<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>
I would be lost without my CF Nurse. ,,,
I hardly speak with the doctor directly unless its really complicated or I am really freaking out.
You have every right to expect the Nurse to be a liason & to raise a beef over the happenings.
</end quote></div>
This is exactly how my nurse is at my clinic... well, actually there are 2 nurses. They are both absolutely wonderful.
They have:
Scheduled appointments, blood draws, chest xrays for me.
Found other docs for me, including psychiatrists and orthopeds.
Gotten a pulsox covered by my insurance even when I'm not on O2 at home!
Been a liason to my doctor in keeping him up to date how my treatments are progressing, and also checking up on me.
Asking my doctor questions for me, or answering them directly.
Visted me in the hospital when I'm sick.
They are really good people, and they are good at their job... I'm sorry your nurse sucks, but those are the sorts of things she should be doing! Maybe you'll have better luck with email.