Blessed4Times
New member
@ Caroline - No, I am not bothered or offended at all by your choices. And my comment about staying home with children wasn't directed at you at all. I was only comparing it in the sense of what other "single" moms do to scam the system. I was not trying to offend you in any way, so I apologize if you felt like I was attacking you. That is what works for YOUR family so by all means you should keep doing what works in your very personal situation. Eventhough I don't believe in it, I would consider not marrying if it meant losing necessary, life-sustaining medication and access to medical care. Perhaps if my fiance and I were in that situation we wouldn't get legally married, but forunately we aren't.
You have two children to take care of. I have 4 and I know how much work it is to take care of them plus yourself. I am glad that you don't have to work for the sake of your children. I wish that my fiance who has CF didn't have to work, but he does until I can support all 6 of us. I hope and pray that the exchange for that isn't his health because it has surely declined in the last 3 years that he's worked full time. I want him to rest when he's sick and not stress about work and paying our bills like he does now. Hopefully that will become a reality within the next 2 years and he can "retire." At the end of the day, the goal for every CFer is to live as long as possible and as healthy as possible for your family and children.
I agree that there are very few CFers in this situation. Just like you, I am extremely bothered that there are many people out there, not specifically CFers that have learned how to scam the system and live off the system simply because they can like the "single" mom I mentioned in the earlier post. This is why our system is broke. I have an aunt that has always made sure her income was even $1 less than the maximum allowed to collect medicare and food stamps for her family. She found every loop whole possible to qualify for every benefit under the sun. Rather than educate herself and look for better employment (which she is fully capable of doing) she has continued to live like that. It's the mindset that A LOT of people have that the government should pick up the tab when they fall short that's frustrating, not your situation.
You have two children to take care of. I have 4 and I know how much work it is to take care of them plus yourself. I am glad that you don't have to work for the sake of your children. I wish that my fiance who has CF didn't have to work, but he does until I can support all 6 of us. I hope and pray that the exchange for that isn't his health because it has surely declined in the last 3 years that he's worked full time. I want him to rest when he's sick and not stress about work and paying our bills like he does now. Hopefully that will become a reality within the next 2 years and he can "retire." At the end of the day, the goal for every CFer is to live as long as possible and as healthy as possible for your family and children.
I agree that there are very few CFers in this situation. Just like you, I am extremely bothered that there are many people out there, not specifically CFers that have learned how to scam the system and live off the system simply because they can like the "single" mom I mentioned in the earlier post. This is why our system is broke. I have an aunt that has always made sure her income was even $1 less than the maximum allowed to collect medicare and food stamps for her family. She found every loop whole possible to qualify for every benefit under the sun. Rather than educate herself and look for better employment (which she is fully capable of doing) she has continued to live like that. It's the mindset that A LOT of people have that the government should pick up the tab when they fall short that's frustrating, not your situation.
