thefrogprincess
New member
Get a lawyer to help you! My brother has been fighting for SSI benefits for 3 years, and its only with the help of an attorney that he is getting somewhere finally.
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ssi denial
- Thread starter amber682
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thefrogprincess
New member
Get a lawyer to help you! My brother has been fighting for SSI benefits for 3 years, and its only with the help of an attorney that he is getting somewhere finally.
thefrogprincess
New member
Get a lawyer to help you! My brother has been fighting for SSI benefits for 3 years, and its only with the help of an attorney that he is getting somewhere finally.
<img src="i/expressions/face-icon-small-disgusted.gif" border="0"> My daughter is 15 months old and was diagnosed at birth with cf. I had to leave my job to care for her and am barely scraping by. SSI has denied Jayna because they say her illness doesn't cause her that much impairment. Between the chest pts, tobi nebs, albutarl nebs, ultrase, pecid, cipro, and genulose which we do daily(some twice a day) I think that is a major impairment on not only her life, but my own. How am I supposed to get a daycare to do all these treatments (they won't for cheap) and work? I need information and help caring for my daughter financially and no one will help!!! The state has me running in circles. Does anyone know the answer?
<img src="i/expressions/face-icon-small-disgusted.gif" border="0"> My daughter is 15 months old and was diagnosed at birth with cf. I had to leave my job to care for her and am barely scraping by. SSI has denied Jayna because they say her illness doesn't cause her that much impairment. Between the chest pts, tobi nebs, albutarl nebs, ultrase, pecid, cipro, and genulose which we do daily(some twice a day) I think that is a major impairment on not only her life, but my own. How am I supposed to get a daycare to do all these treatments (they won't for cheap) and work? I need information and help caring for my daughter financially and no one will help!!! The state has me running in circles. Does anyone know the answer?
<img src="i/expressions/face-icon-small-disgusted.gif" border="0"> My daughter is 15 months old and was diagnosed at birth with cf. I had to leave my job to care for her and am barely scraping by. SSI has denied Jayna because they say her illness doesn't cause her that much impairment. Between the chest pts, tobi nebs, albutarl nebs, ultrase, pecid, cipro, and genulose which we do daily(some twice a day) I think that is a major impairment on not only her life, but my own. How am I supposed to get a daycare to do all these treatments (they won't for cheap) and work? I need information and help caring for my daughter financially and no one will help!!! The state has me running in circles. Does anyone know the answer?
sweetwhite30
New member
I applied for ssi for isaiah when he was 2 months old and at 18 months old they denied him but i appealed and decided to use their own statements against them " in their pamplet it states a child is eligible if they will die from their disease " And i used that statement and told them where to find it and 8 months later i got a approval letter for his eligibility for ssi..... none the less he is 4 and still receives it and the lady says he will until he goes.... cystic fibrosis is considered a terminal illness by their standards and your child is eligible for ssi and meets the critieria.. this was my case and i applied in florida and got denied in alabama and then alabama approved his ssi and we are in delaware now but , their rules are the same no matter what state your in . fight it get the pamplet and use their statement and u get the all the documents and get the ones from his doctor as well and send it all together so they can not say no one did not send in because if one doctor dont send in thats their grounds for denial... hope this helps some....
sweetwhite30
New member
I applied for ssi for isaiah when he was 2 months old and at 18 months old they denied him but i appealed and decided to use their own statements against them " in their pamplet it states a child is eligible if they will die from their disease " And i used that statement and told them where to find it and 8 months later i got a approval letter for his eligibility for ssi..... none the less he is 4 and still receives it and the lady says he will until he goes.... cystic fibrosis is considered a terminal illness by their standards and your child is eligible for ssi and meets the critieria.. this was my case and i applied in florida and got denied in alabama and then alabama approved his ssi and we are in delaware now but , their rules are the same no matter what state your in . fight it get the pamplet and use their statement and u get the all the documents and get the ones from his doctor as well and send it all together so they can not say no one did not send in because if one doctor dont send in thats their grounds for denial... hope this helps some....
sweetwhite30
New member
I applied for ssi for isaiah when he was 2 months old and at 18 months old they denied him but i appealed and decided to use their own statements against them " in their pamplet it states a child is eligible if they will die from their disease " And i used that statement and told them where to find it and 8 months later i got a approval letter for his eligibility for ssi..... none the less he is 4 and still receives it and the lady says he will until he goes.... cystic fibrosis is considered a terminal illness by their standards and your child is eligible for ssi and meets the critieria.. this was my case and i applied in florida and got denied in alabama and then alabama approved his ssi and we are in delaware now but , their rules are the same no matter what state your in . fight it get the pamplet and use their statement and u get the all the documents and get the ones from his doctor as well and send it all together so they can not say no one did not send in because if one doctor dont send in thats their grounds for denial... hope this helps some....