Shell-shocked here...new to Hypertonic Saline

[Rebjane]

Hi there,

My daughter does the 7% hypertonic saline 2 times a day as well. Usually takes 10-15 minutes for one treatment. She does not inhale every drop of saline; if there is a tiny bit left in the neb cup and it's been 10 minutes nebbing the stuff; I usally turn it off(unless she is sick). On the positive note; since my daughter has started the Hypertonic saline; her health seems to have improved. She has not been on any additional antibiotics since December 2007. Her weight and energy have improved as well as her appetite. My opinion is the time spent nebbing the saline is worth it. Less lung infections and less hospitalizations= more fun time for kids. This has been our experience so far with HTS.

 

[Rebjane]

Hi there,

My daughter does the 7% hypertonic saline 2 times a day as well. Usually takes 10-15 minutes for one treatment. She does not inhale every drop of saline; if there is a tiny bit left in the neb cup and it's been 10 minutes nebbing the stuff; I usally turn it off(unless she is sick). On the positive note; since my daughter has started the Hypertonic saline; her health seems to have improved. She has not been on any additional antibiotics since December 2007. Her weight and energy have improved as well as her appetite. My opinion is the time spent nebbing the saline is worth it. Less lung infections and less hospitalizations= more fun time for kids. This has been our experience so far with HTS.

 

[Rebjane]

Hi there,

My daughter does the 7% hypertonic saline 2 times a day as well. Usually takes 10-15 minutes for one treatment. She does not inhale every drop of saline; if there is a tiny bit left in the neb cup and it's been 10 minutes nebbing the stuff; I usally turn it off(unless she is sick). On the positive note; since my daughter has started the Hypertonic saline; her health seems to have improved. She has not been on any additional antibiotics since December 2007. Her weight and energy have improved as well as her appetite. My opinion is the time spent nebbing the saline is worth it. Less lung infections and less hospitalizations= more fun time for kids. This has been our experience so far with HTS.

 

[Rebjane]

Hi there,

My daughter does the 7% hypertonic saline 2 times a day as well. Usually takes 10-15 minutes for one treatment. She does not inhale every drop of saline; if there is a tiny bit left in the neb cup and it's been 10 minutes nebbing the stuff; I usally turn it off(unless she is sick). On the positive note; since my daughter has started the Hypertonic saline; her health seems to have improved. She has not been on any additional antibiotics since December 2007. Her weight and energy have improved as well as her appetite. My opinion is the time spent nebbing the saline is worth it. Less lung infections and less hospitalizations= more fun time for kids. This has been our experience so far with HTS.

 

[Rebjane]

Hi there,

My daughter does the 7% hypertonic saline 2 times a day as well. Usually takes 10-15 minutes for one treatment. She does not inhale every drop of saline; if there is a tiny bit left in the neb cup and it's been 10 minutes nebbing the stuff; I usally turn it off(unless she is sick). On the positive note; since my daughter has started the Hypertonic saline; her health seems to have improved. She has not been on any additional antibiotics since December 2007. Her weight and energy have improved as well as her appetite. My opinion is the time spent nebbing the saline is worth it. Less lung infections and less hospitalizations= more fun time for kids. This has been our experience so far with HTS.

 

[kathiel]

I just started Hypertonic saline and the way it is dispensed at the pharmacy I use I have to mix 10% with 3% to get the 7%. My doctor wanted me inhaling 17.5ml up to 3 times a day, but I am only doing 4-5ml three times a day and it takes 20ish minutes to do a treatment. I can't imagine how long it would take to do the 17.5ml...that would be crazy.

 

[kathiel]

I just started Hypertonic saline and the way it is dispensed at the pharmacy I use I have to mix 10% with 3% to get the 7%. My doctor wanted me inhaling 17.5ml up to 3 times a day, but I am only doing 4-5ml three times a day and it takes 20ish minutes to do a treatment. I can't imagine how long it would take to do the 17.5ml...that would be crazy.

 

[kathiel]

I just started Hypertonic saline and the way it is dispensed at the pharmacy I use I have to mix 10% with 3% to get the 7%. My doctor wanted me inhaling 17.5ml up to 3 times a day, but I am only doing 4-5ml three times a day and it takes 20ish minutes to do a treatment. I can't imagine how long it would take to do the 17.5ml...that would be crazy.

 

[kathiel]

I just started Hypertonic saline and the way it is dispensed at the pharmacy I use I have to mix 10% with 3% to get the 7%. My doctor wanted me inhaling 17.5ml up to 3 times a day, but I am only doing 4-5ml three times a day and it takes 20ish minutes to do a treatment. I can't imagine how long it would take to do the 17.5ml...that would be crazy.

 

[kathiel]

I just started Hypertonic saline and the way it is dispensed at the pharmacy I use I have to mix 10% with 3% to get the 7%. My doctor wanted me inhaling 17.5ml up to 3 times a day, but I am only doing 4-5ml three times a day and it takes 20ish minutes to do a treatment. I can't imagine how long it would take to do the 17.5ml...that would be crazy.

 

[3gr8kids]

hi--

I just spoke to our CF center regarding my 7 yr old son too. His hs was taking like 15 minutes. He wasnt breathing thru his mough and so I suggessted that we change the neb to a Pari Sprint and they said they are only for Pulmozyme...So they sent me new nebs even though mine were only 3 mo old and also sent me the mask so that it would be faster. Good luck to ya. I agree that it does take forever compared to the 5 minute pulmozyme!!!

 

[3gr8kids]

hi--

I just spoke to our CF center regarding my 7 yr old son too. His hs was taking like 15 minutes. He wasnt breathing thru his mough and so I suggessted that we change the neb to a Pari Sprint and they said they are only for Pulmozyme...So they sent me new nebs even though mine were only 3 mo old and also sent me the mask so that it would be faster. Good luck to ya. I agree that it does take forever compared to the 5 minute pulmozyme!!!

 

[3gr8kids]

hi--

I just spoke to our CF center regarding my 7 yr old son too. His hs was taking like 15 minutes. He wasnt breathing thru his mough and so I suggessted that we change the neb to a Pari Sprint and they said they are only for Pulmozyme...So they sent me new nebs even though mine were only 3 mo old and also sent me the mask so that it would be faster. Good luck to ya. I agree that it does take forever compared to the 5 minute pulmozyme!!!

 

[3gr8kids]

hi--

I just spoke to our CF center regarding my 7 yr old son too. His hs was taking like 15 minutes. He wasnt breathing thru his mough and so I suggessted that we change the neb to a Pari Sprint and they said they are only for Pulmozyme...So they sent me new nebs even though mine were only 3 mo old and also sent me the mask so that it would be faster. Good luck to ya. I agree that it does take forever compared to the 5 minute pulmozyme!!!

 

[3gr8kids]

hi--
<br />
<br />I just spoke to our CF center regarding my 7 yr old son too. His hs was taking like 15 minutes. He wasnt breathing thru his mough and so I suggessted that we change the neb to a Pari Sprint and they said they are only for Pulmozyme...So they sent me new nebs even though mine were only 3 mo old and also sent me the mask so that it would be faster. Good luck to ya. I agree that it does take forever compared to the 5 minute pulmozyme!!!

 

[sdelorenzo]

Well...I guess you can be thankful he isn't doing Tobi on top of everything. My son is albuterol puffer first, hypertonic saline (10-15 minutes), vest 30 minutes, pulmozyme (10 minutes) and tobi (25 minutes). In the morning I do pulmozyme with his vest to save time, even though it is not recommended. Now how am I going to get him to school next year at 7:30am?? I stop the hypertonic saline after 10 or 15 minutes. I really don't even know how much he is supposed to nebulize since the ampule is 4ml which is too much to do at one sitting. We also bought our kids a Nintendo ds to do during their treatments this summer. While I would be a parent to limit tv and probably ban video games if they didn't have cf, it has been a life saver to get my kids to sit still for so long. My son often asks to continue to play when his treatment is over (which doesn't happen). They also ask about every other day if they can start their treatments so they can play! What a blessing that is!

If you read the instructions on the Pari nebulizer it says to remove the blue cap if they are using a mask with holes. My kids use the dinosaur mask with holes. The medicine goes a lot faster if you take off the blue cap on top. I still don't take off the mask because it seems that too much medicine goes into the air even if pari says that it is the correct way to do it.

My daughter and son also had a ct scan of their lungs this summer. My son's ct scan looked great, but my daughters did not look good at all. Quite a surprise to us since she has been healthy and only has cultured staph. We have been getting second opinions about what to do about her lung damage and how to prevent more damage. One of the theories is that she is actually culturing another bacteria that has not shown up on cultures. So she will be getting a bronch to determine if she is culturing something else in her lungs. Even if nothing else turns up her cf dr wants to start her on tobi (for psuedomonas) since her brother has cultured it a number of times throughout the yrs. Also, two other cf drs we spoke to said that the staph (not msra) untreated could be causing all of the bronchiectasis. They said she needs regular treatment of bactrim to prevent this. Now our issue is to get the drs to agree on a treatment which seems impossible (other than going to two cf drs in different towns). What does your son's dr think is causing his problems on the cf scan?
Sharon, mom of Sophia, 7 and Jack 5 both with cf

 

[sdelorenzo]

Well...I guess you can be thankful he isn't doing Tobi on top of everything. My son is albuterol puffer first, hypertonic saline (10-15 minutes), vest 30 minutes, pulmozyme (10 minutes) and tobi (25 minutes). In the morning I do pulmozyme with his vest to save time, even though it is not recommended. Now how am I going to get him to school next year at 7:30am?? I stop the hypertonic saline after 10 or 15 minutes. I really don't even know how much he is supposed to nebulize since the ampule is 4ml which is too much to do at one sitting. We also bought our kids a Nintendo ds to do during their treatments this summer. While I would be a parent to limit tv and probably ban video games if they didn't have cf, it has been a life saver to get my kids to sit still for so long. My son often asks to continue to play when his treatment is over (which doesn't happen). They also ask about every other day if they can start their treatments so they can play! What a blessing that is!

If you read the instructions on the Pari nebulizer it says to remove the blue cap if they are using a mask with holes. My kids use the dinosaur mask with holes. The medicine goes a lot faster if you take off the blue cap on top. I still don't take off the mask because it seems that too much medicine goes into the air even if pari says that it is the correct way to do it.

My daughter and son also had a ct scan of their lungs this summer. My son's ct scan looked great, but my daughters did not look good at all. Quite a surprise to us since she has been healthy and only has cultured staph. We have been getting second opinions about what to do about her lung damage and how to prevent more damage. One of the theories is that she is actually culturing another bacteria that has not shown up on cultures. So she will be getting a bronch to determine if she is culturing something else in her lungs. Even if nothing else turns up her cf dr wants to start her on tobi (for psuedomonas) since her brother has cultured it a number of times throughout the yrs. Also, two other cf drs we spoke to said that the staph (not msra) untreated could be causing all of the bronchiectasis. They said she needs regular treatment of bactrim to prevent this. Now our issue is to get the drs to agree on a treatment which seems impossible (other than going to two cf drs in different towns). What does your son's dr think is causing his problems on the cf scan?
Sharon, mom of Sophia, 7 and Jack 5 both with cf

 

[sdelorenzo]

Well...I guess you can be thankful he isn't doing Tobi on top of everything. My son is albuterol puffer first, hypertonic saline (10-15 minutes), vest 30 minutes, pulmozyme (10 minutes) and tobi (25 minutes). In the morning I do pulmozyme with his vest to save time, even though it is not recommended. Now how am I going to get him to school next year at 7:30am?? I stop the hypertonic saline after 10 or 15 minutes. I really don't even know how much he is supposed to nebulize since the ampule is 4ml which is too much to do at one sitting. We also bought our kids a Nintendo ds to do during their treatments this summer. While I would be a parent to limit tv and probably ban video games if they didn't have cf, it has been a life saver to get my kids to sit still for so long. My son often asks to continue to play when his treatment is over (which doesn't happen). They also ask about every other day if they can start their treatments so they can play! What a blessing that is!

If you read the instructions on the Pari nebulizer it says to remove the blue cap if they are using a mask with holes. My kids use the dinosaur mask with holes. The medicine goes a lot faster if you take off the blue cap on top. I still don't take off the mask because it seems that too much medicine goes into the air even if pari says that it is the correct way to do it.

My daughter and son also had a ct scan of their lungs this summer. My son's ct scan looked great, but my daughters did not look good at all. Quite a surprise to us since she has been healthy and only has cultured staph. We have been getting second opinions about what to do about her lung damage and how to prevent more damage. One of the theories is that she is actually culturing another bacteria that has not shown up on cultures. So she will be getting a bronch to determine if she is culturing something else in her lungs. Even if nothing else turns up her cf dr wants to start her on tobi (for psuedomonas) since her brother has cultured it a number of times throughout the yrs. Also, two other cf drs we spoke to said that the staph (not msra) untreated could be causing all of the bronchiectasis. They said she needs regular treatment of bactrim to prevent this. Now our issue is to get the drs to agree on a treatment which seems impossible (other than going to two cf drs in different towns). What does your son's dr think is causing his problems on the cf scan?
Sharon, mom of Sophia, 7 and Jack 5 both with cf

 

[sdelorenzo]

Well...I guess you can be thankful he isn't doing Tobi on top of everything. My son is albuterol puffer first, hypertonic saline (10-15 minutes), vest 30 minutes, pulmozyme (10 minutes) and tobi (25 minutes). In the morning I do pulmozyme with his vest to save time, even though it is not recommended. Now how am I going to get him to school next year at 7:30am?? I stop the hypertonic saline after 10 or 15 minutes. I really don't even know how much he is supposed to nebulize since the ampule is 4ml which is too much to do at one sitting. We also bought our kids a Nintendo ds to do during their treatments this summer. While I would be a parent to limit tv and probably ban video games if they didn't have cf, it has been a life saver to get my kids to sit still for so long. My son often asks to continue to play when his treatment is over (which doesn't happen). They also ask about every other day if they can start their treatments so they can play! What a blessing that is!

If you read the instructions on the Pari nebulizer it says to remove the blue cap if they are using a mask with holes. My kids use the dinosaur mask with holes. The medicine goes a lot faster if you take off the blue cap on top. I still don't take off the mask because it seems that too much medicine goes into the air even if pari says that it is the correct way to do it.

My daughter and son also had a ct scan of their lungs this summer. My son's ct scan looked great, but my daughters did not look good at all. Quite a surprise to us since she has been healthy and only has cultured staph. We have been getting second opinions about what to do about her lung damage and how to prevent more damage. One of the theories is that she is actually culturing another bacteria that has not shown up on cultures. So she will be getting a bronch to determine if she is culturing something else in her lungs. Even if nothing else turns up her cf dr wants to start her on tobi (for psuedomonas) since her brother has cultured it a number of times throughout the yrs. Also, two other cf drs we spoke to said that the staph (not msra) untreated could be causing all of the bronchiectasis. They said she needs regular treatment of bactrim to prevent this. Now our issue is to get the drs to agree on a treatment which seems impossible (other than going to two cf drs in different towns). What does your son's dr think is causing his problems on the cf scan?
Sharon, mom of Sophia, 7 and Jack 5 both with cf

 

[sdelorenzo]

Well...I guess you can be thankful he isn't doing Tobi on top of everything. My son is albuterol puffer first, hypertonic saline (10-15 minutes), vest 30 minutes, pulmozyme (10 minutes) and tobi (25 minutes). In the morning I do pulmozyme with his vest to save time, even though it is not recommended. Now how am I going to get him to school next year at 7:30am?? I stop the hypertonic saline after 10 or 15 minutes. I really don't even know how much he is supposed to nebulize since the ampule is 4ml which is too much to do at one sitting. We also bought our kids a Nintendo ds to do during their treatments this summer. While I would be a parent to limit tv and probably ban video games if they didn't have cf, it has been a life saver to get my kids to sit still for so long. My son often asks to continue to play when his treatment is over (which doesn't happen). They also ask about every other day if they can start their treatments so they can play! What a blessing that is!
<br />
<br /> If you read the instructions on the Pari nebulizer it says to remove the blue cap if they are using a mask with holes. My kids use the dinosaur mask with holes. The medicine goes a lot faster if you take off the blue cap on top. I still don't take off the mask because it seems that too much medicine goes into the air even if pari says that it is the correct way to do it.
<br />
<br />My daughter and son also had a ct scan of their lungs this summer. My son's ct scan looked great, but my daughters did not look good at all. Quite a surprise to us since she has been healthy and only has cultured staph. We have been getting second opinions about what to do about her lung damage and how to prevent more damage. One of the theories is that she is actually culturing another bacteria that has not shown up on cultures. So she will be getting a bronch to determine if she is culturing something else in her lungs. Even if nothing else turns up her cf dr wants to start her on tobi (for psuedomonas) since her brother has cultured it a number of times throughout the yrs. Also, two other cf drs we spoke to said that the staph (not msra) untreated could be causing all of the bronchiectasis. They said she needs regular treatment of bactrim to prevent this. Now our issue is to get the drs to agree on a treatment which seems impossible (other than going to two cf drs in different towns). What does your son's dr think is causing his problems on the cf scan?
<br />Sharon, mom of Sophia, 7 and Jack 5 both with cf
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