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I disagree
- Thread starter kitomd21
- Start date
theLostMiler
New member
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theLostMiler
New member
...
theLostMiler
New member
...
theLostMiler
New member
all of this is so crazy to read. I had mild lung symptoms of CF, dealt more with digestive, in that it was harder to gain weight and dealt with a bowel obstruction. I didnt culture PA until a year or two after seeing my CF doctor, in a CF clinic and started doing more regular medications (though not daily by any means). I either did not listen or did not know that you were supposed to sterilize nebulizers. I had literally, one cup for albuterol, one for pulmozyme and one for TOBI.. which I did not even rinse out in between uses, just put them in a tupperware thing I had. I eventually had to rinse and boil the TOBI ones b/c it would get clogged but just did not realize the microbiology of it all, I was only 13 or 14 then, and just learning about the make-up of germs haha. I often wondered if I go PA from being in a CF environment where as growing up I saw just a pediatrician, although maybe it was from starting my treatments (My mom was instructed I didn't need treatments unless sick as the meds were hard on the heart... so didnt start being proactive about treatments till I saw the Ped CF doc)
As Havoc said, mycobacteriums are showing up increasingly in shower heads and steam (I wonder if its b/c of the chlorine used in the water treatment process b/c NTM is not killed by bleach, so now it has more room to grow w/o other bugs being killed by higher chlorine doses). I am almost positive I got my NTM from the college dorms I lived in which were built in the 1960's I think, where the bathroom didnt even have a fan... le sigh (the things you wish you knew).
I can't really think too much about where I could catch a germ, b/c there is just no way to live. I become obsessive b/c I wish I wouldn't have lived in that dorm, I wouldnt be where I was lung function and CF progression wise w/o the NTM, and it gets too depressing. Of course, I could have gotten the NTM anywhere from the soil to the muddy lake I grew up in as well.
Lastly, I contaminate my sterilized nebulizers everytime I do a treatment when I put the sucker together... I have wondered most about that fact, having to touch the center piece to put it together more than anything.
As Havoc said, mycobacteriums are showing up increasingly in shower heads and steam (I wonder if its b/c of the chlorine used in the water treatment process b/c NTM is not killed by bleach, so now it has more room to grow w/o other bugs being killed by higher chlorine doses). I am almost positive I got my NTM from the college dorms I lived in which were built in the 1960's I think, where the bathroom didnt even have a fan... le sigh (the things you wish you knew).
I can't really think too much about where I could catch a germ, b/c there is just no way to live. I become obsessive b/c I wish I wouldn't have lived in that dorm, I wouldnt be where I was lung function and CF progression wise w/o the NTM, and it gets too depressing. Of course, I could have gotten the NTM anywhere from the soil to the muddy lake I grew up in as well.
Lastly, I contaminate my sterilized nebulizers everytime I do a treatment when I put the sucker together... I have wondered most about that fact, having to touch the center piece to put it together more than anything.
theLostMiler
New member
all of this is so crazy to read. I had mild lung symptoms of CF, dealt more with digestive, in that it was harder to gain weight and dealt with a bowel obstruction. I didnt culture PA until a year or two after seeing my CF doctor, in a CF clinic and started doing more regular medications (though not daily by any means). I either did not listen or did not know that you were supposed to sterilize nebulizers. I had literally, one cup for albuterol, one for pulmozyme and one for TOBI.. which I did not even rinse out in between uses, just put them in a tupperware thing I had. I eventually had to rinse and boil the TOBI ones b/c it would get clogged but just did not realize the microbiology of it all, I was only 13 or 14 then, and just learning about the make-up of germs haha. I often wondered if I go PA from being in a CF environment where as growing up I saw just a pediatrician, although maybe it was from starting my treatments (My mom was instructed I didn't need treatments unless sick as the meds were hard on the heart... so didnt start being proactive about treatments till I saw the Ped CF doc)
As Havoc said, mycobacteriums are showing up increasingly in shower heads and steam (I wonder if its b/c of the chlorine used in the water treatment process b/c NTM is not killed by bleach, so now it has more room to grow w/o other bugs being killed by higher chlorine doses). I am almost positive I got my NTM from the college dorms I lived in which were built in the 1960's I think, where the bathroom didnt even have a fan... le sigh (the things you wish you knew).
I can't really think too much about where I could catch a germ, b/c there is just no way to live. I become obsessive b/c I wish I wouldn't have lived in that dorm, I wouldnt be where I was lung function and CF progression wise w/o the NTM, and it gets too depressing. Of course, I could have gotten the NTM anywhere from the soil to the muddy lake I grew up in as well.
Lastly, I contaminate my sterilized nebulizers everytime I do a treatment when I put the sucker together... I have wondered most about that fact, having to touch the center piece to put it together more than anything.
As Havoc said, mycobacteriums are showing up increasingly in shower heads and steam (I wonder if its b/c of the chlorine used in the water treatment process b/c NTM is not killed by bleach, so now it has more room to grow w/o other bugs being killed by higher chlorine doses). I am almost positive I got my NTM from the college dorms I lived in which were built in the 1960's I think, where the bathroom didnt even have a fan... le sigh (the things you wish you knew).
I can't really think too much about where I could catch a germ, b/c there is just no way to live. I become obsessive b/c I wish I wouldn't have lived in that dorm, I wouldnt be where I was lung function and CF progression wise w/o the NTM, and it gets too depressing. Of course, I could have gotten the NTM anywhere from the soil to the muddy lake I grew up in as well.
Lastly, I contaminate my sterilized nebulizers everytime I do a treatment when I put the sucker together... I have wondered most about that fact, having to touch the center piece to put it together more than anything.
theLostMiler
New member
all of this is so crazy to read. I had mild lung symptoms of CF, dealt more with digestive, in that it was harder to gain weight and dealt with a bowel obstruction. I didnt culture PA until a year or two after seeing my CF doctor, in a CF clinic and started doing more regular medications (though not daily by any means). I either did not listen or did not know that you were supposed to sterilize nebulizers. I had literally, one cup for albuterol, one for pulmozyme and one for TOBI.. which I did not even rinse out in between uses, just put them in a tupperware thing I had. I eventually had to rinse and boil the TOBI ones b/c it would get clogged but just did not realize the microbiology of it all, I was only 13 or 14 then, and just learning about the make-up of germs haha. I often wondered if I go PA from being in a CF environment where as growing up I saw just a pediatrician, although maybe it was from starting my treatments (My mom was instructed I didn't need treatments unless sick as the meds were hard on the heart... so didnt start being proactive about treatments till I saw the Ped CF doc)
<br />
<br /> As Havoc said, mycobacteriums are showing up increasingly in shower heads and steam (I wonder if its b/c of the chlorine used in the water treatment process b/c NTM is not killed by bleach, so now it has more room to grow w/o other bugs being killed by higher chlorine doses). I am almost positive I got my NTM from the college dorms I lived in which were built in the 1960's I think, where the bathroom didnt even have a fan... le sigh (the things you wish you knew).
<br />
<br />I can't really think too much about where I could catch a germ, b/c there is just no way to live. I become obsessive b/c I wish I wouldn't have lived in that dorm, I wouldnt be where I was lung function and CF progression wise w/o the NTM, and it gets too depressing. Of course, I could have gotten the NTM anywhere from the soil to the muddy lake I grew up in as well.
<br />
<br />Lastly, I contaminate my sterilized nebulizers everytime I do a treatment when I put the sucker together... I have wondered most about that fact, having to touch the center piece to put it together more than anything.
<br />
<br /> As Havoc said, mycobacteriums are showing up increasingly in shower heads and steam (I wonder if its b/c of the chlorine used in the water treatment process b/c NTM is not killed by bleach, so now it has more room to grow w/o other bugs being killed by higher chlorine doses). I am almost positive I got my NTM from the college dorms I lived in which were built in the 1960's I think, where the bathroom didnt even have a fan... le sigh (the things you wish you knew).
<br />
<br />I can't really think too much about where I could catch a germ, b/c there is just no way to live. I become obsessive b/c I wish I wouldn't have lived in that dorm, I wouldnt be where I was lung function and CF progression wise w/o the NTM, and it gets too depressing. Of course, I could have gotten the NTM anywhere from the soil to the muddy lake I grew up in as well.
<br />
<br />Lastly, I contaminate my sterilized nebulizers everytime I do a treatment when I put the sucker together... I have wondered most about that fact, having to touch the center piece to put it together more than anything.
<P><div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kristen</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>randmel89</b></i> So sad you live your life by Statistics . Like I said before 37 year old and have never had infection because of dirty nebulizer.</end quote></div> Why is that sad? Many people like to make informed choices and find statistics very helpful - much more so than the anecdotal experience of one person.</end quote></div> </P>
<P> </P>
<P>Statisticly Iam dead more times than once. Age 10, 15, 22, 35, and so on on on... </P>
<P> </P>
<P>So Bite Me</P>
<P> </P>
<P>Statisticly Iam dead more times than once. Age 10, 15, 22, 35, and so on on on... </P>
<P> </P>
<P>So Bite Me</P>
<P><div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kristen</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>randmel89</b></i> So sad you live your life by Statistics . Like I said before 37 year old and have never had infection because of dirty nebulizer.</end quote> Why is that sad? Many people like to make informed choices and find statistics very helpful - much more so than the anecdotal experience of one person.</end quote> </P>
<P></P>
<P>Statisticly Iam dead more times than once. Age 10, 15, 22, 35, and so on on on... </P>
<P></P>
<P>So Bite Me</P>
<P></P>
<P>Statisticly Iam dead more times than once. Age 10, 15, 22, 35, and so on on on... </P>
<P></P>
<P>So Bite Me</P>
<P><div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kristen</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>randmel89</b></i> So sad you live your life by Statistics . Like I said before 37 year old and have never had infection because of dirty nebulizer.</end quote> Why is that sad? Many people like to make informed choices and find statistics very helpful - much more so than the anecdotal experience of one person.</end quote> </P>
<P></P>
<P>Statisticly Iam dead more times than once. Age 10, 15, 22, 35, and so on on on... </P>
<P></P>
<P>So Bite Me</P>
<P></P>
<P>Statisticly Iam dead more times than once. Age 10, 15, 22, 35, and so on on on... </P>
<P></P>
<P>So Bite Me</P>
D
Deb
Guest
I thought this site was a place to share information and support one another, not be attacked by a few who have closed-minds and "opinions" they try to force on others as being fact. I enjoy learning from others on this site and reading about alternatives to care and treatment. While I don't always agree I know that what works for some may not work for others. Kudos to those who share and don't judge.
D
Deb
Guest
I thought this site was a place to share information and support one another, not be attacked by a few who have closed-minds and "opinions" they try to force on others as being fact. I enjoy learning from others on this site and reading about alternatives to care and treatment. While I don't always agree I know that what works for some may not work for others. Kudos to those who share and don't judge.
D
Deb
Guest
I thought this site was a place to share information and support one another, not be attacked by a few who have closed-minds and "opinions" they try to force on others as being fact. I enjoy learning from others on this site and reading about alternatives to care and treatment. While I don't always agree I know that what works for some may not work for others. Kudos to those who share and don't judge.
<br />
<br />
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>randmel89</b></i>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kristen</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>randmel89</b></i> So sad you live your life by Statistics . Like I said before 37 year old and have never had infection because of dirty nebulizer.</end quote></div> Why is that sad? Many people like to make informed choices and find statistics very helpful - much more so than the anecdotal experience of one person.</end quote></div>
Statisticly Iam dead more times than once. Age 10, 15, 22, 35, and so on on on...
So Bite Me</end quote></div><br><br>How cow! Overreact much??? <br>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kristen</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>randmel89</b></i> So sad you live your life by Statistics . Like I said before 37 year old and have never had infection because of dirty nebulizer.</end quote></div> Why is that sad? Many people like to make informed choices and find statistics very helpful - much more so than the anecdotal experience of one person.</end quote></div>
Statisticly Iam dead more times than once. Age 10, 15, 22, 35, and so on on on...
So Bite Me</end quote></div><br><br>How cow! Overreact much??? <br>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>randmel89</b></i>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kristen</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>randmel89</b></i> So sad you live your life by Statistics . Like I said before 37 year old and have never had infection because of dirty nebulizer.</end quote> Why is that sad? Many people like to make informed choices and find statistics very helpful - much more so than the anecdotal experience of one person.</end quote>
Statisticly Iam dead more times than once. Age 10, 15, 22, 35, and so on on on...
So Bite Me</end quote><br><br>How cow! Overreact much??? <br>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kristen</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>randmel89</b></i> So sad you live your life by Statistics . Like I said before 37 year old and have never had infection because of dirty nebulizer.</end quote> Why is that sad? Many people like to make informed choices and find statistics very helpful - much more so than the anecdotal experience of one person.</end quote>
Statisticly Iam dead more times than once. Age 10, 15, 22, 35, and so on on on...
So Bite Me</end quote><br><br>How cow! Overreact much??? <br>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>randmel89</b></i>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kristen</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>randmel89</b></i> So sad you live your life by Statistics . Like I said before 37 year old and have never had infection because of dirty nebulizer.</end quote> Why is that sad? Many people like to make informed choices and find statistics very helpful - much more so than the anecdotal experience of one person.</end quote> <p>
<p>
Statisticly Iam dead more times than once. Age 10, 15, 22, 35, and so on on on... <p>
<p>
So Bite Me<p></end quote><br><br>How cow! Overreact much??? <br>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kristen</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>randmel89</b></i> So sad you live your life by Statistics . Like I said before 37 year old and have never had infection because of dirty nebulizer.</end quote> Why is that sad? Many people like to make informed choices and find statistics very helpful - much more so than the anecdotal experience of one person.</end quote> <p>
<p>
Statisticly Iam dead more times than once. Age 10, 15, 22, 35, and so on on on... <p>
<p>
So Bite Me<p></end quote><br><br>How cow! Overreact much??? <br>
randmel, your behavior is inappropriate. we share information here. your opinion is welcome but not name calling.
No one wants to come here and get further stressed out from the experience LOL We all have enough stress as it is. Kristin didn't do anything to you. You're being overly sensitive. It's fine if you don't clean your nebs...like someone else said to each their own. Reminds me of our sweet Mel. She didn't sterilize nebs either.
Please stop your cruel behavior now or further action will be taken.
No one wants to come here and get further stressed out from the experience LOL We all have enough stress as it is. Kristin didn't do anything to you. You're being overly sensitive. It's fine if you don't clean your nebs...like someone else said to each their own. Reminds me of our sweet Mel. She didn't sterilize nebs either.
Please stop your cruel behavior now or further action will be taken.
randmel, your behavior is inappropriate. we share information here. your opinion is welcome but not name calling.
No one wants to come here and get further stressed out from the experience LOL We all have enough stress as it is. Kristin didn't do anything to you. You're being overly sensitive. It's fine if you don't clean your nebs...like someone else said to each their own. Reminds me of our sweet Mel. She didn't sterilize nebs either.
Please stop your cruel behavior now or further action will be taken.
No one wants to come here and get further stressed out from the experience LOL We all have enough stress as it is. Kristin didn't do anything to you. You're being overly sensitive. It's fine if you don't clean your nebs...like someone else said to each their own. Reminds me of our sweet Mel. She didn't sterilize nebs either.
Please stop your cruel behavior now or further action will be taken.
randmel, your behavior is inappropriate. we share information here. your opinion is welcome but not name calling.
<br />No one wants to come here and get further stressed out from the experience LOL We all have enough stress as it is. Kristin didn't do anything to you. You're being overly sensitive. It's fine if you don't clean your nebs...like someone else said to each their own. Reminds me of our sweet Mel. She didn't sterilize nebs either.
<br />
<br />Please stop your cruel behavior now or further action will be taken.
<br />No one wants to come here and get further stressed out from the experience LOL We all have enough stress as it is. Kristin didn't do anything to you. You're being overly sensitive. It's fine if you don't clean your nebs...like someone else said to each their own. Reminds me of our sweet Mel. She didn't sterilize nebs either.
<br />
<br />Please stop your cruel behavior now or further action will be taken.