Jennifer1981
New member
Great Topic!
I refuse to be in the hospital for clean-outs. Refuse!!!!
When I get admitted, I am in a pressurized, private room with isolation. I'm not even permitted to leave my room. In the end, my lungs actually feel worse than they were when I was admitted due to inactivity. At home, I never sit down. I do all my own cleaning, cooking, workouts, everything. In the hospital, I do nothing but sit on my ***. Even while in the hospital, my lungs drop largely after only a few days. I always feel worse. Then when I come home, it is that much harder for me to carry on with my day-to-day activities. And I usually get sick.
This past July I refused to go in the hospital for the clean-out. I did the whole 3 weeks at home. The first few days my husband helped a little, but it was so much better. I never got run down or sick. I even was on my treadmill the whole time and ran the IV's through without any assistance.
At Hershey Medical Center when you are admitted, CF'er are placed in different wings of the hospital based on the bacterias they are culturing. They are each given different nurses, physical therapists, and everything. I have MRSA and PA. I'm actually placed in one on the milder wings, yet I'm still considered contact isolation. It sucks.
I am 100% positive that you have more of a chance picking something up in the hospital or clinic then anywhere else that you can think of. For that reason, I go to clinic every 4 months and more frequently only when sick. I now refuse to be admitted into the hospital whenever possible. I hate it.
So far it's working for me. I do need help at home the first 4 days maybe. But after that, I am fine to carry things on without any assistance. Assistance with cooking and cleaning stuff. Basically, until I start to feel a little bit better and have a pattern.
I refuse to be in the hospital for clean-outs. Refuse!!!!
When I get admitted, I am in a pressurized, private room with isolation. I'm not even permitted to leave my room. In the end, my lungs actually feel worse than they were when I was admitted due to inactivity. At home, I never sit down. I do all my own cleaning, cooking, workouts, everything. In the hospital, I do nothing but sit on my ***. Even while in the hospital, my lungs drop largely after only a few days. I always feel worse. Then when I come home, it is that much harder for me to carry on with my day-to-day activities. And I usually get sick.
This past July I refused to go in the hospital for the clean-out. I did the whole 3 weeks at home. The first few days my husband helped a little, but it was so much better. I never got run down or sick. I even was on my treadmill the whole time and ran the IV's through without any assistance.
At Hershey Medical Center when you are admitted, CF'er are placed in different wings of the hospital based on the bacterias they are culturing. They are each given different nurses, physical therapists, and everything. I have MRSA and PA. I'm actually placed in one on the milder wings, yet I'm still considered contact isolation. It sucks.
I am 100% positive that you have more of a chance picking something up in the hospital or clinic then anywhere else that you can think of. For that reason, I go to clinic every 4 months and more frequently only when sick. I now refuse to be admitted into the hospital whenever possible. I hate it.
So far it's working for me. I do need help at home the first 4 days maybe. But after that, I am fine to carry things on without any assistance. Assistance with cooking and cleaning stuff. Basically, until I start to feel a little bit better and have a pattern.