repeated cold replies to cf posts-why?

[CFHockeyMom]

Well, I truly believe there is a lot of support here. I've found it and so have many others. Sure, sometimes I'm rubbed the wrong way by someone's post but I think you need to be objective and see if there's valuable information in there. If there isn't then just move on.

Also, people tend to confuse support with advice. If you want support then ask for support (you'll definitely get it here) but if you want advice then you'd better be prepared for the whole gambit of responses and some you may find offensive.

I disagree with your statement that your response is in parallel with the quote from Maya Angelou. You have singled someone out and criticized them.

 

[CFHockeyMom]

Well, I truly believe there is a lot of support here. I've found it and so have many others. Sure, sometimes I'm rubbed the wrong way by someone's post but I think you need to be objective and see if there's valuable information in there. If there isn't then just move on.

Also, people tend to confuse support with advice. If you want support then ask for support (you'll definitely get it here) but if you want advice then you'd better be prepared for the whole gambit of responses and some you may find offensive.

I disagree with your statement that your response is in parallel with the quote from Maya Angelou. You have singled someone out and criticized them.

 

[CFHockeyMom]

Well, I truly believe there is a lot of support here. I've found it and so have many others. Sure, sometimes I'm rubbed the wrong way by someone's post but I think you need to be objective and see if there's valuable information in there. If there isn't then just move on.

Also, people tend to confuse support with advice. If you want support then ask for support (you'll definitely get it here) but if you want advice then you'd better be prepared for the whole gambit of responses and some you may find offensive.

I disagree with your statement that your response is in parallel with the quote from Maya Angelou. You have singled someone out and criticized them.

 

[CFHockeyMom]

Well, I truly believe there is a lot of support here. I've found it and so have many others. Sure, sometimes I'm rubbed the wrong way by someone's post but I think you need to be objective and see if there's valuable information in there. If there isn't then just move on.

Also, people tend to confuse support with advice. If you want support then ask for support (you'll definitely get it here) but if you want advice then you'd better be prepared for the whole gambit of responses and some you may find offensive.

I disagree with your statement that your response is in parallel with the quote from Maya Angelou. You have singled someone out and criticized them.

 

[MCGrad2006]

I also have to agree that this post seems to be very uncalled for...we have had this debate so many times...why keep repeating it? And also, like CFhockeymom said, just because this person has a high FEV1 does NOT mean that he or she is not affected by CF. I think we need to take the good with the bad and just deal with these things. Yes we are here as a support to others, in hopes of maybe helping others who are going through some of the same things or just getting support for ourselves. You dont have to like everyone and agree with what everypone thinks. Each person is here on this site for a reason and we all need to accept that.

I dont know your personal situation and I dont know what happened to make you feel this way, but maybe this could have been posted in a blog. I find the blog to be very comforting, I can write what I feel like writing and if ppl dont like it or I dont like what ppl have to say to me, then I can erase the comments. There is also the 'blocking' aspect of this site, where you can block a person and then you dont have to read any of that persons comments.

 

[MCGrad2006]

I also have to agree that this post seems to be very uncalled for...we have had this debate so many times...why keep repeating it? And also, like CFhockeymom said, just because this person has a high FEV1 does NOT mean that he or she is not affected by CF. I think we need to take the good with the bad and just deal with these things. Yes we are here as a support to others, in hopes of maybe helping others who are going through some of the same things or just getting support for ourselves. You dont have to like everyone and agree with what everypone thinks. Each person is here on this site for a reason and we all need to accept that.

I dont know your personal situation and I dont know what happened to make you feel this way, but maybe this could have been posted in a blog. I find the blog to be very comforting, I can write what I feel like writing and if ppl dont like it or I dont like what ppl have to say to me, then I can erase the comments. There is also the 'blocking' aspect of this site, where you can block a person and then you dont have to read any of that persons comments.

 

[MCGrad2006]

I also have to agree that this post seems to be very uncalled for...we have had this debate so many times...why keep repeating it? And also, like CFhockeymom said, just because this person has a high FEV1 does NOT mean that he or she is not affected by CF. I think we need to take the good with the bad and just deal with these things. Yes we are here as a support to others, in hopes of maybe helping others who are going through some of the same things or just getting support for ourselves. You dont have to like everyone and agree with what everypone thinks. Each person is here on this site for a reason and we all need to accept that.

I dont know your personal situation and I dont know what happened to make you feel this way, but maybe this could have been posted in a blog. I find the blog to be very comforting, I can write what I feel like writing and if ppl dont like it or I dont like what ppl have to say to me, then I can erase the comments. There is also the 'blocking' aspect of this site, where you can block a person and then you dont have to read any of that persons comments.

 

[MCGrad2006]

I also have to agree that this post seems to be very uncalled for...we have had this debate so many times...why keep repeating it? And also, like CFhockeymom said, just because this person has a high FEV1 does NOT mean that he or she is not affected by CF. I think we need to take the good with the bad and just deal with these things. Yes we are here as a support to others, in hopes of maybe helping others who are going through some of the same things or just getting support for ourselves. You dont have to like everyone and agree with what everypone thinks. Each person is here on this site for a reason and we all need to accept that.

I dont know your personal situation and I dont know what happened to make you feel this way, but maybe this could have been posted in a blog. I find the blog to be very comforting, I can write what I feel like writing and if ppl dont like it or I dont like what ppl have to say to me, then I can erase the comments. There is also the 'blocking' aspect of this site, where you can block a person and then you dont have to read any of that persons comments.

 

[MCGrad2006]

I also have to agree that this post seems to be very uncalled for...we have had this debate so many times...why keep repeating it? And also, like CFhockeymom said, just because this person has a high FEV1 does NOT mean that he or she is not affected by CF. I think we need to take the good with the bad and just deal with these things. Yes we are here as a support to others, in hopes of maybe helping others who are going through some of the same things or just getting support for ourselves. You dont have to like everyone and agree with what everypone thinks. Each person is here on this site for a reason and we all need to accept that.

I dont know your personal situation and I dont know what happened to make you feel this way, but maybe this could have been posted in a blog. I find the blog to be very comforting, I can write what I feel like writing and if ppl dont like it or I dont like what ppl have to say to me, then I can erase the comments. There is also the 'blocking' aspect of this site, where you can block a person and then you dont have to read any of that persons comments.

 

[MCGrad2006]

I also have to agree that this post seems to be very uncalled for...we have had this debate so many times...why keep repeating it? And also, like CFhockeymom said, just because this person has a high FEV1 does NOT mean that he or she is not affected by CF. I think we need to take the good with the bad and just deal with these things. Yes we are here as a support to others, in hopes of maybe helping others who are going through some of the same things or just getting support for ourselves. You dont have to like everyone and agree with what everypone thinks. Each person is here on this site for a reason and we all need to accept that.

I dont know your personal situation and I dont know what happened to make you feel this way, but maybe this could have been posted in a blog. I find the blog to be very comforting, I can write what I feel like writing and if ppl dont like it or I dont like what ppl have to say to me, then I can erase the comments. There is also the 'blocking' aspect of this site, where you can block a person and then you dont have to read any of that persons comments.

 

[JazzysMom]

IMHO NEVER ever criticize someone with a chronic illness (no matter what their "current status"!

The old saying of "unless you walk in their shoes" definitely applies here. Having a hight fev1 & a "mild" form of CF does not given anyone the "right" to be cold/disheartening just like they shouldnt be treated as such.

Quite often there are sooooooo many things behind the scenes that we dont know that can influence the info we are provided with!

I am not sure where/what brought this to the surface from you, but if you have been a long time lurker you must know its been brought up before and all it does is exacerbate things.

I wish you welll and find peace here!

 

[JazzysMom]

IMHO NEVER ever criticize someone with a chronic illness (no matter what their "current status"!

The old saying of "unless you walk in their shoes" definitely applies here. Having a hight fev1 & a "mild" form of CF does not given anyone the "right" to be cold/disheartening just like they shouldnt be treated as such.

Quite often there are sooooooo many things behind the scenes that we dont know that can influence the info we are provided with!

I am not sure where/what brought this to the surface from you, but if you have been a long time lurker you must know its been brought up before and all it does is exacerbate things.

I wish you welll and find peace here!

 

[JazzysMom]

IMHO NEVER ever criticize someone with a chronic illness (no matter what their "current status"!

The old saying of "unless you walk in their shoes" definitely applies here. Having a hight fev1 & a "mild" form of CF does not given anyone the "right" to be cold/disheartening just like they shouldnt be treated as such.

Quite often there are sooooooo many things behind the scenes that we dont know that can influence the info we are provided with!

I am not sure where/what brought this to the surface from you, but if you have been a long time lurker you must know its been brought up before and all it does is exacerbate things.

I wish you welll and find peace here!

 

[JazzysMom]

IMHO NEVER ever criticize someone with a chronic illness (no matter what their "current status"!

The old saying of "unless you walk in their shoes" definitely applies here. Having a hight fev1 & a "mild" form of CF does not given anyone the "right" to be cold/disheartening just like they shouldnt be treated as such.

Quite often there are sooooooo many things behind the scenes that we dont know that can influence the info we are provided with!

I am not sure where/what brought this to the surface from you, but if you have been a long time lurker you must know its been brought up before and all it does is exacerbate things.

I wish you welll and find peace here!

 

[JazzysMom]

IMHO NEVER ever criticize someone with a chronic illness (no matter what their "current status"!

The old saying of "unless you walk in their shoes" definitely applies here. Having a hight fev1 & a "mild" form of CF does not given anyone the "right" to be cold/disheartening just like they shouldnt be treated as such.

Quite often there are sooooooo many things behind the scenes that we dont know that can influence the info we are provided with!

I am not sure where/what brought this to the surface from you, but if you have been a long time lurker you must know its been brought up before and all it does is exacerbate things.

I wish you welll and find peace here!

 

[JazzysMom]

IMHO NEVER ever criticize someone with a chronic illness (no matter what their "current status"!

The old saying of "unless you walk in their shoes" definitely applies here. Having a hight fev1 & a "mild" form of CF does not given anyone the "right" to be cold/disheartening just like they shouldnt be treated as such.

Quite often there are sooooooo many things behind the scenes that we dont know that can influence the info we are provided with!

I am not sure where/what brought this to the surface from you, but if you have been a long time lurker you must know its been brought up before and all it does is exacerbate things.

I wish you welll and find peace here!

 

[AnD]

I have to say, this is a personal issue between you and "this person"- did you mean for this to be a pm?

It is much more suited for a pm, than a thread on the forums. Just because you don't like a person's "style" doesn't mean that they aren't trying to help.

And if you determine that they aren't trying to help, but have some other motive, ignore them. And if you still have an issue with them, either try to work it out through the private messaging option (or, as was suggested, put your issues in a blog), and then you can block their answers, but I think you are doing a disservice to yourself when you do. You never know who has the info you need, whether you like them or not. If it is really bad, personal attacks that are defaming, a moderator can help.

Not everyone here is going to get along personally- but we all need all the experience and advice we can get, and, I dare say, we all care when someone is down and needs us. I think (and would certainly hope <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) that if our "worst enemy" on here needed information we have, we would chime in in a heartbeat.

The enemy is cf, not each other. Take what you will here, and leave the rest.

 

[AnD]

I have to say, this is a personal issue between you and "this person"- did you mean for this to be a pm?

It is much more suited for a pm, than a thread on the forums. Just because you don't like a person's "style" doesn't mean that they aren't trying to help.

And if you determine that they aren't trying to help, but have some other motive, ignore them. And if you still have an issue with them, either try to work it out through the private messaging option (or, as was suggested, put your issues in a blog), and then you can block their answers, but I think you are doing a disservice to yourself when you do. You never know who has the info you need, whether you like them or not. If it is really bad, personal attacks that are defaming, a moderator can help.

Not everyone here is going to get along personally- but we all need all the experience and advice we can get, and, I dare say, we all care when someone is down and needs us. I think (and would certainly hope <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) that if our "worst enemy" on here needed information we have, we would chime in in a heartbeat.

The enemy is cf, not each other. Take what you will here, and leave the rest.

 

[AnD]

I have to say, this is a personal issue between you and "this person"- did you mean for this to be a pm?

It is much more suited for a pm, than a thread on the forums. Just because you don't like a person's "style" doesn't mean that they aren't trying to help.

And if you determine that they aren't trying to help, but have some other motive, ignore them. And if you still have an issue with them, either try to work it out through the private messaging option (or, as was suggested, put your issues in a blog), and then you can block their answers, but I think you are doing a disservice to yourself when you do. You never know who has the info you need, whether you like them or not. If it is really bad, personal attacks that are defaming, a moderator can help.

Not everyone here is going to get along personally- but we all need all the experience and advice we can get, and, I dare say, we all care when someone is down and needs us. I think (and would certainly hope <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) that if our "worst enemy" on here needed information we have, we would chime in in a heartbeat.

The enemy is cf, not each other. Take what you will here, and leave the rest.

 

[AnD]

I have to say, this is a personal issue between you and "this person"- did you mean for this to be a pm?

It is much more suited for a pm, than a thread on the forums. Just because you don't like a person's "style" doesn't mean that they aren't trying to help.

And if you determine that they aren't trying to help, but have some other motive, ignore them. And if you still have an issue with them, either try to work it out through the private messaging option (or, as was suggested, put your issues in a blog), and then you can block their answers, but I think you are doing a disservice to yourself when you do. You never know who has the info you need, whether you like them or not. If it is really bad, personal attacks that are defaming, a moderator can help.

Not everyone here is going to get along personally- but we all need all the experience and advice we can get, and, I dare say, we all care when someone is down and needs us. I think (and would certainly hope <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) that if our "worst enemy" on here needed information we have, we would chime in in a heartbeat.

The enemy is cf, not each other. Take what you will here, and leave the rest.