Mild and Rare Cases...where are you?

L

lmattaway

New member
In all honesty, Amy (I hope I'm remembering your name right) I've not read anything specifically on it but I never seem to cough anything up during chest pt. Running (and sometimes the hypertonic) is the only thing that gets me to produce anything (and even that's not frequent). So yes, that statement was totally based on experience alone and I don't believe it can be applied to everyone. Though I'd be curious about any articles as well.

Okay, after a little searching I did find this, though as far as medicine goes it's fairly outdated but still has a valid result. <a target=_blank class=ftalternatingbarlinklarge href="http://adc.bmj.com/cgi/content/abstract/57/8/587">http://adc.bmj.com/cgi/content/abstract/57/8/587</a>
 
L

lmattaway

New member
In all honesty, Amy (I hope I'm remembering your name right) I've not read anything specifically on it but I never seem to cough anything up during chest pt. Running (and sometimes the hypertonic) is the only thing that gets me to produce anything (and even that's not frequent). So yes, that statement was totally based on experience alone and I don't believe it can be applied to everyone. Though I'd be curious about any articles as well.

Okay, after a little searching I did find this, though as far as medicine goes it's fairly outdated but still has a valid result. <a target=_blank class=ftalternatingbarlinklarge href="http://adc.bmj.com/cgi/content/abstract/57/8/587">http://adc.bmj.com/cgi/content/abstract/57/8/587</a>
 
L

lmattaway

New member
Lauren,
Thanks for the post and the two people to look for.. and yes, you nailed it on the sinus rinses- i'm really not as compliant as I should be! Maybe getting on this forum now and again will encourage me to be more accountable <img src="">

Melissa,
I totally understand not taking my health for granted and I am truly thankful for each "good day" CF allows me. But you are right, those of who haven't been there yet can't fully comprehend it and that's hopefully where forums like this can help us prepare better and understand more.
 
L

lmattaway

New member
Lauren,
Thanks for the post and the two people to look for.. and yes, you nailed it on the sinus rinses- i'm really not as compliant as I should be! Maybe getting on this forum now and again will encourage me to be more accountable <img src="">

Melissa,
I totally understand not taking my health for granted and I am truly thankful for each "good day" CF allows me. But you are right, those of who haven't been there yet can't fully comprehend it and that's hopefully where forums like this can help us prepare better and understand more.
 
L

lmattaway

New member
Lauren,
Thanks for the post and the two people to look for.. and yes, you nailed it on the sinus rinses- i'm really not as compliant as I should be! Maybe getting on this forum now and again will encourage me to be more accountable <img src="">

Melissa,
I totally understand not taking my health for granted and I am truly thankful for each "good day" CF allows me. But you are right, those of who haven't been there yet can't fully comprehend it and that's hopefully where forums like this can help us prepare better and understand more.
 
L

lmattaway

New member
Lauren,
Thanks for the post and the two people to look for.. and yes, you nailed it on the sinus rinses- i'm really not as compliant as I should be! Maybe getting on this forum now and again will encourage me to be more accountable <img src="">

Melissa,
I totally understand not taking my health for granted and I am truly thankful for each "good day" CF allows me. But you are right, those of who haven't been there yet can't fully comprehend it and that's hopefully where forums like this can help us prepare better and understand more.
 
L

lmattaway

New member
Lauren,
Thanks for the post and the two people to look for.. and yes, you nailed it on the sinus rinses- i'm really not as compliant as I should be! Maybe getting on this forum now and again will encourage me to be more accountable <img src="">

Melissa,
I totally understand not taking my health for granted and I am truly thankful for each "good day" CF allows me. But you are right, those of who haven't been there yet can't fully comprehend it and that's hopefully where forums like this can help us prepare better and understand more.
 
L

lmattaway

New member
Lauren,
Thanks for the post and the two people to look for.. and yes, you nailed it on the sinus rinses- i'm really not as compliant as I should be! Maybe getting on this forum now and again will encourage me to be more accountable <img src="">

Melissa,
I totally understand not taking my health for granted and I am truly thankful for each "good day" CF allows me. But you are right, those of who haven't been there yet can't fully comprehend it and that's hopefully where forums like this can help us prepare better and understand more.
 
S

SaraBlue

New member
Lindsay, I can respond to your questions from a parent's point of view. My son is only 2 so who knows what his future will be like w/regards to cf, but right now he is PS and his only regular treatment is using the vest daily. I think everyone's issues are a bit different, so I just feel grateful that we don't have to deal w/enzymes or nebs right now. I frequently feel like I'm waiting for the other shoe to drop, though. I take his cf very seriously and we go to the clinic every 3 months and follow everything the Dr. recommends. Some people interpret this as 'not doing enough' and how sick someone w/cf can get very quickly. I just think of them as trying to help.
I hope you continue to do well!
Sara
 
S

SaraBlue

New member
Lindsay, I can respond to your questions from a parent's point of view. My son is only 2 so who knows what his future will be like w/regards to cf, but right now he is PS and his only regular treatment is using the vest daily. I think everyone's issues are a bit different, so I just feel grateful that we don't have to deal w/enzymes or nebs right now. I frequently feel like I'm waiting for the other shoe to drop, though. I take his cf very seriously and we go to the clinic every 3 months and follow everything the Dr. recommends. Some people interpret this as 'not doing enough' and how sick someone w/cf can get very quickly. I just think of them as trying to help.
I hope you continue to do well!
Sara
 
S

SaraBlue

New member
Lindsay, I can respond to your questions from a parent's point of view. My son is only 2 so who knows what his future will be like w/regards to cf, but right now he is PS and his only regular treatment is using the vest daily. I think everyone's issues are a bit different, so I just feel grateful that we don't have to deal w/enzymes or nebs right now. I frequently feel like I'm waiting for the other shoe to drop, though. I take his cf very seriously and we go to the clinic every 3 months and follow everything the Dr. recommends. Some people interpret this as 'not doing enough' and how sick someone w/cf can get very quickly. I just think of them as trying to help.
I hope you continue to do well!
Sara
 
S

SaraBlue

New member
Lindsay, I can respond to your questions from a parent's point of view. My son is only 2 so who knows what his future will be like w/regards to cf, but right now he is PS and his only regular treatment is using the vest daily. I think everyone's issues are a bit different, so I just feel grateful that we don't have to deal w/enzymes or nebs right now. I frequently feel like I'm waiting for the other shoe to drop, though. I take his cf very seriously and we go to the clinic every 3 months and follow everything the Dr. recommends. Some people interpret this as 'not doing enough' and how sick someone w/cf can get very quickly. I just think of them as trying to help.
I hope you continue to do well!
Sara
 
S

SaraBlue

New member
Lindsay, I can respond to your questions from a parent's point of view. My son is only 2 so who knows what his future will be like w/regards to cf, but right now he is PS and his only regular treatment is using the vest daily. I think everyone's issues are a bit different, so I just feel grateful that we don't have to deal w/enzymes or nebs right now. I frequently feel like I'm waiting for the other shoe to drop, though. I take his cf very seriously and we go to the clinic every 3 months and follow everything the Dr. recommends. Some people interpret this as 'not doing enough' and how sick someone w/cf can get very quickly. I just think of them as trying to help.
I hope you continue to do well!
Sara
 
S

SaraBlue

New member
Lindsay, I can respond to your questions from a parent's point of view. My son is only 2 so who knows what his future will be like w/regards to cf, but right now he is PS and his only regular treatment is using the vest daily. I think everyone's issues are a bit different, so I just feel grateful that we don't have to deal w/enzymes or nebs right now. I frequently feel like I'm waiting for the other shoe to drop, though. I take his cf very seriously and we go to the clinic every 3 months and follow everything the Dr. recommends. Some people interpret this as 'not doing enough' and how sick someone w/cf can get very quickly. I just think of them as trying to help.
I hope you continue to do well!
Sara
 
P

point

New member
Hey Lindsay - -
My PFT's are also higher - above 100%. Thankfully, they've been this way my whole life, so far. I come to the site daily but don't post often because I do feel like my opinions, at times, are not as helpful since my CF road has not had a lot of bumps yet.

I also run and found that, personally for me, it also moves more mucus than my percussor. I don't have a vest - insurance reasons. I do HS daily - started last Oct.

I cultured PA after taking a Pathogenic Bacteriology class for my degree in college (had 'clean sputum' prior to that). I've lived w/ PA (one strain mucoid, one not) since then. So far, I've lived w/ PA for eight years w/o need for IV's, antibiotics, or hospitalizations. We're all different (obviously).

Just wanted to post to let you know that at least, strictly speaking from my perspective, there is at least another CF'er that comes here but doesn't post often. Welcome and keep on running! Take Care - Christina
 
P

point

New member
Hey Lindsay - -
My PFT's are also higher - above 100%. Thankfully, they've been this way my whole life, so far. I come to the site daily but don't post often because I do feel like my opinions, at times, are not as helpful since my CF road has not had a lot of bumps yet.

I also run and found that, personally for me, it also moves more mucus than my percussor. I don't have a vest - insurance reasons. I do HS daily - started last Oct.

I cultured PA after taking a Pathogenic Bacteriology class for my degree in college (had 'clean sputum' prior to that). I've lived w/ PA (one strain mucoid, one not) since then. So far, I've lived w/ PA for eight years w/o need for IV's, antibiotics, or hospitalizations. We're all different (obviously).

Just wanted to post to let you know that at least, strictly speaking from my perspective, there is at least another CF'er that comes here but doesn't post often. Welcome and keep on running! Take Care - Christina
 
P

point

New member
Hey Lindsay - -
My PFT's are also higher - above 100%. Thankfully, they've been this way my whole life, so far. I come to the site daily but don't post often because I do feel like my opinions, at times, are not as helpful since my CF road has not had a lot of bumps yet.

I also run and found that, personally for me, it also moves more mucus than my percussor. I don't have a vest - insurance reasons. I do HS daily - started last Oct.

I cultured PA after taking a Pathogenic Bacteriology class for my degree in college (had 'clean sputum' prior to that). I've lived w/ PA (one strain mucoid, one not) since then. So far, I've lived w/ PA for eight years w/o need for IV's, antibiotics, or hospitalizations. We're all different (obviously).

Just wanted to post to let you know that at least, strictly speaking from my perspective, there is at least another CF'er that comes here but doesn't post often. Welcome and keep on running! Take Care - Christina
 
P

point

New member
Hey Lindsay - -
My PFT's are also higher - above 100%. Thankfully, they've been this way my whole life, so far. I come to the site daily but don't post often because I do feel like my opinions, at times, are not as helpful since my CF road has not had a lot of bumps yet.

I also run and found that, personally for me, it also moves more mucus than my percussor. I don't have a vest - insurance reasons. I do HS daily - started last Oct.

I cultured PA after taking a Pathogenic Bacteriology class for my degree in college (had 'clean sputum' prior to that). I've lived w/ PA (one strain mucoid, one not) since then. So far, I've lived w/ PA for eight years w/o need for IV's, antibiotics, or hospitalizations. We're all different (obviously).

Just wanted to post to let you know that at least, strictly speaking from my perspective, there is at least another CF'er that comes here but doesn't post often. Welcome and keep on running! Take Care - Christina
 
P

point

New member
Hey Lindsay - -
My PFT's are also higher - above 100%. Thankfully, they've been this way my whole life, so far. I come to the site daily but don't post often because I do feel like my opinions, at times, are not as helpful since my CF road has not had a lot of bumps yet.

I also run and found that, personally for me, it also moves more mucus than my percussor. I don't have a vest - insurance reasons. I do HS daily - started last Oct.

I cultured PA after taking a Pathogenic Bacteriology class for my degree in college (had 'clean sputum' prior to that). I've lived w/ PA (one strain mucoid, one not) since then. So far, I've lived w/ PA for eight years w/o need for IV's, antibiotics, or hospitalizations. We're all different (obviously).

Just wanted to post to let you know that at least, strictly speaking from my perspective, there is at least another CF'er that comes here but doesn't post often. Welcome and keep on running! Take Care - Christina
 
P

point

New member
Hey Lindsay - -
My PFT's are also higher - above 100%. Thankfully, they've been this way my whole life, so far. I come to the site daily but don't post often because I do feel like my opinions, at times, are not as helpful since my CF road has not had a lot of bumps yet.

I also run and found that, personally for me, it also moves more mucus than my percussor. I don't have a vest - insurance reasons. I do HS daily - started last Oct.

I cultured PA after taking a Pathogenic Bacteriology class for my degree in college (had 'clean sputum' prior to that). I've lived w/ PA (one strain mucoid, one not) since then. So far, I've lived w/ PA for eight years w/o need for IV's, antibiotics, or hospitalizations. We're all different (obviously).

Just wanted to post to let you know that at least, strictly speaking from my perspective, there is at least another CF'er that comes here but doesn't post often. Welcome and keep on running! Take Care - Christina
 
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