What do you take?

[Kelli]

Lance2020x,
Are you saying there is a Tobi inhailer? I have never even heard of this.
I did the Tobi aerosols but couldn't handle them (made my chest too tight and I'd choke/cough, etc).
Is the inhailer as effective as the aerosol? Let me know what you think of it...... or anyone else who takes it.
My niece has to do Tobi and if she could do an inhailer sometimes that would be a big help, she is 7 and has to do treatments before school and is rushed a lot of the time.
Thanks!
Kelli

 

[Kelli]

Lance2020x,
Are you saying there is a Tobi inhailer? I have never even heard of this.
I did the Tobi aerosols but couldn't handle them (made my chest too tight and I'd choke/cough, etc).
Is the inhailer as effective as the aerosol? Let me know what you think of it...... or anyone else who takes it.
My niece has to do Tobi and if she could do an inhailer sometimes that would be a big help, she is 7 and has to do treatments before school and is rushed a lot of the time.
Thanks!
Kelli

 

[Kelli]

Lance2020x,
Are you saying there is a Tobi inhailer? I have never even heard of this.
I did the Tobi aerosols but couldn't handle them (made my chest too tight and I'd choke/cough, etc).
Is the inhailer as effective as the aerosol? Let me know what you think of it...... or anyone else who takes it.
My niece has to do Tobi and if she could do an inhailer sometimes that would be a big help, she is 7 and has to do treatments before school and is rushed a lot of the time.
Thanks!
Kelli

 

[Diane]

Pangestyme ( generic enzymes) 1 w/each meal and snack
Prevacid
Zyrtec
ADEK's 3 per day
Multivitamin 1 per day
Vit.E 400 I.U.
Vit.K 10 mg.
Vit.B-complex
Vit.C 1500 Mg.
L-Lysine 3000 mg.
Glutathione 1000.mg
Zoloft 50 mg.
Humulin NPH 25 units once a day
Humulin R as needed
Advair 250/50
Albuterol inhaler 2 puffs once or twice per day
Pulmozyme once a day
Biaxin twice a day every day ( same reason Zithromax is used)
2 oral antibiotics twice daily for b.cepacia maintenance ( rotated every two weeks)
IV antibiotics as needed
Tobi as needed ( not on a 28 day off and on schedule)
Viactive calcium chews 2 per day ( sometimes 3, they are so yummy <img src="i/expressions/face-icon-small-smile.gif" border="0"> )
magnesium tablet 1 a day

 

[Diane]

Pangestyme ( generic enzymes) 1 w/each meal and snack
Prevacid
Zyrtec
ADEK's 3 per day
Multivitamin 1 per day
Vit.E 400 I.U.
Vit.K 10 mg.
Vit.B-complex
Vit.C 1500 Mg.
L-Lysine 3000 mg.
Glutathione 1000.mg
Zoloft 50 mg.
Humulin NPH 25 units once a day
Humulin R as needed
Advair 250/50
Albuterol inhaler 2 puffs once or twice per day
Pulmozyme once a day
Biaxin twice a day every day ( same reason Zithromax is used)
2 oral antibiotics twice daily for b.cepacia maintenance ( rotated every two weeks)
IV antibiotics as needed
Tobi as needed ( not on a 28 day off and on schedule)
Viactive calcium chews 2 per day ( sometimes 3, they are so yummy <img src="i/expressions/face-icon-small-smile.gif" border="0"> )
magnesium tablet 1 a day

 

[Diane]

Pangestyme ( generic enzymes) 1 w/each meal and snack
Prevacid
Zyrtec
ADEK's 3 per day
Multivitamin 1 per day
Vit.E 400 I.U.
Vit.K 10 mg.
Vit.B-complex
Vit.C 1500 Mg.
L-Lysine 3000 mg.
Glutathione 1000.mg
Zoloft 50 mg.
Humulin NPH 25 units once a day
Humulin R as needed
Advair 250/50
Albuterol inhaler 2 puffs once or twice per day
Pulmozyme once a day
Biaxin twice a day every day ( same reason Zithromax is used)
2 oral antibiotics twice daily for b.cepacia maintenance ( rotated every two weeks)
IV antibiotics as needed
Tobi as needed ( not on a 28 day off and on schedule)
Viactive calcium chews 2 per day ( sometimes 3, they are so yummy <img src="i/expressions/face-icon-small-smile.gif" border="0"> )
magnesium tablet 1 a day

 

[point]

For Chest/ Sinuses - -
1) Hypertonic Saline: Twice a day (religious about doing this be/c I see so much benefit with it - for myself and how my chest feels/ easier to clear junk)
2) Zyrtec: once daily (Serious ragweed allergy and some specific tree types bother me per my RAST)
3) Sinus lavage with saline: once daily (For me, lots of sinus troubles)
4) Nasonex: Two puffs per a nostril/ day - Usually use it after my sinus lavage
5) Albuterol inhaler: As needed

Digestion - -
1) Ultrase MT (something or other): 2 per meal, 1 w/ high fat snacks
2) Multi-vitamin
3) Vitamin E

CPT - -
Exercise 2 to 3 times a week.
Use percussor and/or flutter as needed if I have a cold, crap I can't clear, and sometimes I think to use the percussor as I do my nightly hypertonic saline treatment.

Last check-up
Height: 5'2"
Weight: 117
PFT: 111% (FEV), 133% (FVC)

 

[point]

For Chest/ Sinuses - -
1) Hypertonic Saline: Twice a day (religious about doing this be/c I see so much benefit with it - for myself and how my chest feels/ easier to clear junk)
2) Zyrtec: once daily (Serious ragweed allergy and some specific tree types bother me per my RAST)
3) Sinus lavage with saline: once daily (For me, lots of sinus troubles)
4) Nasonex: Two puffs per a nostril/ day - Usually use it after my sinus lavage
5) Albuterol inhaler: As needed

Digestion - -
1) Ultrase MT (something or other): 2 per meal, 1 w/ high fat snacks
2) Multi-vitamin
3) Vitamin E

CPT - -
Exercise 2 to 3 times a week.
Use percussor and/or flutter as needed if I have a cold, crap I can't clear, and sometimes I think to use the percussor as I do my nightly hypertonic saline treatment.

Last check-up
Height: 5'2"
Weight: 117
PFT: 111% (FEV), 133% (FVC)

 

[point]

For Chest/ Sinuses - -
1) Hypertonic Saline: Twice a day (religious about doing this be/c I see so much benefit with it - for myself and how my chest feels/ easier to clear junk)
2) Zyrtec: once daily (Serious ragweed allergy and some specific tree types bother me per my RAST)
3) Sinus lavage with saline: once daily (For me, lots of sinus troubles)
4) Nasonex: Two puffs per a nostril/ day - Usually use it after my sinus lavage
5) Albuterol inhaler: As needed

Digestion - -
1) Ultrase MT (something or other): 2 per meal, 1 w/ high fat snacks
2) Multi-vitamin
3) Vitamin E

CPT - -
Exercise 2 to 3 times a week.
Use percussor and/or flutter as needed if I have a cold, crap I can't clear, and sometimes I think to use the percussor as I do my nightly hypertonic saline treatment.

Last check-up
Height: 5'2"
Weight: 117
PFT: 111% (FEV), 133% (FVC)

 

[sue35]

I would also be interested in knowing about the TOBI inhaler. I only knew about the nebulizer. Is there anything else?

 

[sue35]

I would also be interested in knowing about the TOBI inhaler. I only knew about the nebulizer. Is there anything else?

 

[sue35]

I would also be interested in knowing about the TOBI inhaler. I only knew about the nebulizer. Is there anything else?

 

[Lance2020x]

Kelly and Sue-<br>
I'm sorry, I meant I do the Nebs. I've always called my Nebulizer an inhaler and my inhaler a puffer... I sure do wish there was a Tobi puffer though, doing two thirty minute sessions of Tobi a day takes a lot of time, especially after all the other tharapies.


<br><br><br>
I've noticed that the average dosage of Enzymes seems to be between 3-5. This is really confusing to me. I take 10 Creon20 with EACH MEAL. Before I switched to Creon I took 10-11 UltraceMT20's, and still sometimes 10 is not enough... do you think my CF affect my digestion stronger than most, or am I missing something?<br><br>
I've always had VERY strong lungs, but I've had stomach problems for years, whereas my brother has always had a rock solid digestion, but has very weak lungs. <br>
I know nothing about the different mutations of CF and such, I just assumed that it affect each person differently. Does anybody have any oppinions on these things?

 

[Lance2020x]

Kelly and Sue-<br>
I'm sorry, I meant I do the Nebs. I've always called my Nebulizer an inhaler and my inhaler a puffer... I sure do wish there was a Tobi puffer though, doing two thirty minute sessions of Tobi a day takes a lot of time, especially after all the other tharapies.


<br><br><br>
I've noticed that the average dosage of Enzymes seems to be between 3-5. This is really confusing to me. I take 10 Creon20 with EACH MEAL. Before I switched to Creon I took 10-11 UltraceMT20's, and still sometimes 10 is not enough... do you think my CF affect my digestion stronger than most, or am I missing something?<br><br>
I've always had VERY strong lungs, but I've had stomach problems for years, whereas my brother has always had a rock solid digestion, but has very weak lungs. <br>
I know nothing about the different mutations of CF and such, I just assumed that it affect each person differently. Does anybody have any oppinions on these things?

 

[Lance2020x]

Kelly and Sue-<br>
I'm sorry, I meant I do the Nebs. I've always called my Nebulizer an inhaler and my inhaler a puffer... I sure do wish there was a Tobi puffer though, doing two thirty minute sessions of Tobi a day takes a lot of time, especially after all the other tharapies.


<br><br><br>
I've noticed that the average dosage of Enzymes seems to be between 3-5. This is really confusing to me. I take 10 Creon20 with EACH MEAL. Before I switched to Creon I took 10-11 UltraceMT20's, and still sometimes 10 is not enough... do you think my CF affect my digestion stronger than most, or am I missing something?<br><br>
I've always had VERY strong lungs, but I've had stomach problems for years, whereas my brother has always had a rock solid digestion, but has very weak lungs. <br>
I know nothing about the different mutations of CF and such, I just assumed that it affect each person differently. Does anybody have any oppinions on these things?

 

[shamrock]

Prograf - 5mg + 6mg
Mmf (Cellsept) - 500mg x 2
Prednisalone- 10mg
Septrin
Omeprazole
ADEK
Calci Chew
Alendronate
Folic Acid
Colomycin <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[shamrock]

Prograf - 5mg + 6mg
Mmf (Cellsept) - 500mg x 2
Prednisalone- 10mg
Septrin
Omeprazole
ADEK
Calci Chew
Alendronate
Folic Acid
Colomycin <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[shamrock]

Prograf - 5mg + 6mg
Mmf (Cellsept) - 500mg x 2
Prednisalone- 10mg
Septrin
Omeprazole
ADEK
Calci Chew
Alendronate
Folic Acid
Colomycin <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Kelli]

Darn, I was all excited about a Tobi inhailer. I wish there was one. Maybe they will come up with one.
Stay healthy!
Kelli

 

[Kelli]

Darn, I was all excited about a Tobi inhailer. I wish there was one. Maybe they will come up with one.
Stay healthy!
Kelli