theLostMiler
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jrotier</b></i>
... it is that I have no appetite.
... What worried my even more was that my clinic didn't seem to know about this. I stopped it on my own. .
</end quote></div>
I am worried that the g-tube will be ineffective for me b/c my problem was appetite, b/c the myco really affects appetite so after a while off of megace I would just slowly lose appetite over a period of a couple months. Although this last time after exercising while on the megace, my appetite slowed down, but not to anything like I 'normally' get (along w/ the maintaining of the weight better than ever).
I have taken the correct dosage of megace probably around 4 or 5 times. When I was on it for about 2 months, I had a light period for about 4 weeks actually. I looked around on the internent and found out that it is a hormonol steriod or whatever, I am not entirely sure I found solid proof it could make you miss periods, I might have just come to that conclusion.
My doctors also seemed unaware of that effect, then that was when I was told by my ID doctor that most people who use megace were older so periods werent an issue as much.
And to clarify, the reason I was told it isnt best for long term is because I think it thins the bones... I personally dont love the messed up periods so that is why I would go off of it after a month or so when I used it, so I could re-regulate myself.
...but a lot of CF is weighing pros and cons of medications and most of the time if you are underweight you are malnurished and therefore higher risk of osteoporosis along w/ other risks anyways... so its probably more of a personal thing... I take calcium and vitamin D to hopefully counteract any malnurishment or anything from megace.
... it is that I have no appetite.
... What worried my even more was that my clinic didn't seem to know about this. I stopped it on my own. .
</end quote></div>
I am worried that the g-tube will be ineffective for me b/c my problem was appetite, b/c the myco really affects appetite so after a while off of megace I would just slowly lose appetite over a period of a couple months. Although this last time after exercising while on the megace, my appetite slowed down, but not to anything like I 'normally' get (along w/ the maintaining of the weight better than ever).
I have taken the correct dosage of megace probably around 4 or 5 times. When I was on it for about 2 months, I had a light period for about 4 weeks actually. I looked around on the internent and found out that it is a hormonol steriod or whatever, I am not entirely sure I found solid proof it could make you miss periods, I might have just come to that conclusion.
My doctors also seemed unaware of that effect, then that was when I was told by my ID doctor that most people who use megace were older so periods werent an issue as much.
And to clarify, the reason I was told it isnt best for long term is because I think it thins the bones... I personally dont love the messed up periods so that is why I would go off of it after a month or so when I used it, so I could re-regulate myself.
...but a lot of CF is weighing pros and cons of medications and most of the time if you are underweight you are malnurished and therefore higher risk of osteoporosis along w/ other risks anyways... so its probably more of a personal thing... I take calcium and vitamin D to hopefully counteract any malnurishment or anything from megace.