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What do you take?
- Thread starter Lance2020x
- Start date
kayleesgrandma
New member
This is an excellent thread! Especially for me, as Kaylee isn't on a lot of things yet, but it is good to see what is working for those of you.
Ultrase 2-3 with meals, 1 with snack.
Adecks--1 pill 2X/day
Albuteral inhaler--2 puffs 2x/DAY
A steriod that I can't remember--2 puffs 2x/DAY
Albuterol nebs before vest 2X/day, as needed
Thank you all for sharing.
Ultrase 2-3 with meals, 1 with snack.
Adecks--1 pill 2X/day
Albuteral inhaler--2 puffs 2x/DAY
A steriod that I can't remember--2 puffs 2x/DAY
Albuterol nebs before vest 2X/day, as needed
Thank you all for sharing.
kayleesgrandma
New member
This is an excellent thread! Especially for me, as Kaylee isn't on a lot of things yet, but it is good to see what is working for those of you.
Ultrase 2-3 with meals, 1 with snack.
Adecks--1 pill 2X/day
Albuteral inhaler--2 puffs 2x/DAY
A steriod that I can't remember--2 puffs 2x/DAY
Albuterol nebs before vest 2X/day, as needed
Thank you all for sharing.
Ultrase 2-3 with meals, 1 with snack.
Adecks--1 pill 2X/day
Albuteral inhaler--2 puffs 2x/DAY
A steriod that I can't remember--2 puffs 2x/DAY
Albuterol nebs before vest 2X/day, as needed
Thank you all for sharing.
kayleesgrandma
New member
This is an excellent thread! Especially for me, as Kaylee isn't on a lot of things yet, but it is good to see what is working for those of you.
Ultrase 2-3 with meals, 1 with snack.
Adecks--1 pill 2X/day
Albuteral inhaler--2 puffs 2x/DAY
A steriod that I can't remember--2 puffs 2x/DAY
Albuterol nebs before vest 2X/day, as needed
Thank you all for sharing.
Ultrase 2-3 with meals, 1 with snack.
Adecks--1 pill 2X/day
Albuteral inhaler--2 puffs 2x/DAY
A steriod that I can't remember--2 puffs 2x/DAY
Albuterol nebs before vest 2X/day, as needed
Thank you all for sharing.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Lance2020x</b></i>
I've noticed that the average dosage of Enzymes seems to be between 3-5. This is really confusing to me. I take 10 Creon20 with EACH MEAL. Before I switched to Creon I took 10-11 UltraceMT20's, and still sometimes 10 is not enough... do you think my CF affect my digestion stronger than most, or am I missing something?
I've always had VERY strong lungs, but I've had stomach problems for years, whereas my brother has always had a rock solid digestion, but has very weak lungs.
I know nothing about the different mutations of CF and such, I just assumed that it affect each person differently. Does anybody have any oppinions on these things?</end quote></div>
I am the exact same way. I see most people take a lot less then i do, but it has always been that way for me. I take around 10 ecs 20's with each meal. I don't know how to explain it, and the doctors think it's probably too much, but we do what works for us right? I can tell you one thing though, since starting gsh my digestion has gotten a lot better. Maybe it has something to do with other cofactors involved in our digestion that we are missing out of. Who knows..
Kiel
I've noticed that the average dosage of Enzymes seems to be between 3-5. This is really confusing to me. I take 10 Creon20 with EACH MEAL. Before I switched to Creon I took 10-11 UltraceMT20's, and still sometimes 10 is not enough... do you think my CF affect my digestion stronger than most, or am I missing something?
I've always had VERY strong lungs, but I've had stomach problems for years, whereas my brother has always had a rock solid digestion, but has very weak lungs.
I know nothing about the different mutations of CF and such, I just assumed that it affect each person differently. Does anybody have any oppinions on these things?</end quote></div>
I am the exact same way. I see most people take a lot less then i do, but it has always been that way for me. I take around 10 ecs 20's with each meal. I don't know how to explain it, and the doctors think it's probably too much, but we do what works for us right? I can tell you one thing though, since starting gsh my digestion has gotten a lot better. Maybe it has something to do with other cofactors involved in our digestion that we are missing out of. Who knows..
Kiel
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Lance2020x</b></i>
I've noticed that the average dosage of Enzymes seems to be between 3-5. This is really confusing to me. I take 10 Creon20 with EACH MEAL. Before I switched to Creon I took 10-11 UltraceMT20's, and still sometimes 10 is not enough... do you think my CF affect my digestion stronger than most, or am I missing something?
I've always had VERY strong lungs, but I've had stomach problems for years, whereas my brother has always had a rock solid digestion, but has very weak lungs.
I know nothing about the different mutations of CF and such, I just assumed that it affect each person differently. Does anybody have any oppinions on these things?</end quote></div>
I am the exact same way. I see most people take a lot less then i do, but it has always been that way for me. I take around 10 ecs 20's with each meal. I don't know how to explain it, and the doctors think it's probably too much, but we do what works for us right? I can tell you one thing though, since starting gsh my digestion has gotten a lot better. Maybe it has something to do with other cofactors involved in our digestion that we are missing out of. Who knows..
Kiel
I've noticed that the average dosage of Enzymes seems to be between 3-5. This is really confusing to me. I take 10 Creon20 with EACH MEAL. Before I switched to Creon I took 10-11 UltraceMT20's, and still sometimes 10 is not enough... do you think my CF affect my digestion stronger than most, or am I missing something?
I've always had VERY strong lungs, but I've had stomach problems for years, whereas my brother has always had a rock solid digestion, but has very weak lungs.
I know nothing about the different mutations of CF and such, I just assumed that it affect each person differently. Does anybody have any oppinions on these things?</end quote></div>
I am the exact same way. I see most people take a lot less then i do, but it has always been that way for me. I take around 10 ecs 20's with each meal. I don't know how to explain it, and the doctors think it's probably too much, but we do what works for us right? I can tell you one thing though, since starting gsh my digestion has gotten a lot better. Maybe it has something to do with other cofactors involved in our digestion that we are missing out of. Who knows..
Kiel
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Lance2020x</b></i>
I've noticed that the average dosage of Enzymes seems to be between 3-5. This is really confusing to me. I take 10 Creon20 with EACH MEAL. Before I switched to Creon I took 10-11 UltraceMT20's, and still sometimes 10 is not enough... do you think my CF affect my digestion stronger than most, or am I missing something?
I've always had VERY strong lungs, but I've had stomach problems for years, whereas my brother has always had a rock solid digestion, but has very weak lungs.
I know nothing about the different mutations of CF and such, I just assumed that it affect each person differently. Does anybody have any oppinions on these things?</end quote></div>
I am the exact same way. I see most people take a lot less then i do, but it has always been that way for me. I take around 10 ecs 20's with each meal. I don't know how to explain it, and the doctors think it's probably too much, but we do what works for us right? I can tell you one thing though, since starting gsh my digestion has gotten a lot better. Maybe it has something to do with other cofactors involved in our digestion that we are missing out of. Who knows..
Kiel
I've noticed that the average dosage of Enzymes seems to be between 3-5. This is really confusing to me. I take 10 Creon20 with EACH MEAL. Before I switched to Creon I took 10-11 UltraceMT20's, and still sometimes 10 is not enough... do you think my CF affect my digestion stronger than most, or am I missing something?
I've always had VERY strong lungs, but I've had stomach problems for years, whereas my brother has always had a rock solid digestion, but has very weak lungs.
I know nothing about the different mutations of CF and such, I just assumed that it affect each person differently. Does anybody have any oppinions on these things?</end quote></div>
I am the exact same way. I see most people take a lot less then i do, but it has always been that way for me. I take around 10 ecs 20's with each meal. I don't know how to explain it, and the doctors think it's probably too much, but we do what works for us right? I can tell you one thing though, since starting gsh my digestion has gotten a lot better. Maybe it has something to do with other cofactors involved in our digestion that we are missing out of. Who knows..
Kiel
OK,
My sister called the local CF Center and there IS a Tobi inhailer but it's not out yet. Only people who are in the study have it but they are working on one.
Cross your fingers that it will be available soon.
<img src="i/expressions/face-icon-small-smile.gif" border="0">
KELLI
My sister called the local CF Center and there IS a Tobi inhailer but it's not out yet. Only people who are in the study have it but they are working on one.
Cross your fingers that it will be available soon.
<img src="i/expressions/face-icon-small-smile.gif" border="0">
KELLI
OK,
My sister called the local CF Center and there IS a Tobi inhailer but it's not out yet. Only people who are in the study have it but they are working on one.
Cross your fingers that it will be available soon.
<img src="i/expressions/face-icon-small-smile.gif" border="0">
KELLI
My sister called the local CF Center and there IS a Tobi inhailer but it's not out yet. Only people who are in the study have it but they are working on one.
Cross your fingers that it will be available soon.
<img src="i/expressions/face-icon-small-smile.gif" border="0">
KELLI
OK,
My sister called the local CF Center and there IS a Tobi inhailer but it's not out yet. Only people who are in the study have it but they are working on one.
Cross your fingers that it will be available soon.
<img src="i/expressions/face-icon-small-smile.gif" border="0">
KELLI
My sister called the local CF Center and there IS a Tobi inhailer but it's not out yet. Only people who are in the study have it but they are working on one.
Cross your fingers that it will be available soon.
<img src="i/expressions/face-icon-small-smile.gif" border="0">
KELLI
Lance2020x
New member
Holy cow! Can you imagine! That would give back an hour of my day every day! I'm certainly crossing my fingers!
And Ender, what is gsh? I would love to find something that would help the enzymes work better.
And Ender, what is gsh? I would love to find something that would help the enzymes work better.
Lance2020x
New member
Holy cow! Can you imagine! That would give back an hour of my day every day! I'm certainly crossing my fingers!
And Ender, what is gsh? I would love to find something that would help the enzymes work better.
And Ender, what is gsh? I would love to find something that would help the enzymes work better.
Lance2020x
New member
Holy cow! Can you imagine! That would give back an hour of my day every day! I'm certainly crossing my fingers!
And Ender, what is gsh? I would love to find something that would help the enzymes work better.
And Ender, what is gsh? I would love to find something that would help the enzymes work better.
I was offered to be in the study for the Tobi inhaler last year. Unfortunetly I was so busy at the time that I couldn't make the appointments I would have to go to. Looking back, HUGE mistake by me. I was worried it had come out and I didn't know but hopefully soon if the study was started last year.
I was offered to be in the study for the Tobi inhaler last year. Unfortunetly I was so busy at the time that I couldn't make the appointments I would have to go to. Looking back, HUGE mistake by me. I was worried it had come out and I didn't know but hopefully soon if the study was started last year.
I was offered to be in the study for the Tobi inhaler last year. Unfortunetly I was so busy at the time that I couldn't make the appointments I would have to go to. Looking back, HUGE mistake by me. I was worried it had come out and I didn't know but hopefully soon if the study was started last year.
onlyoneloveinmylife
New member
i Do The following
<u>pills</u>
ultrase MT20 4- snacks, 7-meals
adeks vitamins(2)
Prilosec 20mg
zithromax M-W-F
nortriptline 50mg
<u>puffers</u>
abluterol
advair
Flonase(sinuses)
<u>Nebs</u>
Pulmozyme(once dAILY)
colistin (2xdaily, 28days on/off)
Saline (2xdaily, 5-7%)
Albuterol(once in a while)
<u>pain meds</u>
Advil
Vicodin or Oxycodone
<u>therapy</u>
Vest (2xdaily, 15-20 min each time)
flutter or Acapella
<u>pills</u>
ultrase MT20 4- snacks, 7-meals
adeks vitamins(2)
Prilosec 20mg
zithromax M-W-F
nortriptline 50mg
<u>puffers</u>
abluterol
advair
Flonase(sinuses)
<u>Nebs</u>
Pulmozyme(once dAILY)
colistin (2xdaily, 28days on/off)
Saline (2xdaily, 5-7%)
Albuterol(once in a while)
<u>pain meds</u>
Advil
Vicodin or Oxycodone
<u>therapy</u>
Vest (2xdaily, 15-20 min each time)
flutter or Acapella