Lance2020x
New member
I don't know if this has been posted yet, I looked a ways back and couldn't find one, so here goes.
<br><br>
I'de love to know what everybody takes daily for meds/therapies. Amounts, etc. I've not known anybody else with CF aside from my brother, so I don't know what is average and what is not.
<br><br>
Here is what I take:<br><br>
-10 Creon20 capsules with each meal<br><br>
-4ml of the 10%+0.9 Sodium Chloride mixture inhaler twice a day before tharapy (I just started it about two weeks ago, I would HIGHLY suggest it to anyone for help with airway clearance)<br><br>
-2 puffs Albutorol twice a day before each tharapy session<br><br>
-the Flutter valve twice a day after the Sodum Chloride and Albuterol<br><br>
-2 puffs Flovent twice a day after Flutter valve<br><br>
-Tobi inhaler twice a day (after Flutter) one month on, one month off<br><br>
-Azythromicin Mon, Wed and Fri<br><br>
-Doxycyclin twice a day<br><br>
If I get sick they usually put me on Bactrum(sp) DS for about a week and a half to wipe out the infection<br><br>
I participate in the Creon 'More Extra Helpings' program (which I would also REALLY strongly recommend tp ANYONE trying to gain weight) so they send me a month supply of CFSource mutivitamin gels and 560calorie canned drinks every month for using Creon.<br><br>
I am now in the process of getting a Vest again (I used one when I was little, it's been awhile) so I can use that WITH my Flutter valve.<br><br>
I am 5'11, 180 pounds, and my PFT's are currently 115%<br><br>
EDIT: When I do the Flutter I do 10 soft blows, followed by 3 hard blows and puffs. Then repeat for three sets. Then I do 3 hard blows and 3 puffs two or three more times, or until my head hurts
<br><br>
I'de love to know what everybody takes daily for meds/therapies. Amounts, etc. I've not known anybody else with CF aside from my brother, so I don't know what is average and what is not.
<br><br>
Here is what I take:<br><br>
-10 Creon20 capsules with each meal<br><br>
-4ml of the 10%+0.9 Sodium Chloride mixture inhaler twice a day before tharapy (I just started it about two weeks ago, I would HIGHLY suggest it to anyone for help with airway clearance)<br><br>
-2 puffs Albutorol twice a day before each tharapy session<br><br>
-the Flutter valve twice a day after the Sodum Chloride and Albuterol<br><br>
-2 puffs Flovent twice a day after Flutter valve<br><br>
-Tobi inhaler twice a day (after Flutter) one month on, one month off<br><br>
-Azythromicin Mon, Wed and Fri<br><br>
-Doxycyclin twice a day<br><br>
If I get sick they usually put me on Bactrum(sp) DS for about a week and a half to wipe out the infection<br><br>
I participate in the Creon 'More Extra Helpings' program (which I would also REALLY strongly recommend tp ANYONE trying to gain weight) so they send me a month supply of CFSource mutivitamin gels and 560calorie canned drinks every month for using Creon.<br><br>
I am now in the process of getting a Vest again (I used one when I was little, it's been awhile) so I can use that WITH my Flutter valve.<br><br>
I am 5'11, 180 pounds, and my PFT's are currently 115%<br><br>
EDIT: When I do the Flutter I do 10 soft blows, followed by 3 hard blows and puffs. Then repeat for three sets. Then I do 3 hard blows and 3 puffs two or three more times, or until my head hurts