When do you head in or call?

M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Liza</b></i>

Wow Heather, this is a tough one. I am so sorry she is feeling so cruddy. I know you must be beside yourself. The weekend is such a hard time to get anything done, I know.



When she coughs, is she getting junk up or is it getting stuck and kinda gagging on it? If it's just starting to sound really loose then it's very possible that the septra is starting to work and loosening it up to cough out. Did they mention increasing PT or treatments? The docs usually tell us to add a treatment and increase PT to help get it out. Remember, in the hospital they get four a day. Do you have an oximeter? The thing that measures her O2.



I would take into consideration, how she is feeling...scared because she can't take a breath? Has she calmed down since your post? If the extra PT and treatment didn't ease things up, then call the CF doc on call. Tell them what is going on, what you've tried. This saves time from theym telling you to add PT or to do an extra treatment.



No matter what time it is, call and make sure they wake him/her up. If you end up going to the ER, ask if they will call and let them know you are coming so they can call him/her when you arrive. You don't want your daughter in the ER waiting room for a long time with all those sick kids. Our doc would do this to keep Anna (Rachel has never had to go in through the ER) out of the waiting room and they'd call the doc as soon as we got there.



I hope she feels better quick.</end quote></div>

thanks for the input, Liza. We have been doing added treatments since Wednesday. She did calm down a bit after I posted and was able to go to sleep. Now we are up and she is still sounding likes she is rattling. We are about to do our first treatment of the morning. I think last night the treatment worked and got the junk up, she just didn't know what to do with it and was choking on it.

I'm a little nervous to do her next treatment, but if its all in there, we gotta get it out.

This is new for me, her issues have always been weight stuff. I'm going to hold off calling, but if she looks in distress again I'm going to call immediately.
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Liza</b></i>

Wow Heather, this is a tough one. I am so sorry she is feeling so cruddy. I know you must be beside yourself. The weekend is such a hard time to get anything done, I know.



When she coughs, is she getting junk up or is it getting stuck and kinda gagging on it? If it's just starting to sound really loose then it's very possible that the septra is starting to work and loosening it up to cough out. Did they mention increasing PT or treatments? The docs usually tell us to add a treatment and increase PT to help get it out. Remember, in the hospital they get four a day. Do you have an oximeter? The thing that measures her O2.



I would take into consideration, how she is feeling...scared because she can't take a breath? Has she calmed down since your post? If the extra PT and treatment didn't ease things up, then call the CF doc on call. Tell them what is going on, what you've tried. This saves time from theym telling you to add PT or to do an extra treatment.



No matter what time it is, call and make sure they wake him/her up. If you end up going to the ER, ask if they will call and let them know you are coming so they can call him/her when you arrive. You don't want your daughter in the ER waiting room for a long time with all those sick kids. Our doc would do this to keep Anna (Rachel has never had to go in through the ER) out of the waiting room and they'd call the doc as soon as we got there.



I hope she feels better quick.</end quote></div>

thanks for the input, Liza. We have been doing added treatments since Wednesday. She did calm down a bit after I posted and was able to go to sleep. Now we are up and she is still sounding likes she is rattling. We are about to do our first treatment of the morning. I think last night the treatment worked and got the junk up, she just didn't know what to do with it and was choking on it.

I'm a little nervous to do her next treatment, but if its all in there, we gotta get it out.

This is new for me, her issues have always been weight stuff. I'm going to hold off calling, but if she looks in distress again I'm going to call immediately.
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Liza</b></i>

Wow Heather, this is a tough one. I am so sorry she is feeling so cruddy. I know you must be beside yourself. The weekend is such a hard time to get anything done, I know.



When she coughs, is she getting junk up or is it getting stuck and kinda gagging on it? If it's just starting to sound really loose then it's very possible that the septra is starting to work and loosening it up to cough out. Did they mention increasing PT or treatments? The docs usually tell us to add a treatment and increase PT to help get it out. Remember, in the hospital they get four a day. Do you have an oximeter? The thing that measures her O2.



I would take into consideration, how she is feeling...scared because she can't take a breath? Has she calmed down since your post? If the extra PT and treatment didn't ease things up, then call the CF doc on call. Tell them what is going on, what you've tried. This saves time from theym telling you to add PT or to do an extra treatment.



No matter what time it is, call and make sure they wake him/her up. If you end up going to the ER, ask if they will call and let them know you are coming so they can call him/her when you arrive. You don't want your daughter in the ER waiting room for a long time with all those sick kids. Our doc would do this to keep Anna (Rachel has never had to go in through the ER) out of the waiting room and they'd call the doc as soon as we got there.



I hope she feels better quick.</end quote></div>

thanks for the input, Liza. We have been doing added treatments since Wednesday. She did calm down a bit after I posted and was able to go to sleep. Now we are up and she is still sounding likes she is rattling. We are about to do our first treatment of the morning. I think last night the treatment worked and got the junk up, she just didn't know what to do with it and was choking on it.

I'm a little nervous to do her next treatment, but if its all in there, we gotta get it out.

This is new for me, her issues have always been weight stuff. I'm going to hold off calling, but if she looks in distress again I'm going to call immediately.
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Liza</b></i>

Wow Heather, this is a tough one. I am so sorry she is feeling so cruddy. I know you must be beside yourself. The weekend is such a hard time to get anything done, I know.



When she coughs, is she getting junk up or is it getting stuck and kinda gagging on it? If it's just starting to sound really loose then it's very possible that the septra is starting to work and loosening it up to cough out. Did they mention increasing PT or treatments? The docs usually tell us to add a treatment and increase PT to help get it out. Remember, in the hospital they get four a day. Do you have an oximeter? The thing that measures her O2.



I would take into consideration, how she is feeling...scared because she can't take a breath? Has she calmed down since your post? If the extra PT and treatment didn't ease things up, then call the CF doc on call. Tell them what is going on, what you've tried. This saves time from theym telling you to add PT or to do an extra treatment.



No matter what time it is, call and make sure they wake him/her up. If you end up going to the ER, ask if they will call and let them know you are coming so they can call him/her when you arrive. You don't want your daughter in the ER waiting room for a long time with all those sick kids. Our doc would do this to keep Anna (Rachel has never had to go in through the ER) out of the waiting room and they'd call the doc as soon as we got there.



I hope she feels better quick.</end quote>

thanks for the input, Liza. We have been doing added treatments since Wednesday. She did calm down a bit after I posted and was able to go to sleep. Now we are up and she is still sounding likes she is rattling. We are about to do our first treatment of the morning. I think last night the treatment worked and got the junk up, she just didn't know what to do with it and was choking on it.

I'm a little nervous to do her next treatment, but if its all in there, we gotta get it out.

This is new for me, her issues have always been weight stuff. I'm going to hold off calling, but if she looks in distress again I'm going to call immediately.
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Liza</b></i>
<br />
<br />Wow Heather, this is a tough one. I am so sorry she is feeling so cruddy. I know you must be beside yourself. The weekend is such a hard time to get anything done, I know.
<br />
<br />
<br />
<br />When she coughs, is she getting junk up or is it getting stuck and kinda gagging on it? If it's just starting to sound really loose then it's very possible that the septra is starting to work and loosening it up to cough out. Did they mention increasing PT or treatments? The docs usually tell us to add a treatment and increase PT to help get it out. Remember, in the hospital they get four a day. Do you have an oximeter? The thing that measures her O2.
<br />
<br />
<br />
<br />I would take into consideration, how she is feeling...scared because she can't take a breath? Has she calmed down since your post? If the extra PT and treatment didn't ease things up, then call the CF doc on call. Tell them what is going on, what you've tried. This saves time from theym telling you to add PT or to do an extra treatment.
<br />
<br />
<br />
<br />No matter what time it is, call and make sure they wake him/her up. If you end up going to the ER, ask if they will call and let them know you are coming so they can call him/her when you arrive. You don't want your daughter in the ER waiting room for a long time with all those sick kids. Our doc would do this to keep Anna (Rachel has never had to go in through the ER) out of the waiting room and they'd call the doc as soon as we got there.
<br />
<br />
<br />
<br />I hope she feels better quick.</end quote>
<br />
<br />thanks for the input, Liza. We have been doing added treatments since Wednesday. She did calm down a bit after I posted and was able to go to sleep. Now we are up and she is still sounding likes she is rattling. We are about to do our first treatment of the morning. I think last night the treatment worked and got the junk up, she just didn't know what to do with it and was choking on it.
<br />
<br />I'm a little nervous to do her next treatment, but if its all in there, we gotta get it out.
<br />
<br />This is new for me, her issues have always been weight stuff. I'm going to hold off calling, but if she looks in distress again I'm going to call immediately.
<br />
<br />
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>izemmom</b></i>



I hear what you are saying about the weekend staff. THe on-call pulmo rarely knows aything about CF, let alone about KIDS!

</end quote></div>


I am very thankful that our CF center is in our town and that our Children's hospital is the one with the CF center. They actually have a CF pulm on call every single night so if I actually connect with the on-call I get very good advice. My issue is being IN the hospital on the weekend, because you see the on-call once in the am and everyone else is clueless about CF.

Thanks for the thoughts, Tami, it means so much!!
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>izemmom</b></i>



I hear what you are saying about the weekend staff. THe on-call pulmo rarely knows aything about CF, let alone about KIDS!

</end quote></div>


I am very thankful that our CF center is in our town and that our Children's hospital is the one with the CF center. They actually have a CF pulm on call every single night so if I actually connect with the on-call I get very good advice. My issue is being IN the hospital on the weekend, because you see the on-call once in the am and everyone else is clueless about CF.

Thanks for the thoughts, Tami, it means so much!!
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>izemmom</b></i>



I hear what you are saying about the weekend staff. THe on-call pulmo rarely knows aything about CF, let alone about KIDS!

</end quote></div>


I am very thankful that our CF center is in our town and that our Children's hospital is the one with the CF center. They actually have a CF pulm on call every single night so if I actually connect with the on-call I get very good advice. My issue is being IN the hospital on the weekend, because you see the on-call once in the am and everyone else is clueless about CF.

Thanks for the thoughts, Tami, it means so much!!
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>izemmom</b></i>



I hear what you are saying about the weekend staff. THe on-call pulmo rarely knows aything about CF, let alone about KIDS!

</end quote>


I am very thankful that our CF center is in our town and that our Children's hospital is the one with the CF center. They actually have a CF pulm on call every single night so if I actually connect with the on-call I get very good advice. My issue is being IN the hospital on the weekend, because you see the on-call once in the am and everyone else is clueless about CF.

Thanks for the thoughts, Tami, it means so much!!
 
M

Mommafirst

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>izemmom</b></i>
<br />
<br />
<br />
<br />I hear what you are saying about the weekend staff. THe on-call pulmo rarely knows aything about CF, let alone about KIDS!
<br />
<br /></end quote>
<br />
<br />
<br />I am very thankful that our CF center is in our town and that our Children's hospital is the one with the CF center. They actually have a CF pulm on call every single night so if I actually connect with the on-call I get very good advice. My issue is being IN the hospital on the weekend, because you see the on-call once in the am and everyone else is clueless about CF.
<br />
<br />Thanks for the thoughts, Tami, it means so much!!
<br />
 
R

Ratatosk

Administrator
Staff member
Poor Alyssa (and Mom), I'd be freaking out and full of indecision as well. <img src="i/expressions/face-icon-small-sad.gif" border="0">

Hopefully she's feeling better and was maybe just panicking about bringing up that junk. I remember several years ago when I had an nasty cough and the sheer panic I felt bringing up stuff and having it catch in my throat.

DS has been on septra since he cultured steno malt about two years ago. No side effects except he hated the suspension and doesn't like the tablets.
 
R

Ratatosk

Administrator
Staff member
Poor Alyssa (and Mom), I'd be freaking out and full of indecision as well. <img src="i/expressions/face-icon-small-sad.gif" border="0">

Hopefully she's feeling better and was maybe just panicking about bringing up that junk. I remember several years ago when I had an nasty cough and the sheer panic I felt bringing up stuff and having it catch in my throat.

DS has been on septra since he cultured steno malt about two years ago. No side effects except he hated the suspension and doesn't like the tablets.
 
R

Ratatosk

Administrator
Staff member
Poor Alyssa (and Mom), I'd be freaking out and full of indecision as well. <img src="i/expressions/face-icon-small-sad.gif" border="0">

Hopefully she's feeling better and was maybe just panicking about bringing up that junk. I remember several years ago when I had an nasty cough and the sheer panic I felt bringing up stuff and having it catch in my throat.

DS has been on septra since he cultured steno malt about two years ago. No side effects except he hated the suspension and doesn't like the tablets.
 
R

Ratatosk

Administrator
Staff member
Poor Alyssa (and Mom), I'd be freaking out and full of indecision as well. <img src="i/expressions/face-icon-small-sad.gif" border="0">

Hopefully she's feeling better and was maybe just panicking about bringing up that junk. I remember several years ago when I had an nasty cough and the sheer panic I felt bringing up stuff and having it catch in my throat.

DS has been on septra since he cultured steno malt about two years ago. No side effects except he hated the suspension and doesn't like the tablets.
 
R

Ratatosk

Administrator
Staff member
Poor Alyssa (and Mom), I'd be freaking out and full of indecision as well. <img src="i/expressions/face-icon-small-sad.gif" border="0">
<br />
<br />Hopefully she's feeling better and was maybe just panicking about bringing up that junk. I remember several years ago when I had an nasty cough and the sheer panic I felt bringing up stuff and having it catch in my throat.
<br />
<br />DS has been on septra since he cultured steno malt about two years ago. No side effects except he hated the suspension and doesn't like the tablets.
 
L

LouLou

New member
here's what I would do. I would increase her liquids which will thin out the mucus. Do brochialdialor (albuterol, etc.) every 4 hrs. on the dot. Do inhaled saline as often as she'll tolerate it. This is the time to pull out all stops. Incentives like a sm bowl of choco chips...or whatever gets her excited. Remember atitude effects health so make it as fun as possible for her. Maybe a new Dora coloring book is in order or whatever cheap tricks you can think of. Think of this as a 3 day power care session to keep her out of the hospital. Starting abx never works on the first day. By day 3 you should see a difference. In the mean time work on clearance. With Vest you should be stopping it and encouraging huff coughing every 5 minutes. Remember it only loosens it, doesn't clear it. Great that you are getting her to spit. Do you have any sputum sample cups around? If you get some send it in ASAP so they can start the week long process of seeing what she is infected with. Staying out of hosp until the good crew is there is necessary unless she is in resp distress I think. Calling for advise is an option. Just remember what they say is not gospel. You are in charge. You can take care of her better at home if you can focus on her. Excuse yourself from the rest of the family duties. Alyssa is your job for the next 3-4 days. Remember this too shall pass. Good food and good rest are important too. She'll sleep better in her own bed. Good luck! Oh and don't forget manual pt at a time like this. Many of us enjoy a good patting when we have noticeable congestion like it sounds like she does. If you can feel an area that is rattling that is a good spot to pound on. Remember every little bit helps even if she can only stand a few minutes. Keep up the good work.
 
L

LouLou

New member
here's what I would do. I would increase her liquids which will thin out the mucus. Do brochialdialor (albuterol, etc.) every 4 hrs. on the dot. Do inhaled saline as often as she'll tolerate it. This is the time to pull out all stops. Incentives like a sm bowl of choco chips...or whatever gets her excited. Remember atitude effects health so make it as fun as possible for her. Maybe a new Dora coloring book is in order or whatever cheap tricks you can think of. Think of this as a 3 day power care session to keep her out of the hospital. Starting abx never works on the first day. By day 3 you should see a difference. In the mean time work on clearance. With Vest you should be stopping it and encouraging huff coughing every 5 minutes. Remember it only loosens it, doesn't clear it. Great that you are getting her to spit. Do you have any sputum sample cups around? If you get some send it in ASAP so they can start the week long process of seeing what she is infected with. Staying out of hosp until the good crew is there is necessary unless she is in resp distress I think. Calling for advise is an option. Just remember what they say is not gospel. You are in charge. You can take care of her better at home if you can focus on her. Excuse yourself from the rest of the family duties. Alyssa is your job for the next 3-4 days. Remember this too shall pass. Good food and good rest are important too. She'll sleep better in her own bed. Good luck! Oh and don't forget manual pt at a time like this. Many of us enjoy a good patting when we have noticeable congestion like it sounds like she does. If you can feel an area that is rattling that is a good spot to pound on. Remember every little bit helps even if she can only stand a few minutes. Keep up the good work.
 
L

LouLou

New member
here's what I would do. I would increase her liquids which will thin out the mucus. Do brochialdialor (albuterol, etc.) every 4 hrs. on the dot. Do inhaled saline as often as she'll tolerate it. This is the time to pull out all stops. Incentives like a sm bowl of choco chips...or whatever gets her excited. Remember atitude effects health so make it as fun as possible for her. Maybe a new Dora coloring book is in order or whatever cheap tricks you can think of. Think of this as a 3 day power care session to keep her out of the hospital. Starting abx never works on the first day. By day 3 you should see a difference. In the mean time work on clearance. With Vest you should be stopping it and encouraging huff coughing every 5 minutes. Remember it only loosens it, doesn't clear it. Great that you are getting her to spit. Do you have any sputum sample cups around? If you get some send it in ASAP so they can start the week long process of seeing what she is infected with. Staying out of hosp until the good crew is there is necessary unless she is in resp distress I think. Calling for advise is an option. Just remember what they say is not gospel. You are in charge. You can take care of her better at home if you can focus on her. Excuse yourself from the rest of the family duties. Alyssa is your job for the next 3-4 days. Remember this too shall pass. Good food and good rest are important too. She'll sleep better in her own bed. Good luck! Oh and don't forget manual pt at a time like this. Many of us enjoy a good patting when we have noticeable congestion like it sounds like she does. If you can feel an area that is rattling that is a good spot to pound on. Remember every little bit helps even if she can only stand a few minutes. Keep up the good work.
 
L

LouLou

New member
here's what I would do. I would increase her liquids which will thin out the mucus. Do brochialdialor (albuterol, etc.) every 4 hrs. on the dot. Do inhaled saline as often as she'll tolerate it. This is the time to pull out all stops. Incentives like a sm bowl of choco chips...or whatever gets her excited. Remember atitude effects health so make it as fun as possible for her. Maybe a new Dora coloring book is in order or whatever cheap tricks you can think of. Think of this as a 3 day power care session to keep her out of the hospital. Starting abx never works on the first day. By day 3 you should see a difference. In the mean time work on clearance. With Vest you should be stopping it and encouraging huff coughing every 5 minutes. Remember it only loosens it, doesn't clear it. Great that you are getting her to spit. Do you have any sputum sample cups around? If you get some send it in ASAP so they can start the week long process of seeing what she is infected with. Staying out of hosp until the good crew is there is necessary unless she is in resp distress I think. Calling for advise is an option. Just remember what they say is not gospel. You are in charge. You can take care of her better at home if you can focus on her. Excuse yourself from the rest of the family duties. Alyssa is your job for the next 3-4 days. Remember this too shall pass. Good food and good rest are important too. She'll sleep better in her own bed. Good luck! Oh and don't forget manual pt at a time like this. Many of us enjoy a good patting when we have noticeable congestion like it sounds like she does. If you can feel an area that is rattling that is a good spot to pound on. Remember every little bit helps even if she can only stand a few minutes. Keep up the good work.
 
L

LouLou

New member
here's what I would do. I would increase her liquids which will thin out the mucus. Do brochialdialor (albuterol, etc.) every 4 hrs. on the dot. Do inhaled saline as often as she'll tolerate it. This is the time to pull out all stops. Incentives like a sm bowl of choco chips...or whatever gets her excited. Remember atitude effects health so make it as fun as possible for her. Maybe a new Dora coloring book is in order or whatever cheap tricks you can think of. Think of this as a 3 day power care session to keep her out of the hospital. Starting abx never works on the first day. By day 3 you should see a difference. In the mean time work on clearance. With Vest you should be stopping it and encouraging huff coughing every 5 minutes. Remember it only loosens it, doesn't clear it. Great that you are getting her to spit. Do you have any sputum sample cups around? If you get some send it in ASAP so they can start the week long process of seeing what she is infected with. Staying out of hosp until the good crew is there is necessary unless she is in resp distress I think. Calling for advise is an option. Just remember what they say is not gospel. You are in charge. You can take care of her better at home if you can focus on her. Excuse yourself from the rest of the family duties. Alyssa is your job for the next 3-4 days. Remember this too shall pass. Good food and good rest are important too. She'll sleep better in her own bed. Good luck! Oh and don't forget manual pt at a time like this. Many of us enjoy a good patting when we have noticeable congestion like it sounds like she does. If you can feel an area that is rattling that is a good spot to pound on. Remember every little bit helps even if she can only stand a few minutes. Keep up the good work.
 
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