I just wanted to say thank you to Jamie for your post! Sometimes I feel like the world's worst mother because I DO let Luke go to play places and play in the dirt and go to the lake with us and swim in the pool. But I think I would feel worse to know that he was not able to experience any of those things. And it is especially hard when you have other children who do not have CF. You don't want to deny them and you don't want to spend all of the time doing separate activities. I want us to have memories together as a family. But then I end up feeling like I am not being proactive enough in protecting Luke. It is hard to find the right balance!
Our little pool outside is always so grass filled by the end of a day playing that we have to dump it out every day--if not once while they are still in it! But we do dump it everday and I wipe it down with Clorox wipes. It's a great job to give to the older sibs!
Our little pool outside is always so grass filled by the end of a day playing that we have to dump it out every day--if not once while they are still in it! But we do dump it everday and I wipe it down with Clorox wipes. It's a great job to give to the older sibs!