I had lots of pain too, this was before my tx
It started in my knees. But after a few years it got to my ankles, wrists, fingers. It hurt very much. My cf specialist thought it might have had to do with the joints reacting to infections somewhere else in the body, so with me it was definately my lungs.
I do think that has been it, cause i haven't had it like since my tx.
I have to say it's not proven.. My doctor said she hears it more and more. That it is most likely cf related and that it is just a thing you can add like maybe other things will come too now CFers are getting older.
It started in my knees. But after a few years it got to my ankles, wrists, fingers. It hurt very much. My cf specialist thought it might have had to do with the joints reacting to infections somewhere else in the body, so with me it was definately my lungs.
I do think that has been it, cause i haven't had it like since my tx.
I have to say it's not proven.. My doctor said she hears it more and more. That it is most likely cf related and that it is just a thing you can add like maybe other things will come too now CFers are getting older.