To have more children (with possible CF) or not

Mommy2Alysa

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sue35</b></i>

You are going to get two totally different responses it seems. Those from parents, and those from people who are actually living with the disease. No matter what, you will never understand what it is like to not be able to breathe. Your child will. I would resent my parents if they knew about CF. And I sure would resent them if I had an older sibling who wasn't as sick as me.



No matter how loving of a family you raise a child in, they will die from this disease and it won't be pretty. They will eventually be on their own and when they are gasping for one good breath they aren't going to be thinking about how great a family they have. They are going to be thinking about just surviving.



You are having a child that will die from a horrible disease. You can hope all you want that they won't but as of right now that is what will happen. And when they die you have to know that you willingly gave them this. Keep in mind that even if the child does resent you they might not ever tell you and they will feel all alone if they are the sick one while their sibling is not</end quote></div>


Holy that is a little ummm.... upsettting shall we say? Making parents feel like they are purposely making their child sick is NOT right. There is only a 25% chance of passing both genes onto your child and therefore giving them CF. I am currently the mother of a two year old with CF and I am pregnant with another CF. (I got preg the month after our daughter was diagnosed at 18 months) I did not get pregnant intentionally just to bring another sick child into this world. I wanted a "healthy, normal" chld but that didnt work as planned and who am I to go to the doctor and say "get rid of it please".. I am not god, I am just a mother hoping to one day find a cure.

Excuse me if I sound a little upset but yes people die from this disease every day but they also die by getting hit by cars, or by cancer... should we stop having children beacuse they MAY get cancer when they are older?!
 

Mommy2Alysa

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sue35</b></i>

You are going to get two totally different responses it seems. Those from parents, and those from people who are actually living with the disease. No matter what, you will never understand what it is like to not be able to breathe. Your child will. I would resent my parents if they knew about CF. And I sure would resent them if I had an older sibling who wasn't as sick as me.



No matter how loving of a family you raise a child in, they will die from this disease and it won't be pretty. They will eventually be on their own and when they are gasping for one good breath they aren't going to be thinking about how great a family they have. They are going to be thinking about just surviving.



You are having a child that will die from a horrible disease. You can hope all you want that they won't but as of right now that is what will happen. And when they die you have to know that you willingly gave them this. Keep in mind that even if the child does resent you they might not ever tell you and they will feel all alone if they are the sick one while their sibling is not</end quote>


Holy that is a little ummm.... upsettting shall we say? Making parents feel like they are purposely making their child sick is NOT right. There is only a 25% chance of passing both genes onto your child and therefore giving them CF. I am currently the mother of a two year old with CF and I am pregnant with another CF. (I got preg the month after our daughter was diagnosed at 18 months) I did not get pregnant intentionally just to bring another sick child into this world. I wanted a "healthy, normal" chld but that didnt work as planned and who am I to go to the doctor and say "get rid of it please".. I am not god, I am just a mother hoping to one day find a cure.

Excuse me if I sound a little upset but yes people die from this disease every day but they also die by getting hit by cars, or by cancer... should we stop having children beacuse they MAY get cancer when they are older?!
 

Mommy2Alysa

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sue35</b></i>

You are going to get two totally different responses it seems. Those from parents, and those from people who are actually living with the disease. No matter what, you will never understand what it is like to not be able to breathe. Your child will. I would resent my parents if they knew about CF. And I sure would resent them if I had an older sibling who wasn't as sick as me.



No matter how loving of a family you raise a child in, they will die from this disease and it won't be pretty. They will eventually be on their own and when they are gasping for one good breath they aren't going to be thinking about how great a family they have. They are going to be thinking about just surviving.



You are having a child that will die from a horrible disease. You can hope all you want that they won't but as of right now that is what will happen. And when they die you have to know that you willingly gave them this. Keep in mind that even if the child does resent you they might not ever tell you and they will feel all alone if they are the sick one while their sibling is not</end quote>


Holy that is a little ummm.... upsettting shall we say? Making parents feel like they are purposely making their child sick is NOT right. There is only a 25% chance of passing both genes onto your child and therefore giving them CF. I am currently the mother of a two year old with CF and I am pregnant with another CF. (I got preg the month after our daughter was diagnosed at 18 months) I did not get pregnant intentionally just to bring another sick child into this world. I wanted a "healthy, normal" chld but that didnt work as planned and who am I to go to the doctor and say "get rid of it please".. I am not god, I am just a mother hoping to one day find a cure.

Excuse me if I sound a little upset but yes people die from this disease every day but they also die by getting hit by cars, or by cancer... should we stop having children beacuse they MAY get cancer when they are older?!
 

Chaggie

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommy2Alysa</b></i>





Holy that is a little ummm.... upsettting shall we say? Making parents feel like they are purposely making their child sick is NOT right. There is only a 25% chance of passing both genes onto your child and therefore giving them CF. I am currently the mother of a two year old with CF and I am pregnant with another CF. (I got preg the month after our daughter was diagnosed at 18 months) I did not get pregnant intentionally just to bring another sick child into this world. I wanted a "healthy, normal" chld but that didnt work as planned and who am I to go to the doctor and say "get rid of it please".. I am not god, I am just a mother hoping to one day find a cure.



Excuse me if I sound a little upset but yes people die from this disease every day but they also die by getting hit by cars, or by cancer... should we stop having children beacuse they MAY get cancer when they are older?!</end quote></div>

There is no ONLY 25% when you are talking about a chronic illness that will eventually kill you early. Yes people may get hit by cars or get cancer, but it's alot greater of chance than 25% that is how you are going to die. With CF we already know what we are going to die from.

Would do something if you knew there was a 25% chance you would die from it?
 

Chaggie

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommy2Alysa</b></i>





Holy that is a little ummm.... upsettting shall we say? Making parents feel like they are purposely making their child sick is NOT right. There is only a 25% chance of passing both genes onto your child and therefore giving them CF. I am currently the mother of a two year old with CF and I am pregnant with another CF. (I got preg the month after our daughter was diagnosed at 18 months) I did not get pregnant intentionally just to bring another sick child into this world. I wanted a "healthy, normal" chld but that didnt work as planned and who am I to go to the doctor and say "get rid of it please".. I am not god, I am just a mother hoping to one day find a cure.



Excuse me if I sound a little upset but yes people die from this disease every day but they also die by getting hit by cars, or by cancer... should we stop having children beacuse they MAY get cancer when they are older?!</end quote></div>

There is no ONLY 25% when you are talking about a chronic illness that will eventually kill you early. Yes people may get hit by cars or get cancer, but it's alot greater of chance than 25% that is how you are going to die. With CF we already know what we are going to die from.

Would do something if you knew there was a 25% chance you would die from it?
 

Chaggie

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommy2Alysa</b></i>





Holy that is a little ummm.... upsettting shall we say? Making parents feel like they are purposely making their child sick is NOT right. There is only a 25% chance of passing both genes onto your child and therefore giving them CF. I am currently the mother of a two year old with CF and I am pregnant with another CF. (I got preg the month after our daughter was diagnosed at 18 months) I did not get pregnant intentionally just to bring another sick child into this world. I wanted a "healthy, normal" chld but that didnt work as planned and who am I to go to the doctor and say "get rid of it please".. I am not god, I am just a mother hoping to one day find a cure.



Excuse me if I sound a little upset but yes people die from this disease every day but they also die by getting hit by cars, or by cancer... should we stop having children beacuse they MAY get cancer when they are older?!</end quote></div>

There is no ONLY 25% when you are talking about a chronic illness that will eventually kill you early. Yes people may get hit by cars or get cancer, but it's alot greater of chance than 25% that is how you are going to die. With CF we already know what we are going to die from.

Would do something if you knew there was a 25% chance you would die from it?
 

Chaggie

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommy2Alysa</b></i>





Holy that is a little ummm.... upsettting shall we say? Making parents feel like they are purposely making their child sick is NOT right. There is only a 25% chance of passing both genes onto your child and therefore giving them CF. I am currently the mother of a two year old with CF and I am pregnant with another CF. (I got preg the month after our daughter was diagnosed at 18 months) I did not get pregnant intentionally just to bring another sick child into this world. I wanted a "healthy, normal" chld but that didnt work as planned and who am I to go to the doctor and say "get rid of it please".. I am not god, I am just a mother hoping to one day find a cure.



Excuse me if I sound a little upset but yes people die from this disease every day but they also die by getting hit by cars, or by cancer... should we stop having children beacuse they MAY get cancer when they are older?!</end quote></div>

There is no ONLY 25% when you are talking about a chronic illness that will eventually kill you early. Yes people may get hit by cars or get cancer, but it's alot greater of chance than 25% that is how you are going to die. With CF we already know what we are going to die from.

Would do something if you knew there was a 25% chance you would die from it?
 

Chaggie

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommy2Alysa</b></i>





Holy that is a little ummm.... upsettting shall we say? Making parents feel like they are purposely making their child sick is NOT right. There is only a 25% chance of passing both genes onto your child and therefore giving them CF. I am currently the mother of a two year old with CF and I am pregnant with another CF. (I got preg the month after our daughter was diagnosed at 18 months) I did not get pregnant intentionally just to bring another sick child into this world. I wanted a "healthy, normal" chld but that didnt work as planned and who am I to go to the doctor and say "get rid of it please".. I am not god, I am just a mother hoping to one day find a cure.



Excuse me if I sound a little upset but yes people die from this disease every day but they also die by getting hit by cars, or by cancer... should we stop having children beacuse they MAY get cancer when they are older?!</end quote>

There is no ONLY 25% when you are talking about a chronic illness that will eventually kill you early. Yes people may get hit by cars or get cancer, but it's alot greater of chance than 25% that is how you are going to die. With CF we already know what we are going to die from.

Would do something if you knew there was a 25% chance you would die from it?
 

Chaggie

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommy2Alysa</b></i>





Holy that is a little ummm.... upsettting shall we say? Making parents feel like they are purposely making their child sick is NOT right. There is only a 25% chance of passing both genes onto your child and therefore giving them CF. I am currently the mother of a two year old with CF and I am pregnant with another CF. (I got preg the month after our daughter was diagnosed at 18 months) I did not get pregnant intentionally just to bring another sick child into this world. I wanted a "healthy, normal" chld but that didnt work as planned and who am I to go to the doctor and say "get rid of it please".. I am not god, I am just a mother hoping to one day find a cure.



Excuse me if I sound a little upset but yes people die from this disease every day but they also die by getting hit by cars, or by cancer... should we stop having children beacuse they MAY get cancer when they are older?!</end quote>

There is no ONLY 25% when you are talking about a chronic illness that will eventually kill you early. Yes people may get hit by cars or get cancer, but it's alot greater of chance than 25% that is how you are going to die. With CF we already know what we are going to die from.

Would do something if you knew there was a 25% chance you would die from it?
 

Mommy2Alysa

New member
The chances and odds of you passing CF onto your child, if both you and your partner are carriers, is ONLY 25%...

I was just trying to mention that Sue's post WAS alittle upsetting and it may have scared a few people who are currently carrying CF children. What do you think we should do.. abort them all?!

Whatever.. pick on me if you want to but I love my kids. Burn me at the stake if you wish for having another child, knowing the risks and hoping for the best.
 

Mommy2Alysa

New member
The chances and odds of you passing CF onto your child, if both you and your partner are carriers, is ONLY 25%...

I was just trying to mention that Sue's post WAS alittle upsetting and it may have scared a few people who are currently carrying CF children. What do you think we should do.. abort them all?!

Whatever.. pick on me if you want to but I love my kids. Burn me at the stake if you wish for having another child, knowing the risks and hoping for the best.
 

Mommy2Alysa

New member
The chances and odds of you passing CF onto your child, if both you and your partner are carriers, is ONLY 25%...

I was just trying to mention that Sue's post WAS alittle upsetting and it may have scared a few people who are currently carrying CF children. What do you think we should do.. abort them all?!

Whatever.. pick on me if you want to but I love my kids. Burn me at the stake if you wish for having another child, knowing the risks and hoping for the best.
 

Mommy2Alysa

New member
The chances and odds of you passing CF onto your child, if both you and your partner are carriers, is ONLY 25%...

I was just trying to mention that Sue's post WAS alittle upsetting and it may have scared a few people who are currently carrying CF children. What do you think we should do.. abort them all?!

Whatever.. pick on me if you want to but I love my kids. Burn me at the stake if you wish for having another child, knowing the risks and hoping for the best.
 

Mommy2Alysa

New member
The chances and odds of you passing CF onto your child, if both you and your partner are carriers, is ONLY 25%...

I was just trying to mention that Sue's post WAS alittle upsetting and it may have scared a few people who are currently carrying CF children. What do you think we should do.. abort them all?!

Whatever.. pick on me if you want to but I love my kids. Burn me at the stake if you wish for having another child, knowing the risks and hoping for the best.
 

Mommy2Alysa

New member
The chances and odds of you passing CF onto your child, if both you and your partner are carriers, is ONLY 25%...

I was just trying to mention that Sue's post WAS alittle upsetting and it may have scared a few people who are currently carrying CF children. What do you think we should do.. abort them all?!

Whatever.. pick on me if you want to but I love my kids. Burn me at the stake if you wish for having another child, knowing the risks and hoping for the best.
 

sue35

New member
I was just saying how I would feel if my parents WILLINGLY chose to get pregnant when they knew the chances. There are so many ways that they could prevent that but they chose to do it anyway. Therefore if I got CF, I would think they willingly gave it to me because they were aware of the risks and did it anyway.

If you can prevent it, I just don't understand why anyone wouldn't choose to prevent it.

The whole getting hit by a car example doesn't really work in this instance because no one can control that. This people can control and choose not to.

I am sorry anyone got upset, I was just saying how I would feel.
 

sue35

New member
I was just saying how I would feel if my parents WILLINGLY chose to get pregnant when they knew the chances. There are so many ways that they could prevent that but they chose to do it anyway. Therefore if I got CF, I would think they willingly gave it to me because they were aware of the risks and did it anyway.

If you can prevent it, I just don't understand why anyone wouldn't choose to prevent it.

The whole getting hit by a car example doesn't really work in this instance because no one can control that. This people can control and choose not to.

I am sorry anyone got upset, I was just saying how I would feel.
 

sue35

New member
I was just saying how I would feel if my parents WILLINGLY chose to get pregnant when they knew the chances. There are so many ways that they could prevent that but they chose to do it anyway. Therefore if I got CF, I would think they willingly gave it to me because they were aware of the risks and did it anyway.

If you can prevent it, I just don't understand why anyone wouldn't choose to prevent it.

The whole getting hit by a car example doesn't really work in this instance because no one can control that. This people can control and choose not to.

I am sorry anyone got upset, I was just saying how I would feel.
 

sue35

New member
I was just saying how I would feel if my parents WILLINGLY chose to get pregnant when they knew the chances. There are so many ways that they could prevent that but they chose to do it anyway. Therefore if I got CF, I would think they willingly gave it to me because they were aware of the risks and did it anyway.

If you can prevent it, I just don't understand why anyone wouldn't choose to prevent it.

The whole getting hit by a car example doesn't really work in this instance because no one can control that. This people can control and choose not to.

I am sorry anyone got upset, I was just saying how I would feel.
 

sue35

New member
I was just saying how I would feel if my parents WILLINGLY chose to get pregnant when they knew the chances. There are so many ways that they could prevent that but they chose to do it anyway. Therefore if I got CF, I would think they willingly gave it to me because they were aware of the risks and did it anyway.

If you can prevent it, I just don't understand why anyone wouldn't choose to prevent it.

The whole getting hit by a car example doesn't really work in this instance because no one can control that. This people can control and choose not to.

I am sorry anyone got upset, I was just saying how I would feel.
 
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