It doesn't matter

kswitch

New member
Deeply Offended.

thank you for coming back to this clearing up your perspective. it's nice to have someone as articulate as you to represent this side, and be willing to do so.

i get a lot of what you say, and i think we actually revolve around some of the same fundamental principles. for me, the underlying issue is not that cf'ers and other afflicted don't contribute much from their adversity. it is the recognition that there will always be adversity; in some form. i come from a school of thought that tells me to progress, in my thinking, my living, and my struggles. cf has been affecting our lives for generations, and, in my opnion, it's time to lay this thing to rest. we know enough about it, and have to potential to prevent lives being affected by it.

many of us just want to see this illness gone, and we're willing to entertain a number solutions to achieve it. it's like you said in one of your blogs, people have the amazing ability to accept or reject events. we're willing to accept varying levels of ugly reality to rid cf, perhaps because we have already accepted uglier realities.

i dunno. but i do know that it's time to move on from cf. ged rid of it for #@!* sake. there's so much more suffering out there to experience!!
 

kayleesgrandma

New member
I hesitated to add to this post, to "keep it going" for those who consider it done. I just feel that it is important to let people--especially those who have seen topics and opinions "flamed" in the past--know how important this topic was and has been. For several reasons, one of which is to show newbies that we can be civil to one another. Another is that I have been so impressed by how respectful everyone has been to each other. Even though Mel has said it several times, I feel I have to say it too. Respecting each others feelings, moods, attitudes--it all bears out to being a significant part and support to the "whole' of us.

Chris had a right to her feelings, and expressed them out loud. But others who did not agree also had a right--and it was great that they all spoke up. Yes, this topic will be brought up again down the line, as someone will forget it was talked about. As this community gets bigger, with new members, we will probably see that a lot.

And for the record, I agree with Chris. I don't believe in abortion, though I once did. But I also believe it is an individual choice, so I am Pro-Choice, and Pro-Life at the same time. I believe people need to know more about abortion. I believe it is destroying a life, but I think it also should be a person's choice. But, as Chris said, her life has been relevant and fruitful, and I see why she was offended. Life is a matter of perspective, and reacting to the circumstances you are in at the moment. How you perceive,and how you react will change from moment to moment. This is just another way that CF messes with us . . .
 

kayleesgrandma

New member
I hesitated to add to this post, to "keep it going" for those who consider it done. I just feel that it is important to let people--especially those who have seen topics and opinions "flamed" in the past--know how important this topic was and has been. For several reasons, one of which is to show newbies that we can be civil to one another. Another is that I have been so impressed by how respectful everyone has been to each other. Even though Mel has said it several times, I feel I have to say it too. Respecting each others feelings, moods, attitudes--it all bears out to being a significant part and support to the "whole' of us.

Chris had a right to her feelings, and expressed them out loud. But others who did not agree also had a right--and it was great that they all spoke up. Yes, this topic will be brought up again down the line, as someone will forget it was talked about. As this community gets bigger, with new members, we will probably see that a lot.

And for the record, I agree with Chris. I don't believe in abortion, though I once did. But I also believe it is an individual choice, so I am Pro-Choice, and Pro-Life at the same time. I believe people need to know more about abortion. I believe it is destroying a life, but I think it also should be a person's choice. But, as Chris said, her life has been relevant and fruitful, and I see why she was offended. Life is a matter of perspective, and reacting to the circumstances you are in at the moment. How you perceive,and how you react will change from moment to moment. This is just another way that CF messes with us . . .
 

kayleesgrandma

New member
I hesitated to add to this post, to "keep it going" for those who consider it done. I just feel that it is important to let people--especially those who have seen topics and opinions "flamed" in the past--know how important this topic was and has been. For several reasons, one of which is to show newbies that we can be civil to one another. Another is that I have been so impressed by how respectful everyone has been to each other. Even though Mel has said it several times, I feel I have to say it too. Respecting each others feelings, moods, attitudes--it all bears out to being a significant part and support to the "whole' of us.

Chris had a right to her feelings, and expressed them out loud. But others who did not agree also had a right--and it was great that they all spoke up. Yes, this topic will be brought up again down the line, as someone will forget it was talked about. As this community gets bigger, with new members, we will probably see that a lot.

And for the record, I agree with Chris. I don't believe in abortion, though I once did. But I also believe it is an individual choice, so I am Pro-Choice, and Pro-Life at the same time. I believe people need to know more about abortion. I believe it is destroying a life, but I think it also should be a person's choice. But, as Chris said, her life has been relevant and fruitful, and I see why she was offended. Life is a matter of perspective, and reacting to the circumstances you are in at the moment. How you perceive,and how you react will change from moment to moment. This is just another way that CF messes with us . . .
 

julie

New member
Thanks for posting again chris, I enjoyed your perspective on this topic.

Mel, as to what your husband said about just dropping it.... I agree, but what about the newbies who are here and have missed the last discussion about this? Maybe that's what happened here?

I'm sorry to those who the topic has offended, I'm sorry that it is offensive to you, I know I think people with CF (or any other medical problems) have made wonderful contributions to society (to included everything under the sun) and I couldn't imagine my life without them, especially my Mark. I also understand wanting to prevent the pain of bringing a CF child into the world, not necessairly for youself, but for that child. I see both sides, and I'm very sorry for those who feel hurt by this.
 

julie

New member
Thanks for posting again chris, I enjoyed your perspective on this topic.

Mel, as to what your husband said about just dropping it.... I agree, but what about the newbies who are here and have missed the last discussion about this? Maybe that's what happened here?

I'm sorry to those who the topic has offended, I'm sorry that it is offensive to you, I know I think people with CF (or any other medical problems) have made wonderful contributions to society (to included everything under the sun) and I couldn't imagine my life without them, especially my Mark. I also understand wanting to prevent the pain of bringing a CF child into the world, not necessairly for youself, but for that child. I see both sides, and I'm very sorry for those who feel hurt by this.
 

julie

New member
Thanks for posting again chris, I enjoyed your perspective on this topic.

Mel, as to what your husband said about just dropping it.... I agree, but what about the newbies who are here and have missed the last discussion about this? Maybe that's what happened here?

I'm sorry to those who the topic has offended, I'm sorry that it is offensive to you, I know I think people with CF (or any other medical problems) have made wonderful contributions to society (to included everything under the sun) and I couldn't imagine my life without them, especially my Mark. I also understand wanting to prevent the pain of bringing a CF child into the world, not necessairly for youself, but for that child. I see both sides, and I'm very sorry for those who feel hurt by this.
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>julie</b></i>


Mel, as to what your husband said about just dropping it.... I agree, but what about the newbies who are here and have missed the last discussion about this? Maybe that's what happened here?



I'm sorry to those who the topic has offended, I'm sorry that it is offensive to you, I know I think people with CF (or any other medical problems) have made wonderful contributions to society (to included everything under the sun) and I couldn't imagine my life without them, especially my Mark. I also understand wanting to prevent the pain of bringing a CF child into the world, not necessairly for youself, but for that child. I see both sides, and I'm very sorry for those who feel hurt by this.</end quote></div>


Julie......he isnt alert to "how things work on the site" so I am sure he hasnt thought about the new people etc. He is thinking here/now & those currently involved.

I also agree with everything else Julie says.
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>julie</b></i>


Mel, as to what your husband said about just dropping it.... I agree, but what about the newbies who are here and have missed the last discussion about this? Maybe that's what happened here?



I'm sorry to those who the topic has offended, I'm sorry that it is offensive to you, I know I think people with CF (or any other medical problems) have made wonderful contributions to society (to included everything under the sun) and I couldn't imagine my life without them, especially my Mark. I also understand wanting to prevent the pain of bringing a CF child into the world, not necessairly for youself, but for that child. I see both sides, and I'm very sorry for those who feel hurt by this.</end quote></div>


Julie......he isnt alert to "how things work on the site" so I am sure he hasnt thought about the new people etc. He is thinking here/now & those currently involved.

I also agree with everything else Julie says.
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>julie</b></i>


Mel, as to what your husband said about just dropping it.... I agree, but what about the newbies who are here and have missed the last discussion about this? Maybe that's what happened here?



I'm sorry to those who the topic has offended, I'm sorry that it is offensive to you, I know I think people with CF (or any other medical problems) have made wonderful contributions to society (to included everything under the sun) and I couldn't imagine my life without them, especially my Mark. I also understand wanting to prevent the pain of bringing a CF child into the world, not necessairly for youself, but for that child. I see both sides, and I'm very sorry for those who feel hurt by this.</end quote></div>


Julie......he isnt alert to "how things work on the site" so I am sure he hasnt thought about the new people etc. He is thinking here/now & those currently involved.

I also agree with everything else Julie says.
 

JustDucky

New member
I am not beating a dead horse here, but it makes me think about my life in genera.. I wonder what my mother would have done had she known I had CF as well as a muscular dystrophy (which doesn't show it's ugly head until the 30's, 40's or even 50's)? I wonder if she would have chosen to abort...I know right now, seeing all I go through (I live with her) that she feels alot of guilt that she contributed to these diseases. My CF isn't as bad as the dystrophy, the dystrophy put me on a vent permanently. I wasn't dx'd with CF until my 30's, milder mutations apparently but she sees what I go through as far as IV's every 3-4 months, this last time I was in for 2 months, the daily routines (you all know them).. In my 35 years in this world, I think I did alot, and still will until I draw my last breath. I became a nurse, am still working on my BSN, helped alot of folks in my community, volunteered and was there for anyone who needed a shoulder. (STill am) I am glad I was given the opportunity to live and contribute something to another person's life, not to mention having two wonderful kids. My kids are considering adoption rather than to have their own kids because of the many genetic issues witin my family. They are young, but wise for their ages as far as life goes. They see my daily sruggles as well. Like all of you, I have to fight like hell to stay alive. You raise interesting points of views Chris, I see your points, thank you for them. I value everyone's opinion, even if I don't agree with them, it is still their opinions and very personal.
Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

JustDucky

New member
I am not beating a dead horse here, but it makes me think about my life in genera.. I wonder what my mother would have done had she known I had CF as well as a muscular dystrophy (which doesn't show it's ugly head until the 30's, 40's or even 50's)? I wonder if she would have chosen to abort...I know right now, seeing all I go through (I live with her) that she feels alot of guilt that she contributed to these diseases. My CF isn't as bad as the dystrophy, the dystrophy put me on a vent permanently. I wasn't dx'd with CF until my 30's, milder mutations apparently but she sees what I go through as far as IV's every 3-4 months, this last time I was in for 2 months, the daily routines (you all know them).. In my 35 years in this world, I think I did alot, and still will until I draw my last breath. I became a nurse, am still working on my BSN, helped alot of folks in my community, volunteered and was there for anyone who needed a shoulder. (STill am) I am glad I was given the opportunity to live and contribute something to another person's life, not to mention having two wonderful kids. My kids are considering adoption rather than to have their own kids because of the many genetic issues witin my family. They are young, but wise for their ages as far as life goes. They see my daily sruggles as well. Like all of you, I have to fight like hell to stay alive. You raise interesting points of views Chris, I see your points, thank you for them. I value everyone's opinion, even if I don't agree with them, it is still their opinions and very personal.
Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

JustDucky

New member
I am not beating a dead horse here, but it makes me think about my life in genera.. I wonder what my mother would have done had she known I had CF as well as a muscular dystrophy (which doesn't show it's ugly head until the 30's, 40's or even 50's)? I wonder if she would have chosen to abort...I know right now, seeing all I go through (I live with her) that she feels alot of guilt that she contributed to these diseases. My CF isn't as bad as the dystrophy, the dystrophy put me on a vent permanently. I wasn't dx'd with CF until my 30's, milder mutations apparently but she sees what I go through as far as IV's every 3-4 months, this last time I was in for 2 months, the daily routines (you all know them).. In my 35 years in this world, I think I did alot, and still will until I draw my last breath. I became a nurse, am still working on my BSN, helped alot of folks in my community, volunteered and was there for anyone who needed a shoulder. (STill am) I am glad I was given the opportunity to live and contribute something to another person's life, not to mention having two wonderful kids. My kids are considering adoption rather than to have their own kids because of the many genetic issues witin my family. They are young, but wise for their ages as far as life goes. They see my daily sruggles as well. Like all of you, I have to fight like hell to stay alive. You raise interesting points of views Chris, I see your points, thank you for them. I value everyone's opinion, even if I don't agree with them, it is still their opinions and very personal.
Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

EnergyGal

New member
Deeply Offended.

Hi Chris

What you bring to this forum is one great attitude and you are a shinning example of the gift of life.

When I was told that the average life expectancy for a transplant was three years, I thought I rather have three healthy years than live with cf like I was living at the time. Attitude will take you far as long as it is a healthy one.<img src="i/expressions/face-icon-small-smile.gif" border="0"> The average life span for a tx has improved.

Today I was waiting for some blood work to be taken and I was approached by several people asking me about why I was wearing a mask. I told them the cf/transplant scenario and they were all ears and told me how inspiring blah blah and all of that. They told me they knew someone who has cf who had her lung removed at the age of seventeen and said how great she is doing. Their attitude was a breath of fresh air. The lady even said, that they are making great strides.

Some people on the other hand would say, I am sorry to hear that (If i told them why I was wearing a mask)

GREAT POST and keep on sharing,
Risa
 
Top