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When you thought about having children what did you do?
- Thread starter spacemom
- Start date
blondelawyer
New member
I know that your question was directed at CFers, but as a spouse to a person with CF I think that I have something to add.
Since CF is genetic I had a genetic test done early on to see if I was a carrier. Knowing that we would have to consider whether I was a carrier, etc., has never been an issue. I don't remember having a "talk" about "you are going to have to get this test..." it was just something that I knew we would need to considered, etc.
We have thought a lot about the different options available, including in vitro and adoption. Right now we are torn between adopting an older child in foster care and just not having a child at all. It is a very difficult decision for us because we know going in that the child will have to deal with his/her father having CF and all that comes with that.
If I had been a carrier, there is no way we would even consider having a biological child. Those risks are just way too high. And there is no way to be 100% sure since not all of the CF mutations have been found. Even with the full Ambry panel, there is a 1/1200 chance (I think that is the right number, but somewhere around there) that the person will still be a carrier. So, the odds are pretty good that you aren't a carrier, but not 100%.
So, yes, it can be done. But, it is a really difficult decision for most people to make since there are so many things to consider.
Since CF is genetic I had a genetic test done early on to see if I was a carrier. Knowing that we would have to consider whether I was a carrier, etc., has never been an issue. I don't remember having a "talk" about "you are going to have to get this test..." it was just something that I knew we would need to considered, etc.
We have thought a lot about the different options available, including in vitro and adoption. Right now we are torn between adopting an older child in foster care and just not having a child at all. It is a very difficult decision for us because we know going in that the child will have to deal with his/her father having CF and all that comes with that.
If I had been a carrier, there is no way we would even consider having a biological child. Those risks are just way too high. And there is no way to be 100% sure since not all of the CF mutations have been found. Even with the full Ambry panel, there is a 1/1200 chance (I think that is the right number, but somewhere around there) that the person will still be a carrier. So, the odds are pretty good that you aren't a carrier, but not 100%.
So, yes, it can be done. But, it is a really difficult decision for most people to make since there are so many things to consider.
blondelawyer
New member
I know that your question was directed at CFers, but as a spouse to a person with CF I think that I have something to add.
Since CF is genetic I had a genetic test done early on to see if I was a carrier. Knowing that we would have to consider whether I was a carrier, etc., has never been an issue. I don't remember having a "talk" about "you are going to have to get this test..." it was just something that I knew we would need to considered, etc.
We have thought a lot about the different options available, including in vitro and adoption. Right now we are torn between adopting an older child in foster care and just not having a child at all. It is a very difficult decision for us because we know going in that the child will have to deal with his/her father having CF and all that comes with that.
If I had been a carrier, there is no way we would even consider having a biological child. Those risks are just way too high. And there is no way to be 100% sure since not all of the CF mutations have been found. Even with the full Ambry panel, there is a 1/1200 chance (I think that is the right number, but somewhere around there) that the person will still be a carrier. So, the odds are pretty good that you aren't a carrier, but not 100%.
So, yes, it can be done. But, it is a really difficult decision for most people to make since there are so many things to consider.
Since CF is genetic I had a genetic test done early on to see if I was a carrier. Knowing that we would have to consider whether I was a carrier, etc., has never been an issue. I don't remember having a "talk" about "you are going to have to get this test..." it was just something that I knew we would need to considered, etc.
We have thought a lot about the different options available, including in vitro and adoption. Right now we are torn between adopting an older child in foster care and just not having a child at all. It is a very difficult decision for us because we know going in that the child will have to deal with his/her father having CF and all that comes with that.
If I had been a carrier, there is no way we would even consider having a biological child. Those risks are just way too high. And there is no way to be 100% sure since not all of the CF mutations have been found. Even with the full Ambry panel, there is a 1/1200 chance (I think that is the right number, but somewhere around there) that the person will still be a carrier. So, the odds are pretty good that you aren't a carrier, but not 100%.
So, yes, it can be done. But, it is a really difficult decision for most people to make since there are so many things to consider.
blondelawyer
New member
I know that your question was directed at CFers, but as a spouse to a person with CF I think that I have something to add.
Since CF is genetic I had a genetic test done early on to see if I was a carrier. Knowing that we would have to consider whether I was a carrier, etc., has never been an issue. I don't remember having a "talk" about "you are going to have to get this test..." it was just something that I knew we would need to considered, etc.
We have thought a lot about the different options available, including in vitro and adoption. Right now we are torn between adopting an older child in foster care and just not having a child at all. It is a very difficult decision for us because we know going in that the child will have to deal with his/her father having CF and all that comes with that.
If I had been a carrier, there is no way we would even consider having a biological child. Those risks are just way too high. And there is no way to be 100% sure since not all of the CF mutations have been found. Even with the full Ambry panel, there is a 1/1200 chance (I think that is the right number, but somewhere around there) that the person will still be a carrier. So, the odds are pretty good that you aren't a carrier, but not 100%.
So, yes, it can be done. But, it is a really difficult decision for most people to make since there are so many things to consider.
Since CF is genetic I had a genetic test done early on to see if I was a carrier. Knowing that we would have to consider whether I was a carrier, etc., has never been an issue. I don't remember having a "talk" about "you are going to have to get this test..." it was just something that I knew we would need to considered, etc.
We have thought a lot about the different options available, including in vitro and adoption. Right now we are torn between adopting an older child in foster care and just not having a child at all. It is a very difficult decision for us because we know going in that the child will have to deal with his/her father having CF and all that comes with that.
If I had been a carrier, there is no way we would even consider having a biological child. Those risks are just way too high. And there is no way to be 100% sure since not all of the CF mutations have been found. Even with the full Ambry panel, there is a 1/1200 chance (I think that is the right number, but somewhere around there) that the person will still be a carrier. So, the odds are pretty good that you aren't a carrier, but not 100%.
So, yes, it can be done. But, it is a really difficult decision for most people to make since there are so many things to consider.
blondelawyer
New member
I know that your question was directed at CFers, but as a spouse to a person with CF I think that I have something to add.
Since CF is genetic I had a genetic test done early on to see if I was a carrier. Knowing that we would have to consider whether I was a carrier, etc., has never been an issue. I don't remember having a "talk" about "you are going to have to get this test..." it was just something that I knew we would need to considered, etc.
We have thought a lot about the different options available, including in vitro and adoption. Right now we are torn between adopting an older child in foster care and just not having a child at all. It is a very difficult decision for us because we know going in that the child will have to deal with his/her father having CF and all that comes with that.
If I had been a carrier, there is no way we would even consider having a biological child. Those risks are just way too high. And there is no way to be 100% sure since not all of the CF mutations have been found. Even with the full Ambry panel, there is a 1/1200 chance (I think that is the right number, but somewhere around there) that the person will still be a carrier. So, the odds are pretty good that you aren't a carrier, but not 100%.
So, yes, it can be done. But, it is a really difficult decision for most people to make since there are so many things to consider.
Since CF is genetic I had a genetic test done early on to see if I was a carrier. Knowing that we would have to consider whether I was a carrier, etc., has never been an issue. I don't remember having a "talk" about "you are going to have to get this test..." it was just something that I knew we would need to considered, etc.
We have thought a lot about the different options available, including in vitro and adoption. Right now we are torn between adopting an older child in foster care and just not having a child at all. It is a very difficult decision for us because we know going in that the child will have to deal with his/her father having CF and all that comes with that.
If I had been a carrier, there is no way we would even consider having a biological child. Those risks are just way too high. And there is no way to be 100% sure since not all of the CF mutations have been found. Even with the full Ambry panel, there is a 1/1200 chance (I think that is the right number, but somewhere around there) that the person will still be a carrier. So, the odds are pretty good that you aren't a carrier, but not 100%.
So, yes, it can be done. But, it is a really difficult decision for most people to make since there are so many things to consider.
blondelawyer
New member
I know that your question was directed at CFers, but as a spouse to a person with CF I think that I have something to add.
Since CF is genetic I had a genetic test done early on to see if I was a carrier. Knowing that we would have to consider whether I was a carrier, etc., has never been an issue. I don't remember having a "talk" about "you are going to have to get this test..." it was just something that I knew we would need to considered, etc.
We have thought a lot about the different options available, including in vitro and adoption. Right now we are torn between adopting an older child in foster care and just not having a child at all. It is a very difficult decision for us because we know going in that the child will have to deal with his/her father having CF and all that comes with that.
If I had been a carrier, there is no way we would even consider having a biological child. Those risks are just way too high. And there is no way to be 100% sure since not all of the CF mutations have been found. Even with the full Ambry panel, there is a 1/1200 chance (I think that is the right number, but somewhere around there) that the person will still be a carrier. So, the odds are pretty good that you aren't a carrier, but not 100%.
So, yes, it can be done. But, it is a really difficult decision for most people to make since there are so many things to consider.
Since CF is genetic I had a genetic test done early on to see if I was a carrier. Knowing that we would have to consider whether I was a carrier, etc., has never been an issue. I don't remember having a "talk" about "you are going to have to get this test..." it was just something that I knew we would need to considered, etc.
We have thought a lot about the different options available, including in vitro and adoption. Right now we are torn between adopting an older child in foster care and just not having a child at all. It is a very difficult decision for us because we know going in that the child will have to deal with his/her father having CF and all that comes with that.
If I had been a carrier, there is no way we would even consider having a biological child. Those risks are just way too high. And there is no way to be 100% sure since not all of the CF mutations have been found. Even with the full Ambry panel, there is a 1/1200 chance (I think that is the right number, but somewhere around there) that the person will still be a carrier. So, the odds are pretty good that you aren't a carrier, but not 100%.
So, yes, it can be done. But, it is a really difficult decision for most people to make since there are so many things to consider.
blondelawyer
New member
I know that your question was directed at CFers, but as a spouse to a person with CF I think that I have something to add.
Since CF is genetic I had a genetic test done early on to see if I was a carrier. Knowing that we would have to consider whether I was a carrier, etc., has never been an issue. I don't remember having a "talk" about "you are going to have to get this test..." it was just something that I knew we would need to considered, etc.
We have thought a lot about the different options available, including in vitro and adoption. Right now we are torn between adopting an older child in foster care and just not having a child at all. It is a very difficult decision for us because we know going in that the child will have to deal with his/her father having CF and all that comes with that.
If I had been a carrier, there is no way we would even consider having a biological child. Those risks are just way too high. And there is no way to be 100% sure since not all of the CF mutations have been found. Even with the full Ambry panel, there is a 1/1200 chance (I think that is the right number, but somewhere around there) that the person will still be a carrier. So, the odds are pretty good that you aren't a carrier, but not 100%.
So, yes, it can be done. But, it is a really difficult decision for most people to make since there are so many things to consider.
Since CF is genetic I had a genetic test done early on to see if I was a carrier. Knowing that we would have to consider whether I was a carrier, etc., has never been an issue. I don't remember having a "talk" about "you are going to have to get this test..." it was just something that I knew we would need to considered, etc.
We have thought a lot about the different options available, including in vitro and adoption. Right now we are torn between adopting an older child in foster care and just not having a child at all. It is a very difficult decision for us because we know going in that the child will have to deal with his/her father having CF and all that comes with that.
If I had been a carrier, there is no way we would even consider having a biological child. Those risks are just way too high. And there is no way to be 100% sure since not all of the CF mutations have been found. Even with the full Ambry panel, there is a 1/1200 chance (I think that is the right number, but somewhere around there) that the person will still be a carrier. So, the odds are pretty good that you aren't a carrier, but not 100%.
So, yes, it can be done. But, it is a really difficult decision for most people to make since there are so many things to consider.
krisjohn53223
New member
When we decided to have kids, we were not going to have my husband tested, but the hospital really encouraged it, and insurance paid for it, so we did. He is not a carrier. Although there are mutations that are unknown and there for can not be tested for. So, with that said, our son had <3% chance of having the disease and of course he is a carrier from me. We had him tested at 14 days old for the disease, and he does not have it. I will tell him someday he is a carrier and what he choses to do with it is his choice. Responding to sakakuka's comment, I'm sorry yoiu don't feel that you could give everything to your child just because you have CF. It really sounds like you hold yourself back on a lot in life because of CF. I chose to live my life to the fullest and not sit couped up like a mole just because I have CF. I love my son more than anything and as far as I'm concerned, that's what's most important.
krisjohn53223
New member
When we decided to have kids, we were not going to have my husband tested, but the hospital really encouraged it, and insurance paid for it, so we did. He is not a carrier. Although there are mutations that are unknown and there for can not be tested for. So, with that said, our son had <3% chance of having the disease and of course he is a carrier from me. We had him tested at 14 days old for the disease, and he does not have it. I will tell him someday he is a carrier and what he choses to do with it is his choice. Responding to sakakuka's comment, I'm sorry yoiu don't feel that you could give everything to your child just because you have CF. It really sounds like you hold yourself back on a lot in life because of CF. I chose to live my life to the fullest and not sit couped up like a mole just because I have CF. I love my son more than anything and as far as I'm concerned, that's what's most important.
krisjohn53223
New member
When we decided to have kids, we were not going to have my husband tested, but the hospital really encouraged it, and insurance paid for it, so we did. He is not a carrier. Although there are mutations that are unknown and there for can not be tested for. So, with that said, our son had <3% chance of having the disease and of course he is a carrier from me. We had him tested at 14 days old for the disease, and he does not have it. I will tell him someday he is a carrier and what he choses to do with it is his choice. Responding to sakakuka's comment, I'm sorry yoiu don't feel that you could give everything to your child just because you have CF. It really sounds like you hold yourself back on a lot in life because of CF. I chose to live my life to the fullest and not sit couped up like a mole just because I have CF. I love my son more than anything and as far as I'm concerned, that's what's most important.
krisjohn53223
New member
When we decided to have kids, we were not going to have my husband tested, but the hospital really encouraged it, and insurance paid for it, so we did. He is not a carrier. Although there are mutations that are unknown and there for can not be tested for. So, with that said, our son had <3% chance of having the disease and of course he is a carrier from me. We had him tested at 14 days old for the disease, and he does not have it. I will tell him someday he is a carrier and what he choses to do with it is his choice. Responding to sakakuka's comment, I'm sorry yoiu don't feel that you could give everything to your child just because you have CF. It really sounds like you hold yourself back on a lot in life because of CF. I chose to live my life to the fullest and not sit couped up like a mole just because I have CF. I love my son more than anything and as far as I'm concerned, that's what's most important.
krisjohn53223
New member
When we decided to have kids, we were not going to have my husband tested, but the hospital really encouraged it, and insurance paid for it, so we did. He is not a carrier. Although there are mutations that are unknown and there for can not be tested for. So, with that said, our son had <3% chance of having the disease and of course he is a carrier from me. We had him tested at 14 days old for the disease, and he does not have it. I will tell him someday he is a carrier and what he choses to do with it is his choice. Responding to sakakuka's comment, I'm sorry yoiu don't feel that you could give everything to your child just because you have CF. It really sounds like you hold yourself back on a lot in life because of CF. I chose to live my life to the fullest and not sit couped up like a mole just because I have CF. I love my son more than anything and as far as I'm concerned, that's what's most important.
krisjohn53223
New member
When we decided to have kids, we were not going to have my husband tested, but the hospital really encouraged it, and insurance paid for it, so we did. He is not a carrier. Although there are mutations that are unknown and there for can not be tested for. So, with that said, our son had <3% chance of having the disease and of course he is a carrier from me. We had him tested at 14 days old for the disease, and he does not have it. I will tell him someday he is a carrier and what he choses to do with it is his choice. Responding to sakakuka's comment, I'm sorry yoiu don't feel that you could give everything to your child just because you have CF. It really sounds like you hold yourself back on a lot in life because of CF. I chose to live my life to the fullest and not sit couped up like a mole just because I have CF. I love my son more than anything and as far as I'm concerned, that's what's most important.
lightNlife
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>spacemom</b></i>Is there anyone who plain chose to not have biologic kids? Did anyone adopt?
</end quote></div>
Even from before we were married, my husband and I were of the mindset that we would be a family of two. To read more about our decision and our thoughts on it, please visit my blog.
<a target=_blank class=ftalternatingbarlinklarge href="http://livingwellwithcf.blogspot.com/search?q=family+of+two">A Family of Two</a>
Our decision was not because I was afraid I wouldn't get to see a kid grow up. It wasn't because I didn't want a child to have to bear the pain of losing a parent. Parenting is simply not our calling in life.
</end quote></div>
Even from before we were married, my husband and I were of the mindset that we would be a family of two. To read more about our decision and our thoughts on it, please visit my blog.
<a target=_blank class=ftalternatingbarlinklarge href="http://livingwellwithcf.blogspot.com/search?q=family+of+two">A Family of Two</a>
Our decision was not because I was afraid I wouldn't get to see a kid grow up. It wasn't because I didn't want a child to have to bear the pain of losing a parent. Parenting is simply not our calling in life.
lightNlife
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>spacemom</b></i>Is there anyone who plain chose to not have biologic kids? Did anyone adopt?
</end quote></div>
Even from before we were married, my husband and I were of the mindset that we would be a family of two. To read more about our decision and our thoughts on it, please visit my blog.
<a target=_blank class=ftalternatingbarlinklarge href="http://livingwellwithcf.blogspot.com/search?q=family+of+two">A Family of Two</a>
Our decision was not because I was afraid I wouldn't get to see a kid grow up. It wasn't because I didn't want a child to have to bear the pain of losing a parent. Parenting is simply not our calling in life.
</end quote></div>
Even from before we were married, my husband and I were of the mindset that we would be a family of two. To read more about our decision and our thoughts on it, please visit my blog.
<a target=_blank class=ftalternatingbarlinklarge href="http://livingwellwithcf.blogspot.com/search?q=family+of+two">A Family of Two</a>
Our decision was not because I was afraid I wouldn't get to see a kid grow up. It wasn't because I didn't want a child to have to bear the pain of losing a parent. Parenting is simply not our calling in life.
lightNlife
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>spacemom</b></i>Is there anyone who plain chose to not have biologic kids? Did anyone adopt?
</end quote></div>
Even from before we were married, my husband and I were of the mindset that we would be a family of two. To read more about our decision and our thoughts on it, please visit my blog.
<a target=_blank class=ftalternatingbarlinklarge href="http://livingwellwithcf.blogspot.com/search?q=family+of+two">A Family of Two</a>
Our decision was not because I was afraid I wouldn't get to see a kid grow up. It wasn't because I didn't want a child to have to bear the pain of losing a parent. Parenting is simply not our calling in life.
</end quote></div>
Even from before we were married, my husband and I were of the mindset that we would be a family of two. To read more about our decision and our thoughts on it, please visit my blog.
<a target=_blank class=ftalternatingbarlinklarge href="http://livingwellwithcf.blogspot.com/search?q=family+of+two">A Family of Two</a>
Our decision was not because I was afraid I wouldn't get to see a kid grow up. It wasn't because I didn't want a child to have to bear the pain of losing a parent. Parenting is simply not our calling in life.
lightNlife
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>spacemom</b></i>Is there anyone who plain chose to not have biologic kids? Did anyone adopt?
</end quote></div>
Even from before we were married, my husband and I were of the mindset that we would be a family of two. To read more about our decision and our thoughts on it, please visit my blog.
<a target=_blank class=ftalternatingbarlinklarge href="http://livingwellwithcf.blogspot.com/search?q=family+of+two">A Family of Two</a>
Our decision was not because I was afraid I wouldn't get to see a kid grow up. It wasn't because I didn't want a child to have to bear the pain of losing a parent. Parenting is simply not our calling in life.
</end quote></div>
Even from before we were married, my husband and I were of the mindset that we would be a family of two. To read more about our decision and our thoughts on it, please visit my blog.
<a target=_blank class=ftalternatingbarlinklarge href="http://livingwellwithcf.blogspot.com/search?q=family+of+two">A Family of Two</a>
Our decision was not because I was afraid I wouldn't get to see a kid grow up. It wasn't because I didn't want a child to have to bear the pain of losing a parent. Parenting is simply not our calling in life.