SARAHSARAH253
New member
Hi Everyone..Thanks for your tips...My husband is part owner of a commercial plumbing company..He has union insurance...Since he is looking to take over the company with his partner..I don't see him giving up all he has worked so hard for<img src="i/expressions/face-icon-small-sad.gif" border="0"> I however will consider bettering myself and in the future hopefully I could land a job with great insurance...Crossing my fingers....We live in the Seattle area if any of you know in laws or assistance places I should research....Social Security wouldn't be an option until he is 18 plus?? Everyone keeps telling me to go to Social Security?
I'm a new mom...to a 2 month old boy..I know we may not be close to running out...But the scarey part is that this CF hit so close to home. My husbands bosses daughter has been in the hospital for months, she just had a lung transplant when I was pregnant with my baby. Everyone kept talking about how bad Cystic Fibrosis was while I was in the hospital..Not knowing our baby would soon find out to have it.......So, when we found out our baby had it....The tears wouldn't stop. Everyone fealt terriable for talking about what they had...But they had no idea..This was about to happen.
I try every morning to look at my baby without hearing my mind say CYSTIC FIBROSIS..CYSTIC FIBROSIS...HOW CAN I CHANGE THIS...WHAT CAN I DO...I start cleaning..organizing his CF CLINIC Book...empty the garbages..start cleaning closets..just to keep my mind from going to a dark place...I love this baby..I'm just so scared I may forget he has it for a minute..and then feal that pain all over again...I'm also scared of not knowing if I will be able to have more children...It was so easy to get pregnant..To have him...Now, our future children will have to considered in allot more realistic way...It feels like everything has just stopped....I'm trying really hard to keep everything going...I know it just takes time...we haven't known about his CF now for even a solid month..Time helps right?? Thanks Sarah
I'm a new mom...to a 2 month old boy..I know we may not be close to running out...But the scarey part is that this CF hit so close to home. My husbands bosses daughter has been in the hospital for months, she just had a lung transplant when I was pregnant with my baby. Everyone kept talking about how bad Cystic Fibrosis was while I was in the hospital..Not knowing our baby would soon find out to have it.......So, when we found out our baby had it....The tears wouldn't stop. Everyone fealt terriable for talking about what they had...But they had no idea..This was about to happen.
I try every morning to look at my baby without hearing my mind say CYSTIC FIBROSIS..CYSTIC FIBROSIS...HOW CAN I CHANGE THIS...WHAT CAN I DO...I start cleaning..organizing his CF CLINIC Book...empty the garbages..start cleaning closets..just to keep my mind from going to a dark place...I love this baby..I'm just so scared I may forget he has it for a minute..and then feal that pain all over again...I'm also scared of not knowing if I will be able to have more children...It was so easy to get pregnant..To have him...Now, our future children will have to considered in allot more realistic way...It feels like everything has just stopped....I'm trying really hard to keep everything going...I know it just takes time...we haven't known about his CF now for even a solid month..Time helps right?? Thanks Sarah