In our situation, we have found pulmazyme not to really have any effect one way or the other so far. My daughter has been on it about 5 months and perhaps it's too early to see results. Her PFT is at remain about 97-99. She has not experienced any mucous or coughing. I just read an article on a study about air trapping in mild cases of CF and it sounds like Pulmazyme does help even in mild cases or high PFT numbers. For what it's worth, here is the site. <a target=_blank class=ftalternatingbarlinklarge href="http://www.chestjournal.org/cgi/reprint/128/4/2327.pdf">http://www.chestjournal.org/cgi/reprint/128/4/2327.pdf</a>
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Pulmozyme or not?
- Thread starter 3gr8kids
- Start date
In our situation, we have found pulmazyme not to really have any effect one way or the other so far. My daughter has been on it about 5 months and perhaps it's too early to see results. Her PFT is at remain about 97-99. She has not experienced any mucous or coughing. I just read an article on a study about air trapping in mild cases of CF and it sounds like Pulmazyme does help even in mild cases or high PFT numbers. For what it's worth, here is the site. <a target=_blank class=ftalternatingbarlinklarge href="http://www.chestjournal.org/cgi/reprint/128/4/2327.pdf">http://www.chestjournal.org/cgi/reprint/128/4/2327.pdf</a>
In our situation, we have found pulmazyme not to really have any effect one way or the other so far. My daughter has been on it about 5 months and perhaps it's too early to see results. Her PFT is at remain about 97-99. She has not experienced any mucous or coughing. I just read an article on a study about air trapping in mild cases of CF and it sounds like Pulmazyme does help even in mild cases or high PFT numbers. For what it's worth, here is the site. <a target=_blank class=ftalternatingbarlinklarge href="http://www.chestjournal.org/cgi/reprint/128/4/2327.pdf">http://www.chestjournal.org/cgi/reprint/128/4/2327.pdf</a>
In our situation, we have found pulmazyme not to really have any effect one way or the other so far. My daughter has been on it about 5 months and perhaps it's too early to see results. Her PFT is at remain about 97-99. She has not experienced any mucous or coughing. I just read an article on a study about air trapping in mild cases of CF and it sounds like Pulmazyme does help even in mild cases or high PFT numbers. For what it's worth, here is the site. <a target=_blank class=ftalternatingbarlinklarge href="http://www.chestjournal.org/cgi/reprint/128/4/2327.pdf">http://www.chestjournal.org/cgi/reprint/128/4/2327.pdf</a>
In our situation, we have found pulmazyme not to really have any effect one way or the other so far. My daughter has been on it about 5 months and perhaps it's too early to see results. Her PFT is at remain about 97-99. She has not experienced any mucous or coughing. I just read an article on a study about air trapping in mild cases of CF and it sounds like Pulmazyme does help even in mild cases or high PFT numbers. For what it's worth, here is the site. <a target=_blank class=ftalternatingbarlinklarge href="http://www.chestjournal.org/cgi/reprint/128/4/2327.pdf">http://www.chestjournal.org/cgi/reprint/128/4/2327.pdf</a>
not everyone has excessive mucus, or even excess mucus in their lungs just bc they have CF.
i didnt have any until i was put on advair when i was 18. i was put on advair bc my doc was convinced i had asthma not cf like i was diagnosed with 18 yrs earlier. of course this was a new doc i was seeing . I even had allergy problems before I had lung problems.
My doc put me on ventolin at 13 bc he knew i would have to start it eventually and it was better to get in the habit of doing it before i became a teenager.
Even today I dont have much lung problems. My last hospital stay and even the last cold I had was January 2007.
My issues are more my sinuses.
SO... i have to disagree with you that everyone with cf has issues in their lungs all the time. eventually i think we all do. i agree there
i didnt have any until i was put on advair when i was 18. i was put on advair bc my doc was convinced i had asthma not cf like i was diagnosed with 18 yrs earlier. of course this was a new doc i was seeing . I even had allergy problems before I had lung problems.
My doc put me on ventolin at 13 bc he knew i would have to start it eventually and it was better to get in the habit of doing it before i became a teenager.
Even today I dont have much lung problems. My last hospital stay and even the last cold I had was January 2007.
My issues are more my sinuses.
SO... i have to disagree with you that everyone with cf has issues in their lungs all the time. eventually i think we all do. i agree there
not everyone has excessive mucus, or even excess mucus in their lungs just bc they have CF.
i didnt have any until i was put on advair when i was 18. i was put on advair bc my doc was convinced i had asthma not cf like i was diagnosed with 18 yrs earlier. of course this was a new doc i was seeing . I even had allergy problems before I had lung problems.
My doc put me on ventolin at 13 bc he knew i would have to start it eventually and it was better to get in the habit of doing it before i became a teenager.
Even today I dont have much lung problems. My last hospital stay and even the last cold I had was January 2007.
My issues are more my sinuses.
SO... i have to disagree with you that everyone with cf has issues in their lungs all the time. eventually i think we all do. i agree there
i didnt have any until i was put on advair when i was 18. i was put on advair bc my doc was convinced i had asthma not cf like i was diagnosed with 18 yrs earlier. of course this was a new doc i was seeing . I even had allergy problems before I had lung problems.
My doc put me on ventolin at 13 bc he knew i would have to start it eventually and it was better to get in the habit of doing it before i became a teenager.
Even today I dont have much lung problems. My last hospital stay and even the last cold I had was January 2007.
My issues are more my sinuses.
SO... i have to disagree with you that everyone with cf has issues in their lungs all the time. eventually i think we all do. i agree there
not everyone has excessive mucus, or even excess mucus in their lungs just bc they have CF.
i didnt have any until i was put on advair when i was 18. i was put on advair bc my doc was convinced i had asthma not cf like i was diagnosed with 18 yrs earlier. of course this was a new doc i was seeing . I even had allergy problems before I had lung problems.
My doc put me on ventolin at 13 bc he knew i would have to start it eventually and it was better to get in the habit of doing it before i became a teenager.
Even today I dont have much lung problems. My last hospital stay and even the last cold I had was January 2007.
My issues are more my sinuses.
SO... i have to disagree with you that everyone with cf has issues in their lungs all the time. eventually i think we all do. i agree there
i didnt have any until i was put on advair when i was 18. i was put on advair bc my doc was convinced i had asthma not cf like i was diagnosed with 18 yrs earlier. of course this was a new doc i was seeing . I even had allergy problems before I had lung problems.
My doc put me on ventolin at 13 bc he knew i would have to start it eventually and it was better to get in the habit of doing it before i became a teenager.
Even today I dont have much lung problems. My last hospital stay and even the last cold I had was January 2007.
My issues are more my sinuses.
SO... i have to disagree with you that everyone with cf has issues in their lungs all the time. eventually i think we all do. i agree there
not everyone has excessive mucus, or even excess mucus in their lungs just bc they have CF.
i didnt have any until i was put on advair when i was 18. i was put on advair bc my doc was convinced i had asthma not cf like i was diagnosed with 18 yrs earlier. of course this was a new doc i was seeing . I even had allergy problems before I had lung problems.
My doc put me on ventolin at 13 bc he knew i would have to start it eventually and it was better to get in the habit of doing it before i became a teenager.
Even today I dont have much lung problems. My last hospital stay and even the last cold I had was January 2007.
My issues are more my sinuses.
SO... i have to disagree with you that everyone with cf has issues in their lungs all the time. eventually i think we all do. i agree there
i didnt have any until i was put on advair when i was 18. i was put on advair bc my doc was convinced i had asthma not cf like i was diagnosed with 18 yrs earlier. of course this was a new doc i was seeing . I even had allergy problems before I had lung problems.
My doc put me on ventolin at 13 bc he knew i would have to start it eventually and it was better to get in the habit of doing it before i became a teenager.
Even today I dont have much lung problems. My last hospital stay and even the last cold I had was January 2007.
My issues are more my sinuses.
SO... i have to disagree with you that everyone with cf has issues in their lungs all the time. eventually i think we all do. i agree there
not everyone has excessive mucus, or even excess mucus in their lungs just bc they have CF.
<br />i didnt have any until i was put on advair when i was 18. i was put on advair bc my doc was convinced i had asthma not cf like i was diagnosed with 18 yrs earlier. of course this was a new doc i was seeing . I even had allergy problems before I had lung problems.
<br />
<br />My doc put me on ventolin at 13 bc he knew i would have to start it eventually and it was better to get in the habit of doing it before i became a teenager.
<br />
<br />Even today I dont have much lung problems. My last hospital stay and even the last cold I had was January 2007.
<br />My issues are more my sinuses.
<br />
<br />SO... i have to disagree with you that everyone with cf has issues in their lungs all the time. eventually i think we all do. i agree there
<br />i didnt have any until i was put on advair when i was 18. i was put on advair bc my doc was convinced i had asthma not cf like i was diagnosed with 18 yrs earlier. of course this was a new doc i was seeing . I even had allergy problems before I had lung problems.
<br />
<br />My doc put me on ventolin at 13 bc he knew i would have to start it eventually and it was better to get in the habit of doing it before i became a teenager.
<br />
<br />Even today I dont have much lung problems. My last hospital stay and even the last cold I had was January 2007.
<br />My issues are more my sinuses.
<br />
<br />SO... i have to disagree with you that everyone with cf has issues in their lungs all the time. eventually i think we all do. i agree there