Hi, I know this thread hasn't been used in a long time. But I wanted to add my info as I am new! I am on the eastside of Milwaukee. I work in the peds ICU at Childrens. Kathy (mom of Josh), you probably know all the drs I work with! It's a pretty small world there. I love Childrens... I feel so lucky to work in such a great institution.
I also feel so lucky to have a great doctor -- Dr. Biller. She's amazing and doesn't let me get away with crap. My Chicago CF dr let me run the show... I get called out if I don't do everything I need to do... It's the care I need to get from her and I appreciate it.
Kathy, I am so sorry for your loss... I know what it feels like as a sibling... we just lost my brother 3 years ago from CF, 3 weeks post-transplant. It is never the same... We all miss him so much. I can only imagine what you are going through :-( Just know you are in my thoughts.
Well, I am off to bed...
Jenn
30 year old with cf, new onset CFRD