This makes me feel very sad

E

Emily65Roses

New member
DDF508 is not the worst. This keeps popping up and it's incorrect information. For one, as we all know, you cannot go by mutations alone. <b>But even if you do</b>, DeltaF508 is a Class II mutation. Therefore, a CFer with a Class II and a Class I; or two Class I mutations is worse off than a DDF508.
 
E

Emily65Roses

New member
DDF508 is not the worst. This keeps popping up and it's incorrect information. For one, as we all know, you cannot go by mutations alone. <b>But even if you do</b>, DeltaF508 is a Class II mutation. Therefore, a CFer with a Class II and a Class I; or two Class I mutations is worse off than a DDF508.
 
E

Emily65Roses

New member
DDF508 is not the worst. This keeps popping up and it's incorrect information. For one, as we all know, you cannot go by mutations alone. <b>But even if you do</b>, DeltaF508 is a Class II mutation. Therefore, a CFer with a Class II and a Class I; or two Class I mutations is worse off than a DDF508.
 
E

Emily65Roses

New member
DDF508 is not the worst. This keeps popping up and it's incorrect information. For one, as we all know, you cannot go by mutations alone. <b>But even if you do</b>, DeltaF508 is a Class II mutation. Therefore, a CFer with a Class II and a Class I; or two Class I mutations is worse off than a DDF508.
 
E

Emily65Roses

New member
DDF508 is not the worst. This keeps popping up and it's incorrect information. For one, as we all know, you cannot go by mutations alone. <b>But even if you do</b>, DeltaF508 is a Class II mutation. Therefore, a CFer with a Class II and a Class I; or two Class I mutations is worse off than a DDF508.
 
C

chrissyd

New member
The fact that we now have the ability to "play god" and use it...scares me.

<img src="i/expressions/rose.gif" border="0">
 
C

chrissyd

New member
The fact that we now have the ability to "play god" and use it...scares me.

<img src="i/expressions/rose.gif" border="0">
 
C

chrissyd

New member
The fact that we now have the ability to "play god" and use it...scares me.

<img src="i/expressions/rose.gif" border="0">
 
C

chrissyd

New member
The fact that we now have the ability to "play god" and use it...scares me.

<img src="i/expressions/rose.gif" border="0">
 
C

chrissyd

New member
The fact that we now have the ability to "play god" and use it...scares me.
<br />
<br /><img src="i/expressions/rose.gif" border="0">
 
M

MCGrad2006

Guest
I posted something similar to what I am saying here on someone's blog.

I totally agree with you. In my family we thought we going to have three new babies this coming year. We were sooooo excited because thats a lot (three of my cousins were pregnant) and we dont have as many babies now b/c damnit they grew up...lol. Well one of my cousins found out on Christmas eve that her baby was severely deformed, called Trisomy (13,20 some number I am not sure of). The baby was going to be very handicapped and had very little chance at life, i.e. wouldnt have lived past a few hours. Well she ended up losing the baby on Valentines Day (of all days). She opted NOT to get rid of the child of her own accord and I admire her for that. I think it would have been very difficult had the pregnancy lasted, but I still admire my cousin. It takes a lot to be able to care for a child with that many disabilities and they were ready to get attached and love that child no matter what.

Now one of my other cousins was also asked about genetic conditions. She also opted NOT to get tested (for CF or anything else). I admire this too. She never would have done anything had the baby tested positive and I think that is good of her too. If only some other people could be that gracious. Life is a precious thing and being able to give that life back should be a blessing.
 
M

MCGrad2006

Guest
I posted something similar to what I am saying here on someone's blog.

I totally agree with you. In my family we thought we going to have three new babies this coming year. We were sooooo excited because thats a lot (three of my cousins were pregnant) and we dont have as many babies now b/c damnit they grew up...lol. Well one of my cousins found out on Christmas eve that her baby was severely deformed, called Trisomy (13,20 some number I am not sure of). The baby was going to be very handicapped and had very little chance at life, i.e. wouldnt have lived past a few hours. Well she ended up losing the baby on Valentines Day (of all days). She opted NOT to get rid of the child of her own accord and I admire her for that. I think it would have been very difficult had the pregnancy lasted, but I still admire my cousin. It takes a lot to be able to care for a child with that many disabilities and they were ready to get attached and love that child no matter what.

Now one of my other cousins was also asked about genetic conditions. She also opted NOT to get tested (for CF or anything else). I admire this too. She never would have done anything had the baby tested positive and I think that is good of her too. If only some other people could be that gracious. Life is a precious thing and being able to give that life back should be a blessing.
 
M

MCGrad2006

Guest
I posted something similar to what I am saying here on someone's blog.

I totally agree with you. In my family we thought we going to have three new babies this coming year. We were sooooo excited because thats a lot (three of my cousins were pregnant) and we dont have as many babies now b/c damnit they grew up...lol. Well one of my cousins found out on Christmas eve that her baby was severely deformed, called Trisomy (13,20 some number I am not sure of). The baby was going to be very handicapped and had very little chance at life, i.e. wouldnt have lived past a few hours. Well she ended up losing the baby on Valentines Day (of all days). She opted NOT to get rid of the child of her own accord and I admire her for that. I think it would have been very difficult had the pregnancy lasted, but I still admire my cousin. It takes a lot to be able to care for a child with that many disabilities and they were ready to get attached and love that child no matter what.

Now one of my other cousins was also asked about genetic conditions. She also opted NOT to get tested (for CF or anything else). I admire this too. She never would have done anything had the baby tested positive and I think that is good of her too. If only some other people could be that gracious. Life is a precious thing and being able to give that life back should be a blessing.
 
M

MCGrad2006

Guest
I posted something similar to what I am saying here on someone's blog.

I totally agree with you. In my family we thought we going to have three new babies this coming year. We were sooooo excited because thats a lot (three of my cousins were pregnant) and we dont have as many babies now b/c damnit they grew up...lol. Well one of my cousins found out on Christmas eve that her baby was severely deformed, called Trisomy (13,20 some number I am not sure of). The baby was going to be very handicapped and had very little chance at life, i.e. wouldnt have lived past a few hours. Well she ended up losing the baby on Valentines Day (of all days). She opted NOT to get rid of the child of her own accord and I admire her for that. I think it would have been very difficult had the pregnancy lasted, but I still admire my cousin. It takes a lot to be able to care for a child with that many disabilities and they were ready to get attached and love that child no matter what.

Now one of my other cousins was also asked about genetic conditions. She also opted NOT to get tested (for CF or anything else). I admire this too. She never would have done anything had the baby tested positive and I think that is good of her too. If only some other people could be that gracious. Life is a precious thing and being able to give that life back should be a blessing.
 
M

MCGrad2006

Guest
I posted something similar to what I am saying here on someone's blog.
<br />
<br />I totally agree with you. In my family we thought we going to have three new babies this coming year. We were sooooo excited because thats a lot (three of my cousins were pregnant) and we dont have as many babies now b/c damnit they grew up...lol. Well one of my cousins found out on Christmas eve that her baby was severely deformed, called Trisomy (13,20 some number I am not sure of). The baby was going to be very handicapped and had very little chance at life, i.e. wouldnt have lived past a few hours. Well she ended up losing the baby on Valentines Day (of all days). She opted NOT to get rid of the child of her own accord and I admire her for that. I think it would have been very difficult had the pregnancy lasted, but I still admire my cousin. It takes a lot to be able to care for a child with that many disabilities and they were ready to get attached and love that child no matter what.
<br />
<br />Now one of my other cousins was also asked about genetic conditions. She also opted NOT to get tested (for CF or anything else). I admire this too. She never would have done anything had the baby tested positive and I think that is good of her too. If only some other people could be that gracious. Life is a precious thing and being able to give that life back should be a blessing.
 
J

JW212

New member
Emily
Thank you!! I am a mom of an 18 yr old DDF508. I also thought I was told the mutations do not always relate to the severity. She was only hospitalized once (lastyear) and she is a runner. I hoping she stays as well as she is today. She works at it and is just a great person. Her PFTS norm are 95-125%. Did you find you had more problems as a young child or in your 20's? She is going off to college this year (Sept) and I am worried about her getting sick at school. We did make sure she will get her own dorm room...and I toldher I will be there everyday around lunch time to check on her haha just kidding! But dont think I dont want to!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
Neurotic CF Mom
Jane
 
J

JW212

New member
Emily
Thank you!! I am a mom of an 18 yr old DDF508. I also thought I was told the mutations do not always relate to the severity. She was only hospitalized once (lastyear) and she is a runner. I hoping she stays as well as she is today. She works at it and is just a great person. Her PFTS norm are 95-125%. Did you find you had more problems as a young child or in your 20's? She is going off to college this year (Sept) and I am worried about her getting sick at school. We did make sure she will get her own dorm room...and I toldher I will be there everyday around lunch time to check on her haha just kidding! But dont think I dont want to!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
Neurotic CF Mom
Jane
 
J

JW212

New member
Emily
Thank you!! I am a mom of an 18 yr old DDF508. I also thought I was told the mutations do not always relate to the severity. She was only hospitalized once (lastyear) and she is a runner. I hoping she stays as well as she is today. She works at it and is just a great person. Her PFTS norm are 95-125%. Did you find you had more problems as a young child or in your 20's? She is going off to college this year (Sept) and I am worried about her getting sick at school. We did make sure she will get her own dorm room...and I toldher I will be there everyday around lunch time to check on her haha just kidding! But dont think I dont want to!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
Neurotic CF Mom
Jane
 
J

JW212

New member
Emily
Thank you!! I am a mom of an 18 yr old DDF508. I also thought I was told the mutations do not always relate to the severity. She was only hospitalized once (lastyear) and she is a runner. I hoping she stays as well as she is today. She works at it and is just a great person. Her PFTS norm are 95-125%. Did you find you had more problems as a young child or in your 20's? She is going off to college this year (Sept) and I am worried about her getting sick at school. We did make sure she will get her own dorm room...and I toldher I will be there everyday around lunch time to check on her haha just kidding! But dont think I dont want to!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
Neurotic CF Mom
Jane
 
J

JW212

New member
Emily
<br />Thank you!! I am a mom of an 18 yr old DDF508. I also thought I was told the mutations do not always relate to the severity. She was only hospitalized once (lastyear) and she is a runner. I hoping she stays as well as she is today. She works at it and is just a great person. Her PFTS norm are 95-125%. Did you find you had more problems as a young child or in your 20's? She is going off to college this year (Sept) and I am worried about her getting sick at school. We did make sure she will get her own dorm room...and I toldher I will be there everyday around lunch time to check on her haha just kidding! But dont think I dont want to!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />Neurotic CF Mom
<br />Jane
 
You must log in or register to reply here.
Top