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possible cure in 10 years
- Thread starter dude
- Start date
T
tammykrumrey
Guest
Now this has me thinking what other people's CF doctors tell them in this regard.
Our daughters CF doctor has told us that a cure may not be as close as they once beleived because the body is just so much more complicated than what they ever imagined. BUT, he does feel that with the developments of better medications we will definately see an increase in the life expectancy of those with CF.
He is very optimistic that we will see things lessen the severity of the disease. I cannot remember exactly what he said was in trial right now that looked promising, but basically it was a medication for maintainance, not a cure, that one would take on a daily basis possibly, that would lessen the severity. He said that it is promising in that it may make a severe case of CF a mild case of CF, and that at this time, it is the best thing he has ever seen come through the pipelines.
Our doctor is very active in research and I feel he is a reliable source. He speaks at conferences all over the country in what research he is doing. He's not just one to be sitting at the office all day and seeing patients. He is very active. (I just wanted to add that in case someone was curious regarding his involvement of CF research, not to say that another doctor may not know what he is talking about)
I am always optimistic, but he has told us not to plan on seeing a cure, although it would be great. But he is very excited about this new 'medication' going into later trials. So far everything in the labs is promising. His exact words were, this is the closest thing we have ever had that could put me out of business<img src="i/expressions/face-icon-small-smile.gif" border="0">. We shall see!
Our daughters CF doctor has told us that a cure may not be as close as they once beleived because the body is just so much more complicated than what they ever imagined. BUT, he does feel that with the developments of better medications we will definately see an increase in the life expectancy of those with CF.
He is very optimistic that we will see things lessen the severity of the disease. I cannot remember exactly what he said was in trial right now that looked promising, but basically it was a medication for maintainance, not a cure, that one would take on a daily basis possibly, that would lessen the severity. He said that it is promising in that it may make a severe case of CF a mild case of CF, and that at this time, it is the best thing he has ever seen come through the pipelines.
Our doctor is very active in research and I feel he is a reliable source. He speaks at conferences all over the country in what research he is doing. He's not just one to be sitting at the office all day and seeing patients. He is very active. (I just wanted to add that in case someone was curious regarding his involvement of CF research, not to say that another doctor may not know what he is talking about)
I am always optimistic, but he has told us not to plan on seeing a cure, although it would be great. But he is very excited about this new 'medication' going into later trials. So far everything in the labs is promising. His exact words were, this is the closest thing we have ever had that could put me out of business<img src="i/expressions/face-icon-small-smile.gif" border="0">. We shall see!
T
tammykrumrey
Guest
Now this has me thinking what other people's CF doctors tell them in this regard.
Our daughters CF doctor has told us that a cure may not be as close as they once beleived because the body is just so much more complicated than what they ever imagined. BUT, he does feel that with the developments of better medications we will definately see an increase in the life expectancy of those with CF.
He is very optimistic that we will see things lessen the severity of the disease. I cannot remember exactly what he said was in trial right now that looked promising, but basically it was a medication for maintainance, not a cure, that one would take on a daily basis possibly, that would lessen the severity. He said that it is promising in that it may make a severe case of CF a mild case of CF, and that at this time, it is the best thing he has ever seen come through the pipelines.
Our doctor is very active in research and I feel he is a reliable source. He speaks at conferences all over the country in what research he is doing. He's not just one to be sitting at the office all day and seeing patients. He is very active. (I just wanted to add that in case someone was curious regarding his involvement of CF research, not to say that another doctor may not know what he is talking about)
I am always optimistic, but he has told us not to plan on seeing a cure, although it would be great. But he is very excited about this new 'medication' going into later trials. So far everything in the labs is promising. His exact words were, this is the closest thing we have ever had that could put me out of business<img src="i/expressions/face-icon-small-smile.gif" border="0">. We shall see!
Our daughters CF doctor has told us that a cure may not be as close as they once beleived because the body is just so much more complicated than what they ever imagined. BUT, he does feel that with the developments of better medications we will definately see an increase in the life expectancy of those with CF.
He is very optimistic that we will see things lessen the severity of the disease. I cannot remember exactly what he said was in trial right now that looked promising, but basically it was a medication for maintainance, not a cure, that one would take on a daily basis possibly, that would lessen the severity. He said that it is promising in that it may make a severe case of CF a mild case of CF, and that at this time, it is the best thing he has ever seen come through the pipelines.
Our doctor is very active in research and I feel he is a reliable source. He speaks at conferences all over the country in what research he is doing. He's not just one to be sitting at the office all day and seeing patients. He is very active. (I just wanted to add that in case someone was curious regarding his involvement of CF research, not to say that another doctor may not know what he is talking about)
I am always optimistic, but he has told us not to plan on seeing a cure, although it would be great. But he is very excited about this new 'medication' going into later trials. So far everything in the labs is promising. His exact words were, this is the closest thing we have ever had that could put me out of business<img src="i/expressions/face-icon-small-smile.gif" border="0">. We shall see!
T
tammykrumrey
Guest
Now this has me thinking what other people's CF doctors tell them in this regard.
Our daughters CF doctor has told us that a cure may not be as close as they once beleived because the body is just so much more complicated than what they ever imagined. BUT, he does feel that with the developments of better medications we will definately see an increase in the life expectancy of those with CF.
He is very optimistic that we will see things lessen the severity of the disease. I cannot remember exactly what he said was in trial right now that looked promising, but basically it was a medication for maintainance, not a cure, that one would take on a daily basis possibly, that would lessen the severity. He said that it is promising in that it may make a severe case of CF a mild case of CF, and that at this time, it is the best thing he has ever seen come through the pipelines.
Our doctor is very active in research and I feel he is a reliable source. He speaks at conferences all over the country in what research he is doing. He's not just one to be sitting at the office all day and seeing patients. He is very active. (I just wanted to add that in case someone was curious regarding his involvement of CF research, not to say that another doctor may not know what he is talking about)
I am always optimistic, but he has told us not to plan on seeing a cure, although it would be great. But he is very excited about this new 'medication' going into later trials. So far everything in the labs is promising. His exact words were, this is the closest thing we have ever had that could put me out of business<img src="i/expressions/face-icon-small-smile.gif" border="0">. We shall see!
Our daughters CF doctor has told us that a cure may not be as close as they once beleived because the body is just so much more complicated than what they ever imagined. BUT, he does feel that with the developments of better medications we will definately see an increase in the life expectancy of those with CF.
He is very optimistic that we will see things lessen the severity of the disease. I cannot remember exactly what he said was in trial right now that looked promising, but basically it was a medication for maintainance, not a cure, that one would take on a daily basis possibly, that would lessen the severity. He said that it is promising in that it may make a severe case of CF a mild case of CF, and that at this time, it is the best thing he has ever seen come through the pipelines.
Our doctor is very active in research and I feel he is a reliable source. He speaks at conferences all over the country in what research he is doing. He's not just one to be sitting at the office all day and seeing patients. He is very active. (I just wanted to add that in case someone was curious regarding his involvement of CF research, not to say that another doctor may not know what he is talking about)
I am always optimistic, but he has told us not to plan on seeing a cure, although it would be great. But he is very excited about this new 'medication' going into later trials. So far everything in the labs is promising. His exact words were, this is the closest thing we have ever had that could put me out of business<img src="i/expressions/face-icon-small-smile.gif" border="0">. We shall see!
T
tammykrumrey
Guest
Liza,
I wish I could tell when someone is being sarcasitic on here<img src="i/expressions/face-icon-small-smile.gif" border="0"> I was started to wonder why I hadn't been told that there was a cure so close that we could touch it<img src="i/expressions/face-icon-small-smile.gif" border="0"> Now I do remember when my nephew was born over 15 years ago, we were told by his doctor (not same one he has now) that we should see a cure in about 10 years. Well that's been here and gone<img src="i/expressions/face-icon-small-smile.gif" border="0">
I wish I could tell when someone is being sarcasitic on here<img src="i/expressions/face-icon-small-smile.gif" border="0"> I was started to wonder why I hadn't been told that there was a cure so close that we could touch it<img src="i/expressions/face-icon-small-smile.gif" border="0"> Now I do remember when my nephew was born over 15 years ago, we were told by his doctor (not same one he has now) that we should see a cure in about 10 years. Well that's been here and gone<img src="i/expressions/face-icon-small-smile.gif" border="0">
T
tammykrumrey
Guest
Liza,
I wish I could tell when someone is being sarcasitic on here<img src="i/expressions/face-icon-small-smile.gif" border="0"> I was started to wonder why I hadn't been told that there was a cure so close that we could touch it<img src="i/expressions/face-icon-small-smile.gif" border="0"> Now I do remember when my nephew was born over 15 years ago, we were told by his doctor (not same one he has now) that we should see a cure in about 10 years. Well that's been here and gone<img src="i/expressions/face-icon-small-smile.gif" border="0">
I wish I could tell when someone is being sarcasitic on here<img src="i/expressions/face-icon-small-smile.gif" border="0"> I was started to wonder why I hadn't been told that there was a cure so close that we could touch it<img src="i/expressions/face-icon-small-smile.gif" border="0"> Now I do remember when my nephew was born over 15 years ago, we were told by his doctor (not same one he has now) that we should see a cure in about 10 years. Well that's been here and gone<img src="i/expressions/face-icon-small-smile.gif" border="0">
T
tammykrumrey
Guest
Liza,
I wish I could tell when someone is being sarcasitic on here<img src="i/expressions/face-icon-small-smile.gif" border="0"> I was started to wonder why I hadn't been told that there was a cure so close that we could touch it<img src="i/expressions/face-icon-small-smile.gif" border="0"> Now I do remember when my nephew was born over 15 years ago, we were told by his doctor (not same one he has now) that we should see a cure in about 10 years. Well that's been here and gone<img src="i/expressions/face-icon-small-smile.gif" border="0">
I wish I could tell when someone is being sarcasitic on here<img src="i/expressions/face-icon-small-smile.gif" border="0"> I was started to wonder why I hadn't been told that there was a cure so close that we could touch it<img src="i/expressions/face-icon-small-smile.gif" border="0"> Now I do remember when my nephew was born over 15 years ago, we were told by his doctor (not same one he has now) that we should see a cure in about 10 years. Well that's been here and gone<img src="i/expressions/face-icon-small-smile.gif" border="0">
CFHockeyMom
New member
This has been discussed/debated before and like everything else has many varying opinions.
I personally am not holding my breath for a cure. Our Dr. doesn't see an all out "cure" in the next 25 years. I know there are some amazing drugs being developed right now to improve protein rescue and ion transport but those drugs won't benefit all CFers and aren't a "cure". Some mutation types will be better off than others.
The CF gene was discovered in 1989 and people began talking about a cure. Sean was diagnosed 10 years ago (1996) and people were still talking about a cure. Here it is 2006 and we're <b>still</b> talking.
Fact is that now matter how quickly research is being done and drugs are coming to the market, 17 years is a very long time in the life of a CFer.
I personally am not holding my breath for a cure. Our Dr. doesn't see an all out "cure" in the next 25 years. I know there are some amazing drugs being developed right now to improve protein rescue and ion transport but those drugs won't benefit all CFers and aren't a "cure". Some mutation types will be better off than others.
The CF gene was discovered in 1989 and people began talking about a cure. Sean was diagnosed 10 years ago (1996) and people were still talking about a cure. Here it is 2006 and we're <b>still</b> talking.
Fact is that now matter how quickly research is being done and drugs are coming to the market, 17 years is a very long time in the life of a CFer.
CFHockeyMom
New member
This has been discussed/debated before and like everything else has many varying opinions.
I personally am not holding my breath for a cure. Our Dr. doesn't see an all out "cure" in the next 25 years. I know there are some amazing drugs being developed right now to improve protein rescue and ion transport but those drugs won't benefit all CFers and aren't a "cure". Some mutation types will be better off than others.
The CF gene was discovered in 1989 and people began talking about a cure. Sean was diagnosed 10 years ago (1996) and people were still talking about a cure. Here it is 2006 and we're <b>still</b> talking.
Fact is that now matter how quickly research is being done and drugs are coming to the market, 17 years is a very long time in the life of a CFer.
I personally am not holding my breath for a cure. Our Dr. doesn't see an all out "cure" in the next 25 years. I know there are some amazing drugs being developed right now to improve protein rescue and ion transport but those drugs won't benefit all CFers and aren't a "cure". Some mutation types will be better off than others.
The CF gene was discovered in 1989 and people began talking about a cure. Sean was diagnosed 10 years ago (1996) and people were still talking about a cure. Here it is 2006 and we're <b>still</b> talking.
Fact is that now matter how quickly research is being done and drugs are coming to the market, 17 years is a very long time in the life of a CFer.
CFHockeyMom
New member
This has been discussed/debated before and like everything else has many varying opinions.
I personally am not holding my breath for a cure. Our Dr. doesn't see an all out "cure" in the next 25 years. I know there are some amazing drugs being developed right now to improve protein rescue and ion transport but those drugs won't benefit all CFers and aren't a "cure". Some mutation types will be better off than others.
The CF gene was discovered in 1989 and people began talking about a cure. Sean was diagnosed 10 years ago (1996) and people were still talking about a cure. Here it is 2006 and we're <b>still</b> talking.
Fact is that now matter how quickly research is being done and drugs are coming to the market, 17 years is a very long time in the life of a CFer.
I personally am not holding my breath for a cure. Our Dr. doesn't see an all out "cure" in the next 25 years. I know there are some amazing drugs being developed right now to improve protein rescue and ion transport but those drugs won't benefit all CFers and aren't a "cure". Some mutation types will be better off than others.
The CF gene was discovered in 1989 and people began talking about a cure. Sean was diagnosed 10 years ago (1996) and people were still talking about a cure. Here it is 2006 and we're <b>still</b> talking.
Fact is that now matter how quickly research is being done and drugs are coming to the market, 17 years is a very long time in the life of a CFer.
coltsfan715
New member
I agree with Claudette - 17 yrs is VERY long time in the life of a CFer. I remember being told 17 years ago that there would be a cure in 10 years because they all thought the hard part had been done. They had found the gene and that was ALL they needed to make finding a cure possible. It has definitely turned out to be much harder than they thought.
As for a "cure" that halts lung damage and prevents any further decline in lung function due to CF. That would be great ... for people with good lung function - for me that would be good but it would still suck unless I am able to bring my lung function up some.
Who knows. I am always hopeful that there will be a cure, but doubtful that it will occur any time soon ... and 10 years is soon to me. Who knows though - hopefully I will be proved wrong.
Lindsey
As for a "cure" that halts lung damage and prevents any further decline in lung function due to CF. That would be great ... for people with good lung function - for me that would be good but it would still suck unless I am able to bring my lung function up some.
Who knows. I am always hopeful that there will be a cure, but doubtful that it will occur any time soon ... and 10 years is soon to me. Who knows though - hopefully I will be proved wrong.
Lindsey
coltsfan715
New member
I agree with Claudette - 17 yrs is VERY long time in the life of a CFer. I remember being told 17 years ago that there would be a cure in 10 years because they all thought the hard part had been done. They had found the gene and that was ALL they needed to make finding a cure possible. It has definitely turned out to be much harder than they thought.
As for a "cure" that halts lung damage and prevents any further decline in lung function due to CF. That would be great ... for people with good lung function - for me that would be good but it would still suck unless I am able to bring my lung function up some.
Who knows. I am always hopeful that there will be a cure, but doubtful that it will occur any time soon ... and 10 years is soon to me. Who knows though - hopefully I will be proved wrong.
Lindsey
As for a "cure" that halts lung damage and prevents any further decline in lung function due to CF. That would be great ... for people with good lung function - for me that would be good but it would still suck unless I am able to bring my lung function up some.
Who knows. I am always hopeful that there will be a cure, but doubtful that it will occur any time soon ... and 10 years is soon to me. Who knows though - hopefully I will be proved wrong.
Lindsey