Pulmozyme &/or Hypertonic Saline at 6months

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mom2mason

Guest
Our doctor started Mason on HTS as a preventative at about 5 1/2 months as he was showing symptoms of lung involvement. Mainly congestion in the mornings and a dry cough every now and then throughout the day, he also had started to get a runny nose. Since being on it, about 5 weeks now, we have already seen an improvement. He rarely is congested in the mornings, and his daily cough has really decreased if not disappeared. Doc wanted us to do twice a day (along w/ albuterol & CPT), but he threw such a fit w/ the nebulizer the first time that she agreed we only do once a day until he can tolerate and work up to 2 times. Some days he does really well, but lately the neb has been taking up to 15 minutes to complete, whereas the first couple weeks it was about 5-7 minutes to finish 4mL.

Good Luck!
 
M

mom2mason

Guest
Our doctor started Mason on HTS as a preventative at about 5 1/2 months as he was showing symptoms of lung involvement. Mainly congestion in the mornings and a dry cough every now and then throughout the day, he also had started to get a runny nose. Since being on it, about 5 weeks now, we have already seen an improvement. He rarely is congested in the mornings, and his daily cough has really decreased if not disappeared. Doc wanted us to do twice a day (along w/ albuterol & CPT), but he threw such a fit w/ the nebulizer the first time that she agreed we only do once a day until he can tolerate and work up to 2 times. Some days he does really well, but lately the neb has been taking up to 15 minutes to complete, whereas the first couple weeks it was about 5-7 minutes to finish 4mL.

Good Luck!
 
M

mom2mason

Guest
Our doctor started Mason on HTS as a preventative at about 5 1/2 months as he was showing symptoms of lung involvement. Mainly congestion in the mornings and a dry cough every now and then throughout the day, he also had started to get a runny nose. Since being on it, about 5 weeks now, we have already seen an improvement. He rarely is congested in the mornings, and his daily cough has really decreased if not disappeared. Doc wanted us to do twice a day (along w/ albuterol & CPT), but he threw such a fit w/ the nebulizer the first time that she agreed we only do once a day until he can tolerate and work up to 2 times. Some days he does really well, but lately the neb has been taking up to 15 minutes to complete, whereas the first couple weeks it was about 5-7 minutes to finish 4mL.
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<br />Good Luck!
 
I

imagine04

New member
Our son started Pulmozyme when he was 2 months old. It was a preventative treatment and still is. He just turned 1 (today in fact) and has never been sick (other than teething issues). Our clinic will hold off on HTS until he is 2 IF they can. If not they'll start him sooner but would like to wait till he's vesting.

I agree with a PP about making sure to get the correct information about how to PROPERLY sterilize your nebs. It really does make a world of difference as bugs can grow rather quickly and end up where we don't want them!
 
I

imagine04

New member
Our son started Pulmozyme when he was 2 months old. It was a preventative treatment and still is. He just turned 1 (today in fact) and has never been sick (other than teething issues). Our clinic will hold off on HTS until he is 2 IF they can. If not they'll start him sooner but would like to wait till he's vesting.

I agree with a PP about making sure to get the correct information about how to PROPERLY sterilize your nebs. It really does make a world of difference as bugs can grow rather quickly and end up where we don't want them!
 
I

imagine04

New member
Our son started Pulmozyme when he was 2 months old. It was a preventative treatment and still is. He just turned 1 (today in fact) and has never been sick (other than teething issues). Our clinic will hold off on HTS until he is 2 IF they can. If not they'll start him sooner but would like to wait till he's vesting.
<br />
<br />I agree with a PP about making sure to get the correct information about how to PROPERLY sterilize your nebs. It really does make a world of difference as bugs can grow rather quickly and end up where we don't want them!
 
Y

ymikhale

New member
My dd of almost 4 is on neither. Her dr maintains that there is a risk/benefit to every med and she judges that at this point there is more risk than benefit. HTS could be irritating to the airways of little ones and there is also a risk of contmination from the equipment.
 
Y

ymikhale

New member
My dd of almost 4 is on neither. Her dr maintains that there is a risk/benefit to every med and she judges that at this point there is more risk than benefit. HTS could be irritating to the airways of little ones and there is also a risk of contmination from the equipment.
 
Y

ymikhale

New member
My dd of almost 4 is on neither. Her dr maintains that there is a risk/benefit to every med and she judges that at this point there is more risk than benefit. HTS could be irritating to the airways of little ones and there is also a risk of contmination from the equipment.
 
M

Mommafirst

Guest
My daughter started pulmozyme at 2 and hasn't started HTS yet. Every clinic has a different protocol for when to start and when a child is ready. They are both really good preventative treatments, so don't discount them. On one hand there isn't a ton of data on their use at early ages, but on the other hand, it will be a LOT easier introducing them and 6 months and having it be a regular, normal part of your child's life than to try and introduce them later when the child starts showing lung issues or when they hit 5 or 6. Its really a hard decision, and there will be lots of those along the way. Its really difficult to add a treatment to a seemingly healthy kiddo, but then again, its really impossible to know when lung issues set in before it may be too late to save lung function. CF is a tricky thing.
 
M

Mommafirst

Guest
My daughter started pulmozyme at 2 and hasn't started HTS yet. Every clinic has a different protocol for when to start and when a child is ready. They are both really good preventative treatments, so don't discount them. On one hand there isn't a ton of data on their use at early ages, but on the other hand, it will be a LOT easier introducing them and 6 months and having it be a regular, normal part of your child's life than to try and introduce them later when the child starts showing lung issues or when they hit 5 or 6. Its really a hard decision, and there will be lots of those along the way. Its really difficult to add a treatment to a seemingly healthy kiddo, but then again, its really impossible to know when lung issues set in before it may be too late to save lung function. CF is a tricky thing.
 
M

Mommafirst

Guest
My daughter started pulmozyme at 2 and hasn't started HTS yet. Every clinic has a different protocol for when to start and when a child is ready. They are both really good preventative treatments, so don't discount them. On one hand there isn't a ton of data on their use at early ages, but on the other hand, it will be a LOT easier introducing them and 6 months and having it be a regular, normal part of your child's life than to try and introduce them later when the child starts showing lung issues or when they hit 5 or 6. Its really a hard decision, and there will be lots of those along the way. Its really difficult to add a treatment to a seemingly healthy kiddo, but then again, its really impossible to know when lung issues set in before it may be too late to save lung function. CF is a tricky thing.
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A

annasdad

New member
Our doctor reports that HTS is great for helping clear mucus but can paralyze bronchial cillia, so until there is a clear need for it he doesn't want our child on it. He also didn't want her on Pulmozyme, but we overrode him on this and she's been on it since about 1-year. Anna's never had any kind of symptoms so we haven't challenged him on the Hypertonic Saline.
 
A

annasdad

New member
Our doctor reports that HTS is great for helping clear mucus but can paralyze bronchial cillia, so until there is a clear need for it he doesn't want our child on it. He also didn't want her on Pulmozyme, but we overrode him on this and she's been on it since about 1-year. Anna's never had any kind of symptoms so we haven't challenged him on the Hypertonic Saline.
 
K

kitomd21

New member
The reason why Pulmozyme and HTS aren't labelled for use on children under five is because children that age cannot follow the guidelines (or, rules, if you will) for lung function testing. They don't comprehend to "breathe this way or that way". The age limitation isn't necessarily related to lack of efficacy in relation to age. Ellie has been on Pulmozyme since 8 mos (after changing CF clinics). Her lung radiographs showed improvement after starting Pulmozyme. She's also on 3% HTS due to my persistence with the doctor...all preventative good stuff!!
 
K

kitomd21

New member
The reason why Pulmozyme and HTS aren't labelled for use on children under five is because children that age cannot follow the guidelines (or, rules, if you will) for lung function testing. They don't comprehend to "breathe this way or that way". The age limitation isn't necessarily related to lack of efficacy in relation to age. Ellie has been on Pulmozyme since 8 mos (after changing CF clinics). Her lung radiographs showed improvement after starting Pulmozyme. She's also on 3% HTS due to my persistence with the doctor...all preventative good stuff!!
 
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