repeated cold replies to cf posts-why?

[haleysmom90]

Your lack of emotion and cold delivery of your accumulated BOOK knowledge shows both your youth and your fortunate health status. In one of your many cool replies you proudly claimed fev1 of 100%, you are blessed to have a very mild cf case. Some people are not able to be understanding or supportive until they have been faced with similar situations. Closed-minded people especially can only see the world through their very limited experiences. You remind me of the many fresh out of college medical professionals that have tremondous book knowledge and NO human life knowledge. These individuals treat their patients as if they are case studies in a medical journal. All patients regardless of their diagnosis deserve to be treated with human kindness and respect should always be given to their emotionls dealing with their condition.

Last evening I was thinking about you.Humorously, I thought maybe you were a robotic information delivery system put on this site as a cf info resource. I also thought , maybe this individual is some smart-a__ college student pretending to have cf, just to be able to play doctor online.

Then I realized that you must be a very frustrated person who thinks very highly of themself and can only be self -gratified by pretending to be a 'qualified' cf resource. You really have missed the point of a site such as this.

We can get your information from REAL QUALIFIED MEDICALLY TRAINED INDIVIDUALS, what we are looking for here is commonality of cf life experiences. This disease has become very isolating due to the cross-contamination issues, and with the recent HIPA protocal parents have a difficult time sharing info while their kids are hospitalized.

I can remember when my daughter was diagnosed at 5mos I had the opportunity to meet with a mom whose child was next door. Listening to her first hand experiences with cf were enlightening, in some ways more than the technical stuff from the medical personnel.

I hope that if/when you start having some real cf-related problems that you will find yourself in a caring supportive environment, not in a medical lecture hall.

 

[haleysmom90]

Your lack of emotion and cold delivery of your accumulated BOOK knowledge shows both your youth and your fortunate health status. In one of your many cool replies you proudly claimed fev1 of 100%, you are blessed to have a very mild cf case. Some people are not able to be understanding or supportive until they have been faced with similar situations. Closed-minded people especially can only see the world through their very limited experiences. You remind me of the many fresh out of college medical professionals that have tremondous book knowledge and NO human life knowledge. These individuals treat their patients as if they are case studies in a medical journal. All patients regardless of their diagnosis deserve to be treated with human kindness and respect should always be given to their emotionls dealing with their condition.

Last evening I was thinking about you.Humorously, I thought maybe you were a robotic information delivery system put on this site as a cf info resource. I also thought , maybe this individual is some smart-a__ college student pretending to have cf, just to be able to play doctor online.

Then I realized that you must be a very frustrated person who thinks very highly of themself and can only be self -gratified by pretending to be a 'qualified' cf resource. You really have missed the point of a site such as this.

We can get your information from REAL QUALIFIED MEDICALLY TRAINED INDIVIDUALS, what we are looking for here is commonality of cf life experiences. This disease has become very isolating due to the cross-contamination issues, and with the recent HIPA protocal parents have a difficult time sharing info while their kids are hospitalized.

I can remember when my daughter was diagnosed at 5mos I had the opportunity to meet with a mom whose child was next door. Listening to her first hand experiences with cf were enlightening, in some ways more than the technical stuff from the medical personnel.

I hope that if/when you start having some real cf-related problems that you will find yourself in a caring supportive environment, not in a medical lecture hall.

 

[haleysmom90]

Your lack of emotion and cold delivery of your accumulated BOOK knowledge shows both your youth and your fortunate health status. In one of your many cool replies you proudly claimed fev1 of 100%, you are blessed to have a very mild cf case. Some people are not able to be understanding or supportive until they have been faced with similar situations. Closed-minded people especially can only see the world through their very limited experiences. You remind me of the many fresh out of college medical professionals that have tremondous book knowledge and NO human life knowledge. These individuals treat their patients as if they are case studies in a medical journal. All patients regardless of their diagnosis deserve to be treated with human kindness and respect should always be given to their emotionls dealing with their condition.

Last evening I was thinking about you.Humorously, I thought maybe you were a robotic information delivery system put on this site as a cf info resource. I also thought , maybe this individual is some smart-a__ college student pretending to have cf, just to be able to play doctor online.

Then I realized that you must be a very frustrated person who thinks very highly of themself and can only be self -gratified by pretending to be a 'qualified' cf resource. You really have missed the point of a site such as this.

We can get your information from REAL QUALIFIED MEDICALLY TRAINED INDIVIDUALS, what we are looking for here is commonality of cf life experiences. This disease has become very isolating due to the cross-contamination issues, and with the recent HIPA protocal parents have a difficult time sharing info while their kids are hospitalized.

I can remember when my daughter was diagnosed at 5mos I had the opportunity to meet with a mom whose child was next door. Listening to her first hand experiences with cf were enlightening, in some ways more than the technical stuff from the medical personnel.

I hope that if/when you start having some real cf-related problems that you will find yourself in a caring supportive environment, not in a medical lecture hall.

 

[haleysmom90]

Your lack of emotion and cold delivery of your accumulated BOOK knowledge shows both your youth and your fortunate health status. In one of your many cool replies you proudly claimed fev1 of 100%, you are blessed to have a very mild cf case. Some people are not able to be understanding or supportive until they have been faced with similar situations. Closed-minded people especially can only see the world through their very limited experiences. You remind me of the many fresh out of college medical professionals that have tremondous book knowledge and NO human life knowledge. These individuals treat their patients as if they are case studies in a medical journal. All patients regardless of their diagnosis deserve to be treated with human kindness and respect should always be given to their emotionls dealing with their condition.

Last evening I was thinking about you.Humorously, I thought maybe you were a robotic information delivery system put on this site as a cf info resource. I also thought , maybe this individual is some smart-a__ college student pretending to have cf, just to be able to play doctor online.

Then I realized that you must be a very frustrated person who thinks very highly of themself and can only be self -gratified by pretending to be a 'qualified' cf resource. You really have missed the point of a site such as this.

We can get your information from REAL QUALIFIED MEDICALLY TRAINED INDIVIDUALS, what we are looking for here is commonality of cf life experiences. This disease has become very isolating due to the cross-contamination issues, and with the recent HIPA protocal parents have a difficult time sharing info while their kids are hospitalized.

I can remember when my daughter was diagnosed at 5mos I had the opportunity to meet with a mom whose child was next door. Listening to her first hand experiences with cf were enlightening, in some ways more than the technical stuff from the medical personnel.

I hope that if/when you start having some real cf-related problems that you will find yourself in a caring supportive environment, not in a medical lecture hall.

 

[haleysmom90]

Your lack of emotion and cold delivery of your accumulated BOOK knowledge shows both your youth and your fortunate health status. In one of your many cool replies you proudly claimed fev1 of 100%, you are blessed to have a very mild cf case. Some people are not able to be understanding or supportive until they have been faced with similar situations. Closed-minded people especially can only see the world through their very limited experiences. You remind me of the many fresh out of college medical professionals that have tremondous book knowledge and NO human life knowledge. These individuals treat their patients as if they are case studies in a medical journal. All patients regardless of their diagnosis deserve to be treated with human kindness and respect should always be given to their emotionls dealing with their condition.

Last evening I was thinking about you.Humorously, I thought maybe you were a robotic information delivery system put on this site as a cf info resource. I also thought , maybe this individual is some smart-a__ college student pretending to have cf, just to be able to play doctor online.

Then I realized that you must be a very frustrated person who thinks very highly of themself and can only be self -gratified by pretending to be a 'qualified' cf resource. You really have missed the point of a site such as this.

We can get your information from REAL QUALIFIED MEDICALLY TRAINED INDIVIDUALS, what we are looking for here is commonality of cf life experiences. This disease has become very isolating due to the cross-contamination issues, and with the recent HIPA protocal parents have a difficult time sharing info while their kids are hospitalized.

I can remember when my daughter was diagnosed at 5mos I had the opportunity to meet with a mom whose child was next door. Listening to her first hand experiences with cf were enlightening, in some ways more than the technical stuff from the medical personnel.

I hope that if/when you start having some real cf-related problems that you will find yourself in a caring supportive environment, not in a medical lecture hall.

 

[haleysmom90]

Your lack of emotion and cold delivery of your accumulated BOOK knowledge shows both your youth and your fortunate health status. In one of your many cool replies you proudly claimed fev1 of 100%, you are blessed to have a very mild cf case. Some people are not able to be understanding or supportive until they have been faced with similar situations. Closed-minded people especially can only see the world through their very limited experiences. You remind me of the many fresh out of college medical professionals that have tremondous book knowledge and NO human life knowledge. These individuals treat their patients as if they are case studies in a medical journal. All patients regardless of their diagnosis deserve to be treated with human kindness and respect should always be given to their emotionls dealing with their condition.

Last evening I was thinking about you.Humorously, I thought maybe you were a robotic information delivery system put on this site as a cf info resource. I also thought , maybe this individual is some smart-a__ college student pretending to have cf, just to be able to play doctor online.

Then I realized that you must be a very frustrated person who thinks very highly of themself and can only be self -gratified by pretending to be a 'qualified' cf resource. You really have missed the point of a site such as this.

We can get your information from REAL QUALIFIED MEDICALLY TRAINED INDIVIDUALS, what we are looking for here is commonality of cf life experiences. This disease has become very isolating due to the cross-contamination issues, and with the recent HIPA protocal parents have a difficult time sharing info while their kids are hospitalized.

I can remember when my daughter was diagnosed at 5mos I had the opportunity to meet with a mom whose child was next door. Listening to her first hand experiences with cf were enlightening, in some ways more than the technical stuff from the medical personnel.

I hope that if/when you start having some real cf-related problems that you will find yourself in a caring supportive environment, not in a medical lecture hall.

 

[CFHockeyMom]

Not sure exactly who you are speaking to here but I think it is 1) pretty "ballsy" considering you have a very limited number of posts here. Maybe you've been a surfer for a while but still it seems a little over the top to single someone out and criticize them. 2) totally uncalled for when you to attack someone's style. If you don't like their style, don't read them.

Also, just because someone has an FEV of over 100% doesn't mean they don't have the right to post information here or that they aren't educated. CF comes in all forms and just because someone isnt' where you are now doesn't mean they are any less valuable to us.

 

[CFHockeyMom]

Not sure exactly who you are speaking to here but I think it is 1) pretty "ballsy" considering you have a very limited number of posts here. Maybe you've been a surfer for a while but still it seems a little over the top to single someone out and criticize them. 2) totally uncalled for when you to attack someone's style. If you don't like their style, don't read them.

Also, just because someone has an FEV of over 100% doesn't mean they don't have the right to post information here or that they aren't educated. CF comes in all forms and just because someone isnt' where you are now doesn't mean they are any less valuable to us.

 

[CFHockeyMom]

Not sure exactly who you are speaking to here but I think it is 1) pretty "ballsy" considering you have a very limited number of posts here. Maybe you've been a surfer for a while but still it seems a little over the top to single someone out and criticize them. 2) totally uncalled for when you to attack someone's style. If you don't like their style, don't read them.

Also, just because someone has an FEV of over 100% doesn't mean they don't have the right to post information here or that they aren't educated. CF comes in all forms and just because someone isnt' where you are now doesn't mean they are any less valuable to us.

 

[CFHockeyMom]

Not sure exactly who you are speaking to here but I think it is 1) pretty "ballsy" considering you have a very limited number of posts here. Maybe you've been a surfer for a while but still it seems a little over the top to single someone out and criticize them. 2) totally uncalled for when you to attack someone's style. If you don't like their style, don't read them.

Also, just because someone has an FEV of over 100% doesn't mean they don't have the right to post information here or that they aren't educated. CF comes in all forms and just because someone isnt' where you are now doesn't mean they are any less valuable to us.

 

[CFHockeyMom]

Not sure exactly who you are speaking to here but I think it is 1) pretty "ballsy" considering you have a very limited number of posts here. Maybe you've been a surfer for a while but still it seems a little over the top to single someone out and criticize them. 2) totally uncalled for when you to attack someone's style. If you don't like their style, don't read them.

Also, just because someone has an FEV of over 100% doesn't mean they don't have the right to post information here or that they aren't educated. CF comes in all forms and just because someone isnt' where you are now doesn't mean they are any less valuable to us.

 

[CFHockeyMom]

Not sure exactly who you are speaking to here but I think it is 1) pretty "ballsy" considering you have a very limited number of posts here. Maybe you've been a surfer for a while but still it seems a little over the top to single someone out and criticize them. 2) totally uncalled for when you to attack someone's style. If you don't like their style, don't read them.

Also, just because someone has an FEV of over 100% doesn't mean they don't have the right to post information here or that they aren't educated. CF comes in all forms and just because someone isnt' where you are now doesn't mean they are any less valuable to us.

 

[haleysmom90]

You are correct that I do not have many posts to date, and yes I have been surfing the site for some time to determine if this is where I might find some support for my family's battle with cf.

The first post I did place was received with a very cold, judgemental reply that totally caught me off guard. After receiving the reply I researched the numerous replies from this same person and found there to be a pattern of 'know it all-ism' and lack of human concern. Also I'm not the first to respond to this person as such.

Your quote from Maya Angelou speaks volumes and I think that my response is parallel in thought to what she said.

 

[haleysmom90]

You are correct that I do not have many posts to date, and yes I have been surfing the site for some time to determine if this is where I might find some support for my family's battle with cf.

The first post I did place was received with a very cold, judgemental reply that totally caught me off guard. After receiving the reply I researched the numerous replies from this same person and found there to be a pattern of 'know it all-ism' and lack of human concern. Also I'm not the first to respond to this person as such.

Your quote from Maya Angelou speaks volumes and I think that my response is parallel in thought to what she said.

 

[haleysmom90]

You are correct that I do not have many posts to date, and yes I have been surfing the site for some time to determine if this is where I might find some support for my family's battle with cf.

The first post I did place was received with a very cold, judgemental reply that totally caught me off guard. After receiving the reply I researched the numerous replies from this same person and found there to be a pattern of 'know it all-ism' and lack of human concern. Also I'm not the first to respond to this person as such.

Your quote from Maya Angelou speaks volumes and I think that my response is parallel in thought to what she said.

 

[haleysmom90]

You are correct that I do not have many posts to date, and yes I have been surfing the site for some time to determine if this is where I might find some support for my family's battle with cf.

The first post I did place was received with a very cold, judgemental reply that totally caught me off guard. After receiving the reply I researched the numerous replies from this same person and found there to be a pattern of 'know it all-ism' and lack of human concern. Also I'm not the first to respond to this person as such.

Your quote from Maya Angelou speaks volumes and I think that my response is parallel in thought to what she said.

 

[haleysmom90]

You are correct that I do not have many posts to date, and yes I have been surfing the site for some time to determine if this is where I might find some support for my family's battle with cf.

The first post I did place was received with a very cold, judgemental reply that totally caught me off guard. After receiving the reply I researched the numerous replies from this same person and found there to be a pattern of 'know it all-ism' and lack of human concern. Also I'm not the first to respond to this person as such.

Your quote from Maya Angelou speaks volumes and I think that my response is parallel in thought to what she said.

 

[haleysmom90]

You are correct that I do not have many posts to date, and yes I have been surfing the site for some time to determine if this is where I might find some support for my family's battle with cf.

The first post I did place was received with a very cold, judgemental reply that totally caught me off guard. After receiving the reply I researched the numerous replies from this same person and found there to be a pattern of 'know it all-ism' and lack of human concern. Also I'm not the first to respond to this person as such.

Your quote from Maya Angelou speaks volumes and I think that my response is parallel in thought to what she said.

 

[CFHockeyMom]

Well, I truly believe there is a lot of support here. I've found it and so have many others. Sure, sometimes I'm rubbed the wrong way by someone's post but I think you need to be objective and see if there's valuable information in there. If there isn't then just move on.

Also, people tend to confuse support with advice. If you want support then ask for support (you'll definitely get it here) but if you want advice then you'd better be prepared for the whole gambit of responses and some you may find offensive.

I disagree with your statement that your response is in parallel with the quote from Maya Angelou. You have singled someone out and criticized them.

 

[CFHockeyMom]

Well, I truly believe there is a lot of support here. I've found it and so have many others. Sure, sometimes I'm rubbed the wrong way by someone's post but I think you need to be objective and see if there's valuable information in there. If there isn't then just move on.

Also, people tend to confuse support with advice. If you want support then ask for support (you'll definitely get it here) but if you want advice then you'd better be prepared for the whole gambit of responses and some you may find offensive.

I disagree with your statement that your response is in parallel with the quote from Maya Angelou. You have singled someone out and criticized them.