hypertonic saline vs. pulmozyme

[TonyaH]

Thanks so much you guys!
I wonder if I misunderstood the doc saying we would quit pulmozyme with the start of the HTS. The sad part is, I know all of this. In my head, I understand the importance of compliance and have talked others through the spot I'm in right now. Deep down I wonder if I'm seeiing a progression in Andrew's lung involvement and feeling angry that the pulmozyme isn't pulling everything up and out. I've lived with nebs and therapy all my life. My mom died two days before Andrew was born...ABPA and bronchiectasis (always tested neg. to sweat test, though, so no CF diagnosis.) Anyway, I fully understand the importance of compliance. I guess I just needed a jump start to get me back on track for Andrew and I think I came to the right place! Thanks for the honesty and great information. Very Much Appreciated!

 

[TonyaH]

Thanks so much you guys!
I wonder if I misunderstood the doc saying we would quit pulmozyme with the start of the HTS. The sad part is, I know all of this. In my head, I understand the importance of compliance and have talked others through the spot I'm in right now. Deep down I wonder if I'm seeiing a progression in Andrew's lung involvement and feeling angry that the pulmozyme isn't pulling everything up and out. I've lived with nebs and therapy all my life. My mom died two days before Andrew was born...ABPA and bronchiectasis (always tested neg. to sweat test, though, so no CF diagnosis.) Anyway, I fully understand the importance of compliance. I guess I just needed a jump start to get me back on track for Andrew and I think I came to the right place! Thanks for the honesty and great information. Very Much Appreciated!

 

[TonyaH]

Thanks so much you guys!
I wonder if I misunderstood the doc saying we would quit pulmozyme with the start of the HTS. The sad part is, I know all of this. In my head, I understand the importance of compliance and have talked others through the spot I'm in right now. Deep down I wonder if I'm seeiing a progression in Andrew's lung involvement and feeling angry that the pulmozyme isn't pulling everything up and out. I've lived with nebs and therapy all my life. My mom died two days before Andrew was born...ABPA and bronchiectasis (always tested neg. to sweat test, though, so no CF diagnosis.) Anyway, I fully understand the importance of compliance. I guess I just needed a jump start to get me back on track for Andrew and I think I came to the right place! Thanks for the honesty and great information. Very Much Appreciated!

 

[TonyaH]

Thanks so much you guys!
I wonder if I misunderstood the doc saying we would quit pulmozyme with the start of the HTS. The sad part is, I know all of this. In my head, I understand the importance of compliance and have talked others through the spot I'm in right now. Deep down I wonder if I'm seeiing a progression in Andrew's lung involvement and feeling angry that the pulmozyme isn't pulling everything up and out. I've lived with nebs and therapy all my life. My mom died two days before Andrew was born...ABPA and bronchiectasis (always tested neg. to sweat test, though, so no CF diagnosis.) Anyway, I fully understand the importance of compliance. I guess I just needed a jump start to get me back on track for Andrew and I think I came to the right place! Thanks for the honesty and great information. Very Much Appreciated!

 

[JenNorthWest]

I am a huge believer in pulmozyme. My brothers and I (who both have CF - one 32 - one passed away at 21) were participants in the first studies of pulmozyme in the early 90s. So I have been using it for around 14 years.

In my teenage years I was fickle about my treatments. Whever I would miss a few days of pulmozyme I noticed an immediate change. My mucus was so much thicker and I felt all around worse. I never feel like it is doing much unless I miss it for a day or two, and then I notice a decline. This speaks volumes to me.

Everyone is different, and my 32 year old brother with CF says he does not notice much from pulmozyme. I feel that is more from a lack of consistenly taking care of himself thus making it harder to identify what is helping and what is not.

I have not yet tried HS but have been talking with my doc about it. I am planning on trying it when I go to clinic in a few weeks!

Take care,
Jennifer

 

[JenNorthWest]

I am a huge believer in pulmozyme. My brothers and I (who both have CF - one 32 - one passed away at 21) were participants in the first studies of pulmozyme in the early 90s. So I have been using it for around 14 years.

In my teenage years I was fickle about my treatments. Whever I would miss a few days of pulmozyme I noticed an immediate change. My mucus was so much thicker and I felt all around worse. I never feel like it is doing much unless I miss it for a day or two, and then I notice a decline. This speaks volumes to me.

Everyone is different, and my 32 year old brother with CF says he does not notice much from pulmozyme. I feel that is more from a lack of consistenly taking care of himself thus making it harder to identify what is helping and what is not.

I have not yet tried HS but have been talking with my doc about it. I am planning on trying it when I go to clinic in a few weeks!

Take care,
Jennifer

 

[JenNorthWest]

I am a huge believer in pulmozyme. My brothers and I (who both have CF - one 32 - one passed away at 21) were participants in the first studies of pulmozyme in the early 90s. So I have been using it for around 14 years.

In my teenage years I was fickle about my treatments. Whever I would miss a few days of pulmozyme I noticed an immediate change. My mucus was so much thicker and I felt all around worse. I never feel like it is doing much unless I miss it for a day or two, and then I notice a decline. This speaks volumes to me.

Everyone is different, and my 32 year old brother with CF says he does not notice much from pulmozyme. I feel that is more from a lack of consistenly taking care of himself thus making it harder to identify what is helping and what is not.

I have not yet tried HS but have been talking with my doc about it. I am planning on trying it when I go to clinic in a few weeks!

Take care,
Jennifer

 

[JenNorthWest]

I am a huge believer in pulmozyme. My brothers and I (who both have CF - one 32 - one passed away at 21) were participants in the first studies of pulmozyme in the early 90s. So I have been using it for around 14 years.

In my teenage years I was fickle about my treatments. Whever I would miss a few days of pulmozyme I noticed an immediate change. My mucus was so much thicker and I felt all around worse. I never feel like it is doing much unless I miss it for a day or two, and then I notice a decline. This speaks volumes to me.

Everyone is different, and my 32 year old brother with CF says he does not notice much from pulmozyme. I feel that is more from a lack of consistenly taking care of himself thus making it harder to identify what is helping and what is not.

I have not yet tried HS but have been talking with my doc about it. I am planning on trying it when I go to clinic in a few weeks!

Take care,
Jennifer

 

[JenNorthWest]

I am a huge believer in pulmozyme. My brothers and I (who both have CF - one 32 - one passed away at 21) were participants in the first studies of pulmozyme in the early 90s. So I have been using it for around 14 years.

In my teenage years I was fickle about my treatments. Whever I would miss a few days of pulmozyme I noticed an immediate change. My mucus was so much thicker and I felt all around worse. I never feel like it is doing much unless I miss it for a day or two, and then I notice a decline. This speaks volumes to me.

Everyone is different, and my 32 year old brother with CF says he does not notice much from pulmozyme. I feel that is more from a lack of consistenly taking care of himself thus making it harder to identify what is helping and what is not.

I have not yet tried HS but have been talking with my doc about it. I am planning on trying it when I go to clinic in a few weeks!

Take care,
Jennifer

 

[JenNorthWest]

I am a huge believer in pulmozyme. My brothers and I (who both have CF - one 32 - one passed away at 21) were participants in the first studies of pulmozyme in the early 90s. So I have been using it for around 14 years.

In my teenage years I was fickle about my treatments. Whever I would miss a few days of pulmozyme I noticed an immediate change. My mucus was so much thicker and I felt all around worse. I never feel like it is doing much unless I miss it for a day or two, and then I notice a decline. This speaks volumes to me.

Everyone is different, and my 32 year old brother with CF says he does not notice much from pulmozyme. I feel that is more from a lack of consistenly taking care of himself thus making it harder to identify what is helping and what is not.

I have not yet tried HS but have been talking with my doc about it. I am planning on trying it when I go to clinic in a few weeks!

Take care,
Jennifer

 

[Ratatosk]

When I took DS to the local clinic last week for his labs and the head of the pulmo lab used HTS to help loosen things up to get a good sputum sample, I asked if the CF clinic was using both or switching patients to HTS and he indicated he thought they were going to do away with pulmozyme all-together. Past experience with the local CF Clinic, I'm going to assume the switch is a $$$ issue because pulmozyme is so expensive. Sigh...

Our primary doctor was waiting to see more studies done on HTS, specifically on very young patients. When we'd first mentioned it to him, DS was only two year old at the time. Again, I was amazed at the amount of stuff DS was bringing up with HTS and we'll be asking about it again at his next clinic appointment.

 

[Ratatosk]

When I took DS to the local clinic last week for his labs and the head of the pulmo lab used HTS to help loosen things up to get a good sputum sample, I asked if the CF clinic was using both or switching patients to HTS and he indicated he thought they were going to do away with pulmozyme all-together. Past experience with the local CF Clinic, I'm going to assume the switch is a $$$ issue because pulmozyme is so expensive. Sigh...

Our primary doctor was waiting to see more studies done on HTS, specifically on very young patients. When we'd first mentioned it to him, DS was only two year old at the time. Again, I was amazed at the amount of stuff DS was bringing up with HTS and we'll be asking about it again at his next clinic appointment.

 

[Ratatosk]

When I took DS to the local clinic last week for his labs and the head of the pulmo lab used HTS to help loosen things up to get a good sputum sample, I asked if the CF clinic was using both or switching patients to HTS and he indicated he thought they were going to do away with pulmozyme all-together. Past experience with the local CF Clinic, I'm going to assume the switch is a $$$ issue because pulmozyme is so expensive. Sigh...

Our primary doctor was waiting to see more studies done on HTS, specifically on very young patients. When we'd first mentioned it to him, DS was only two year old at the time. Again, I was amazed at the amount of stuff DS was bringing up with HTS and we'll be asking about it again at his next clinic appointment.

 

[Ratatosk]

When I took DS to the local clinic last week for his labs and the head of the pulmo lab used HTS to help loosen things up to get a good sputum sample, I asked if the CF clinic was using both or switching patients to HTS and he indicated he thought they were going to do away with pulmozyme all-together. Past experience with the local CF Clinic, I'm going to assume the switch is a $$$ issue because pulmozyme is so expensive. Sigh...

Our primary doctor was waiting to see more studies done on HTS, specifically on very young patients. When we'd first mentioned it to him, DS was only two year old at the time. Again, I was amazed at the amount of stuff DS was bringing up with HTS and we'll be asking about it again at his next clinic appointment.

 

[Ratatosk]

When I took DS to the local clinic last week for his labs and the head of the pulmo lab used HTS to help loosen things up to get a good sputum sample, I asked if the CF clinic was using both or switching patients to HTS and he indicated he thought they were going to do away with pulmozyme all-together. Past experience with the local CF Clinic, I'm going to assume the switch is a $$$ issue because pulmozyme is so expensive. Sigh...

Our primary doctor was waiting to see more studies done on HTS, specifically on very young patients. When we'd first mentioned it to him, DS was only two year old at the time. Again, I was amazed at the amount of stuff DS was bringing up with HTS and we'll be asking about it again at his next clinic appointment.

 

[Ratatosk]

When I took DS to the local clinic last week for his labs and the head of the pulmo lab used HTS to help loosen things up to get a good sputum sample, I asked if the CF clinic was using both or switching patients to HTS and he indicated he thought they were going to do away with pulmozyme all-together. Past experience with the local CF Clinic, I'm going to assume the switch is a $$$ issue because pulmozyme is so expensive. Sigh...

Our primary doctor was waiting to see more studies done on HTS, specifically on very young patients. When we'd first mentioned it to him, DS was only two year old at the time. Again, I was amazed at the amount of stuff DS was bringing up with HTS and we'll be asking about it again at his next clinic appointment.

 

[AnD]

I hope they aren't serious about swapping HTS for Pulmozyme, instead of adding it in. I also have done Pulmozyme since the studies in 1992, too, and I really think it has helped. I have also noticed that if I do my Pulmozyme after my HTS and my vest, I cough up more during the day (I've been experimenting the last few weeks with which works better for me <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

 

[AnD]

I hope they aren't serious about swapping HTS for Pulmozyme, instead of adding it in. I also have done Pulmozyme since the studies in 1992, too, and I really think it has helped. I have also noticed that if I do my Pulmozyme after my HTS and my vest, I cough up more during the day (I've been experimenting the last few weeks with which works better for me <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

 

[AnD]

I hope they aren't serious about swapping HTS for Pulmozyme, instead of adding it in. I also have done Pulmozyme since the studies in 1992, too, and I really think it has helped. I have also noticed that if I do my Pulmozyme after my HTS and my vest, I cough up more during the day (I've been experimenting the last few weeks with which works better for me <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

 

[AnD]

I hope they aren't serious about swapping HTS for Pulmozyme, instead of adding it in. I also have done Pulmozyme since the studies in 1992, too, and I really think it has helped. I have also noticed that if I do my Pulmozyme after my HTS and my vest, I cough up more during the day (I've been experimenting the last few weeks with which works better for me <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).