I'm not to sure what hospitals you guys are being admitted to, but I am at Brigham and Woman's in Boston. Its the adult CF center for Childrens, and I have never once had any issues with getting sicker in the hospital for a cleanout. My doctors are actually trying to push home clean outs on me and I'm refusing them.
In the hospital my med schedules are every 6 hours, I get physical therapy twice a day, and I do a treadmill run every afternoon. No one is allowed into my room without a gown, glove, and mask and there are no people allowed into my room unless they are there for specific purpose. If I have visitors they are required to gown and glove up, and although my wife does stay in hospital with me, she is the only person permitted to not gown and glove up because at this point in our marriage what ever germ she has I've already caught.
Now, for the main point of this is the fact that I strongly disagree with home cleanouts. While I'm at home my insurance company doesnt permit the hospital to come out and draw labs so now I would have to go to a local hospital to have my labs drawn where this people have never even heard of CF wait in a waiting room for 3 hours for my trop and peak labs after tobra and then every other day go for my normal lab work and wait for another hour. I dont get chest pt at home and I dont care what they want to say the vest or acapella does, its no where near as effective as chest pt.
Not to mention the fact that when I'm at home I get no rest because of my med schedule and I have to be up a 1/2 hour before and up to an hour after each med.
The point of the hospital visit is to get me rested, medicated, and healthy so that when I return home I dont have to take my cf with me and can live my life again.
Doctors and even patients who think that its good to be consumed in a disease 24/7 are out of their minds, and it makes me angry to think that because there are other hospitals who arnt as advanced as the one I'm seen in, take studies and reports and their statistics affect my routine of being seen in the hospital.
I understand you guys may be seen in a facility that isnt as advanced or that doesnt have good enough precautions and isolates you off from the world, but that isnt the case for all of us, and it should be just as evenly advocated for our side too.