What do you take?

J

JazzysMom

New member
Albeuterol nebs twice daily (more if needed)
Pulmicort nebs twice daily
Pulmozyme once daily
Tobi or Colistin twice daily (alternating them monthly)
Advair twice daily
Ultrase MT 12 enzymes (2 with snack, 4 with meals)
ABDEK twice daily
Calcium with Vitamin D twice daily
Vitamin K 10 mg twice daily
Nexium 40mg once daily
Bactrim DS twice daily
Zithromax M-W-F
Phenobarbital 60mg/am 90mg/pm (not CF related)
Iron 325 daily (havent been taking since calcium started....binds me up)
Vest twice daily

O2 when needed (has been awhile)
Calorie shakes 2 or more daily
 
J

JazzysMom

New member
Albeuterol nebs twice daily (more if needed)
Pulmicort nebs twice daily
Pulmozyme once daily
Tobi or Colistin twice daily (alternating them monthly)
Advair twice daily
Ultrase MT 12 enzymes (2 with snack, 4 with meals)
ABDEK twice daily
Calcium with Vitamin D twice daily
Vitamin K 10 mg twice daily
Nexium 40mg once daily
Bactrim DS twice daily
Zithromax M-W-F
Phenobarbital 60mg/am 90mg/pm (not CF related)
Iron 325 daily (havent been taking since calcium started....binds me up)
Vest twice daily

O2 when needed (has been awhile)
Calorie shakes 2 or more daily
 
R

relat

New member
Hi Lance2020x!thak you very much for the infos,my brother takes creon 25,000,and i didn't find this type of creon in the site.never mind!



relat,27,(f),having brother 26 w/cf
 
R

relat

New member
Hi Lance2020x!thak you very much for the infos,my brother takes creon 25,000,and i didn't find this type of creon in the site.never mind!



relat,27,(f),having brother 26 w/cf
 
R

relat

New member
Hi Lance2020x!thak you very much for the infos,my brother takes creon 25,000,and i didn't find this type of creon in the site.never mind!



relat,27,(f),having brother 26 w/cf
 
B

Bumblebee

New member
TOBI nebs twice daily - continuosly <br>

Ventolin inhaler - as needed <br>

spriva inhaler - once daily <br>

Serotide inhaler - 2 puffs twice daily (i think this is advair in america) <br>

Vitamin A&D - two daily <br>

VitaE - two daily <br>

Creon 10 000 - about 40 daily <br>

azithromycin once daily <br>

acapella - 15 mins twice daily <br>
omepramazole - once daily <br>


<br>
port flush once monthly <br>

IV's about 3x a year (starting them tomorrow probably argh!) <br>

Starting overnight ng feeding in the next month or two <br>

<br>

xxxx
 
B

Bumblebee

New member
TOBI nebs twice daily - continuosly <br>

Ventolin inhaler - as needed <br>

spriva inhaler - once daily <br>

Serotide inhaler - 2 puffs twice daily (i think this is advair in america) <br>

Vitamin A&D - two daily <br>

VitaE - two daily <br>

Creon 10 000 - about 40 daily <br>

azithromycin once daily <br>

acapella - 15 mins twice daily <br>
omepramazole - once daily <br>


<br>
port flush once monthly <br>

IV's about 3x a year (starting them tomorrow probably argh!) <br>

Starting overnight ng feeding in the next month or two <br>

<br>

xxxx
 
B

Bumblebee

New member
TOBI nebs twice daily - continuosly <br>

Ventolin inhaler - as needed <br>

spriva inhaler - once daily <br>

Serotide inhaler - 2 puffs twice daily (i think this is advair in america) <br>

Vitamin A&D - two daily <br>

VitaE - two daily <br>

Creon 10 000 - about 40 daily <br>

azithromycin once daily <br>

acapella - 15 mins twice daily <br>
omepramazole - once daily <br>


<br>
port flush once monthly <br>

IV's about 3x a year (starting them tomorrow probably argh!) <br>

Starting overnight ng feeding in the next month or two <br>

<br>

xxxx
 
S

sarabeth87

New member
Albuteral~2 puffs twice a day
Pulmozyme~once daily
Hypertonic Saline~twice a day
Pancrease MT16~3 w/meals, 2 w/snacks
ADEKs~4 a day
Zithromax~3 times a week MWF
Flonase
Tobi~2 times a day 28 on 28 off
Rantidine(for my acid reflux)
Calcium pills~2 a day
The Vest~30 min. a day

I think that's all
 
S

sarabeth87

New member
Albuteral~2 puffs twice a day
Pulmozyme~once daily
Hypertonic Saline~twice a day
Pancrease MT16~3 w/meals, 2 w/snacks
ADEKs~4 a day
Zithromax~3 times a week MWF
Flonase
Tobi~2 times a day 28 on 28 off
Rantidine(for my acid reflux)
Calcium pills~2 a day
The Vest~30 min. a day

I think that's all
 
S

sarabeth87

New member
Albuteral~2 puffs twice a day
Pulmozyme~once daily
Hypertonic Saline~twice a day
Pancrease MT16~3 w/meals, 2 w/snacks
ADEKs~4 a day
Zithromax~3 times a week MWF
Flonase
Tobi~2 times a day 28 on 28 off
Rantidine(for my acid reflux)
Calcium pills~2 a day
The Vest~30 min. a day

I think that's all
 
L

LouLou

New member
Nebulizer:
Duoneb BID
3% Hypertonic saline - 4ml
TOBI (every other month)
Pulmozyme - once a day

Pills:
Singulair
Azithromycin (MWF - 500 mg)
Zyrtec
Bactrim DS BID
Primal Defense probiotic BID
Vit. C 1000mg
Antioxidant
Breathe
Zinc
Prenatal (2 pills BID)
L-Lysine 1000 BID (for lung bleeding)
Vit. K 5mg 1x/day (when not pregnant for bleeding)

Other:
Advair 250/50 BID
Rhinoquart Aqua 1 spray each nostril once a day (although I switched back yesterday to Flonase 2 spray BID)
EFA 1 TBSP/day

Oral Antibiotics: (as needed when I'm not pregnant)
Ciprofloxin 500mg 3x/day

IV:
Don't know haven't been on since '00
I AM ALLERGIC TO CEPHALASPORINS (Ceftazadime)

Clearance:
Vest 30 min. BID
Acapella 10 min. BID
Exercise 3x/wk
 
L

LouLou

New member
Nebulizer:
Duoneb BID
3% Hypertonic saline - 4ml
TOBI (every other month)
Pulmozyme - once a day

Pills:
Singulair
Azithromycin (MWF - 500 mg)
Zyrtec
Bactrim DS BID
Primal Defense probiotic BID
Vit. C 1000mg
Antioxidant
Breathe
Zinc
Prenatal (2 pills BID)
L-Lysine 1000 BID (for lung bleeding)
Vit. K 5mg 1x/day (when not pregnant for bleeding)

Other:
Advair 250/50 BID
Rhinoquart Aqua 1 spray each nostril once a day (although I switched back yesterday to Flonase 2 spray BID)
EFA 1 TBSP/day

Oral Antibiotics: (as needed when I'm not pregnant)
Ciprofloxin 500mg 3x/day

IV:
Don't know haven't been on since '00
I AM ALLERGIC TO CEPHALASPORINS (Ceftazadime)

Clearance:
Vest 30 min. BID
Acapella 10 min. BID
Exercise 3x/wk
 
L

LouLou

New member
Nebulizer:
Duoneb BID
3% Hypertonic saline - 4ml
TOBI (every other month)
Pulmozyme - once a day

Pills:
Singulair
Azithromycin (MWF - 500 mg)
Zyrtec
Bactrim DS BID
Primal Defense probiotic BID
Vit. C 1000mg
Antioxidant
Breathe
Zinc
Prenatal (2 pills BID)
L-Lysine 1000 BID (for lung bleeding)
Vit. K 5mg 1x/day (when not pregnant for bleeding)

Other:
Advair 250/50 BID
Rhinoquart Aqua 1 spray each nostril once a day (although I switched back yesterday to Flonase 2 spray BID)
EFA 1 TBSP/day

Oral Antibiotics: (as needed when I'm not pregnant)
Ciprofloxin 500mg 3x/day

IV:
Don't know haven't been on since '00
I AM ALLERGIC TO CEPHALASPORINS (Ceftazadime)

Clearance:
Vest 30 min. BID
Acapella 10 min. BID
Exercise 3x/wk
 
R

Ratatosk

Administrator
Staff member
Only a toddler, so still on liquid meds for most instead of capsules.

Keflex 5 ml (250 mg) 4x a day
Actigall 7.5 ml (20 mg per ml) 3 x a day
ADEKs 1 ml twice a day
Zithromax 2.5 ml (200 mg/5 ml) once a day
Vitamin K 5 mg tablet once a week
Pancrease MT4s -- 5 with meals, 2-3 with snacks
Drop of Vitamin A and Vitamin E in his morning Carnation Instant Breakfast

.5 m. Albuterol & one 2.5 ml vial of atrovent 3 x a day with vest
Tobi - twice a day every other month
Pulmozyme - Once a day.
 
R

Ratatosk

Administrator
Staff member
Only a toddler, so still on liquid meds for most instead of capsules.

Keflex 5 ml (250 mg) 4x a day
Actigall 7.5 ml (20 mg per ml) 3 x a day
ADEKs 1 ml twice a day
Zithromax 2.5 ml (200 mg/5 ml) once a day
Vitamin K 5 mg tablet once a week
Pancrease MT4s -- 5 with meals, 2-3 with snacks
Drop of Vitamin A and Vitamin E in his morning Carnation Instant Breakfast

.5 m. Albuterol & one 2.5 ml vial of atrovent 3 x a day with vest
Tobi - twice a day every other month
Pulmozyme - Once a day.
 
R

Ratatosk

Administrator
Staff member
Only a toddler, so still on liquid meds for most instead of capsules.

Keflex 5 ml (250 mg) 4x a day
Actigall 7.5 ml (20 mg per ml) 3 x a day
ADEKs 1 ml twice a day
Zithromax 2.5 ml (200 mg/5 ml) once a day
Vitamin K 5 mg tablet once a week
Pancrease MT4s -- 5 with meals, 2-3 with snacks
Drop of Vitamin A and Vitamin E in his morning Carnation Instant Breakfast

.5 m. Albuterol & one 2.5 ml vial of atrovent 3 x a day with vest
Tobi - twice a day every other month
Pulmozyme - Once a day.
 
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