier as babies get older--are able to really help with airway clearance and have more productive coughs.
And don't be too hard on yourself. Everyone has to cope in their own way. Don't think you are being morbid or pessimistic because you worry. Every parent worries for their child. Our worries are just different, I guess.
I think it is important to try to live as normally as possible. I know that as Luke gets older that will be important to him too. It also helps me to hear, almost consistently from every CF parent, that it does get easier as babies get older--are able to really help with airway clearance and have more productive coughs.
And don't be too hard on yourself. Everyone has to cope in their own way. Don't think you are being morbid or pessimistic because you worry. Every parent worries for their child. Our worries are just different, I guess.
I am so glad that you posted, because I go through the same thing. Our son was diagnosed 6 months ago. He is now 9 months old and I still struggle not to live in fear of the "what if". My faith has given me a lot of strength--knowing that no matter what, Luke is a gift from God and that every second with him is precious. And that the worste possible "what ifs" could never compare to the joy he has brought to us.
<br />I think it is important to try to live as normally as possible. I know that as Luke gets older that will be important to him too. It also helps me to hear, almost consistently from every CF parent, that it does get easier as babies get older--are able to really help with airway clearance and have more productive coughs.
<br />And don't be too hard on yourself. Everyone has to cope in their own way. Don't think you are being morbid or pessimistic because you worry. Every parent worries for their child. Our worries are just different, I guess.
<br />I think it is important to try to live as normally as possible. I know that as Luke gets older that will be important to him too. It also helps me to hear, almost consistently from every CF parent, that it does get easier as babies get older--are able to really help with airway clearance and have more productive coughs.
<br />And don't be too hard on yourself. Everyone has to cope in their own way. Don't think you are being morbid or pessimistic because you worry. Every parent worries for their child. Our worries are just different, I guess.