DS started at 2 1/2. The local CF clinic seems to have all their patients on it and I was concerned, had hoped his primary CF doctor would take him off of it, especially with the added expense. But he didn't see a problem with it. Takes about 8-10 minutes and we do it before bed.
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We just started Pulmozyme
- Thread starter carrierae21
- Start date
DS started at 2 1/2. The local CF clinic seems to have all their patients on it and I was concerned, had hoped his primary CF doctor would take him off of it, especially with the added expense. But he didn't see a problem with it. Takes about 8-10 minutes and we do it before bed.
DS started at 2 1/2. The local CF clinic seems to have all their patients on it and I was concerned, had hoped his primary CF doctor would take him off of it, especially with the added expense. But he didn't see a problem with it. Takes about 8-10 minutes and we do it before bed.
DS started at 2 1/2. The local CF clinic seems to have all their patients on it and I was concerned, had hoped his primary CF doctor would take him off of it, especially with the added expense. But he didn't see a problem with it. Takes about 8-10 minutes and we do it before bed.
DS started at 2 1/2. The local CF clinic seems to have all their patients on it and I was concerned, had hoped his primary CF doctor would take him off of it, especially with the added expense. But he didn't see a problem with it. Takes about 8-10 minutes and we do it before bed.
SARAHSARAH253
New member
Hi there, Our son started at 6 months old...He is now 13 months...So, it's been over half a year. It was hard at first.....We started off having his neb. in his bedroom, but it became more of a chore to go upstairs and do it alone...Plus it was more of a battle...Now we do it on the couch my husband hold the back of his neck and the mask to his face...I sing songs, put toys out for him to touch...We have got into a really good system of working together to get it done. We do it every night before bed..We only are doing it once a day..There are still some nights when our baby fights it, and gets upset..It kills me inside...But, we calm him down and try some more...I would just encourage you to save some special toys just for nebs....My son loves his "See and Say Pull Toy"...It gets us through an entire treatment..but we only play with it during nebs..
Best of Luck,
Sarah
Mommy to Johnny 1 years old w/cf born 8/17/07
Best of Luck,
Sarah
Mommy to Johnny 1 years old w/cf born 8/17/07
SARAHSARAH253
New member
Hi there, Our son started at 6 months old...He is now 13 months...So, it's been over half a year. It was hard at first.....We started off having his neb. in his bedroom, but it became more of a chore to go upstairs and do it alone...Plus it was more of a battle...Now we do it on the couch my husband hold the back of his neck and the mask to his face...I sing songs, put toys out for him to touch...We have got into a really good system of working together to get it done. We do it every night before bed..We only are doing it once a day..There are still some nights when our baby fights it, and gets upset..It kills me inside...But, we calm him down and try some more...I would just encourage you to save some special toys just for nebs....My son loves his "See and Say Pull Toy"...It gets us through an entire treatment..but we only play with it during nebs..
Best of Luck,
Sarah
Mommy to Johnny 1 years old w/cf born 8/17/07
Best of Luck,
Sarah
Mommy to Johnny 1 years old w/cf born 8/17/07
SARAHSARAH253
New member
Hi there, Our son started at 6 months old...He is now 13 months...So, it's been over half a year. It was hard at first.....We started off having his neb. in his bedroom, but it became more of a chore to go upstairs and do it alone...Plus it was more of a battle...Now we do it on the couch my husband hold the back of his neck and the mask to his face...I sing songs, put toys out for him to touch...We have got into a really good system of working together to get it done. We do it every night before bed..We only are doing it once a day..There are still some nights when our baby fights it, and gets upset..It kills me inside...But, we calm him down and try some more...I would just encourage you to save some special toys just for nebs....My son loves his "See and Say Pull Toy"...It gets us through an entire treatment..but we only play with it during nebs..
Best of Luck,
Sarah
Mommy to Johnny 1 years old w/cf born 8/17/07
Best of Luck,
Sarah
Mommy to Johnny 1 years old w/cf born 8/17/07
SARAHSARAH253
New member
Hi there, Our son started at 6 months old...He is now 13 months...So, it's been over half a year. It was hard at first.....We started off having his neb. in his bedroom, but it became more of a chore to go upstairs and do it alone...Plus it was more of a battle...Now we do it on the couch my husband hold the back of his neck and the mask to his face...I sing songs, put toys out for him to touch...We have got into a really good system of working together to get it done. We do it every night before bed..We only are doing it once a day..There are still some nights when our baby fights it, and gets upset..It kills me inside...But, we calm him down and try some more...I would just encourage you to save some special toys just for nebs....My son loves his "See and Say Pull Toy"...It gets us through an entire treatment..but we only play with it during nebs..
Best of Luck,
Sarah
Mommy to Johnny 1 years old w/cf born 8/17/07
Best of Luck,
Sarah
Mommy to Johnny 1 years old w/cf born 8/17/07
SARAHSARAH253
New member
Hi there, Our son started at 6 months old...He is now 13 months...So, it's been over half a year. It was hard at first.....We started off having his neb. in his bedroom, but it became more of a chore to go upstairs and do it alone...Plus it was more of a battle...Now we do it on the couch my husband hold the back of his neck and the mask to his face...I sing songs, put toys out for him to touch...We have got into a really good system of working together to get it done. We do it every night before bed..We only are doing it once a day..There are still some nights when our baby fights it, and gets upset..It kills me inside...But, we calm him down and try some more...I would just encourage you to save some special toys just for nebs....My son loves his "See and Say Pull Toy"...It gets us through an entire treatment..but we only play with it during nebs..
<br />
<br />Best of Luck,
<br />
<br />Sarah
<br />
<br />Mommy to Johnny 1 years old w/cf born 8/17/07
<br />
<br />Best of Luck,
<br />
<br />Sarah
<br />
<br />Mommy to Johnny 1 years old w/cf born 8/17/07
Logan was started on it with the diagnosis at 4 months old. I just thought it was part of everything and that he needed it. He is now 14 months old and has been on it daily sometimes twice a day when he is sick. Is this a bad thing? Should they take breaks from certain meds? Gosh there is so much to learn
Logan was started on it with the diagnosis at 4 months old. I just thought it was part of everything and that he needed it. He is now 14 months old and has been on it daily sometimes twice a day when he is sick. Is this a bad thing? Should they take breaks from certain meds? Gosh there is so much to learn
Logan was started on it with the diagnosis at 4 months old. I just thought it was part of everything and that he needed it. He is now 14 months old and has been on it daily sometimes twice a day when he is sick. Is this a bad thing? Should they take breaks from certain meds? Gosh there is so much to learn
Logan was started on it with the diagnosis at 4 months old. I just thought it was part of everything and that he needed it. He is now 14 months old and has been on it daily sometimes twice a day when he is sick. Is this a bad thing? Should they take breaks from certain meds? Gosh there is so much to learn
Logan was started on it with the diagnosis at 4 months old. I just thought it was part of everything and that he needed it. He is now 14 months old and has been on it daily sometimes twice a day when he is sick. Is this a bad thing? Should they take breaks from certain meds? Gosh there is so much to learn