It doesn't matter

J

JazzysMom

New member
Deeply Offended.

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jane</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbtoo</b></i>

CF or No CF - having raised two teenagers I personnaly believe there should be retroactive abortion until age 18! <img src="i/expressions/face-icon-small-happy.gif" border="0"></end quote></div>

great comment! Thanks for adding some humor.<img src="i/expressions/face-icon-small-wink.gif" border="0">

I agree with others who think this was a really "civilized" thread. It was interesting to see people are sharing opinions without criticism or drama.

I appreciate that.</end quote></div>


Thank you Jane. Both Jeanne & I (I am starting to sounds like a scratched CD....cant say broken record since many dont know what they are anymore LOL) are happy, but this type of interaction is what the board stands for. Education, Power and Support. All types depending on what you are seeking.
 
J

JazzysMom

New member
Deeply Offended.

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jane</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbtoo</b></i>

CF or No CF - having raised two teenagers I personnaly believe there should be retroactive abortion until age 18! <img src="i/expressions/face-icon-small-happy.gif" border="0"></end quote></div>

great comment! Thanks for adding some humor.<img src="i/expressions/face-icon-small-wink.gif" border="0">

I agree with others who think this was a really "civilized" thread. It was interesting to see people are sharing opinions without criticism or drama.

I appreciate that.</end quote></div>


Thank you Jane. Both Jeanne & I (I am starting to sounds like a scratched CD....cant say broken record since many dont know what they are anymore LOL) are happy, but this type of interaction is what the board stands for. Education, Power and Support. All types depending on what you are seeking.
 
J

JazzysMom

New member
Deeply Offended.

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jane</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbtoo</b></i>

CF or No CF - having raised two teenagers I personnaly believe there should be retroactive abortion until age 18! <img src="i/expressions/face-icon-small-happy.gif" border="0"></end quote></div>

great comment! Thanks for adding some humor.<img src="i/expressions/face-icon-small-wink.gif" border="0">

I agree with others who think this was a really "civilized" thread. It was interesting to see people are sharing opinions without criticism or drama.

I appreciate that.</end quote></div>


Thank you Jane. Both Jeanne & I (I am starting to sounds like a scratched CD....cant say broken record since many dont know what they are anymore LOL) are happy, but this type of interaction is what the board stands for. Education, Power and Support. All types depending on what you are seeking.
 
M

Mockingbird

New member
Deeply Offended.

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>
<b>Although I understand your displeasure with that thread and respect your feelings, I hope that somehow THIS doesnt end up the thread that gets locked. Excuse me for being leary, but given history of our passionate members I tend to worry</b></end quote></div>


Hey, give me a little credit, I think I've kept pretty cool this whole time. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Anyway, I didn't see Hermit's post before he deleted it, but yeah, those threads cause me a lot of heartache, too. It's not enough to just avoid them; even if I don't click on it there's still "if you knew your unborn child had cf would you abort it" in bold letters staring me in the face.

Don't get me wrong, I'm not saying the conversation should be banned on account of my or anyone else's sensitivity, just that it affects me. And I think it does matter (referring to the changed topic line) because this is a support group. It is fine to have the converstaion, but also recognize it is a source of pain for some people and the longer it goes on the more painful it becomes. What I'm suggesting is when the conversation has reached 3 pages (I have my preferences set at 50 responses per page; others may be different), then we might ask ourselves before we add yet another post if there is any value left in continuing the conversation and bumping the thred back to the top.

Whether there is or not on that particular thread, I don't know. I'm sure there will be difference of opinion as far as that is concerned as well. And yes, I'm well aware I've been guilty of beating more than my fair share of dead horses in the past.

I guess what I'm saying is some people are sensitive, and that's okay. Being thick skinned is not the same as being tough, and being sensitive is not equal to being weak. In a mideval battle, who would you say is tougher, the guy going in wearing a full plate of armor, or the guy going in wearing a nightgown? =-) (Some people might say the guy wearing a nighgown is just stupid, but that's going a little further than the metaphor was intended). Point is, instead of having the attitude of "some people are going to be offended and there's nothing we can do about it" maybe it would be better to say "Some people are going to be offended, so let's try to stay conscious of that."

I've seen several times this group described as a community or a family. Maybe not everyone agrees with that veiw, I don't know, but I do know in a community when we pull together we do not disregard those who we may perceive as weaker or having special needs, but rather we go out of our way to accomodate them. The Bible puts it this way (sorry to bring religion into it, but you all know of my devotion, and this passage really captures what I'm talking about, so please bear with me), "But now there are many members, but one body. The eye cannot say to the hand, 'I have no need of you'; or again the head to the feet, 'I have no need of you.' On the contrary, it is much truer that the members of the body which seem to be weaker are necessary; and those members of the body which we deem less honorable, on these we bestow more abundant honor, and our less presentable members become much more presentable, whereas our more presentable members have no need of it. But God has so composed the body, giving more abundant honor to the member which lacked, so that there may be no division in the body, but that the members may have the same care for one another. And if one member suffers, all the members suffer with it; if one member is honored, all the members rejoice with it." 1 Corinthians 12:20-26
 
M

Mockingbird

New member
Deeply Offended.

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>
<b>Although I understand your displeasure with that thread and respect your feelings, I hope that somehow THIS doesnt end up the thread that gets locked. Excuse me for being leary, but given history of our passionate members I tend to worry</b></end quote></div>


Hey, give me a little credit, I think I've kept pretty cool this whole time. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Anyway, I didn't see Hermit's post before he deleted it, but yeah, those threads cause me a lot of heartache, too. It's not enough to just avoid them; even if I don't click on it there's still "if you knew your unborn child had cf would you abort it" in bold letters staring me in the face.

Don't get me wrong, I'm not saying the conversation should be banned on account of my or anyone else's sensitivity, just that it affects me. And I think it does matter (referring to the changed topic line) because this is a support group. It is fine to have the converstaion, but also recognize it is a source of pain for some people and the longer it goes on the more painful it becomes. What I'm suggesting is when the conversation has reached 3 pages (I have my preferences set at 50 responses per page; others may be different), then we might ask ourselves before we add yet another post if there is any value left in continuing the conversation and bumping the thred back to the top.

Whether there is or not on that particular thread, I don't know. I'm sure there will be difference of opinion as far as that is concerned as well. And yes, I'm well aware I've been guilty of beating more than my fair share of dead horses in the past.

I guess what I'm saying is some people are sensitive, and that's okay. Being thick skinned is not the same as being tough, and being sensitive is not equal to being weak. In a mideval battle, who would you say is tougher, the guy going in wearing a full plate of armor, or the guy going in wearing a nightgown? =-) (Some people might say the guy wearing a nighgown is just stupid, but that's going a little further than the metaphor was intended). Point is, instead of having the attitude of "some people are going to be offended and there's nothing we can do about it" maybe it would be better to say "Some people are going to be offended, so let's try to stay conscious of that."

I've seen several times this group described as a community or a family. Maybe not everyone agrees with that veiw, I don't know, but I do know in a community when we pull together we do not disregard those who we may perceive as weaker or having special needs, but rather we go out of our way to accomodate them. The Bible puts it this way (sorry to bring religion into it, but you all know of my devotion, and this passage really captures what I'm talking about, so please bear with me), "But now there are many members, but one body. The eye cannot say to the hand, 'I have no need of you'; or again the head to the feet, 'I have no need of you.' On the contrary, it is much truer that the members of the body which seem to be weaker are necessary; and those members of the body which we deem less honorable, on these we bestow more abundant honor, and our less presentable members become much more presentable, whereas our more presentable members have no need of it. But God has so composed the body, giving more abundant honor to the member which lacked, so that there may be no division in the body, but that the members may have the same care for one another. And if one member suffers, all the members suffer with it; if one member is honored, all the members rejoice with it." 1 Corinthians 12:20-26
 
M

Mockingbird

New member
Deeply Offended.

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>
<b>Although I understand your displeasure with that thread and respect your feelings, I hope that somehow THIS doesnt end up the thread that gets locked. Excuse me for being leary, but given history of our passionate members I tend to worry</b></end quote></div>


Hey, give me a little credit, I think I've kept pretty cool this whole time. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Anyway, I didn't see Hermit's post before he deleted it, but yeah, those threads cause me a lot of heartache, too. It's not enough to just avoid them; even if I don't click on it there's still "if you knew your unborn child had cf would you abort it" in bold letters staring me in the face.

Don't get me wrong, I'm not saying the conversation should be banned on account of my or anyone else's sensitivity, just that it affects me. And I think it does matter (referring to the changed topic line) because this is a support group. It is fine to have the converstaion, but also recognize it is a source of pain for some people and the longer it goes on the more painful it becomes. What I'm suggesting is when the conversation has reached 3 pages (I have my preferences set at 50 responses per page; others may be different), then we might ask ourselves before we add yet another post if there is any value left in continuing the conversation and bumping the thred back to the top.

Whether there is or not on that particular thread, I don't know. I'm sure there will be difference of opinion as far as that is concerned as well. And yes, I'm well aware I've been guilty of beating more than my fair share of dead horses in the past.

I guess what I'm saying is some people are sensitive, and that's okay. Being thick skinned is not the same as being tough, and being sensitive is not equal to being weak. In a mideval battle, who would you say is tougher, the guy going in wearing a full plate of armor, or the guy going in wearing a nightgown? =-) (Some people might say the guy wearing a nighgown is just stupid, but that's going a little further than the metaphor was intended). Point is, instead of having the attitude of "some people are going to be offended and there's nothing we can do about it" maybe it would be better to say "Some people are going to be offended, so let's try to stay conscious of that."

I've seen several times this group described as a community or a family. Maybe not everyone agrees with that veiw, I don't know, but I do know in a community when we pull together we do not disregard those who we may perceive as weaker or having special needs, but rather we go out of our way to accomodate them. The Bible puts it this way (sorry to bring religion into it, but you all know of my devotion, and this passage really captures what I'm talking about, so please bear with me), "But now there are many members, but one body. The eye cannot say to the hand, 'I have no need of you'; or again the head to the feet, 'I have no need of you.' On the contrary, it is much truer that the members of the body which seem to be weaker are necessary; and those members of the body which we deem less honorable, on these we bestow more abundant honor, and our less presentable members become much more presentable, whereas our more presentable members have no need of it. But God has so composed the body, giving more abundant honor to the member which lacked, so that there may be no division in the body, but that the members may have the same care for one another. And if one member suffers, all the members suffer with it; if one member is honored, all the members rejoice with it." 1 Corinthians 12:20-26
 
J

JazzysMom

New member
Deeply Offended.

Its funny that you happen to post this Mockingbird. Last night I was telling my hubby all about the different topics that have been difficult for some. He also said that we are suppose to be a community & should think of the needs/wants of everyone. Those are passionate about the topic in ?? have voiced their opinion and so has the other side. He says what is the point of bring it up again and again and again. We have enough replies to get "an idea" of what/how people feel, but now its time to let it go!!!!! He believes that whether it be the minority or the majority.....respect should be considered at some point when someone waves the white flag!!
 
J

JazzysMom

New member
Deeply Offended.

Its funny that you happen to post this Mockingbird. Last night I was telling my hubby all about the different topics that have been difficult for some. He also said that we are suppose to be a community & should think of the needs/wants of everyone. Those are passionate about the topic in ?? have voiced their opinion and so has the other side. He says what is the point of bring it up again and again and again. We have enough replies to get "an idea" of what/how people feel, but now its time to let it go!!!!! He believes that whether it be the minority or the majority.....respect should be considered at some point when someone waves the white flag!!
 
J

JazzysMom

New member
Deeply Offended.

Its funny that you happen to post this Mockingbird. Last night I was telling my hubby all about the different topics that have been difficult for some. He also said that we are suppose to be a community & should think of the needs/wants of everyone. Those are passionate about the topic in ?? have voiced their opinion and so has the other side. He says what is the point of bring it up again and again and again. We have enough replies to get "an idea" of what/how people feel, but now its time to let it go!!!!! He believes that whether it be the minority or the majority.....respect should be considered at some point when someone waves the white flag!!
 
H

Hermit

New member
Deeply Offended.

Wow, I'm amazed that this topic has still gone on! I was hoping it would just kinda fade away into that nebula of past topics, and that nobody would ever search for "Nothing...not important"!

Basically, what I had originally posted was that I was <b>deeply offended</b> by the abortion post, not because of my own views towards actual abortion and that whole can of worms, but because of the CF issue.

I'm still offended. People are allowed their opinions.

I feel that people with CF have WAY more to bring to the table than just their suffering, which is what most of those people are only focusing on. I posted my story about the Buddha on there because life IS suffering. We KNOW that. It is <i>absolutely unavoidable</i>, and I think it ludicrous that there are folks who would prevent a kid from being born just because he's got CF.

I know people who are wealthy, gorgeous, well-educated and popular and who suffer more than I do. They live "normal" lives and they suffer more than I do.

People with CF maybe aren't all geniuses or Marylin Monroes, but by default we bring one hell of a lot more perspective to people. We change people's lives by merely existing. We bring a lot of wonderful things to life: inspiration, motivation, the proof that despite suffering you can do amazing things.

What offends me is that the lives of those people who have passed on are now only being recognized for their suffering. I think that deeply dishonours the spirits of those who are now dead from their CF.

If I could I would have a dozen kids with CF because of what we bring to the world as people.

What it comes down to is this: Attitude.

It is not that I don't know, or that I haven't seen or even experienced end-stage Cystic Fibrosis. I watched my own brother wither away to a breathless skeleton. It's just that you look at the attitudes of "CF sucks so much, my life sucks so much" and you cannot help but feel sad for the <i>people who just cannot see their situations in any kind of positive light at all</i>. They are <i>completely enclosed and obsessed with their illness</i>. Interestingly, many of these people are people in the "How old are you and what's your FEV1?" thread that posted NORMAL or MILD lung disease!

<b>What you are suffering from, as a friend of mine pointed out, is NOT Cystic FIbrosis. What you are suffering from is a TOXIC ATTITUDE and outlook on life.
</b>

This is the same kind of horrible illness many, many people who are born completely healthy have. Look at the statistics on the incidence of suicide and depression.


I am <i>deeply offended by the thread because:
</i>
1) It implies that everyone with CF would rather NOT have been born and has an attitude like Ricky123 et al.

2) It implies that the people who DO exist, and who HAVE existed with CF <i>left nothing but a legacy of suffering</i> that the people they left behind had to watch (how unpleasant!) now have to remember and cry over. They would have no more CF because it's a horrible genetic disease where you KNOW the outcome so why would you INFLICT it upon anyone else?

So by that logic, you're saying that

a) Nobody in Africa (where the average lifespan at this moment is actually LESS than that of a person born with CF, to say nothing of the quality of life) should be born.
b) Nobody with the possibility of Lou Gehrig's disease should be born (Google search Stephen Hawking).
c) Nobody who could possibly get cancer should be born. Nobody who could possibly drive a car should be born.
d) Nobody who could possibly become a mountaineer or a sky diver, or who could have an addiction to drugs, or who could get necrotizing fasciitis could be born.

It's ludicrous. It's one step away from what the Nazis were trying to do!

I'm just trying to put things in perspective here and make people <i>really think</i>. Go on to Jerry's website. Go on to YouTube or Amnesty International and watch and read some inspiring stories. There are many, many people out there who are far worse off and who are still living amazing, beautiful, <b>worthwhile</b> lives.

Love, Chris
AKA Hermit, a 25 year old female born with Meconium Ileus, Cepacia, PA, staph, Hemoptysis, CFRD, GERD, a brother who passed away a few years ago, a wart on my foot...but who can amazingly still smile and is glad she was born!
 
H

Hermit

New member
Deeply Offended.

Wow, I'm amazed that this topic has still gone on! I was hoping it would just kinda fade away into that nebula of past topics, and that nobody would ever search for "Nothing...not important"!

Basically, what I had originally posted was that I was <b>deeply offended</b> by the abortion post, not because of my own views towards actual abortion and that whole can of worms, but because of the CF issue.

I'm still offended. People are allowed their opinions.

I feel that people with CF have WAY more to bring to the table than just their suffering, which is what most of those people are only focusing on. I posted my story about the Buddha on there because life IS suffering. We KNOW that. It is <i>absolutely unavoidable</i>, and I think it ludicrous that there are folks who would prevent a kid from being born just because he's got CF.

I know people who are wealthy, gorgeous, well-educated and popular and who suffer more than I do. They live "normal" lives and they suffer more than I do.

People with CF maybe aren't all geniuses or Marylin Monroes, but by default we bring one hell of a lot more perspective to people. We change people's lives by merely existing. We bring a lot of wonderful things to life: inspiration, motivation, the proof that despite suffering you can do amazing things.

What offends me is that the lives of those people who have passed on are now only being recognized for their suffering. I think that deeply dishonours the spirits of those who are now dead from their CF.

If I could I would have a dozen kids with CF because of what we bring to the world as people.

What it comes down to is this: Attitude.

It is not that I don't know, or that I haven't seen or even experienced end-stage Cystic Fibrosis. I watched my own brother wither away to a breathless skeleton. It's just that you look at the attitudes of "CF sucks so much, my life sucks so much" and you cannot help but feel sad for the <i>people who just cannot see their situations in any kind of positive light at all</i>. They are <i>completely enclosed and obsessed with their illness</i>. Interestingly, many of these people are people in the "How old are you and what's your FEV1?" thread that posted NORMAL or MILD lung disease!

<b>What you are suffering from, as a friend of mine pointed out, is NOT Cystic FIbrosis. What you are suffering from is a TOXIC ATTITUDE and outlook on life.
</b>

This is the same kind of horrible illness many, many people who are born completely healthy have. Look at the statistics on the incidence of suicide and depression.


I am <i>deeply offended by the thread because:
</i>
1) It implies that everyone with CF would rather NOT have been born and has an attitude like Ricky123 et al.

2) It implies that the people who DO exist, and who HAVE existed with CF <i>left nothing but a legacy of suffering</i> that the people they left behind had to watch (how unpleasant!) now have to remember and cry over. They would have no more CF because it's a horrible genetic disease where you KNOW the outcome so why would you INFLICT it upon anyone else?

So by that logic, you're saying that

a) Nobody in Africa (where the average lifespan at this moment is actually LESS than that of a person born with CF, to say nothing of the quality of life) should be born.
b) Nobody with the possibility of Lou Gehrig's disease should be born (Google search Stephen Hawking).
c) Nobody who could possibly get cancer should be born. Nobody who could possibly drive a car should be born.
d) Nobody who could possibly become a mountaineer or a sky diver, or who could have an addiction to drugs, or who could get necrotizing fasciitis could be born.

It's ludicrous. It's one step away from what the Nazis were trying to do!

I'm just trying to put things in perspective here and make people <i>really think</i>. Go on to Jerry's website. Go on to YouTube or Amnesty International and watch and read some inspiring stories. There are many, many people out there who are far worse off and who are still living amazing, beautiful, <b>worthwhile</b> lives.

Love, Chris
AKA Hermit, a 25 year old female born with Meconium Ileus, Cepacia, PA, staph, Hemoptysis, CFRD, GERD, a brother who passed away a few years ago, a wart on my foot...but who can amazingly still smile and is glad she was born!
 
H

Hermit

New member
Deeply Offended.

Wow, I'm amazed that this topic has still gone on! I was hoping it would just kinda fade away into that nebula of past topics, and that nobody would ever search for "Nothing...not important"!

Basically, what I had originally posted was that I was <b>deeply offended</b> by the abortion post, not because of my own views towards actual abortion and that whole can of worms, but because of the CF issue.

I'm still offended. People are allowed their opinions.

I feel that people with CF have WAY more to bring to the table than just their suffering, which is what most of those people are only focusing on. I posted my story about the Buddha on there because life IS suffering. We KNOW that. It is <i>absolutely unavoidable</i>, and I think it ludicrous that there are folks who would prevent a kid from being born just because he's got CF.

I know people who are wealthy, gorgeous, well-educated and popular and who suffer more than I do. They live "normal" lives and they suffer more than I do.

People with CF maybe aren't all geniuses or Marylin Monroes, but by default we bring one hell of a lot more perspective to people. We change people's lives by merely existing. We bring a lot of wonderful things to life: inspiration, motivation, the proof that despite suffering you can do amazing things.

What offends me is that the lives of those people who have passed on are now only being recognized for their suffering. I think that deeply dishonours the spirits of those who are now dead from their CF.

If I could I would have a dozen kids with CF because of what we bring to the world as people.

What it comes down to is this: Attitude.

It is not that I don't know, or that I haven't seen or even experienced end-stage Cystic Fibrosis. I watched my own brother wither away to a breathless skeleton. It's just that you look at the attitudes of "CF sucks so much, my life sucks so much" and you cannot help but feel sad for the <i>people who just cannot see their situations in any kind of positive light at all</i>. They are <i>completely enclosed and obsessed with their illness</i>. Interestingly, many of these people are people in the "How old are you and what's your FEV1?" thread that posted NORMAL or MILD lung disease!

<b>What you are suffering from, as a friend of mine pointed out, is NOT Cystic FIbrosis. What you are suffering from is a TOXIC ATTITUDE and outlook on life.
</b>

This is the same kind of horrible illness many, many people who are born completely healthy have. Look at the statistics on the incidence of suicide and depression.


I am <i>deeply offended by the thread because:
</i>
1) It implies that everyone with CF would rather NOT have been born and has an attitude like Ricky123 et al.

2) It implies that the people who DO exist, and who HAVE existed with CF <i>left nothing but a legacy of suffering</i> that the people they left behind had to watch (how unpleasant!) now have to remember and cry over. They would have no more CF because it's a horrible genetic disease where you KNOW the outcome so why would you INFLICT it upon anyone else?

So by that logic, you're saying that

a) Nobody in Africa (where the average lifespan at this moment is actually LESS than that of a person born with CF, to say nothing of the quality of life) should be born.
b) Nobody with the possibility of Lou Gehrig's disease should be born (Google search Stephen Hawking).
c) Nobody who could possibly get cancer should be born. Nobody who could possibly drive a car should be born.
d) Nobody who could possibly become a mountaineer or a sky diver, or who could have an addiction to drugs, or who could get necrotizing fasciitis could be born.

It's ludicrous. It's one step away from what the Nazis were trying to do!

I'm just trying to put things in perspective here and make people <i>really think</i>. Go on to Jerry's website. Go on to YouTube or Amnesty International and watch and read some inspiring stories. There are many, many people out there who are far worse off and who are still living amazing, beautiful, <b>worthwhile</b> lives.

Love, Chris
AKA Hermit, a 25 year old female born with Meconium Ileus, Cepacia, PA, staph, Hemoptysis, CFRD, GERD, a brother who passed away a few years ago, a wart on my foot...but who can amazingly still smile and is glad she was born!
 
K

kswitch

New member
Deeply Offended.

thank you for coming back to this clearing up your perspective. it's nice to have someone as articulate as you to represent this side, and be willing to do so.

i get a lot of what you say, and i think we actually revolve around some of the same fundamental principles. for me, the underlying issue is not that cf'ers and other afflicted don't contribute much from their adversity. it is the recognition that there will always be adversity; in some form. i come from a school of thought that tells me to progress, in my thinking, my living, and my struggles. cf has been affecting our lives for generations, and, in my opnion, it's time to lay this thing to rest. we know enough about it, and have to potential to prevent lives being affected by it.

many of us just want to see this illness gone, and we're willing to entertain a number solutions to achieve it. it's like you said in one of your blogs, people have the amazing ability to accept or reject events. we're willing to accept varying levels of ugly reality to rid cf, perhaps because we have already accepted uglier realities.

i dunno. but i do know that it's time to move on from cf. ged rid of it for #@!* sake. there's so much more suffering out there to experience!!
 
K

kswitch

New member
Deeply Offended.

thank you for coming back to this clearing up your perspective. it's nice to have someone as articulate as you to represent this side, and be willing to do so.

i get a lot of what you say, and i think we actually revolve around some of the same fundamental principles. for me, the underlying issue is not that cf'ers and other afflicted don't contribute much from their adversity. it is the recognition that there will always be adversity; in some form. i come from a school of thought that tells me to progress, in my thinking, my living, and my struggles. cf has been affecting our lives for generations, and, in my opnion, it's time to lay this thing to rest. we know enough about it, and have to potential to prevent lives being affected by it.

many of us just want to see this illness gone, and we're willing to entertain a number solutions to achieve it. it's like you said in one of your blogs, people have the amazing ability to accept or reject events. we're willing to accept varying levels of ugly reality to rid cf, perhaps because we have already accepted uglier realities.

i dunno. but i do know that it's time to move on from cf. ged rid of it for #@!* sake. there's so much more suffering out there to experience!!
 
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