What do you take?

L

Lance2020x

New member
I don't know if this has been posted yet, I looked a ways back and couldn't find one, so here goes.
<br><br>
I'de love to know what everybody takes daily for meds/therapies. Amounts, etc. I've not known anybody else with CF aside from my brother, so I don't know what is average and what is not.
<br><br>
Here is what I take:<br><br>
-10 Creon20 capsules with each meal<br><br>
-4ml of the 10%+0.9 Sodium Chloride mixture inhaler twice a day before tharapy (I just started it about two weeks ago, I would HIGHLY suggest it to anyone for help with airway clearance)<br><br>
-2 puffs Albutorol twice a day before each tharapy session<br><br>
-the Flutter valve twice a day after the Sodum Chloride and Albuterol<br><br>
-2 puffs Flovent twice a day after Flutter valve<br><br>
-Tobi inhaler twice a day (after Flutter) one month on, one month off<br><br>
-Azythromicin Mon, Wed and Fri<br><br>
-Doxycyclin twice a day<br><br>
If I get sick they usually put me on Bactrum(sp) DS for about a week and a half to wipe out the infection<br><br>

I participate in the Creon 'More Extra Helpings' program (which I would also REALLY strongly recommend tp ANYONE trying to gain weight) so they send me a month supply of CFSource mutivitamin gels and 560calorie canned drinks every month for using Creon.<br><br>

I am now in the process of getting a Vest again (I used one when I was little, it's been awhile) so I can use that WITH my Flutter valve.<br><br>

I am 5'11, 180 pounds, and my PFT's are currently 115%<br><br>

EDIT: When I do the Flutter I do 10 soft blows, followed by 3 hard blows and puffs. Then repeat for three sets. Then I do 3 hard blows and 3 puffs two or three more times, or until my head hurts :p
 
L

Lance2020x

New member
I don't know if this has been posted yet, I looked a ways back and couldn't find one, so here goes.
<br><br>
I'de love to know what everybody takes daily for meds/therapies. Amounts, etc. I've not known anybody else with CF aside from my brother, so I don't know what is average and what is not.
<br><br>
Here is what I take:<br><br>
-10 Creon20 capsules with each meal<br><br>
-4ml of the 10%+0.9 Sodium Chloride mixture inhaler twice a day before tharapy (I just started it about two weeks ago, I would HIGHLY suggest it to anyone for help with airway clearance)<br><br>
-2 puffs Albutorol twice a day before each tharapy session<br><br>
-the Flutter valve twice a day after the Sodum Chloride and Albuterol<br><br>
-2 puffs Flovent twice a day after Flutter valve<br><br>
-Tobi inhaler twice a day (after Flutter) one month on, one month off<br><br>
-Azythromicin Mon, Wed and Fri<br><br>
-Doxycyclin twice a day<br><br>
If I get sick they usually put me on Bactrum(sp) DS for about a week and a half to wipe out the infection<br><br>

I participate in the Creon 'More Extra Helpings' program (which I would also REALLY strongly recommend tp ANYONE trying to gain weight) so they send me a month supply of CFSource mutivitamin gels and 560calorie canned drinks every month for using Creon.<br><br>

I am now in the process of getting a Vest again (I used one when I was little, it's been awhile) so I can use that WITH my Flutter valve.<br><br>

I am 5'11, 180 pounds, and my PFT's are currently 115%<br><br>

EDIT: When I do the Flutter I do 10 soft blows, followed by 3 hard blows and puffs. Then repeat for three sets. Then I do 3 hard blows and 3 puffs two or three more times, or until my head hurts :p
 
L

Lance2020x

New member
I don't know if this has been posted yet, I looked a ways back and couldn't find one, so here goes.
<br><br>
I'de love to know what everybody takes daily for meds/therapies. Amounts, etc. I've not known anybody else with CF aside from my brother, so I don't know what is average and what is not.
<br><br>
Here is what I take:<br><br>
-10 Creon20 capsules with each meal<br><br>
-4ml of the 10%+0.9 Sodium Chloride mixture inhaler twice a day before tharapy (I just started it about two weeks ago, I would HIGHLY suggest it to anyone for help with airway clearance)<br><br>
-2 puffs Albutorol twice a day before each tharapy session<br><br>
-the Flutter valve twice a day after the Sodum Chloride and Albuterol<br><br>
-2 puffs Flovent twice a day after Flutter valve<br><br>
-Tobi inhaler twice a day (after Flutter) one month on, one month off<br><br>
-Azythromicin Mon, Wed and Fri<br><br>
-Doxycyclin twice a day<br><br>
If I get sick they usually put me on Bactrum(sp) DS for about a week and a half to wipe out the infection<br><br>

I participate in the Creon 'More Extra Helpings' program (which I would also REALLY strongly recommend tp ANYONE trying to gain weight) so they send me a month supply of CFSource mutivitamin gels and 560calorie canned drinks every month for using Creon.<br><br>

I am now in the process of getting a Vest again (I used one when I was little, it's been awhile) so I can use that WITH my Flutter valve.<br><br>

I am 5'11, 180 pounds, and my PFT's are currently 115%<br><br>

EDIT: When I do the Flutter I do 10 soft blows, followed by 3 hard blows and puffs. Then repeat for three sets. Then I do 3 hard blows and 3 puffs two or three more times, or until my head hurts :p
 
S

Seana30

New member
Courtney has had very few lung issues so most of her meds are for the digestion issues.

She is 14 years old, is 5 feet 3 1/2 inches tall, weighs 85 pounds, and her last PFT's were 103%.

Her meds are:

Ultrace MT20's 6 with meals 4 with snacks

Ursodiol 300MG twice daily (this med is for her gallbladder)

Vitamax twice daily

Flowvent 44mcg two puffs twice daily

Albuterol two puffs as needed

Achipex 20mg one tablet twice daily

She has the albuterol for the neb, but that is used as needed and (keeping fingers crossed) she does not need it often.

She is suppose to use the flutter daily, but I have given up trying to force her to use it!!


Seana
 
S

Seana30

New member
Courtney has had very few lung issues so most of her meds are for the digestion issues.

She is 14 years old, is 5 feet 3 1/2 inches tall, weighs 85 pounds, and her last PFT's were 103%.

Her meds are:

Ultrace MT20's 6 with meals 4 with snacks

Ursodiol 300MG twice daily (this med is for her gallbladder)

Vitamax twice daily

Flowvent 44mcg two puffs twice daily

Albuterol two puffs as needed

Achipex 20mg one tablet twice daily

She has the albuterol for the neb, but that is used as needed and (keeping fingers crossed) she does not need it often.

She is suppose to use the flutter daily, but I have given up trying to force her to use it!!


Seana
 
S

Seana30

New member
Courtney has had very few lung issues so most of her meds are for the digestion issues.

She is 14 years old, is 5 feet 3 1/2 inches tall, weighs 85 pounds, and her last PFT's were 103%.

Her meds are:

Ultrace MT20's 6 with meals 4 with snacks

Ursodiol 300MG twice daily (this med is for her gallbladder)

Vitamax twice daily

Flowvent 44mcg two puffs twice daily

Albuterol two puffs as needed

Achipex 20mg one tablet twice daily

She has the albuterol for the neb, but that is used as needed and (keeping fingers crossed) she does not need it often.

She is suppose to use the flutter daily, but I have given up trying to force her to use it!!


Seana
 
M

mum2kj

New member
wow thats a lot of stuff <img src="i/expressions/face-icon-small-smile.gif" border="0">

My daughter is on

creon forte - 3 with meals 2 with snacks
seretide 2 puffs twice daily
2 VITABDECK twice daily
75mg of zantac twice daily
Augmentin duo forte, 1 tablet twice daily, permanently
Garlic tablet twice daily
port flushes once a month
* She usually grows staph.*
she uses the flutter and exercises before flutter twice daily.
with flutter she blows 10 times, 2huffs, cough and repeated 12 times.
She uses the exercise bike and elyptical and the fitness ball for exercise.
 
M

mum2kj

New member
wow thats a lot of stuff <img src="i/expressions/face-icon-small-smile.gif" border="0">

My daughter is on

creon forte - 3 with meals 2 with snacks
seretide 2 puffs twice daily
2 VITABDECK twice daily
75mg of zantac twice daily
Augmentin duo forte, 1 tablet twice daily, permanently
Garlic tablet twice daily
port flushes once a month
* She usually grows staph.*
she uses the flutter and exercises before flutter twice daily.
with flutter she blows 10 times, 2huffs, cough and repeated 12 times.
She uses the exercise bike and elyptical and the fitness ball for exercise.
 
M

mum2kj

New member
wow thats a lot of stuff <img src="i/expressions/face-icon-small-smile.gif" border="0">

My daughter is on

creon forte - 3 with meals 2 with snacks
seretide 2 puffs twice daily
2 VITABDECK twice daily
75mg of zantac twice daily
Augmentin duo forte, 1 tablet twice daily, permanently
Garlic tablet twice daily
port flushes once a month
* She usually grows staph.*
she uses the flutter and exercises before flutter twice daily.
with flutter she blows 10 times, 2huffs, cough and repeated 12 times.
She uses the exercise bike and elyptical and the fitness ball for exercise.
 
R

relat

New member
Lance2020x,

please could you give me more infos about the Creon 'More Extra Helpings' program ?you have a site or something?my brother takes creon too,that's why i ask.



relat,27,having brother 26,w/cf
 
R

relat

New member
Lance2020x,

please could you give me more infos about the Creon 'More Extra Helpings' program ?you have a site or something?my brother takes creon too,that's why i ask.



relat,27,having brother 26,w/cf
 
R

relat

New member
Lance2020x,

please could you give me more infos about the Creon 'More Extra Helpings' program ?you have a site or something?my brother takes creon too,that's why i ask.



relat,27,having brother 26,w/cf
 
J

Jennifer1981

New member
Albuterol Solution BID
Pulmozyme BID
Hypertonic Saline BID
Vest BID
Pancrecarb MS-16 - 6 meals, 3-4 snacks
Prilosec OTC BID
Ursodiol 300 mg BID
Slow FE QD
Prenatal Vitamin TID

QD - once daily
BID - twice daily
TID - three times daily
 
J

Jennifer1981

New member
Albuterol Solution BID
Pulmozyme BID
Hypertonic Saline BID
Vest BID
Pancrecarb MS-16 - 6 meals, 3-4 snacks
Prilosec OTC BID
Ursodiol 300 mg BID
Slow FE QD
Prenatal Vitamin TID

QD - once daily
BID - twice daily
TID - three times daily
 
J

Jennifer1981

New member
Albuterol Solution BID
Pulmozyme BID
Hypertonic Saline BID
Vest BID
Pancrecarb MS-16 - 6 meals, 3-4 snacks
Prilosec OTC BID
Ursodiol 300 mg BID
Slow FE QD
Prenatal Vitamin TID

QD - once daily
BID - twice daily
TID - three times daily
 
L

Lance2020x

New member
Sure thing! I actually used to take UltraceMT20 until I was told about this program, it's the reason I switched to Creon and I've never once considered switching back! (I can't stand Scandyshakes).



Well my doctors are the ones who told me about it, and they gave me a little info slip to fill out and send off to them, so I would ask them for that.

But the companies name is Solvay Pharmaceuticals (www.SolvayCares.com).
<br><br>

<b>EDIT:</b> Okay I just went to the website for the first time. THIS is the form that I fill out every month and send to them: <br>http://www.solvaypharmaceuticals-us.com/static/wma/pdf/4/0/8/0/EH_CouponBk.pdf
<br>
When ever I get a box of drinks and vitamins there is another form inside the box. That website should have all the info you need! Good luck!
 
L

Lance2020x

New member
Sure thing! I actually used to take UltraceMT20 until I was told about this program, it's the reason I switched to Creon and I've never once considered switching back! (I can't stand Scandyshakes).



Well my doctors are the ones who told me about it, and they gave me a little info slip to fill out and send off to them, so I would ask them for that.

But the companies name is Solvay Pharmaceuticals (www.SolvayCares.com).
<br><br>

<b>EDIT:</b> Okay I just went to the website for the first time. THIS is the form that I fill out every month and send to them: <br>http://www.solvaypharmaceuticals-us.com/static/wma/pdf/4/0/8/0/EH_CouponBk.pdf
<br>
When ever I get a box of drinks and vitamins there is another form inside the box. That website should have all the info you need! Good luck!
 
L

Lance2020x

New member
Sure thing! I actually used to take UltraceMT20 until I was told about this program, it's the reason I switched to Creon and I've never once considered switching back! (I can't stand Scandyshakes).



Well my doctors are the ones who told me about it, and they gave me a little info slip to fill out and send off to them, so I would ask them for that.

But the companies name is Solvay Pharmaceuticals (www.SolvayCares.com).
<br><br>

<b>EDIT:</b> Okay I just went to the website for the first time. THIS is the form that I fill out every month and send to them: <br>http://www.solvaypharmaceuticals-us.com/static/wma/pdf/4/0/8/0/EH_CouponBk.pdf
<br>
When ever I get a box of drinks and vitamins there is another form inside the box. That website should have all the info you need! Good luck!
 
C

Chad

New member
Pills

Ecs 8's Cotazyms - 6 w/meals 4 w/snacks
Losec
ADEK
Zithromax

Puffers and Inhalations

Ventoling Puffer
Pulmicort Puffer
Tobramycin Inhalation
Ventolin Inhalation
Pulmozyme
Oxeze
Saline
Supposed to take Pulmozyme too but never do (I hope my doctor doesnt read this lol)

Typical oral antibiotic treatments

Ciprofloxicin
Zithomax (increase dosage)

Usual IV Meds that work

Meropenum
Ceftazadime
Tazocin
Tobramycin
Piptaz

Pain meds:

Naproxen
Percocet

Hopefully I think I got them all. Im actually thinking of having a business card printed up with all these on it since im tired of telling ER doctors the list, dosages and spellings, AND some ER doctors dont even know what half of them are.
 
C

Chad

New member
Pills

Ecs 8's Cotazyms - 6 w/meals 4 w/snacks
Losec
ADEK
Zithromax

Puffers and Inhalations

Ventoling Puffer
Pulmicort Puffer
Tobramycin Inhalation
Ventolin Inhalation
Pulmozyme
Oxeze
Saline
Supposed to take Pulmozyme too but never do (I hope my doctor doesnt read this lol)

Typical oral antibiotic treatments

Ciprofloxicin
Zithomax (increase dosage)

Usual IV Meds that work

Meropenum
Ceftazadime
Tazocin
Tobramycin
Piptaz

Pain meds:

Naproxen
Percocet

Hopefully I think I got them all. Im actually thinking of having a business card printed up with all these on it since im tired of telling ER doctors the list, dosages and spellings, AND some ER doctors dont even know what half of them are.
 
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