How many of you have never met another person with CF?

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bobanny

New member
I'd also like to add that if you get a mask and at least 10 feet away from them it's just fine for you to meet and talk with them. I did a study with other CFers. We even exercised together (with masks on.) So next time you're sitting in the CF clinic waiting room, ask for a mask and then strike up a conversation by asking the other person in the room if they have CF. (You already know they do because of their clubbed fingers. <img src="i/expressions/face-icon-small-smile.gif" border="0"> ) I love to find out what type of breathing treatments they do and what meds they are on! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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bobanny

New member
I'd also like to add that if you get a mask and at least 10 feet away from them it's just fine for you to meet and talk with them. I did a study with other CFers. We even exercised together (with masks on.) So next time you're sitting in the CF clinic waiting room, ask for a mask and then strike up a conversation by asking the other person in the room if they have CF. (You already know they do because of their clubbed fingers. <img src="i/expressions/face-icon-small-smile.gif" border="0"> ) I love to find out what type of breathing treatments they do and what meds they are on! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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bobanny

New member
I'd also like to add that if you get a mask and at least 10 feet away from them it's just fine for you to meet and talk with them. I did a study with other CFers. We even exercised together (with masks on.) So next time you're sitting in the CF clinic waiting room, ask for a mask and then strike up a conversation by asking the other person in the room if they have CF. (You already know they do because of their clubbed fingers. <img src="i/expressions/face-icon-small-smile.gif" border="0"> ) I love to find out what type of breathing treatments they do and what meds they are on! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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bobanny

New member
I'd also like to add that if you get a mask and at least 10 feet away from them it's just fine for you to meet and talk with them. I did a study with other CFers. We even exercised together (with masks on.) So next time you're sitting in the CF clinic waiting room, ask for a mask and then strike up a conversation by asking the other person in the room if they have CF. (You already know they do because of their clubbed fingers. <img src="i/expressions/face-icon-small-smile.gif" border="0"> ) I love to find out what type of breathing treatments they do and what meds they are on! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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SVTmike

New member
hi, im 27 from the chicago area (actaully northwest IN, but its considiered chicago area) and was diagnosed at 6 weeks old, and i still havent met or even talked with anyone who has CF. it sucks not having anyone who can relate with you. i would imagine as long as you wear a mask, that meeting another cf'er would be ok.
 
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SVTmike

New member
hi, im 27 from the chicago area (actaully northwest IN, but its considiered chicago area) and was diagnosed at 6 weeks old, and i still havent met or even talked with anyone who has CF. it sucks not having anyone who can relate with you. i would imagine as long as you wear a mask, that meeting another cf'er would be ok.
 
S

SVTmike

New member
hi, im 27 from the chicago area (actaully northwest IN, but its considiered chicago area) and was diagnosed at 6 weeks old, and i still havent met or even talked with anyone who has CF. it sucks not having anyone who can relate with you. i would imagine as long as you wear a mask, that meeting another cf'er would be ok.
 
S

SVTmike

New member
hi, im 27 from the chicago area (actaully northwest IN, but its considiered chicago area) and was diagnosed at 6 weeks old, and i still havent met or even talked with anyone who has CF. it sucks not having anyone who can relate with you. i would imagine as long as you wear a mask, that meeting another cf'er would be ok.
 
S

SVTmike

New member
hi, im 27 from the chicago area (actaully northwest IN, but its considiered chicago area) and was diagnosed at 6 weeks old, and i still havent met or even talked with anyone who has CF. it sucks not having anyone who can relate with you. i would imagine as long as you wear a mask, that meeting another cf'er would be ok.
 
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hfbanana

New member
no i have never met anyone w/ cf in my life other than myself and sum people online. my docter told me that their is no one else around that has cf. and when i was younger i was in the news paper and it was saying that i was the only person in town that has cf. yeah it's kinda sad.
 
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