Making hospitalization easier

[Philipians4four]

I am 18, CF all my life, in and out of hospitals and the ONE thing I find most important is...

Having something to eat after waking up. If she is going to be sleep induced, make sure you have a drink ready for her as soon as she wakes up. And IF she is sleep induced, she will have to have not eaten past midnight the night before, which means she will be hungry ( I always was!). Most times the cafeteria can be called, and you can order something to be brought up. I'm tellin ya, it sounds silly but it is SO TRUE.

If she sleeps with something special, bring it and let her have it during any procedures. It always made things less scary for me.

If they have a playroom, get to know the peopel who run it. Their closets are always full of fun crafts and things to do.

Oh, and if YOU get hungry, the nurses always have menus! Dont hesitate to ask for one!

Hope that helps.

 

[Philipians4four]

I am 18, CF all my life, in and out of hospitals and the ONE thing I find most important is...

Having something to eat after waking up. If she is going to be sleep induced, make sure you have a drink ready for her as soon as she wakes up. And IF she is sleep induced, she will have to have not eaten past midnight the night before, which means she will be hungry ( I always was!). Most times the cafeteria can be called, and you can order something to be brought up. I'm tellin ya, it sounds silly but it is SO TRUE.

If she sleeps with something special, bring it and let her have it during any procedures. It always made things less scary for me.

If they have a playroom, get to know the peopel who run it. Their closets are always full of fun crafts and things to do.

Oh, and if YOU get hungry, the nurses always have menus! Dont hesitate to ask for one!

Hope that helps.

 

[jdprecious]

U guys ... these suggestions are the bomb dot com... tara your point about certain hours to do vitals is awesome... ive gotten 14 days full ot stuff for jae to do bc of you guys.... she is gonna have a blast and im gonna make it thru w/o a heart attack.. haha ..

thank you alll.. omg how much easier life will be bc of you guys... ty again!!!

 

[jdprecious]

U guys ... these suggestions are the bomb dot com... tara your point about certain hours to do vitals is awesome... ive gotten 14 days full ot stuff for jae to do bc of you guys.... she is gonna have a blast and im gonna make it thru w/o a heart attack.. haha ..

thank you alll.. omg how much easier life will be bc of you guys... ty again!!!

 

[jdprecious]

U guys ... these suggestions are the bomb dot com... tara your point about certain hours to do vitals is awesome... ive gotten 14 days full ot stuff for jae to do bc of you guys.... she is gonna have a blast and im gonna make it thru w/o a heart attack.. haha ..

thank you alll.. omg how much easier life will be bc of you guys... ty again!!!

 

[jdprecious]

U guys ... these suggestions are the bomb dot com... tara your point about certain hours to do vitals is awesome... ive gotten 14 days full ot stuff for jae to do bc of you guys.... she is gonna have a blast and im gonna make it thru w/o a heart attack.. haha ..

thank you alll.. omg how much easier life will be bc of you guys... ty again!!!

 

[jdprecious]

U guys ... these suggestions are the bomb dot com... tara your point about certain hours to do vitals is awesome... ive gotten 14 days full ot stuff for jae to do bc of you guys.... she is gonna have a blast and im gonna make it thru w/o a heart attack.. haha ..

thank you alll.. omg how much easier life will be bc of you guys... ty again!!!

 

[jdprecious]

U guys ... these suggestions are the bomb dot com... tara your point about certain hours to do vitals is awesome... ive gotten 14 days full ot stuff for jae to do bc of you guys.... she is gonna have a blast and im gonna make it thru w/o a heart attack.. haha ..

thank you alll.. omg how much easier life will be bc of you guys... ty again!!!

 

[Jane]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i>

a container of heavy duty disinfecting wipes. I wiped EVERYTHING down when we first got there --- most importantly the phone and remote control which can get missed by the cleaning staff when they come through.

<div class="FTQUOTE"><begin quote>


We do the same thing. You'd be surprised how gross some things in a hospital room really are (sink drains). We feel like that room is our home for two weeks, we need to feel safe and clean.

I also want to remind you to bring a notebook to keep track of everything. Lots of things are being thrown at you from a multitude of people. It will help you sort things out. Write down everything! And ask questions. Don't be afraid to speak up if you think you've gotten conflicting information or if you need something you're not getting.

I also bring stationery so I can send letters.

Find out if any of the area restaurant deliver and get their menus.

Find out where there is a family room with internet so you can let us know how you guys are!

 

[Jane]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i>

a container of heavy duty disinfecting wipes. I wiped EVERYTHING down when we first got there --- most importantly the phone and remote control which can get missed by the cleaning staff when they come through.

<div class="FTQUOTE"><begin quote>


We do the same thing. You'd be surprised how gross some things in a hospital room really are (sink drains). We feel like that room is our home for two weeks, we need to feel safe and clean.

I also want to remind you to bring a notebook to keep track of everything. Lots of things are being thrown at you from a multitude of people. It will help you sort things out. Write down everything! And ask questions. Don't be afraid to speak up if you think you've gotten conflicting information or if you need something you're not getting.

I also bring stationery so I can send letters.

Find out if any of the area restaurant deliver and get their menus.

Find out where there is a family room with internet so you can let us know how you guys are!

 

[Jane]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i>

a container of heavy duty disinfecting wipes. I wiped EVERYTHING down when we first got there --- most importantly the phone and remote control which can get missed by the cleaning staff when they come through.

<div class="FTQUOTE"><begin quote>


We do the same thing. You'd be surprised how gross some things in a hospital room really are (sink drains). We feel like that room is our home for two weeks, we need to feel safe and clean.

I also want to remind you to bring a notebook to keep track of everything. Lots of things are being thrown at you from a multitude of people. It will help you sort things out. Write down everything! And ask questions. Don't be afraid to speak up if you think you've gotten conflicting information or if you need something you're not getting.

I also bring stationery so I can send letters.

Find out if any of the area restaurant deliver and get their menus.

Find out where there is a family room with internet so you can let us know how you guys are!

 

[Jane]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i>

a container of heavy duty disinfecting wipes. I wiped EVERYTHING down when we first got there --- most importantly the phone and remote control which can get missed by the cleaning staff when they come through.

<div class="FTQUOTE"><begin quote>


We do the same thing. You'd be surprised how gross some things in a hospital room really are (sink drains). We feel like that room is our home for two weeks, we need to feel safe and clean.

I also want to remind you to bring a notebook to keep track of everything. Lots of things are being thrown at you from a multitude of people. It will help you sort things out. Write down everything! And ask questions. Don't be afraid to speak up if you think you've gotten conflicting information or if you need something you're not getting.

I also bring stationery so I can send letters.

Find out if any of the area restaurant deliver and get their menus.

Find out where there is a family room with internet so you can let us know how you guys are!

 

[Jane]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i>

a container of heavy duty disinfecting wipes. I wiped EVERYTHING down when we first got there --- most importantly the phone and remote control which can get missed by the cleaning staff when they come through.

<div class="FTQUOTE"><begin quote>


We do the same thing. You'd be surprised how gross some things in a hospital room really are (sink drains). We feel like that room is our home for two weeks, we need to feel safe and clean.

I also want to remind you to bring a notebook to keep track of everything. Lots of things are being thrown at you from a multitude of people. It will help you sort things out. Write down everything! And ask questions. Don't be afraid to speak up if you think you've gotten conflicting information or if you need something you're not getting.

I also bring stationery so I can send letters.

Find out if any of the area restaurant deliver and get their menus.

Find out where there is a family room with internet so you can let us know how you guys are!

 

[Jane]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i>

a container of heavy duty disinfecting wipes. I wiped EVERYTHING down when we first got there --- most importantly the phone and remote control which can get missed by the cleaning staff when they come through.

<div class="FTQUOTE"><begin quote>


We do the same thing. You'd be surprised how gross some things in a hospital room really are (sink drains). We feel like that room is our home for two weeks, we need to feel safe and clean.

I also want to remind you to bring a notebook to keep track of everything. Lots of things are being thrown at you from a multitude of people. It will help you sort things out. Write down everything! And ask questions. Don't be afraid to speak up if you think you've gotten conflicting information or if you need something you're not getting.

I also bring stationery so I can send letters.

Find out if any of the area restaurant deliver and get their menus.

Find out where there is a family room with internet so you can let us know how you guys are!

 

[NickAmanda1110]

Hello,
I am not sure where you are from. Me and My fiance Nick are from Jacksonville fl. Nick has cf and is 21 years old. It was not until he turned 21 last October that they made him go to St. Vincents. He was going to A childrens hospital here in Jacksonville. They took such good care of him. The only meds he brought were his enzymes all the other medications they have there for you. So usually there is no need to bring them. If she gets hungry alot I would bring lots of snacks. We always broughts tons of goodies because the gift shop closes early in the evening.We always bring ALOT of movies they have dvd players in most of the rooms. Shampoo and conditioner any toiletries that you and her might need. If you are in jax and staying at wolfsons there is a bed in there for you. Well kind of A bed .. lol I would bring a good pillow and a blanket. It gets cold . Anyways I hope it goes well. Your daughter is cute hope its not to bad. Just be happy she is there and not st vincents. Good Luck Amanda & Nick

 

[NickAmanda1110]

Hello,
I am not sure where you are from. Me and My fiance Nick are from Jacksonville fl. Nick has cf and is 21 years old. It was not until he turned 21 last October that they made him go to St. Vincents. He was going to A childrens hospital here in Jacksonville. They took such good care of him. The only meds he brought were his enzymes all the other medications they have there for you. So usually there is no need to bring them. If she gets hungry alot I would bring lots of snacks. We always broughts tons of goodies because the gift shop closes early in the evening.We always bring ALOT of movies they have dvd players in most of the rooms. Shampoo and conditioner any toiletries that you and her might need. If you are in jax and staying at wolfsons there is a bed in there for you. Well kind of A bed .. lol I would bring a good pillow and a blanket. It gets cold . Anyways I hope it goes well. Your daughter is cute hope its not to bad. Just be happy she is there and not st vincents. Good Luck Amanda & Nick

 

[NickAmanda1110]

Hello,
I am not sure where you are from. Me and My fiance Nick are from Jacksonville fl. Nick has cf and is 21 years old. It was not until he turned 21 last October that they made him go to St. Vincents. He was going to A childrens hospital here in Jacksonville. They took such good care of him. The only meds he brought were his enzymes all the other medications they have there for you. So usually there is no need to bring them. If she gets hungry alot I would bring lots of snacks. We always broughts tons of goodies because the gift shop closes early in the evening.We always bring ALOT of movies they have dvd players in most of the rooms. Shampoo and conditioner any toiletries that you and her might need. If you are in jax and staying at wolfsons there is a bed in there for you. Well kind of A bed .. lol I would bring a good pillow and a blanket. It gets cold . Anyways I hope it goes well. Your daughter is cute hope its not to bad. Just be happy she is there and not st vincents. Good Luck Amanda & Nick

 

[NickAmanda1110]

Hello,
I am not sure where you are from. Me and My fiance Nick are from Jacksonville fl. Nick has cf and is 21 years old. It was not until he turned 21 last October that they made him go to St. Vincents. He was going to A childrens hospital here in Jacksonville. They took such good care of him. The only meds he brought were his enzymes all the other medications they have there for you. So usually there is no need to bring them. If she gets hungry alot I would bring lots of snacks. We always broughts tons of goodies because the gift shop closes early in the evening.We always bring ALOT of movies they have dvd players in most of the rooms. Shampoo and conditioner any toiletries that you and her might need. If you are in jax and staying at wolfsons there is a bed in there for you. Well kind of A bed .. lol I would bring a good pillow and a blanket. It gets cold . Anyways I hope it goes well. Your daughter is cute hope its not to bad. Just be happy she is there and not st vincents. Good Luck Amanda & Nick

 

[NickAmanda1110]

Hello,
I am not sure where you are from. Me and My fiance Nick are from Jacksonville fl. Nick has cf and is 21 years old. It was not until he turned 21 last October that they made him go to St. Vincents. He was going to A childrens hospital here in Jacksonville. They took such good care of him. The only meds he brought were his enzymes all the other medications they have there for you. So usually there is no need to bring them. If she gets hungry alot I would bring lots of snacks. We always broughts tons of goodies because the gift shop closes early in the evening.We always bring ALOT of movies they have dvd players in most of the rooms. Shampoo and conditioner any toiletries that you and her might need. If you are in jax and staying at wolfsons there is a bed in there for you. Well kind of A bed .. lol I would bring a good pillow and a blanket. It gets cold . Anyways I hope it goes well. Your daughter is cute hope its not to bad. Just be happy she is there and not st vincents. Good Luck Amanda & Nick

 

[NickAmanda1110]

Hello,
I am not sure where you are from. Me and My fiance Nick are from Jacksonville fl. Nick has cf and is 21 years old. It was not until he turned 21 last October that they made him go to St. Vincents. He was going to A childrens hospital here in Jacksonville. They took such good care of him. The only meds he brought were his enzymes all the other medications they have there for you. So usually there is no need to bring them. If she gets hungry alot I would bring lots of snacks. We always broughts tons of goodies because the gift shop closes early in the evening.We always bring ALOT of movies they have dvd players in most of the rooms. Shampoo and conditioner any toiletries that you and her might need. If you are in jax and staying at wolfsons there is a bed in there for you. Well kind of A bed .. lol I would bring a good pillow and a blanket. It gets cold . Anyways I hope it goes well. Your daughter is cute hope its not to bad. Just be happy she is there and not st vincents. Good Luck Amanda & Nick