Its getting harder to work full time

Jennie · Apr 26, 2007

Hi all,
As we all know cf gets the best of us and we need to take time off from our jobs. Some of us even have to quit working all together. I'm thinking that I'm at the point in my life where working my 40 hours a week is just too difficult. Between all the home iv's, physio, meds and depression I've only worked about 5 months in the last year (Plus, I hate my job - I'm in a call center). Its a cycle, I'll go back to work for a few days thinking 'ok, I'm in for the long haul this time, I'll make a goal to stay for 4-5 months before I'm off again on short term disability'. Then 3-10 days later I'm off. Then I'm disappointed in myself and I feel as though I let people down.
My job will not allow me to work from home. My problem is that I only have a high school education... so I have limits. I'm wondering if anyone here works from home? Anyone have a suggestion?

Jennie · Apr 26, 2007

Hi all,
As we all know cf gets the best of us and we need to take time off from our jobs. Some of us even have to quit working all together. I'm thinking that I'm at the point in my life where working my 40 hours a week is just too difficult. Between all the home iv's, physio, meds and depression I've only worked about 5 months in the last year (Plus, I hate my job - I'm in a call center). Its a cycle, I'll go back to work for a few days thinking 'ok, I'm in for the long haul this time, I'll make a goal to stay for 4-5 months before I'm off again on short term disability'. Then 3-10 days later I'm off. Then I'm disappointed in myself and I feel as though I let people down.
My job will not allow me to work from home. My problem is that I only have a high school education... so I have limits. I'm wondering if anyone here works from home? Anyone have a suggestion?

Jennie · Apr 26, 2007

Hi all,
As we all know cf gets the best of us and we need to take time off from our jobs. Some of us even have to quit working all together. I'm thinking that I'm at the point in my life where working my 40 hours a week is just too difficult. Between all the home iv's, physio, meds and depression I've only worked about 5 months in the last year (Plus, I hate my job - I'm in a call center). Its a cycle, I'll go back to work for a few days thinking 'ok, I'm in for the long haul this time, I'll make a goal to stay for 4-5 months before I'm off again on short term disability'. Then 3-10 days later I'm off. Then I'm disappointed in myself and I feel as though I let people down.
My job will not allow me to work from home. My problem is that I only have a high school education... so I have limits. I'm wondering if anyone here works from home? Anyone have a suggestion?

chrissyd · Apr 26, 2007

OMG...This is me....I mean even down to working at a call center! Working; going out on STD and then...wow...just wow. Not to make light of it; but I'm glad to not be the only one with this issue.

I'm in the hospital right now having a tune up...I am planning to go back part time and see if I can work back up (I love my job) or if I have to work down more to tay healthy...

I have looked into a few work at home jobs; data entry, and even writing...

What kind of jobs are in your area?? What do you enjoy doing?? Maybe you can find something that you enjoy...

<img src="i/expressions/rose.gif" border="0">

chrissyd · Apr 26, 2007

OMG...This is me....I mean even down to working at a call center! Working; going out on STD and then...wow...just wow. Not to make light of it; but I'm glad to not be the only one with this issue.

I'm in the hospital right now having a tune up...I am planning to go back part time and see if I can work back up (I love my job) or if I have to work down more to tay healthy...

I have looked into a few work at home jobs; data entry, and even writing...

What kind of jobs are in your area?? What do you enjoy doing?? Maybe you can find something that you enjoy...

<img src="i/expressions/rose.gif" border="0">

chrissyd · Apr 26, 2007

OMG...This is me....I mean even down to working at a call center! Working; going out on STD and then...wow...just wow. Not to make light of it; but I'm glad to not be the only one with this issue.

I'm in the hospital right now having a tune up...I am planning to go back part time and see if I can work back up (I love my job) or if I have to work down more to tay healthy...

I have looked into a few work at home jobs; data entry, and even writing...

What kind of jobs are in your area?? What do you enjoy doing?? Maybe you can find something that you enjoy...

<img src="i/expressions/rose.gif" border="0">

lightNlife · Apr 26, 2007

I can relate to what you're going through. I've been off work on disability now for 6 months. I finally go back in late May, but I will no longer be working full time.

I know you are disappointed in yourself. I feel that way too sometimes. I feel like I let down my company for not being able to be in the office on a regular basis. I have to remind myself that the world doesn't only exist because of people to work 50-60 hrs a week. I also have had to learn not to base my self-worth on how hard I work.

I've been focusing on being a better wife and friend. Since I'm a results-oriented and goal-driven person, this season of my life has been hard to accept, but that's okay.

Something that helped me was not to think of cutting down my workload as a "setback" but rather a new phase of life.

lightNlife · Apr 26, 2007

I can relate to what you're going through. I've been off work on disability now for 6 months. I finally go back in late May, but I will no longer be working full time.

I know you are disappointed in yourself. I feel that way too sometimes. I feel like I let down my company for not being able to be in the office on a regular basis. I have to remind myself that the world doesn't only exist because of people to work 50-60 hrs a week. I also have had to learn not to base my self-worth on how hard I work.

I've been focusing on being a better wife and friend. Since I'm a results-oriented and goal-driven person, this season of my life has been hard to accept, but that's okay.

Something that helped me was not to think of cutting down my workload as a "setback" but rather a new phase of life.

lightNlife · Apr 26, 2007

I can relate to what you're going through. I've been off work on disability now for 6 months. I finally go back in late May, but I will no longer be working full time.

I know you are disappointed in yourself. I feel that way too sometimes. I feel like I let down my company for not being able to be in the office on a regular basis. I have to remind myself that the world doesn't only exist because of people to work 50-60 hrs a week. I also have had to learn not to base my self-worth on how hard I work.

I've been focusing on being a better wife and friend. Since I'm a results-oriented and goal-driven person, this season of my life has been hard to accept, but that's okay.

Something that helped me was not to think of cutting down my workload as a "setback" but rather a new phase of life.

65Rosen · May 30, 2007

Dear Jennie-
This is my first time replying-my son Stephan died at the age of 20 in 2000.
I am just amazed at the internet and this site and what it has done and can do for all those dealing with this (or other diseases).
I remember all the fund raisers and meetings with a small group of parents in hopes to find understanding, news etc. This site is such a blessing-even for those who have lost a child...Once a CF Mom--always a CF Mom. You fight that battle so long and it becomes your life-not being able to help in some way is a void to me -as crazy as that may sound!
I have always felt that God chose our family for a reason to take care of a child with CF-we scheduled our life and work around it yet led as normal of a life as possible. DId I bore you to sleep yet??
But now to you and your concern that made me decide to share; maybe some of the things we have tried would work for some of you who no longer can keep a full time job?

My husband and I bought a franchise (in Michigan) which became quite successful-being self employed allowed us to be able to go to the hospital with Stephan anytime-no one here to fire us! When our son was in his teens and wanted to work he could work for us-so a great solution there, too.
Then at 18 he found the love of his life and wanted to be on his own. He was on home IV's 3-4 times/year so getting or holding a full time job was out of the question. We bought him a vending route-yes-those ads you always read in the paper! His route were 15 crane machines with toys and he could do the route 2-3 times a week as he could fit into his schedule (around treatments)-and no one would ever believe how many quarters are in those machines till you sit and count them! He was proud to be a business owner, make enough money to have a car and do some things with his fiancee-including buying her THE ring.

Of course it takes money to buy a vending route-so I know this is not for everyone. Same with buying a franchise.My husband and I are semi retired now. But our youngest son (Robert, 20) who is a CF carrier, is going to college and working at a phone sales and service store. For marketing experience he has also joined a company that is called FORTUNE Hi Tech Marketing. I did a lot of checking into this before I decided to promote this is as a great opportunity for anyone wanting to be self employed and in this case for people who may be homebound or even in the hospital.
It is not a get rich quick scheme-stuffing envelopes or some off the wall thing. Again, having had our own business for over 30 years we know what it takes.

I don't know how much a dare elaborate or if it is allowed to give a website for more information. I don't want to sound like an advertisement . So I will leave it at that and if you or anyone want more information I guess let me know-
is that how it works?
Keeping you all in my prayers-
Stephan's Mom

65Rosen · May 30, 2007

Dear Jennie-
This is my first time replying-my son Stephan died at the age of 20 in 2000.
I am just amazed at the internet and this site and what it has done and can do for all those dealing with this (or other diseases).
I remember all the fund raisers and meetings with a small group of parents in hopes to find understanding, news etc. This site is such a blessing-even for those who have lost a child...Once a CF Mom--always a CF Mom. You fight that battle so long and it becomes your life-not being able to help in some way is a void to me -as crazy as that may sound!
I have always felt that God chose our family for a reason to take care of a child with CF-we scheduled our life and work around it yet led as normal of a life as possible. DId I bore you to sleep yet??
But now to you and your concern that made me decide to share; maybe some of the things we have tried would work for some of you who no longer can keep a full time job?

My husband and I bought a franchise (in Michigan) which became quite successful-being self employed allowed us to be able to go to the hospital with Stephan anytime-no one here to fire us! When our son was in his teens and wanted to work he could work for us-so a great solution there, too.
Then at 18 he found the love of his life and wanted to be on his own. He was on home IV's 3-4 times/year so getting or holding a full time job was out of the question. We bought him a vending route-yes-those ads you always read in the paper! His route were 15 crane machines with toys and he could do the route 2-3 times a week as he could fit into his schedule (around treatments)-and no one would ever believe how many quarters are in those machines till you sit and count them! He was proud to be a business owner, make enough money to have a car and do some things with his fiancee-including buying her THE ring.

Of course it takes money to buy a vending route-so I know this is not for everyone. Same with buying a franchise.My husband and I are semi retired now. But our youngest son (Robert, 20) who is a CF carrier, is going to college and working at a phone sales and service store. For marketing experience he has also joined a company that is called FORTUNE Hi Tech Marketing. I did a lot of checking into this before I decided to promote this is as a great opportunity for anyone wanting to be self employed and in this case for people who may be homebound or even in the hospital.
It is not a get rich quick scheme-stuffing envelopes or some off the wall thing. Again, having had our own business for over 30 years we know what it takes.

I don't know how much a dare elaborate or if it is allowed to give a website for more information. I don't want to sound like an advertisement . So I will leave it at that and if you or anyone want more information I guess let me know-
is that how it works?
Keeping you all in my prayers-
Stephan's Mom

65Rosen · May 30, 2007

Dear Jennie-
This is my first time replying-my son Stephan died at the age of 20 in 2000.
I am just amazed at the internet and this site and what it has done and can do for all those dealing with this (or other diseases).
I remember all the fund raisers and meetings with a small group of parents in hopes to find understanding, news etc. This site is such a blessing-even for those who have lost a child...Once a CF Mom--always a CF Mom. You fight that battle so long and it becomes your life-not being able to help in some way is a void to me -as crazy as that may sound!
I have always felt that God chose our family for a reason to take care of a child with CF-we scheduled our life and work around it yet led as normal of a life as possible. DId I bore you to sleep yet??
But now to you and your concern that made me decide to share; maybe some of the things we have tried would work for some of you who no longer can keep a full time job?

My husband and I bought a franchise (in Michigan) which became quite successful-being self employed allowed us to be able to go to the hospital with Stephan anytime-no one here to fire us! When our son was in his teens and wanted to work he could work for us-so a great solution there, too.
Then at 18 he found the love of his life and wanted to be on his own. He was on home IV's 3-4 times/year so getting or holding a full time job was out of the question. We bought him a vending route-yes-those ads you always read in the paper! His route were 15 crane machines with toys and he could do the route 2-3 times a week as he could fit into his schedule (around treatments)-and no one would ever believe how many quarters are in those machines till you sit and count them! He was proud to be a business owner, make enough money to have a car and do some things with his fiancee-including buying her THE ring.

Of course it takes money to buy a vending route-so I know this is not for everyone. Same with buying a franchise.My husband and I are semi retired now. But our youngest son (Robert, 20) who is a CF carrier, is going to college and working at a phone sales and service store. For marketing experience he has also joined a company that is called FORTUNE Hi Tech Marketing. I did a lot of checking into this before I decided to promote this is as a great opportunity for anyone wanting to be self employed and in this case for people who may be homebound or even in the hospital.
It is not a get rich quick scheme-stuffing envelopes or some off the wall thing. Again, having had our own business for over 30 years we know what it takes.

I don't know how much a dare elaborate or if it is allowed to give a website for more information. I don't want to sound like an advertisement . So I will leave it at that and if you or anyone want more information I guess let me know-
is that how it works?
Keeping you all in my prayers-
Stephan's Mom

65Rosen · May 30, 2007

Dear Jennie-
This is my first time replying-my son Stephan died at the age of 20 in 2000.
I am just amazed at the internet and this site and what it has done and can do for all those dealing with this (or other diseases).
I remember all the fund raisers and meetings with a small group of parents in hopes to find understanding, news etc. This site is such a blessing-even for those who have lost a child...Once a CF Mom--always a CF Mom. You fight that battle so long and it becomes your life-not being able to help in some way is a void to me -as crazy as that may sound!
I have always felt that God chose our family for a reason to take care of a child with CF-we scheduled our life and work around it yet led as normal of a life as possible. DId I bore you to sleep yet??
But now to you and your concern that made me decide to share; maybe some of the things we have tried would work for some of you who no longer can keep a full time job?

My husband and I bought a franchise (in Michigan) which became quite successful-being self employed allowed us to be able to go to the hospital with Stephan anytime-no one here to fire us! When our son was in his teens and wanted to work he could work for us-so a great solution there, too.
Then at 18 he found the love of his life and wanted to be on his own. He was on home IV's 3-4 times/year so getting or holding a full time job was out of the question. We bought him a vending route-yes-those ads you always read in the paper! His route were 15 crane machines with toys and he could do the route 2-3 times a week as he could fit into his schedule (around treatments)-and no one would ever believe how many quarters are in those machines till you sit and count them! He was proud to be a business owner, make enough money to have a car and do some things with his fiancee-including buying her THE ring.

Of course it takes money to buy a vending route-so I know this is not for everyone. Same with buying a franchise.My husband and I are semi retired now. But our youngest son (Robert, 20) who is a CF carrier, is going to college and working at a phone sales and service store. For marketing experience he has also joined a company that is called FORTUNE Hi Tech Marketing. I did a lot of checking into this before I decided to promote this is as a great opportunity for anyone wanting to be self employed and in this case for people who may be homebound or even in the hospital.
It is not a get rich quick scheme-stuffing envelopes or some off the wall thing. Again, having had our own business for over 30 years we know what it takes.

I don't know how much a dare elaborate or if it is allowed to give a website for more information. I don't want to sound like an advertisement . So I will leave it at that and if you or anyone want more information I guess let me know-
is that how it works?
Keeping you all in my prayers-
Stephan's Mom

65Rosen · May 30, 2007

Dear Jennie-
This is my first time replying-my son Stephan died at the age of 20 in 2000.
I am just amazed at the internet and this site and what it has done and can do for all those dealing with this (or other diseases).
I remember all the fund raisers and meetings with a small group of parents in hopes to find understanding, news etc. This site is such a blessing-even for those who have lost a child...Once a CF Mom--always a CF Mom. You fight that battle so long and it becomes your life-not being able to help in some way is a void to me -as crazy as that may sound!
I have always felt that God chose our family for a reason to take care of a child with CF-we scheduled our life and work around it yet led as normal of a life as possible. DId I bore you to sleep yet??
But now to you and your concern that made me decide to share; maybe some of the things we have tried would work for some of you who no longer can keep a full time job?

My husband and I bought a franchise (in Michigan) which became quite successful-being self employed allowed us to be able to go to the hospital with Stephan anytime-no one here to fire us! When our son was in his teens and wanted to work he could work for us-so a great solution there, too.
Then at 18 he found the love of his life and wanted to be on his own. He was on home IV's 3-4 times/year so getting or holding a full time job was out of the question. We bought him a vending route-yes-those ads you always read in the paper! His route were 15 crane machines with toys and he could do the route 2-3 times a week as he could fit into his schedule (around treatments)-and no one would ever believe how many quarters are in those machines till you sit and count them! He was proud to be a business owner, make enough money to have a car and do some things with his fiancee-including buying her THE ring.

Of course it takes money to buy a vending route-so I know this is not for everyone. Same with buying a franchise.My husband and I are semi retired now. But our youngest son (Robert, 20) who is a CF carrier, is going to college and working at a phone sales and service store. For marketing experience he has also joined a company that is called FORTUNE Hi Tech Marketing. I did a lot of checking into this before I decided to promote this is as a great opportunity for anyone wanting to be self employed and in this case for people who may be homebound or even in the hospital.
It is not a get rich quick scheme-stuffing envelopes or some off the wall thing. Again, having had our own business for over 30 years we know what it takes.

I don't know how much a dare elaborate or if it is allowed to give a website for more information. I don't want to sound like an advertisement . So I will leave it at that and if you or anyone want more information I guess let me know-
is that how it works?
Keeping you all in my prayers-
Stephan's Mom

65Rosen · May 30, 2007

Dear Jennie-
This is my first time replying-my son Stephan died at the age of 20 in 2000.
I am just amazed at the internet and this site and what it has done and can do for all those dealing with this (or other diseases).
I remember all the fund raisers and meetings with a small group of parents in hopes to find understanding, news etc. This site is such a blessing-even for those who have lost a child...Once a CF Mom--always a CF Mom. You fight that battle so long and it becomes your life-not being able to help in some way is a void to me -as crazy as that may sound!
I have always felt that God chose our family for a reason to take care of a child with CF-we scheduled our life and work around it yet led as normal of a life as possible. DId I bore you to sleep yet??
But now to you and your concern that made me decide to share; maybe some of the things we have tried would work for some of you who no longer can keep a full time job?

My husband and I bought a franchise (in Michigan) which became quite successful-being self employed allowed us to be able to go to the hospital with Stephan anytime-no one here to fire us! When our son was in his teens and wanted to work he could work for us-so a great solution there, too.
Then at 18 he found the love of his life and wanted to be on his own. He was on home IV's 3-4 times/year so getting or holding a full time job was out of the question. We bought him a vending route-yes-those ads you always read in the paper! His route were 15 crane machines with toys and he could do the route 2-3 times a week as he could fit into his schedule (around treatments)-and no one would ever believe how many quarters are in those machines till you sit and count them! He was proud to be a business owner, make enough money to have a car and do some things with his fiancee-including buying her THE ring.

Of course it takes money to buy a vending route-so I know this is not for everyone. Same with buying a franchise.My husband and I are semi retired now. But our youngest son (Robert, 20) who is a CF carrier, is going to college and working at a phone sales and service store. For marketing experience he has also joined a company that is called FORTUNE Hi Tech Marketing. I did a lot of checking into this before I decided to promote this is as a great opportunity for anyone wanting to be self employed and in this case for people who may be homebound or even in the hospital.
It is not a get rich quick scheme-stuffing envelopes or some off the wall thing. Again, having had our own business for over 30 years we know what it takes.

I don't know how much a dare elaborate or if it is allowed to give a website for more information. I don't want to sound like an advertisement . So I will leave it at that and if you or anyone want more information I guess let me know-
is that how it works?
Keeping you all in my prayers-
Stephan's Mom

julie · May 31, 2007