What do you take?

[Chad]

Pills

Ecs 8's Cotazyms - 6 w/meals 4 w/snacks
Losec
ADEK
Zithromax

Puffers and Inhalations

Ventoling Puffer
Pulmicort Puffer
Tobramycin Inhalation
Ventolin Inhalation
Pulmozyme
Oxeze
Saline
Supposed to take Pulmozyme too but never do (I hope my doctor doesnt read this lol)

Typical oral antibiotic treatments

Ciprofloxicin
Zithomax (increase dosage)

Usual IV Meds that work

Meropenum
Ceftazadime
Tazocin
Tobramycin
Piptaz

Pain meds:

Naproxen
Percocet

Hopefully I think I got them all. Im actually thinking of having a business card printed up with all these on it since im tired of telling ER doctors the list, dosages and spellings, AND some ER doctors dont even know what half of them are.

 

[wanderlost]

Creon 20 - 5 with meals (just upped this from 4)
albuterol - 2 puffs twice a day
advair 250 - one puff twice a day
hypertonic saline - nebbed 4ml once a day (but I don't do it every day like I should)
Vest - 20 min twice a day

 

[wanderlost]

Creon 20 - 5 with meals (just upped this from 4)
albuterol - 2 puffs twice a day
advair 250 - one puff twice a day
hypertonic saline - nebbed 4ml once a day (but I don't do it every day like I should)
Vest - 20 min twice a day

 

[wanderlost]

Creon 20 - 5 with meals (just upped this from 4)
albuterol - 2 puffs twice a day
advair 250 - one puff twice a day
hypertonic saline - nebbed 4ml once a day (but I don't do it every day like I should)
Vest - 20 min twice a day

 

[Lance2020x]

Haha! Yeah I've thought about that too.<br>
Are Cozasymes an Enzyme supplement? I've never even heard of it.<br>
And what are Ventoling and Pulmicort for?

 

[Lance2020x]

Haha! Yeah I've thought about that too.<br>
Are Cozasymes an Enzyme supplement? I've never even heard of it.<br>
And what are Ventoling and Pulmicort for?

 

[Lance2020x]

Haha! Yeah I've thought about that too.<br>
Are Cozasymes an Enzyme supplement? I've never even heard of it.<br>
And what are Ventoling and Pulmicort for?

 

[catboogie]

hypertonic saline 10% mixed with albuterol AQ -- 2 times a day with vest
pulmozyme -- once a day

Advair 500/50 -- twice a day
flonase -- twice a day

humalog insulin with meals and 18units of lantis before bed

pancrease MT 20s -- 4-5 with meals
zithromax 110? -- one daily
allegra
singulair
valtrex
singulair

vitamins
lysine
omega-3 fish oil
vitamin B complex
vitamin C

that is it, although i play around with my suppliments a bit...

i am currently on augmentin, cipro and tobi for an exacerbation.

 

[catboogie]

hypertonic saline 10% mixed with albuterol AQ -- 2 times a day with vest
pulmozyme -- once a day

Advair 500/50 -- twice a day
flonase -- twice a day

humalog insulin with meals and 18units of lantis before bed

pancrease MT 20s -- 4-5 with meals
zithromax 110? -- one daily
allegra
singulair
valtrex
singulair

vitamins
lysine
omega-3 fish oil
vitamin B complex
vitamin C

that is it, although i play around with my suppliments a bit...

i am currently on augmentin, cipro and tobi for an exacerbation.

 

[catboogie]

hypertonic saline 10% mixed with albuterol AQ -- 2 times a day with vest
pulmozyme -- once a day

Advair 500/50 -- twice a day
flonase -- twice a day

humalog insulin with meals and 18units of lantis before bed

pancrease MT 20s -- 4-5 with meals
zithromax 110? -- one daily
allegra
singulair
valtrex
singulair

vitamins
lysine
omega-3 fish oil
vitamin B complex
vitamin C

that is it, although i play around with my suppliments a bit...

i am currently on augmentin, cipro and tobi for an exacerbation.

 

[Ender]

Hypertonic saline 5% twice daily (supposedly)
Zithromax 250 mg daily (supposedly)
Tobramycin 80 mg twice daily
Ventolin 1 ml twice daily (makes me shake)
Pulmicort 200 mcg twice daily

vitamins
adeks
folic acid
dha
pomegranate extract
coleus forskholli (sp)
NAC
GSH
Oregano oil (on a lil break)

soon:
Taurine
glutamine
cq10+carnatine
arganine(i thought it was messing with my BS's but i think it was the cinnamon)
strong probiotics
OPC's (pine bark extract)

 

[Ender]

Hypertonic saline 5% twice daily (supposedly)
Zithromax 250 mg daily (supposedly)
Tobramycin 80 mg twice daily
Ventolin 1 ml twice daily (makes me shake)
Pulmicort 200 mcg twice daily

vitamins
adeks
folic acid
dha
pomegranate extract
coleus forskholli (sp)
NAC
GSH
Oregano oil (on a lil break)

soon:
Taurine
glutamine
cq10+carnatine
arganine(i thought it was messing with my BS's but i think it was the cinnamon)
strong probiotics
OPC's (pine bark extract)

 

[Ender]

Hypertonic saline 5% twice daily (supposedly)
Zithromax 250 mg daily (supposedly)
Tobramycin 80 mg twice daily
Ventolin 1 ml twice daily (makes me shake)
Pulmicort 200 mcg twice daily

vitamins
adeks
folic acid
dha
pomegranate extract
coleus forskholli (sp)
NAC
GSH
Oregano oil (on a lil break)

soon:
Taurine
glutamine
cq10+carnatine
arganine(i thought it was messing with my BS's but i think it was the cinnamon)
strong probiotics
OPC's (pine bark extract)

 

[wuffles]

Hrmm, I don't take much.

Creon Forte 2 with meals, 1 with snacks
Symbicort 200/6 1 puff twice a day
Bricanyl as needed, a few times a week
Rhinocort/Nasonex/whichever nasal spray I feel like buying once a day
FESS saline nasal spray twice a day
Meant to use PEP twice a day...

Plus...
Multivitamins
Garlic, Horseradish and C
Vitamin D

I'm 5'9, 130 pounds, FEV1 94%.

 

[wuffles]

Hrmm, I don't take much.

Creon Forte 2 with meals, 1 with snacks
Symbicort 200/6 1 puff twice a day
Bricanyl as needed, a few times a week
Rhinocort/Nasonex/whichever nasal spray I feel like buying once a day
FESS saline nasal spray twice a day
Meant to use PEP twice a day...

Plus...
Multivitamins
Garlic, Horseradish and C
Vitamin D

I'm 5'9, 130 pounds, FEV1 94%.

 

[wuffles]

Hrmm, I don't take much.

Creon Forte 2 with meals, 1 with snacks
Symbicort 200/6 1 puff twice a day
Bricanyl as needed, a few times a week
Rhinocort/Nasonex/whichever nasal spray I feel like buying once a day
FESS saline nasal spray twice a day
Meant to use PEP twice a day...

Plus...
Multivitamins
Garlic, Horseradish and C
Vitamin D

I'm 5'9, 130 pounds, FEV1 94%.

 

[Mandi1404]

Ultrase MT 20-4 with meals, 3 with snacks and overnight feeds
Cozaar-once a day(kidney disease and blood pressure)
Zithromax-MWF once a day
Claritine-once a day
Vitamin A-Once a day
Iron-Once a day(suppose to be twice but I only take it once)
Maxair inhaler
Flovent inhaler
Spivera(spelled something like that) inhaler
Advair inhaler
Tobi Neb-Every other month, twice a day
Colistine-every other month(switch with Tobi), twice a day
Pulmozyme-once a day
Peptamin 1.5-4 cans over night via g-tube
Vitamax-4 cc at night via g-tube
Humolog 75/25-6 units at night with feeds
Humolog-Suppose to take with meals but I dont
Vest-twice a day
Port flush once a month
Oxygen as needed


I think that might be in....

 

[Mandi1404]

Ultrase MT 20-4 with meals, 3 with snacks and overnight feeds
Cozaar-once a day(kidney disease and blood pressure)
Zithromax-MWF once a day
Claritine-once a day
Vitamin A-Once a day
Iron-Once a day(suppose to be twice but I only take it once)
Maxair inhaler
Flovent inhaler
Spivera(spelled something like that) inhaler
Advair inhaler
Tobi Neb-Every other month, twice a day
Colistine-every other month(switch with Tobi), twice a day
Pulmozyme-once a day
Peptamin 1.5-4 cans over night via g-tube
Vitamax-4 cc at night via g-tube
Humolog 75/25-6 units at night with feeds
Humolog-Suppose to take with meals but I dont
Vest-twice a day
Port flush once a month
Oxygen as needed


I think that might be in....

 

[Mandi1404]

Ultrase MT 20-4 with meals, 3 with snacks and overnight feeds
Cozaar-once a day(kidney disease and blood pressure)
Zithromax-MWF once a day
Claritine-once a day
Vitamin A-Once a day
Iron-Once a day(suppose to be twice but I only take it once)
Maxair inhaler
Flovent inhaler
Spivera(spelled something like that) inhaler
Advair inhaler
Tobi Neb-Every other month, twice a day
Colistine-every other month(switch with Tobi), twice a day
Pulmozyme-once a day
Peptamin 1.5-4 cans over night via g-tube
Vitamax-4 cc at night via g-tube
Humolog 75/25-6 units at night with feeds
Humolog-Suppose to take with meals but I dont
Vest-twice a day
Port flush once a month
Oxygen as needed


I think that might be in....

 

[JazzysMom]

Albeuterol nebs twice daily (more if needed)
Pulmicort nebs twice daily
Pulmozyme once daily
Tobi or Colistin twice daily (alternating them monthly)
Advair twice daily
Ultrase MT 12 enzymes (2 with snack, 4 with meals)
ABDEK twice daily
Calcium with Vitamin D twice daily
Vitamin K 10 mg twice daily
Nexium 40mg once daily
Bactrim DS twice daily
Zithromax M-W-F
Phenobarbital 60mg/am 90mg/pm (not CF related)
Iron 325 daily (havent been taking since calcium started....binds me up)
Vest twice daily

O2 when needed (has been awhile)
Calorie shakes 2 or more daily